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Notes From a Dragon Mom

Farah L. Miller

Author Of 'Notes from a Dragon Mom' On Her Son Ronan, Her Memoir And Grief

HuffingtonPost.com | Farah L. Miller | Posted 03.21.2013 | Parents

“He was totally helpless. That makes me want to live a big life because he never got to make any decisions on his own.”

Ronan's Diagnosis

Emily Rapp | Posted 05.10.2013 | Parents
Emily Rapp

On January 10, 2011, my husband, Rick, and I received the worst possible news: that our son, Ronan, then nine months old, had Tay-Sachs disease, a rare, progressive and always fatal condition with no treatment and no cure.