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Gwendolyn Strong: In Memory, and Challenge

Don C. Reed | Posted 07.28.2015 | Science
Don C. Reed

My son Roman never cries. He is paralyzed, but he has the heart of a lion. So when he called tonight, just moments ago, sobbing uncontrollably, I could not recognize the voice.

Eleanor Goldberg

Artist Shirks Fame To Invent Tools That Allow Kids With Disabilities To Paint | Eleanor Goldberg | Posted 07.21.2015 | Impact

When Madison was first diagnosed with spinal muscular atrophy, her doctor didn’t know a whole lot about the genetic condition. She flat-out told Mad...

How My Son Showed Me A Depth I Didn't Know I Had

Posted 03.13.2015 | OWN

As a young man, writer Hamilton Cain loved his freewheeling, fun-filled life. But when the birth of his first son brought unimagined challenges, h...

Dare to Be Remarkable

Alyssa Silva | Posted 07.23.2013 | Impact
Alyssa Silva

I learned at a very young age that life is a precious gift, and living in a life of fear will only hold me back from chasing my dreams. This is the life I've been given, and I can promise you I'm always going to make the most of it.

Watching Avery's Story, Thinking Of My Son

Linda Wachtel | Posted 07.01.2012 | Parents
Linda Wachtel

We are a family shaped by Jordan. We honor that by remembering him, by telling his story. And, like Avery's family, we also remember that we are part of a community of families.

Avery Canahuati, Whose 'Bucket List' Raised Awareness for SMA, Dies

Posted 05.02.2012 | Parents

Avery Canahuati, the nearly-6-month old baby with Spinal Muscular Atrophy (SMA) whose heartbreaking "bucket list" recently went viral, died yesterday,...

Avery's Bucket List: Parents Create Heartbreaking Website

The Huffington Post | Farah L. Miller | Posted 03.09.2013 | Parents

Avery Canahuati has never gone swimming or worn a Halloween costume, but she has received her first kiss. She is just 5 months old, and these three it...