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Patient Advocacy

More Than 80 Percent Of Patient Advocacy Groups Accept Industry Money

Reuters | Erin Schumaker | Posted 03.03.2017 | Healthy Living

(Reuters Health) - An examination of more than a hundred of the largest U.S. nonprofit organizations created to improve health and fight disease has f...

An Inconvenient Truth: Implementing Solutions To Screening The Dense Breast To Avoid Winners And Losers

Nancy M. Cappello, Ph.D. | Posted 08.01.2016 | Healthy Living
Nancy M. Cappello, Ph.D.

Until the breast screening community embraces tailored screening for women with dense breast tissue to reduce risk of advanced disease, preventable fatalities will continue.

The Manic World of Social Media and Breast Cancer: Gratitude and Grief

Nancy M. Cappello, Ph.D. | Posted 05.31.2016 | Healthy Living
Nancy M. Cappello, Ph.D.

While my heart and soul grieve from the death of friends from breast cancer, it also motivates me to continue to advocate for density reporting and education and access to multi-modal screening to reduce advanced disease and premature death from breast cancer.

10 Ways to Save Your Life or the Life of a Loved One

Jamie Leigh Wells, MD, FAAP | Posted 05.03.2016 | Healthy Living
Jamie Leigh Wells, MD, FAAP

As a physician, I take very seriously my oath first to do no harm. This is true of most doctors. However, as the disconnect and gap between policy and practice widens, caregivers are increasingly embattled.

Who Nurses Really Are: Part 2 of an Education Do-Over

Billy Rosa | Posted 04.05.2016 | Healthy Living
Billy Rosa

We are the men and women committed to ethical and equitable health care delivery in the face of rapidly changing and uncertain times. We are your advocates, health care leaders, coaches, and care coordinators. We are your nurses.

Advocacy Drives Medical Progress Forward

Mary Woolley | Posted 04.05.2016 | Politics
Mary Woolley

We should and must continue to invest sufficiently in research to keep pace with scientific opportunity. Congress must increase funding for the NIH by at least 10 percent ($3.2 billion) in FY17 to help patients like Lorri who are determined to find solutions to what ails us.

What Nurses Really Contribute to Health Care: Part 1 of an Education Do-Over

Billy Rosa | Posted 03.31.2016 | Healthy Living
Billy Rosa

There is so much to say about this profession that goes unexplored and unpublicized, and yet, nurses continue to be at the forefront of patient care delivery every step of the way.

Protecting the Patient-Consumer From Later-Stage Cancer: Learning From Connecticut's Breast Density Laws

Nancy M. Cappello, Ph.D. | Posted 03.12.2017 | Healthy Living
Nancy M. Cappello, Ph.D.

Connecticut radiologists, once in opposition to density reporting laws, have demonstrated through its data in clinical settings what has been in the literature for more than two decades.

At the Intersections of Medicine and Technology

Michael Finkelstein, MD | Posted 01.18.2017 | Impact
Michael Finkelstein, MD

I recently spoke with Jeff Arnold - CEO of Sharecare and founder of WebMD - about his work at the intersection of medicine and technology. Here are ex...

Shared Decision Making a Fantasy as Task Force Recommendations Put Women With Dense Breast Tissue at Risk for Undetected Cancers

Nancy M. Cappello, Ph.D. | Posted 01.18.2017 | Healthy Living
Nancy M. Cappello, Ph.D.

Despite touting the importance of shared decision making and empowering patients with information about benefits and harms of preventive services, the...

Black Hospital Patients Given Cold Shoulder In Disturbing New Study

The Huffington Post | David Freeman | Posted 01.11.2016 | Science

Could the color of your skin affect the medical care you get at the end of your life? A disturbing new study published in the January issue of the Jou...

Back to the Future With Breast Density

Nancy M. Cappello, Ph.D. | Posted 12.09.2016 | Healthy Living
Nancy M. Cappello, Ph.D.

In 2004, I was diagnosed with advanced stage 3C breast cancer. My 2.5 cm tumor, illuminated on ultrasound, was invisible by mammogram. Stunned that m...

What the Planned Parenthood Shooting Means for Medicine

Tehreem Rehman | Posted 12.04.2016 | Politics
Tehreem Rehman

The horrific shooting at Planned Parenthood in Colorado Springs that left three dead serves as a stark reminder of the grave consequences of inflammatory politic rhetoric and poor legislation.

The Intersection of 60th and 6th

Bob Tufts | Posted 10.30.2016 | Healthy Living
Bob Tufts

I have a lot to be thankful for this November, and celebrating this day with people who reached out to me and my family during our time of crisis is where I want to be today. I lift a glass and say thanks to friends, family and medical professionals whose actions and words helped make today's birthday happen.

Too Young for a Mammogram? Too Average? The Discussion Continues

Diane L. Danois, J.D. | Posted 10.28.2016 | Women
Diane L. Danois, J.D.

After decades of educating the public about the importance of early detection, the new guidelines are indeed confusing and controversial. In the new guidelines, the recommended age for annual screening mammography was increased from age 40 to age 45 for women "of average risk for breast cancer."

Beyond the Mammogram: 11 Awareness Facts I Discovered After My Advanced Breast Cancer Diagnosis

Nancy M. Cappello, Ph.D. | Posted 09.25.2016 | Healthy Living
Nancy M. Cappello, Ph.D.

In recognition of my 11 years engulfed in patient breast health advocacy, I present 11 Awareness Facts that, at the time of my diagnosis, were unaware to me.

A Defining Moment in Health Care

Bob Tufts | Posted 08.05.2016 | Healthy Living
Bob Tufts

It is difficult enough for patients to cope with the shock of being told by a physician that they have a chronic disease. As laymen, it is also tough ...

The 'Demanding Patient'?

Bob Tufts | Posted 07.13.2016 | Healthy Living
Bob Tufts

Our only "demands" are that we and our physicians have the time to properly address our health questions and that we both have access to and choice in treatments without "unnecessary" obstacles being placed in our path.

World Sickle Cell Day: Why It Matters to Everybody

Edda Collins Coleman | Posted 06.18.2016 | Healthy Living
Edda Collins Coleman

Your baby is crying, and you don't know why. You've followed the rules for Parenting 101 and your little one is fed, dry and cuddled. Yet, he's still ...

Being Vocal for Mental Health

Dr. Victor Schwartz | Posted 05.29.2016 | Impact
Dr. Victor Schwartz

What does it mean to be "aware" of mental health though? Of what should we be aware?

Hepatitis C -- The Long Goodbye

Jennifer Connolly | Posted 05.13.2016 | Women
Jennifer Connolly

The long goodbye is often used to describe the drawn out fading of a person's mind, who is suffering from Alzheimer's disease. But for my mom, it was because of Hepatitis C.

Why Rita Wilson's Message Matters for Everyone

Darryle Pollack | Posted 06.16.2015 | Fifty
Darryle Pollack

Rita's example illustrates a relatively recent shift in health care, with decisions not handed down by the doctor from above but made by as a partnership between the doctor and the patient.

The Roller Coaster Ride to Living: My Bones or My Breasts?

Nancy M. Cappello, Ph.D. | Posted 06.10.2015 | Healthy Living
Nancy M. Cappello, Ph.D.

It's time for another decision in the roller coaster ride to survivorship. Do I worry more about recurring breast cancer or a fracture from falling, as each can be fatal?

Be Your Own Advocate

Kayla Redig | Posted 01.21.2015 | Healthy Living
Kayla Redig

Cancer was the first time in my life where I had to be an advocate for myself. Maybe it's pathetic that it took a threat to my life to learn to speak up, but regardless it's a lesson I will never forget.

Be Your Own Patient Advocate

Tanya Rasa | Posted 01.17.2015 | Healthy Living
Tanya Rasa

At age 12, I was diagnosed with scoliosis, an abnormal curvature of the spine, during a school health screening. It was my first experience of being my own health care advocate, and I learned the importance of conducting research, including asking questions, and going with your intuition.