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Randy Pipkin
Randy Pipkin was recently the national chair of a new campaign, Breakthrough ALS, launched by the national nonprofit, the ALS Therapy Alliance. Randy was chosen for his brave spirit to fight ALS and to help rally companies, communities and consumers to beat ALS by raising awareness and funds for breakthrough research. For more information about Randy and the campaign, visit Randy also supports the ALS Association Massachusetts Chapter and the Walk to Defeat ALS.

Entries by Randy Pipkin

Post-Surgery Hell and the Important Lessons Learned

(1) Comments | Posted March 27, 2014 | 2:48 PM

It's almost two months since my last blog post. At the time, I was in a weakened state and had lost a tremendous amount of weight. After nine years of fighting, ALS seemed to be finally winning.

Albeit late in the game, I decided to have a feeding tube, or...

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Changing My Body to Stay Alive

(2) Comments | Posted January 31, 2014 | 8:58 PM

My spouse Mark and I begin a new journey this month. The second half of last year kicked my ass and left me in a severely-weakened state. I lost 30 pounds in six months. It was weight that I could not afford to lose. I am so thin that I...

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Who Cares About ALS?

(4) Comments | Posted October 7, 2013 | 9:04 AM

I am unlucky that I was diagnosed with Amyotrophic Lateral Sclerosis (ALS) eight years ago. I am lucky that my ALS progression and loss of motor skills has been very slow. Today, I can stand and walk with assistance. I don't need a feeding tube and can breathe on my...

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Destined to Die for Not Fitting In?

(1) Comments | Posted September 4, 2013 | 10:16 AM

I'm angry because I'm being punished for living too long...

During the last eight years, ever since I was first diagnosed with Amyotrophic Lateral Sclerosis (ALS), I have been doing everything possible to fight this horrible disease. In 2005, I was given two to five years to live, but deep-down...

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'A-Rod,' What Would Lou Gehrig Say?

(39) Comments | Posted August 6, 2013 | 6:10 PM

Dear Mr. Rodriquez,

I know that, at the moment, you're in a difficult spot with the media and that you've suffered numerous injuries throughout your baseball career. However, I would be remiss if I did not acknowledge your recent comments about "fighting for your life." I would like you to...

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I Have ALS, No Need to Shout!

(9) Comments | Posted July 23, 2013 | 1:46 PM

Ever since I was diagnosed with ALS (Amyotrophic Lateral Sclerosis) in 2005, I have noticed that people are 100 percent confused about the deadly disease. I need to set the record straight: having ALS means that your motor neurons are dying off; you start losing your motor function in different...

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Waiting for a Breakthrough -- One Person's ALS Story

(5) Comments | Posted June 12, 2013 | 3:21 PM

I was enjoying a great life in Manhattan as a marketing executive until one sentence forever changed my life: "You have Amyotrophic Lateral Sclerosis." ALS, or Lou Gehrig's disease, is merciless: it shuts down your ability to move, one limb at a time, but allows your brain to remain intact....

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