iOS app Android app

Muscular Dystrophy

New Technology May Lead To Groundbreaking Cures For Challenging Diseases

The Huffington Post | Lila Shapiro | Posted 11.28.2015 | Science

Thanks to the controversial new technology known as CRISPR, scientists are beginning to make headway in understanding and potentially curing some of ...

Dear Chancellor Foley: Mizzou Must Stand With Planned Parenthood

Jessi D. Miller | Posted 11.23.2015 | Politics
Jessi D. Miller

You have the power to reverse the damage your predecessor's actions have caused for women like me who seek services from Planned Parenthood. I know I am not alone, Mr. Foley. There are thousands of us with an actual need for Planned Parenthood's services in mid-Missouri.

How One Dad Changed The Halloween Game For Kids In Wheelchairs

The Huffington Post | Kira Brekke | Posted 10.30.2015 | Parents

When Keaton, a 10-year-old boy with muscular dystrophy, told his dad he wanted to be a pirate for Halloween in 2008, his wheelchair could...

How Jerry Lewis Seduced Me

Petra Perkins | Posted 08.26.2015 | Entertainment
Petra Perkins

In the tradition of Same Time, Next Year where Alan Alda and Ellen Burstyn trysted annually for a quarter century, I was intimate with Jerry Lewis, every September. I'd meet him on Labor Day and we'd spend the entire night together. Drinks, dinner.

WATCH: L.A. Filmmaker Honors Quadriplegic Friend With Inspirational Movie

HooplaHa | Posted 08.26.2015 | Good News

At the age of seven months, Christopher Rush was diagnosed with muscular dystrophy, and his parents were told he would be "no more than a dishrag, and dead by the age of two." Christopher lived to 30, and in that time he achieved more than most able-bodied people do in a lifetime.

Family With 4 Siblings Who Have Muscular Dystrophy Needs Help Getting Safe, Accessible Home

The Huffington Post | Eleanor Goldberg | Posted 07.28.2015 | Impact

Updated on July 27, 2015 at 11 a.m. EST.  For the Herzfelds, just getting around the house has become impossible these days. All four siblings in...

Muscular Dystrophy Group Pulls The Plug On Its Jerry Lewis Telethon

Reuters | Posted 05.01.2015 | Entertainment

LOS ANGELES, May 1 (Reuters) - The Muscular Dystrophy Association (MDA) said Friday it will end its long-standing Labor Day telethon, aired on the A...

For Past 3 Years, Teen Has Carried Fellow Student Who Has Muscular Dystrophy To Class

The Huffington Post | Kimberly Yam | Posted 04.28.2015 | Good News

Now this is friendship. Xie Xu, an 18-year-old high school student from China has been carrying his friend, Zhang Chi, a 19-year-old who has muscu...

How My Progressive Disease Taught Me That It's Okay To Be Human

Kristin Duquette | Posted 05.12.2015 | Healthy Living
Kristin Duquette

Facts are facts, there's no doubt about that, but the human spirit is truly immeasurable. No matter how immobile a person may be, the human spirit can light up a room. The human spirit is more powerful than the adversity we face. My spirit is bigger than a scientific diagnosis and weak muscles.

Just Believe

Donnie Demers | Posted 02.20.2015 | Good News
Donnie Demers

A little over two years ago, my life began to implode. I found myself confronting issues that I had been trying to suppress for years. It wasn't drug addiction or alcoholism, nor was it depression or abuse. I was struggling with the complications of living with a neuromuscular disorder.

Why The Hell Do I Deserve This?

Yaniv Aviran | Posted 02.18.2015 | Impact
Yaniv Aviran

I don't think I would have had the time to study what I've always wanted, start my own business, travel the world, give lectures in lots of different places and publish a children's book, without knowing that the most limited thing I've got is my time here on earth.

This Ben 10 Is a Basketball Player

Carl Berman | Posted 02.04.2015 | Sports
Carl Berman

Here's a great example of how sports can enhance the lives of everyone participating.

Why I Choose to Ignore My Medical Chart

Yaniv Aviran | Posted 01.11.2015 | Impact
Yaniv Aviran

When I look in the mirror I remember the toughness of my situation. Even among the other handicapped people, I'm considered a "worse case scenario." And there is pain sometimes. Nothing is simple, and sure, I had to give up on some childhood dreams but so what? There isn't one great movie without a plot twist.

How a Trip to The Museum Changed My Life

Kalyani Sharma | Posted 11.02.2014 | College
Kalyani Sharma

At the end of the day, I was ashamed at the fact that I originally saw the afternoon as an obligation, when it ultimately proved to be a privilege and an uplifting experience.

The Power of a Selfie

Kristin Duquette | Posted 09.08.2014 | Impact
Kristin Duquette

I've always been a bit self-conscious about people taking my picture; especially when the photographer asks me to smile more; unbeknownst that I have a condition which weakens my facial muscles.

Remembering Mattie Stepanek 10 Years After His Death

OWN | Posted 06.24.2014 | OWN

Back in 2001, Oprah introduced the world to an extraordinary little boy: poet, peacemaker and philosopher Mattie Stepanek. The 11-year-old, who was wi...

President Obama Could Help Save Dying Children, But Apparently He Prefers Budweiser

Tracy Seckler | Posted 08.04.2014 | Impact
Tracy Seckler

On March 27, the very day we reached 100,000 signatures, another petition on the White House's We the People website also hit the mark. Sponsored by Budweiser and promoted through a professional ad campaign, "Declare Major League Baseball Opening Day a National Holiday" has already been graced with an official White House reply.

A Lay (Wo)mans Description; FSHD Muscular Dystrophy 101

Trisha Lynn Sprayberry | Posted 07.10.2014 | Impact
Trisha Lynn Sprayberry

At some point in time when we are in a conversation with someone who is disabled, we always come to the point that somebody will ask "What do you have?"

Semper Fi

Sarah Smiley | Posted 06.11.2014 | Parents
Sarah Smiley

So it was, on the day set aside for fathers and their children, Marc went home to be with his dad, where this time the Marine stood waiting for his son. Semper Fi.

This 'Happy' Flash Mob Wants To Save A Sick Boy's Life

The Huffington Post | Eleanor Goldberg | Posted 03.21.2014 | Impact

We’ve seen plenty of heartwarming flash mobs, but none with quite as bold of a mission as the crew that just came out of Colorado. On Tuesday, a...

This Kid's Rendition Of The Lumineers' 'Ho Hey' Is Inspiring

Posted 03.17.2014 | Good News

Last June, when Van Bernard performed with his music therapist, Tom Curry, at the Walk for Muscular Dystrophy in Halifax, Nova Scotia, the 6-year-old ...

Accommodating People With Disabilities

Trisha Lynn Sprayberry | Posted 05.10.2014 | Impact
Trisha Lynn Sprayberry

After two years of deploying every considered option, I was on a road to nowhere, all because I needed to find a way to acquire a wheelchair accessible vehicle now that I am permanently wheelchair bound.

The Gift My Disability Gave Me

Trisha Lynn Sprayberry | Posted 05.06.2014 | Impact
Trisha Lynn Sprayberry

Sometimes the only way we are able to change our perspective is because our perspective is changed for us.

The Strength I Found Through Physical Activity

Kristin Duquette | Posted 04.22.2014 | Sports
Kristin Duquette

Even before I was diagnosed at age nine, swimming as a child established the neural pathways and mental memory in my brain which became evident when I retaught a different body how to swim after a six-year break.

My Daughter Who Almost Wasn't

Trisha Lynn Sprayberry | Posted 04.15.2014 | Impact
Trisha Lynn Sprayberry

I however share a more intrinsic view. My child, even unborn, is a person of their own. Because her life itself is life, growing and developing, albeit within my body, but still her very own.