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Muscular Dystrophy

How My Progressive Disease Taught Me That It's Okay To Be Human

Kristin Duquette | Posted 03.16.2015 | Healthy Living
Kristin Duquette

Facts are facts, there's no doubt about that, but the human spirit is truly immeasurable. No matter how immobile a person may be, the human spirit can light up a room. The human spirit is more powerful than the adversity we face. My spirit is bigger than a scientific diagnosis and weak muscles.

Just Believe

Donnie Demers | Posted 02.20.2015 | Good News
Donnie Demers

A little over two years ago, my life began to implode. I found myself confronting issues that I had been trying to suppress for years. It wasn't drug addiction or alcoholism, nor was it depression or abuse. I was struggling with the complications of living with a neuromuscular disorder.

Why The Hell Do I Deserve This?

Yaniv Aviran | Posted 02.18.2015 | Impact
Yaniv Aviran

I don't think I would have had the time to study what I've always wanted, start my own business, travel the world, give lectures in lots of different places and publish a children's book, without knowing that the most limited thing I've got is my time here on earth.

This Ben 10 Is a Basketball Player

Carl Berman | Posted 02.04.2015 | Sports
Carl Berman

Here's a great example of how sports can enhance the lives of everyone participating.

Why I Choose to Ignore My Medical Chart

Yaniv Aviran | Posted 01.11.2015 | Impact
Yaniv Aviran

When I look in the mirror I remember the toughness of my situation. Even among the other handicapped people, I'm considered a "worse case scenario." And there is pain sometimes. Nothing is simple, and sure, I had to give up on some childhood dreams but so what? There isn't one great movie without a plot twist.

How a Trip to The Museum Changed My Life

Kalyani Sharma | Posted 11.02.2014 | College
Kalyani Sharma

At the end of the day, I was ashamed at the fact that I originally saw the afternoon as an obligation, when it ultimately proved to be a privilege and an uplifting experience.

The Power of a Selfie

Kristin Duquette | Posted 09.08.2014 | Impact
Kristin Duquette

I've always been a bit self-conscious about people taking my picture; especially when the photographer asks me to smile more; unbeknownst that I have a condition which weakens my facial muscles.

Remembering Mattie Stepanek 10 Years After His Death

OWN | Posted 06.24.2014 | OWN

Back in 2001, Oprah introduced the world to an extraordinary little boy: poet, peacemaker and philosopher Mattie Stepanek. The 11-year-old, who was wi...

President Obama Could Help Save Dying Children, But Apparently He Prefers Budweiser

Tracy Seckler | Posted 08.04.2014 | Impact
Tracy Seckler

On March 27, the very day we reached 100,000 signatures, another petition on the White House's We the People website also hit the mark. Sponsored by Budweiser and promoted through a professional ad campaign, "Declare Major League Baseball Opening Day a National Holiday" has already been graced with an official White House reply.

A Lay (Wo)mans Description; FSHD Muscular Dystrophy 101

Trisha Lynn Sprayberry | Posted 07.10.2014 | Impact
Trisha Lynn Sprayberry

At some point in time when we are in a conversation with someone who is disabled, we always come to the point that somebody will ask "What do you have?"

Semper Fi

Sarah Smiley | Posted 06.11.2014 | Parents
Sarah Smiley

So it was, on the day set aside for fathers and their children, Marc went home to be with his dad, where this time the Marine stood waiting for his son. Semper Fi.

This 'Happy' Flash Mob Wants To Save A Sick Boy's Life

The Huffington Post | Eleanor Goldberg | Posted 03.21.2014 | Impact

We’ve seen plenty of heartwarming flash mobs, but none with quite as bold of a mission as the crew that just came out of Colorado. On Tuesday, a...

This Kid's Rendition Of The Lumineers' 'Ho Hey' Is Inspiring

Posted 03.17.2014 | Good News

Last June, when Van Bernard performed with his music therapist, Tom Curry, at the Walk for Muscular Dystrophy in Halifax, Nova Scotia, the 6-year-old ...

Accommodating People With Disabilities

Trisha Lynn Sprayberry | Posted 05.10.2014 | Impact
Trisha Lynn Sprayberry

After two years of deploying every considered option, I was on a road to nowhere, all because I needed to find a way to acquire a wheelchair accessible vehicle now that I am permanently wheelchair bound.

The Gift My Disability Gave Me

Trisha Lynn Sprayberry | Posted 05.06.2014 | Impact
Trisha Lynn Sprayberry

Sometimes the only way we are able to change our perspective is because our perspective is changed for us.

The Strength I Found Through Physical Activity

Kristin Duquette | Posted 04.22.2014 | Sports
Kristin Duquette

Even before I was diagnosed at age nine, swimming as a child established the neural pathways and mental memory in my brain which became evident when I retaught a different body how to swim after a six-year break.

My Daughter Who Almost Wasn't

Trisha Lynn Sprayberry | Posted 04.15.2014 | Impact
Trisha Lynn Sprayberry

I however share a more intrinsic view. My child, even unborn, is a person of their own. Because her life itself is life, growing and developing, albeit within my body, but still her very own.

The Struggle to Move Forward With Disability

Trisha Lynn Sprayberry | Posted 03.31.2014 | Impact
Trisha Lynn Sprayberry

Life is about taking control. It's about rising above the challenge's we are given. If it wasn't for the hardships, we could never appreciate life's wonders and blessings. This is how I became a disability advocate.

Labor Day Is America's Day for MDA!

Donnie Demers | Posted 10.29.2013 | Entertainment
Donnie Demers

Those were the lyrics to the National Jingle for Muscular Dystrophy's Jerry Lewis Telethon back in 1983. I should know, I wrote them. My oh my, have the times changed.

Teen Attacker: "What's Your Last Words Before You Die?"

AP | Posted 08.19.2013 | Crime

PITTSBURGH -- A Pittsburgh 15-year-old choked his physically disabled best friend over a girl and beat him until he was unconscious, then pushed his b...

Annual MDA Telethon Goes A New Way

AP | Posted 09.01.2012 | Impact

LOS ANGELES -- No tote board. No Jerry Lewis. And not from Las Vegas. An annual Muscular Dystrophy Association television fundraiser goes a new way S...

WATCH: Firefighters Get Very Odd Donation

The Huffington Post | Ron Dicker | Posted 08.20.2012 | Impact

Do-gooder with marital jewelry to spare? Or spouse with a lot of explaining to do? Cranston, R.I., firefighters suspect the latter after someone le...

My Pool Heroes

Rabbi Haviva Ner-David | Posted 06.30.2012 | Religion
Rabbi Haviva Ner-David

Although for me swimming is a solitary experience, a meditation, the people I have met at the various pools over the years and whose names I often don't even know have also helped me deal with my condition. I am certain they don't know it.

WATCH: Disabled Vet Exposes $61 Million Medicaid Scam

Posted 12.10.2011 | Impact

After nearly losing his life to negligent nursing care, a Vietnam veteran filed a whistleblower lawsuit that exposed a $61 million Medicaid scam, CNN....

In Jerry Lewis' Absence, MDA Telethon Asks U.S. To Raise Just $1 More Than Year Before

AP | By OSKAR GARCIA | Posted 11.04.2011 | Impact

By OSKAR GARCIA, Associated Press LAS VEGAS -- Although absent its biggest star in Jerry Lewis, the Muscular Dystrophy Association is asking millions...