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Patient Advocacy

Be Your Own Advocate

Kayla Redig | Posted 11.21.2014 | Healthy Living
Kayla Redig

Cancer was the first time in my life where I had to be an advocate for myself. Maybe it's pathetic that it took a threat to my life to learn to speak up, but regardless it's a lesson I will never forget.

Be Your Own Patient Advocate

Tanya Rasa | Posted 11.17.2014 | Healthy Living
Tanya Rasa

At age 12, I was diagnosed with scoliosis, an abnormal curvature of the spine, during a school health screening. It was my first experience of being my own health care advocate, and I learned the importance of conducting research, including asking questions, and going with your intuition.

Treatment Before Tragedy: A Mother's Plea

Allen Frances | Posted 10.20.2014 | Politics
Allen Frances

Liza Long is the mother of a son who has bipolar disorder. When her post-Newtown blog post "I Am Adam Lanza's Mother" went viral, she decided that she had to speak up for children like her son. Her goal is to expose the gaping cracks in our badly broken mental healthcare system.

Our Lives Are Worth It

Bob Tufts | Posted 10.18.2014 | Impact
Bob Tufts

Far from "driving up overall health care costs," my at-home treatment keeps me out of the hospital where I would risk infection, lose time and be a far more expensive burden on the health care system. Our lives ARE worth it -- to us, our families and friends, to the health care system and to society at large.

The Patient as Person -- and as Stakeholder

Bob Tufts | Posted 08.06.2014 | Healthy Living
Bob Tufts

As someone diagnosed with multiple myeloma in 2009, I sincerely applaud those who represent patient's interests on a daily basis, but actual patients need to be directly included in the crucial conversation about cost and value.

The Fragmentation Monster Under My Bed: A Researcher's Worst Nightmare

Heidi Adams | Posted 06.09.2014 | Healthy Living
Heidi Adams

One of the biggest challenges we face in the field of young adult cancer is a lack of evidence. As a researcher in the young adult cancer arena, this makes me feel like I'm chasing my tail. So today I am grateful for National Young Adult Cancer Awareness Week.

Advances in the Young Adult Cancer Movement: Why SAYAO Is a Big Deal

Emily Drake | Posted 02.15.2014 | Healthy Living
Emily Drake

The AYA cancer patient advocate movement has gained tremendous momentum in the last few years. However, it is imperative that health professionals become invested and educated on the needs of this unique group of patients in order for their health-related needs to be met.

New, Metastatic Breast Cancer Alliance Sets a Cooperative Tone

Dr. Elaine Schattner | Posted 01.23.2014 | Impact
Dr. Elaine Schattner

This October, there's some encouraging news on the breast cancer front. Yes, there are new drugs in the pipeline and ongoing trials -- the same old, real progress, slow as usual. Until last week, that is, when there came a hint of meaningful change in the breast cancer community.

The Mammogram Assault! It Doesn't Have to Happen to You!

Kathleen Reardon | Posted 10.19.2013 | Healthy Living
Kathleen Reardon

A mammography unit that won't do its best to make you comfortable shouldn't be in business. You wouldn't normally volunteer for a colonoscopy where they had run out of anesthetic -- so why volunteer to be abused during a mammogram because they don't train their technicians properly?

Building Trust in Less Than 10 Minutes

Scott Finkelstein, M.D. | Posted 09.17.2013 | Healthy Living
Scott Finkelstein, M.D.

Building trust is not easy. It is typically earned over time, through shared experiences and tests of loyalty. In medicine, and in the field of anesthesiology in particular, the luxury of time is unavailable. Trust needs to be built in a matter of minutes.

An Educated Consumer Is the Best Customer... Even in a Hospital Setting

Rev. Dr. Martha R. Jacobs | Posted 09.14.2013 | Healthy Living
Rev. Dr. Martha R. Jacobs

Organ donation is an important part of our giving back to those who are awaiting a functioning organ when our bodies no longer have need of those organs. It is also a very individual and private decision that one should consider while one is still healthy.

10 Ways You Can Help a Loved One With Alzheimer's Survive Hospitalization

Marguerite Manteau-Rao | Posted 05.15.2013 | Healthy Living
Marguerite Manteau-Rao

Two weeks ago, I got a call that my mother had suffered a stroke, and that she was in the hospital. For someone with Alzheimer's, like her, hospitalization can be a traumatic and sometimes fatal event.

National Invisible Illness Week Features Virtual Conference This Week

Lisa Copen | Posted 11.10.2012 | Impact
Lisa Copen

National Invisible Chronic Illness Awareness Week is September 10-16, 2012 and this week, Monday through Friday, the campaign features a virtual conference with nearly 20 speakers.

The Doctor Made a Huge Mistake

Amy Parmenter | Posted 03.25.2012 | Healthy Living
Amy Parmenter

I got my mom back. But, just as easily, I might not have.

Getting Past 5 Frustrations Of Living With Invisible Illness

Lisa Copen | Posted 11.12.2011 | Healthy Living
Lisa Copen

You owe it to yourself to find joy despite your illness, and by focusing on how you can change your circumstances -- instead of change other people -- you'll be much more personally rewarded.

Why It Makes Sense To Keep Avastin Available For Women With Metastatic Breast Cancer

Dr. Elaine Schattner | Posted 10.03.2011 | Healthy Living
Dr. Elaine Schattner

The reason I believe Avastin should be available for breast cancer treatment is that it helps a fraction of women, albeit a small one, to live active, enjoyable lives.

Why Hospitals Are The Worst Place To Be When You Are Sick (Part 2)

Judith Johnson | Posted 11.17.2011 | Healthy Living
Judith Johnson

The spread of infections in hospitals has reached epidemic proportions. In this followup, I want to share some of the resources that were shared with me in emails from readers.

Lyme/Autism Group Blasts Genetically Modified Foods as Dangerous

Jeffrey Smith | Posted 11.17.2011 | Healthy Living
Jeffrey Smith

Stop eating dangerous genetically modified foods! That's the upshot of the Lyme Induced Autism (LIA) Foundation's position paper released today.

Is Your Health Care Ageist? (Even If You're Not That Old?)

Mark Lachs, M.D. | Posted 11.17.2011 | Healthy Living
Mark Lachs, M.D.

Ever stopped to think that the medical care you get as someone boomer-aged or younger, which you may have dismissed as generically underwhelming, might also have its roots in ageism?

Getting The Right Medicine

Dr. Elaine Schattner | Posted 11.17.2011 | Healthy Living
Dr. Elaine Schattner

What's missing is a solid discussion of the type and extent of treatments people would want if they were sufficiently informed of their medical options and circumstances.

3 Ways To Take Control Of Your Health Today

Thomas Goetz | Posted 11.17.2011 | Healthy Living
Thomas Goetz

Why don't we do what we know is good for us? Part of what may be going on here is that we lack a sense of agency in our health - we don't feel like we're actually in control, or that our engagement will matter.

AARP: Results, Not Rhetoric

John Rother | Posted 05.25.2011 | Politics
John Rother

It is easy to criticize AARP for not taking an absolutist position on age rating in the current health care debate. We have a responsibility to pursue advocacy aims that can have a constructive impact.

Small Good News: Get Up, Stand Up! Stand Up for Your Medical Rights

Karen Stabiner | Posted 11.17.2011 | Healthy Living
Karen Stabiner

Here is the hard truth about health-care reform: No matter how good it is, it won't come soon enough and won't be profound enough to spare all of us ...

What Do Patients Really Want?

Barbara Ficarra | Posted 11.17.2011 | Healthy Living
Barbara Ficarra

Patients don't just want to engage with doctors and nurses via social networking sites and new technologies. They also value face-to-face connection, collaboration and respect.