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Mitochondrial Diseases

How a Rare Disease Can Teach Us About Our Greatest Story

Smita Malhotra, M.D. | Posted 03.02.2016 | Healthy Living
Smita Malhotra, M.D.

When I earned my medical degree, I understood that it granted me the right to practice medicine. But over the years, I have learned that this degree has also given me the great honor and privilege to hear people's stories. I have been given a front row seat in the class of the human condition.

I Don't Care If You Stare At My Feeding Tube

Michaela Shelley | Posted 06.22.2015 | Teen
Michaela Shelley

My personal motto is never be ashamed of something that keeps you alive. That's what I've stuck with. My tubes are my lifeline and without them I would literally drop dead.

Mitochondrial Mission Creep and the Cloning Connection

Pete Shanks | Posted 04.20.2015 | Science
Pete Shanks

On Tuesday February 3, the UK House of Commons voted in favor of legalizing nuclear transfer so that a small number of women with a particular subset of mitochondrial disease could try to have unaffected and genetically related children.

Which GOP Candidate Will Adopt the 'Three-Parent Embryo'?

Jonathan D. Moreno | Posted 04.15.2015 | Politics
Jonathan D. Moreno

Just as embryonic stem cell research was the sentinel cultural issue for the last several presidential campaigns, the three-parent embryo could well be adopted by one of the more socially conservative candidates. These issues aren't only of concern to conservatives, but they tend to be of greater symbolic importance to activist voters in the GOP than among Democrats.

Churches Staunchly Oppose Scientists' Plan To Create Babies With Three Parents

BBC | Posted 02.03.2015 | Religion

Senior church figures have called on the UK government to block the creation of babies from three people. The Church of England and the Catholic Ch...

Deceptive Labeling of a Radical Embryo Construction Technique

Stuart A. Newman | Posted 01.31.2015 | Science
Stuart A. Newman

A kind of omertà among scientists and bioethicists has prevented a significant number of them from representing to the HFEA and FDA, and the press, the gravity of these alterations. But the health implications and the eugenic outcomes these procedures would enable are too great to ignore.

"Three-Person IVF" Update Reveals How Little We Know

Jessica Cussins | Posted 08.05.2014 | Science
Jessica Cussins

Three-person IVF is a critical departure from the traditional kind. This new and biologically extreme technique, which has generated scientific and bioethical controversy on both sides of the Atlantic, would combine genetic material from one man and two women in a single embryo.

First, Do No Harm: How We Failed Justina Pelletier and Her Family

Cristy Balcells | Posted 04.25.2014 | Science
Cristy Balcells

Justina Pelletier has been in the news lately. She's a 15-year-old girl from West Hartford, CT who loves ice skating and going to the mall with friends. However, she's not in the news for her accomplishments.

A Former IVF Baby on "Three-Parent IVF"

Jessica Cussins | Posted 01.23.2014 | Science
Jessica Cussins

There are large social and ethical considerations that mitochondrial replacement forces us to confront. Most importantly, this technology raises one of the thorniest questions humanity will ever face: are we willing to genetically modify future generations of humans?

Why Is Doing Good So Hard?

C. Ugent | Posted 01.23.2014 | Business
C. Ugent

Necessity is the Mother From the hospital, I called a patent attorney. I didn't have much else to do, and I was tired of hearing myself complain. ...

My Hero, Stephen

Bill Marriott | Posted 08.25.2013 | DC
Bill Marriott

No parent should have to see their child die, and those who do are members of a club that no one wants to belong to. Donna and I lost our dear son, Stephen, this week at the age of 54.