I was pulled out of the comfort of my life by my child so hard I had whiplash, but now, years later and happy to be exactly where I am, I get to sit back and observe a world to which I wouldn't have been privy, a world I wouldn't have even noticed
There is an ongoing debate in the online special needs community about over-sharing. Are we mom and dad bloggers stepping over the line when we share stories and details about our kids and their special needs? It's a heated debate, a thing, a downright brouhaha.
If you're a parent or caregiver of a child with autism, or one with other complex special needs, you deserve a world of thanks. Special needs parenting can be incredibly challenging, and this is why the topic of parent self-care is so very important.
Through all of her challenges and all of the scary times we have endured, somewhere deep inside me I've always known that she was meant to be here, and, one way or another, the two of us would always be just fine.
Parents ask me all the time, "How can I believe in my child when the professionals tell me he is low functioning and has a low IQ? How can I believe in my child when I'm dead tired and overwhelmingly frustrated with their challenging behaviors?"
From the day my precious son Caleb was born in 1996, there have been whispers. There have been curious stares. There have been unasked questions in people's eyes about whether, perhaps, I caused my child's disability.
Today, the family pushes forward by transitioning a large portion of their farm from chemically treated produce to more desirable organic practices, and by ensuring that the grandkids stay on track with their education.
A lot of people are comfortable in the "online" space, but I'm here to tell you to let your advocacy message have a voice, have a face! Above you see me doing a presentation about Down Syndrome Awareness and Inclusion to my son's class.
"How come your arms are all wrinkled up?" the little girl asks. I've got ichthyosis. It makes my skin look overly dry, scaly and cracked, darker than normal. Much like a snake's skin, but I suppose 'wrinkled' describes it too.
Looking Upwards is one of the largest disability service providers in the state of Rhode Island. They provide services and supports to over seven hundred individuals with disabilities with a variety of abilities, diagnoses, and needs.