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Patient Advocacy

At the Intersections of Medicine and Technology

Michael Finkelstein, MD | Posted 01.19.2016 | Impact
Michael Finkelstein, MD

I recently spoke with Jeff Arnold - CEO of Sharecare and founder of WebMD - about his work at the intersection of medicine and technology. Here are ex...

Shared Decision Making a Fantasy as Task Force Recommendations Put Women With Dense Breast Tissue at Risk for Undetected Cancers

Nancy M. Cappello, Ph.D. | Posted 01.18.2016 | Healthy Living
Nancy M. Cappello, Ph.D.

Despite touting the importance of shared decision making and empowering patients with information about benefits and harms of preventive services, the...

Black Hospital Patients Given Cold Shoulder In Disturbing New Study

The Huffington Post | David Freeman | Posted 01.11.2016 | Science

Could the color of your skin affect the medical care you get at the end of your life? A disturbing new study published in the January issue of t...

Back to the Future With Breast Density

Nancy M. Cappello, Ph.D. | Posted 12.09.2015 | Healthy Living
Nancy M. Cappello, Ph.D.

In 2004, I was diagnosed with advanced stage 3C breast cancer. My 2.5 cm tumor, illuminated on ultrasound, was invisible by mammogram. Stunned that m...

What the Planned Parenthood Shooting Means for Medicine

Tehreem Rehman | Posted 12.07.2015 | Politics
Tehreem Rehman

The horrific shooting at Planned Parenthood in Colorado Springs that left three dead serves as a stark reminder of the grave consequences of inflammatory politic rhetoric and poor legislation.

The Intersection of 60th and 6th

Bob Tufts | Posted 10.30.2015 | Healthy Living
Bob Tufts

I have a lot to be thankful for this November, and celebrating this day with people who reached out to me and my family during our time of crisis is where I want to be today. I lift a glass and say thanks to friends, family and medical professionals whose actions and words helped make today's birthday happen.

Too Young for a Mammogram? Too Average? The Discussion Continues

Diane L. Danois, J.D. | Posted 10.28.2015 | Women
Diane L. Danois, J.D.

After decades of educating the public about the importance of early detection, the new guidelines are indeed confusing and controversial. In the new guidelines, the recommended age for annual screening mammography was increased from age 40 to age 45 for women "of average risk for breast cancer."

Beyond the Mammogram: 11 Awareness Facts I Discovered After My Advanced Breast Cancer Diagnosis

Nancy M. Cappello, Ph.D. | Posted 09.25.2015 | Healthy Living
Nancy M. Cappello, Ph.D.

In recognition of my 11 years engulfed in patient breast health advocacy, I present 11 Awareness Facts that, at the time of my diagnosis, were unaware to me.

A Defining Moment in Health Care

Bob Tufts | Posted 08.05.2015 | Healthy Living
Bob Tufts

It is difficult enough for patients to cope with the shock of being told by a physician that they have a chronic disease. As laymen, it is also toug...

The 'Demanding Patient'?

Bob Tufts | Posted 07.13.2015 | Healthy Living
Bob Tufts

Our only "demands" are that we and our physicians have the time to properly address our health questions and that we both have access to and choice in treatments without "unnecessary" obstacles being placed in our path.

World Sickle Cell Day: Why It Matters to Everybody

Edda Collins Coleman | Posted 06.24.2015 | Healthy Living
Edda Collins Coleman

Your baby is crying, and you don't know why. You've followed the rules for Parenting 101 and your little one is fed, dry and cuddled. Yet, he's still ...

Being Vocal for Mental Health

Dr. Victor Schwartz | Posted 06.01.2015 | Impact
Dr. Victor Schwartz

What does it mean to be "aware" of mental health though? Of what should we be aware?

Hepatitis C -- The Long Goodbye

Jennifer Connolly | Posted 05.13.2015 | Women
Jennifer Connolly

The long goodbye is often used to describe the drawn out fading of a person's mind, who is suffering from Alzheimer's disease. But for my mom, it was because of Hepatitis C.

Why Rita Wilson's Message Matters for Everyone

Darryle Pollack | Posted 06.16.2015 | Fifty
Darryle Pollack

Rita's example illustrates a relatively recent shift in health care, with decisions not handed down by the doctor from above but made by as a partnership between the doctor and the patient.

The Roller Coaster Ride to Living: My Bones or My Breasts?

Nancy M. Cappello, Ph.D. | Posted 06.10.2015 | Healthy Living
Nancy M. Cappello, Ph.D.

It's time for another decision in the roller coaster ride to survivorship. Do I worry more about recurring breast cancer or a fracture from falling, as each can be fatal?

Be Your Own Advocate

Kayla Redig | Posted 01.21.2015 | Healthy Living
Kayla Redig

Cancer was the first time in my life where I had to be an advocate for myself. Maybe it's pathetic that it took a threat to my life to learn to speak up, but regardless it's a lesson I will never forget.

Be Your Own Patient Advocate

Tanya Rasa | Posted 01.17.2015 | Healthy Living
Tanya Rasa

At age 12, I was diagnosed with scoliosis, an abnormal curvature of the spine, during a school health screening. It was my first experience of being my own health care advocate, and I learned the importance of conducting research, including asking questions, and going with your intuition.

Treatment Before Tragedy: A Mother's Plea

Allen Frances | Posted 10.20.2014 | Politics
Allen Frances

Liza Long is the mother of a son who has bipolar disorder. When her post-Newtown blog post "I Am Adam Lanza's Mother" went viral, she decided that she had to speak up for children like her son. Her goal is to expose the gaping cracks in our badly broken mental healthcare system.

Our Lives Are Worth It

Bob Tufts | Posted 10.18.2014 | Impact
Bob Tufts

Far from "driving up overall health care costs," my at-home treatment keeps me out of the hospital where I would risk infection, lose time and be a far more expensive burden on the health care system. Our lives ARE worth it -- to us, our families and friends, to the health care system and to society at large.

The Patient as Person -- and as Stakeholder

Bob Tufts | Posted 08.06.2014 | Healthy Living
Bob Tufts

As someone diagnosed with multiple myeloma in 2009, I sincerely applaud those who represent patient's interests on a daily basis, but actual patients need to be directly included in the crucial conversation about cost and value.

The Fragmentation Monster Under My Bed: A Researcher's Worst Nightmare

Heidi Adams | Posted 06.09.2014 | Healthy Living
Heidi Adams

One of the biggest challenges we face in the field of young adult cancer is a lack of evidence. As a researcher in the young adult cancer arena, this makes me feel like I'm chasing my tail. So today I am grateful for National Young Adult Cancer Awareness Week.

Advances in the Young Adult Cancer Movement: Why SAYAO Is a Big Deal

Emily Drake | Posted 02.15.2014 | Healthy Living
Emily Drake

The AYA cancer patient advocate movement has gained tremendous momentum in the last few years. However, it is imperative that health professionals become invested and educated on the needs of this unique group of patients in order for their health-related needs to be met.

New, Metastatic Breast Cancer Alliance Sets a Cooperative Tone

Dr. Elaine Schattner | Posted 01.23.2014 | Impact
Dr. Elaine Schattner

This October, there's some encouraging news on the breast cancer front. Yes, there are new drugs in the pipeline and ongoing trials -- the same old, real progress, slow as usual. Until last week, that is, when there came a hint of meaningful change in the breast cancer community.

The Mammogram Assault! It Doesn't Have to Happen to You!

Kathleen Reardon | Posted 10.19.2013 | Healthy Living
Kathleen Reardon

A mammography unit that won't do its best to make you comfortable shouldn't be in business. You wouldn't normally volunteer for a colonoscopy where they had run out of anesthetic -- so why volunteer to be abused during a mammogram because they don't train their technicians properly?

Building Trust in Less Than 10 Minutes

Scott Finkelstein, M.D. | Posted 09.17.2013 | Healthy Living
Scott Finkelstein, M.D.

Building trust is not easy. It is typically earned over time, through shared experiences and tests of loyalty. In medicine, and in the field of anesthesiology in particular, the luxury of time is unavailable. Trust needs to be built in a matter of minutes.