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No Victory for Surge of Brain Injured Veterans

Posted: 06/29/10 04:42 PM ET

Normally we think of the costs of war in terms of dollars spent and body bags delivered to loved ones. However, this perspective overlooks the enormous financial and social burdens of veterans' long term disabilities such as those caused by traumatic brain injury (TBI), which is both under diagnosed and largely untreatable. As Dr. John Hart Jr., the President of the Society for Behavioral and Cognitive Neurology, notes: "A majority of the soldiers returning from the Iraq and Afghan wars are at risk of developing TBI."

Early estimates predicted that one tenth of veterans of the Iraq and Afghanistan wars would have TBI. More recently, this figure has been revised upward to 22%. However, the actual incidence of TBI among veterans is still unknown, and is likely to be much higher.

There are several reasons for these escalating estimates. They include the fact that body armor and helmets cannot fully protect against brain damage, the ubiquitous nature of improvised explosive devices (IEDs) in these conflicts, and systemic failures in medical treatment such as under diagnosis and misdiagnosis. Also, TBI victims may deliberately choose not to report their head injuries out of concern for their career prospects, or may simply be unaware of their condition. Repeated exposure to head injuries, even mild ones, can later result in permanent damage, which is one reason such injuries are so insidious.

The most common symptoms of TBI include memory problems, depression, irritability, slowed mental processing, difficulty finding words, and inability to concentrate. They can lead to job loss, social difficulties, strained family relationships, and plummeting self-esteem. Without correct diagnosis and help, TBI victims frequently find themselves unemployed, isolated, homeless or even suicidal, without ever knowing why.

Unfortunately, the symptoms of TBI are nearly indistinguishable from symptoms of other conditions such as post-traumatic stress disorder (PTSD) and depression, both of which also often co-occur with TBI among veterans. This diagnostic difficulty is compounded by lack of adequate training; as the 2007 Bradshaw Report to the Surgeon General noted, due to varying levels of knowledge, many cases of TBI escape detection by medical providers. Even when TBI is correctly identified, the sad fact is that there is no fully effective treatment or cure for this condition. Although several expensive, long-term treatment approaches helpTBI patients to some extent, no therapy can restore the kind of automatic, intuitive decision making that is essential for maintaining jobs and relationships.

The result of these systemic failures to diagnose and assist veterans with TBI can be found in homeless shelters, unemployment offices, drug and alcohol treatment programs, courtrooms, and ERs. Our already over-taxed social institutions and struggling families bear the burden of caring for these wounded veterans who are discharged from service without adequate support.

To understand the true costs of war, we need to know the long term consequences and expenses of TBI. The first step is accurately identifying the veterans and military personnel suffering from TBI. Congress has mandated this and allocated funds to do it; however, as Army Surgeon General Schoomaker recently told congress, the screening methods currently in use are "basically a coin flip." The military currently uses a short computerized test which is fast and cheap, but terribly ineffective. According to recent reports on NPR and propublica.org, these tests miss 40% of concussions. Even worse, these tests are typically given before deployment (if at all) and not repeated. Diagnosis of TBI now relies primarily on self-reporting by soldiers who may not know, or may not wish to disclose, that any injury has occurred.

Correcting this requires switching to comprehensive, baseline neuropsychological cognitive-function test batteries that take several hours, not 20 minutes. These should be given to all military personnel before deployment, with mandatory, rigorous follow-up screenings administered periodically. Every veteran who has suffered a head-injury or been near an explosion should also have an MRI scan. This combination of tests will detect the highest percentage of TBI victims, and would also facilitate the development of accurate, evidence-based diagnostic and treatment procedures for patients.

Once the true incidence of TBI is known, military budgets should include the costs of the long-term services and care needed to support these injured veterans -- a burden which is currently shouldered by suffering families and strained social service institutions and agencies. This care could be provided directly by VA facilities, or reimbursed to secondary service providers, as well as family members who spend untold hours caring for disabled veterans. Until the military takes true responsibility for its wounded, we overlook the real price of war and do a profound disservice to our veterans and their loved ones. The current high rates of undiagnosed, misdiagnosed, and incurable disabilities are going to haunt us all.

 
 
 
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01:20 PM on 07/03/2010
One aspect of this issue that isn't directly addressed in Dr. Bettelheim's article is the need for education among enlisted men and women. Broadly speaking, military discipline and mindsets tend to de-emphasize self awareness and introspection: "just getting through it" seems to be the general military MO (one reason, perhaps, why abuse of painkillers is so widespread among service personnel). The ideal of the "perfect soldier" held by many is a vision of machine-line dispassion, precision, and emotional control.

In addition to putting in place screening techniques that help to identify TBI, service men and women need guidance on taking perceptive and cognitive changes seriously, rather than just viewing these things as obstacles to "get over" -- such education would increase the likelihood that conditions like TBI (and also PTSD, depression, etc.) would be self-reported before reaching a crisis point.
HUFFPOST SUPER USER
Balzac
08:58 PM on 07/01/2010
Veterans must be taken care of, or American decline is guaranteed.
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HUFFPOST BLOGGER
Ruth Bettelheim
03:55 PM on 07/01/2010
In the United States, someone sustains a traumatic brain injury (TBI) every 21 seconds. Many die - a number equivalent to two fully loaded 747s taking off and crashing, killing everyone onboard, every day - but for the millions who survive, life becomes an endless struggle to cope with an array of cognitive impairments that can cause the loss of jobs, marriages, hope, and identity itself. These are in addition to the untold number of veterans injured in wars. Despite the magnitude of this public health crisis, important research about how to treat TBI is going unheeded and unused. Individuals, social institutions, families and taxpayers have been bearing the devastating hidden costs of brain injury silently. It is time to end the silence.
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SageSpencer
Angel brought Him the leaden heart & the dead bird
12:18 PM on 07/01/2010
I salute you Ruth Bettelheim and Allen Arieff for writing this article!
07:35 PM on 06/30/2010
Very insightful article! The hidden cost of war!
07:12 PM on 06/30/2010
There needs to be more scientific research on brain injury, and the mitigation of damage.

see:
"Repeated concussions lead to severe brain disease, research shows"
http://articles.latimes.com/2009/jan/28/science/sci-concussion28
"Protecting the Brain from a Glutamate Storm"
http://www.dana.org/news/cerebrum/detail.aspx?id=7376
AAN 2009: Imaging Study Shows Blast Injury May Cause Brain Inflammation
http://www.medscape.com/viewarticle/702341

Therefore, there are several factors:
concussion due to blasts (ie: shock wave, as opposed to collision)
increased susceptibility of greater brain damage due to repeated concussion
secondary inflammatory effects due to physical brain injury

Hence:
We have "priming" wherein, brains are subjected to a certain level of concussion. Thus "primed", the brain is even more susceptible to damage, from lower levels of shock. There are immediate effects due to the blast, short term inflammation damage, medium term priming causing increased vulnerability, and long term impairment.

Thus:
Helmets should be designed to protect against blasts.
Soldiers should be given longer recovery or at least rotated out, to avoid the increased damage of repeat brain shocks when the brain has not already recovered from an injury.
Research should be done for treatments that can help reduce the secondary damaging effects from brain inflammation.

The authors make the most important recommendation of all:
diagnosing and treating those so many, already injured with the long term consequences.
06:47 PM on 06/30/2010
As someone diagnosed with TBI the ideas that the author proposes are noble but insane. I was diagnosed in 2007 with severe TBI, by the VA and I went through a second battery of neuropsychiatric testing last fall. The first time I went through this testing it took a day and a half, and proved what my neurologist had already diagnosed. They like to retest every two years to measure improvement or declination. The VA has a much more comprehensive system for testing for TBI for initial diagnosis, but for those out there who have friends or loved ones serving. If they are exposed to explosive blasts from IEDs, mortars or whatever while deployed have them get checked for TBI. Other symptoms to look for include problems with their sleep patterns, light sensitivity, migraine type headaches and numbness or tingling sensations in the arms or legs. Most importantly, if the symptoms start to show months after they are home make sure they see a real doctor first. Too many times even in the VA system it will be looked at as PTSD, especially by some of the social workers and intake nurses. The VA has a lot of resources dedicated to TBI so if you know someone with symptoms that served, tell them to go and get signed up and get checked out.
03:18 AM on 07/01/2010
Also, it should that civilian victims of TBI number in the millions, mainly as a consequence of automobile accidents. These individuals seldom receive an appropriate diagnosis, even after consulting multiple physicians. Treatment is generally inappropriate, and the victim is often semi-disabled. Allen Arieff
02:45 PM on 06/30/2010
if ever there was a reason to increase the military budget, this is a good one.
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Brian Gryphon
Photographer, Web-preneur, Gay in Ohio
10:34 AM on 07/01/2010
If ever there was a reason to stop sending troops into other people's civil wars, if ever there was a reason to take 1/3 of the cost of foreign wars and add it to the budget of the VA system, if ever there was a reason to question the morality of perfecting such 'non-lethal' weapons....
11:56 AM on 07/01/2010
that's pretty much where i stand too!
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momstudent
01:28 PM on 06/30/2010
As a society we are not educated at in regard to TBI. Our nation still has false beliefs as to how a person with TBI needs to appear and speak. It takes a very well trained clinician to be able to tell. One of the biggest problems is the system of care. During the immediate crisis of a TBI the neurologist and neuro surgeon first job is to save the life of the patient period. Once stable and off to rehab the patient may have five minutes with them to explain their new path. This is where the system breaks down. I work for a Neuro- Psychologist and we do testing of the brain to see how well it is functioning, memory, problem solving, cognitive abilities, mood regulation etc. I say to everyone that has had a TBI, go find a good Neuro-Psychologist and find out your base line and become educated on your new life and learn how to become your own advocate, because very few know about the long term effects of TBI. These individuals will need a 'circle of support' for the remainder of their lives in order to be certain they receive the level of care that is needed, and not labeled 'non compliant'.
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CoastalNC
Good thoughts create good things
08:30 AM on 06/30/2010
As the wife of a Vietnam vet with TBI and PTSD I say it is about time someone starting talking about the expense of any war being more than the budget this country spends and a body bag count. There have been many, many lives lost with the vets still walking around. People who don't really know them may think they are okay or they just see a "bum" out on the street but the truth is they are casualties of war. When are we going to stop allowing the wealthy to take us into wars we shouldn't be in just so that they can make more money for themselves. Our vets suffering goes on and on....it doesn't end the day they come home and it doesn't end just because they are still standing, walking and talking. Not only does the vet lose out but the family and love ones lose as well.
07:51 AM on 06/30/2010
First and foremost, "We the People" need to stop looking at these problems as a "business expense".
11:13 PM on 06/29/2010
In 1984 I filed for a disability rating for PTSD I got in Viet Nam and for continuing problems I was having since getting a severe concussion while I was in the Marine Corps. My claim was denied. VA said no evidence was presented identifying a significant stressor. I was told I could file to reopen my claim if I found new evidence supporting it.
It took me 25 years of find irrefutable evidence. The examiner reported to the VA that I have PTSD, TBI, Post Concussion Syndrome, and a major depression disorder.
I will be getting benefits beginning sometime in the next 90 days...
It took to long. I was homeless when I filed in 1984.
I survived.
Survival was not enough.
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CoastalNC
Good thoughts create good things
08:33 AM on 06/30/2010
haha....love your picture, looks just like ya !
09:34 PM on 06/29/2010
This is a great article- the vets are in desperate need of attention! Where is the outcry when these guys are sent home and discharged with untreated injuries? For service to this country, they are given a life sentence of struggle and unfulfilled potential.
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CoastalNC
Good thoughts create good things
08:42 AM on 06/30/2010
Being sent home with untreated injuries isn't the worst of it.....then they have to prove to the VA that they have the injuries and they have to get the VA's records together and attached to their claims as their proof. The files are the VA's files, they should have the record, the military person shouldn't be responsible for presenting the info that the VA has and proving that the VA doctors that diagnosed them were correct. And it shouldn't take YEARS for a vet with a disability to be compensated and taken care of while they struggle to survive. AND it is inexcusable for a vet to call and ask for a copy of his file only to be told there is no such file and then later, because he has called several times and finally aggravated someone enough to get off their dead @@@ they get up and finally acknowledge the file sitting right there in the cabinet that they had continually claimed did not exist. The people working in the VA offices need to understand who they work for and do their job. There are a lot of failures in taking care of our vets.
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07:15 PM on 06/29/2010
And, to add insult to this injury, are your readers aware that although soldiers given medical discharges for closed head injuries that cause these problems are denied a purple heart?
06:44 PM on 06/29/2010
I know there is no answer to this hugh problem. However last Thursday I attended the ribbon cutting of the " National Intrepid Center of Excellence, which is now our nations formost facility for research, diagnosis and treatment of traumatic brain injury and post traumatic stress", located on the National Naval Medical Center in Bathesda, MD. ( The future site of the merging Walter Reed Hospital and National Naval Medical Center) This new facility is impressive not only for the research labs and testing facilitys but for the open design incorporated through out. ," The diagnosis and treatment equipment represents the latest advances in care and with the progress made in this Center will lead to further progress" I also noticed the often overlooked attention to the inclusion of family in the treatment process. I labor here describing this wonderful facility..and know the importance of its work and the realization that the need exceeds the capability of a dozen of these care facilitys. But if this is a beginning then it seems a good one. One last point This project came in on time, within budget and was funded by public-private partnership. under the Intrepid Fallen Heroes Fund..I highly suggest it worth a visit.