Let's begin by pointing out the obvious. I'm different and look different, in which case I find it completely normal that a child gets curious. In fact, I believe their curiosity is a great thing because without being curious and never asking, they'll never know.
At the end of the day, this life is more than I deserve, so with a little humor, I'm here to set the record straight. Being in a wheelchair isn't so bad after all, and I've compiled a list that proves just that!
Strength is having hope where hope was once lost and holding onto faith even through the darkest of times. It's about finding the strength to move forward and leave your past behind, but never forgetting how you got to where you are in this moment in time.
From the beginning of our time together, Isabel moved my heart deeply. Without spoken language, she communicated through her eyes, the slight lifting of the corner of her mouth to form a little smile, and with movements of her tiny fingers.
For the past few years, I have always wanted to attend a Patriots game at Gillette Stadium. Being from New England, I had attended the Bruins, Celtics, and Red Sox games, but had yet to cross the Patriots off my bucket list.
Ever since I was a little girl, I've always been extremely passionate about raising awareness and funds for my disease, Spinal Muscular Atrophy. It started off with lemonade stands in the neighborhood with my friends, where I would dream about raising $100 for my cause.
I learned at a very young age that life is a precious gift, and living in a life of fear will only hold me back from chasing my dreams. This is the life I've been given, and I can promise you I'm always going to make the most of it.
One September afternoon, I was receiving an albuterol treatment to keep my lungs expanded and free from infection. Suddenly, there was a knock at our door: It was a police officer to tell my mom Adam had been hit by a truck while riding his bike.