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Metachromatic Leukodystrophy

Finding a Name

Erica Barnes | Posted 05.13.2016 | Impact
Erica Barnes

In 2014, Philip and I founded the Chloe's Fight Rare Disease Foundation whose mission it is to fund research that finds treatments for rare and underfunded diseases such as metachromatic leukodystrophy. We are often called heroes but we aren't.

The Only Way I Know How To Celebrate My Dying Daughter's Birthday

Maria Kefalas | Posted 02.08.2014 | Parents
Maria Kefalas

It's hard not to be angry and bitter when people ask, "So, what are you doing for your daughter's birthday?" So, for now, I will keep writing and selling cupcakes.