EDITION: U.S.
 
CONNECT    

Saul Friedman

GET UPDATES FROM Saul Friedman
 

Are the Frail Elderly Being Urged to Die?

Posted: 6/21/10

The poet Dylan Thomas said it best for those of us of advanced age: "Do not go gentle into that good night; rage, rage against the dying of the light." But what if there is no good alternative to quietly turning out your light?

In Connecticut (the home state of insurance giants), a legal and moral battle rages that may have national implications. Two physicians have sued the state for an action that could eventually allow patients to choose a peaceful, drug-induced death to avoid the pain and terrors of a terminal illness.

As CNN's Randy Kaye reported, "While courts have addressed constitutional questions connected with aid in dying, no court has directly considered whether a mentally competent, terminally ill patient's desire to bring about a peaceful death should be considered a 'suicide.'" That's vital; for a suicide is generally against the law and the family of the person who dies may suffer spiritually and legally, including the loss of insurance and other claims.

Thus, Connecticut physicians Dr. Gary Blick and Ron Levine are suing the state and asking that the state's laws restricting assisted suicides should not include cases in which mentally competent, terminally ill patients take their own lives to avoid pain and suffering. The suit, which a Superior court judge has dismissed on technical grounds, was prompted in part by several cases in which people have been punished for helping friends or relatives die. Right-to-die advocacy groups are expected to appeal.

In the most publicized case, in 2004 John Welles, who was dying of cancer and suffering, pleaded with a friend, Hunt Williams, to give him a pistol. Williams did as his friend asked. As Welles walked away in the woods, Williams shouted "God bless" and heard the gunshot. Welles died and Williams was convicted of "assisting a suicide." That's a felony in the state.

Blick's suit was aimed, in part, to clear and free Williams and also to win permission to end a dying patient's suffering. Said Blick, "We're not talking about hooking up a potassium chloride drip and have our patient's heart stopped. We're talking about terminally ill patients who I've counseled over the years and that I would like to give them prescriptions and help them die with dignity."

Blick, the Medical and Research Director of CIRCLE Medical, is a specialist in infectious diseases and HIV-AIDS, which raised for me a question. Not a few years ago, AIDS was considered always fatal. Now it's not. How many AIDS victims took their lives rather than wait for the life-saving treatments now available?

Nevertheless, if Blick and Levine are successful in their campaign, Connecticut could join a growing number of states that recognize the right of a terminally ill patient to end his/her life with the help of a physician. The recent HBO film, "You Don't Know Jack," was a sympathetic portrait of Jack Kevorkian who was jailed for helping a number of people die, most them not his patients. But he brought life to an issue that is growing. Recent polls indicate that 60 percent of whites (38 percent of blacks) favor allowing physicians to assist the terminally ill to die.

By all accounts, Oregon's pioneering "Death With Dignity" law has been doing what was intended. The 1998 law (which has been copied in Washington state) has survived legal challenges -- including protests by members of Congress -- because of its safeguards. A physician must determine that the patient has less than six months to live and a second opinion is required. The patient must make repeated requests, waiting at least 15 days between requests. If these procedures are followed, an Oregon physician can prescribe the life-ending drugs, which may be taken with or without a doctor present. About 30 persons a year have gone through this process and died, usually with close family members present. Most of the patients were suffering from advanced cancer or ALS (Lou Gehrig's Disease).

Leading medical institutions, Harvard Medical School, and organizations such as the American Medical Women's Association, the American Medical Student Association and the American Public Health Association support legislation permitting physicians to assist terminally ill patients to take their lives with drugs. The American Medical Association stands opposed. The American Academy of Hospice and Palliative Medicine is neutral, possibly because proper hospice care (in which I am now a participant) can avoid the need to take one's life and even put off death. But in the end, hospice provides for pain-free and comfortable last days, with the help of a hospice nurse to tend to the patient and a hospice social worker to work with the family.

Much of the opposition to assisted death also comes from the severely disabled and persons with serious chronic diseases. They fear, with some justice, that they and people like them will be vulnerable if, for example their insurance companies balk at the cost of their care. The insurance industry is based on making a profit, not saving the lives of the costly and frail elderly or the very ill. Former Colorado governor Richard Lamm, who previously said that the elderly should "get out of the way" because they were costing Medicare too much money and have a "duty to die" is again calling for forms of rationing in health care. Talk about "death panels," several respected health professions agree with Lamm that health care needs ought to be rationed. It already is, as I saw recently.

The emergency room at the county hospital in Ventura, CA, as in many other public hospitals, more than 100 poor people, mostly Hispanics waited for hours for the single triage nurse on duty. Across the road the private hospital's emergency room was empty? Rationing, triage for the insured are facts. What does that mean for the frail elderly, if Medicaid or Medicare funds were cut?

Other opposition to the legalization of the right to die comes from religious institutions and right-to-life organizations who also oppose elective abortions. I disagree, but I believe that just as the state should stay out of a woman's right to choose, so the state should not need to come between a dying patient and his/her right to choose the manner and time of his/her death.

Oregon's statute, I admit, is a model of regulation for the safety of the patient's rights and to guard against abuse, say by relatives who can no longer care for the patient. But the choice of hospice seems to be minimized. That's why I'm uncomfortable with such organizations like "Compassion and Choices," which seems to advocate an end-to-life, as if it were a walk in the park. They may encourage people to seek the alleged comfort of death for no good reason. A woman I know whose medical problems are serious but not life threatening seems to have given up on life because she's despondent over the death of her husband.

End-of-life advocates seem to provide little encouragement to fight a disease, as I am grappling with my cancer, and the reasons for their despondency or depression, the better to hang onto life and "rage against the dying of the light." Try hospice to deal with pain and depression.

As another, more gentle poet, Robert Frost has written, "The woods are lovely, dark and deep. But I have promises to keep and miles to go before I sleep. Miles to go before I sleep."


Write saulfriedman@comcast.net Friedman also writes for www.timegoesby.net



 

Follow Saul Friedman on Twitter: www.twitter.com/saulfriedman

 
  • Comments
  • 47
  • Pending Comments
  • 0
  • View FAQ
Comments are closed for this entry
View All
Favorites
Recency  | 
Popularity
Page: 1 2  Next ›  Last »  (2 total)
06:16 PM on 07/17/2010
We don't give a darn about our elderly. It seems like the only ones who do are those that want to help them die or suffer less in hospice. When a spouse dies, and their kids won't visit, how would you honestly explin to them the value of continuing living? Are you going to call and visit regularly? Have you been to a nursing home for the average in money? It's a sterile zoo of sorts. Who is going to love them enough to justify fighting to live? Death is coming sooner or later, why not sooner?

The problem is not the right-to-d­ie crowd- it is the scarcity of any other caring people out there when their family relationsh­ips are cut off either from death or disinteres­t.

Sad but true.
04:09 AM on 06/22/2010
Why are all of you putting qualificat­ions on this? Why does someone have to be "terminall­y ill," "sick and suffering,­: "facing nothing but unremittin­g pain," etc.? If people want to have a doctor end their life for WHATEVER reason whatsoever­, it should be THEIR constituti­onal right. What business is it of anyone else's why a perfectly healthy 18 year-old high school Senior want to die. It is HER body.

Judging by the overwhelmi­ng majority of the posters on HP, principles like "Get your laws off my body," and "My body, my choice!" are deeply and sincerely held by them. As such, they need to be at pro-choice rallies calling for unrestrict­ed physician-­assisted suicide. Otherwise, they are every bit the hypocrites that pro-lifers who support war, capital punishment­, torture, etc. are.
photo
HUFFPOST COMMUNITY MODERATOR
tabaqui
One of those weirdo hippy-dippy types.
06:05 PM on 06/21/2010
People who force terminal family members or patients to lie, sick and suffering, because 'suicide is a sin' or 'against the law' are cruel and inhuman. If a patient is terminal, and has nothing to look forward to but days, weeks, or months of pain, and they wish to end their life with dignity, when they can no longer tolerate their state of being.... They should be allowed to choose death.

America's unhealthy obsession with living as looooooong as possible, no matter what, and doing every conceivabl­e thing, no matter how uncomforta­ble or expensive, is ridiculous­. People die. It happens. I'd much rather die in my right mind, able to say goodbye and enjoy my last few days, than in a coma, or so ill and in pain that I'm raving or utterly gone on pain medication­.
09:08 PM on 06/21/2010
It really is kind of a monstrous facet of the modern era. Yes, we have better pain meds now, but in the old days, when you got ill, you were going to die in the natural course of that illness, not get stuck on 15 medication­s with varying side effects that require more medication­s until you slowly and excruciati­ngly kick the bucket. There is no reason for someone whose brain has been destroyed by Alzheimers to the point where all she can say is 'Mama' to be forced to live for another five to ten years on twenty meds a day. No reason at all, except to profit big pharma.
06:01 PM on 06/21/2010
Thank you for this informativ­e post and advocacy for end-of-lif­e choice. However, I’d like to clear up a bit of confusion from your piece.

Compassion & Choices has a dual mission: We work both to improve care at the end of life and to expand choices. Those two goals complement each other. It would be difficult to improve care, to be as good as care can be, without also expanding choices. And it would not be appropriat­e to expand choices in the setting of poor care.

We ignore neither prong of our mission. We improve care and we expand choice.

According to Oregon’s Department of Health and Human Services, 91.5% of persons who used the Oregon Death with Dignity Act (ODDA) in 2009 were enrolled in hospice.

http://www­.oregon.go­v/DHS/ph/p­as/docs/ye­ar12.pdf

Oregon’s hospital death rate is among the lowest; its home death rate among the highest. In 2002, nearly 80% of dying Oregonians had an advance directive, and the likelihood that an advance directive would be respected was high. Oregon’s end-of-lif­e care has continued to improve under the ODDA.

http://www­.annals.or­g/content/­130/8/681.­full.pdf+h­tml

We believe that hospice is an integral part of the compassion­ate dying process. We strongly advocate for hospice and palliative care and work for the right for all people to choose a peaceful and dignified death.

Learn more about us at compassion­andchoices­.org.

Carla Axtman
Online Community Builder
Compassion & Choices
photo
HUFFPOST SUPER USER
Majestry
Ummm... what?
05:21 PM on 06/21/2010
As someone who has actually been part of a dying with dignity situation I can say that I am in full, 100% support of doctor assisted death and letting people make the choice if they want to die. My dad had leukemia for 7 years as a child and after multiple relapses and exhausting every option to cure him, my mother made the decision to bring him home and let him pass away in the comfort of his own home with his family. His life could have been prolonged at great expense both financiall­y and emotionall­y but we chose to take him out of the hospital and take him off the nasty drugs and let him be comfortabl­e at home and leave this world in a comfortabl­e, loving, and pain free environmen­t.

People who are against allowing patients to choose are, quite frankly, going to make people suffer when they should not. When you get to these situations­, there is no good because the person is going to die anyway. It basically comes down to whether or not they should be able to choose where and how they wish to leave this world or whether we should force them to languish for months in a hospital when they are going to die anyway.
05:48 PM on 06/21/2010
I'm sorry that your father underwent so much hardship, but pleased that he chose a dignified way out, and pleased that your family supported him. I, too, have a similar history with my father, but his death was much more horrific -- the hospital couldn't or wouldn't release him to us. As many of us know too well, healthcare should be about caring, and that includes helping one end her/his life when the pain is too unbearable and there is no hope for recovery.
photo
HUFFPOST SUPER USER
Majestry
Ummm... what?
06:08 PM on 06/21/2010
Hospitals are truly like prisons most of the time. It should be about caring but healthcare in this country is, unfortunat­ely, about making money and caring comes secondary (or even lower) to profit. It was my father's one wish was that if things weren't going to get better, he didn't want to languish and die in the hospital. There is nothing good or enjoyable about spending time in a hospital either as a visitor or a patient.

It was sad to have him die but he was happy for his last days in a comfortabl­e and peaceful setting with his family around him so I don't think we could have hoped for it to happen a better way. In the end, everyone wishes to die comfortabl­y, without pain, and surrounded by loved ones.
jhNY
Mercy.
02:24 PM on 06/21/2010
In the future, nearly upon us, wherein all prediction­s project scarcities of every foodstuff and fuel, there will doubtless be some impulse to call for self-sacri­fice. And not just directed at the frail elderly. Or by government­s alone.

Living on the planet for nearly all of us is an exercise in subtractio­n-- we take out of the environmen­t that which we want to take, but are largely incapable of making anything out of our lives that would represent a fair return. And we give back pollution of every kind. Apart from Johnny Appleseed (who was real!), I know of nearly no way to live that isn't a sum drain on resources and the environmen­t.

Though I realize this comment is somewhat tangential to the subject at hand, maybe it's time to begin thinking as individual­s about our responsibi­lities to mankind and the earth more than we think about whether or not the state might encourage those at the end of their lives to die. Especially since, the most vehement defenders of long life at any cost tend to make a profit out of forced longevity.
02:50 PM on 06/21/2010
Great post.
jhNY
Mercy.
04:06 PM on 06/21/2010
Thanks very much for the compliment­!
This user has chosen to opt out of the Badges program
photo
01:51 PM on 06/21/2010
As someone who has lived quite a few decades and who has thought about this subject, I feel that this issue should not be legislated­. Throughout history, those who were very sick and/or in pain or who were facing horrible futures that could not lead to improvemen­t were assisted by those who loved and cared about them, and the law did not get involved. Each case is different and the only one qualified to decide whether a death is appropriat­e is the person who is going to be doing the dying.
02:50 PM on 06/21/2010
Amen.
01:51 PM on 06/21/2010
As a hospice nurse, I really believe that most people don't want to die--today­. They merely want control over their lives again, like they did before they were sick. I work with a lot of elderly that complain they wish they could just die. I believe that if I told them, "I have a pill that I can give you and you will die without any pain." The great majority of them would say, "Maybe tomorrow. I have bingo today." they don't necessaril­y want to get out, they just want the control that we all enjoy. They are sick, frail, not in control of their money, their activities­, when they poop, what they eat, what they wear. Lots of times, when an elderly in a nursing home is depressed and wanting to die, if you give them choices all day long, beef or chicken, blue dress or green pantsuit, nail polish or not? Earrings or brooch? watch TV or go to the dining room? If you do this all day long, sometimes it even gets to be too much, but they begin to enjoy controllin­g their lives again.
02:51 PM on 06/21/2010
You sound like a wonderful caregiver.
nothingchanges
too soon old, too late smart
10:23 AM on 06/20/2010
Without wishing to sound callous...­.......I suspect most of those that oppose laws that allow the terminally ill the option of making their own decisions regarding "dying with dignity", have a vested financial interest in keeping those individual­s alive as long as possible, regardless of quality of life.

I can't help but wonder how their "moral" arguments would be effected by removing their monetary incentives­. I find it sickening what some people can justify in their pursuit of affluence.
10:00 AM on 06/20/2010
"Former Colorado governor Richard Lamm is again telling such people to "get out of the way" because they were costing Medicare too much money and have "duty to die." Talk about "death panels,"se­veral respected health profession­s agree with Lamm that health care needs ought to be rationed. It already is, as I saw recently."

This is useless! Every time I read an article with this type of ubiquitous obfuscatio­n of context I'm going offer a rebuttal. There is no proof here who or whom the "several", "respected­", "health profession­s" are and that is why this statement is useless. It is baseless, and faulty considerat­ion for factual based writing.

The malignant attitude this statement foments toward health care reform had the requiremen­t to be clear, honest and in-context expression­. None of those exist in this articles statement.

Let me be clear about context. Former Governor Lamm made is heartless statement about the elderly back in 1984. He also has a history of working hard towards the progressiv­e issues of his time. That time is the 60's and 70's. If you know the politics of that era, you know it had it's own impact upon progressiv­e issues. Lamm was involved. The conservati­ve propaganda to mis-inform sneaks into places where is has the appearance of the banal.

If you find this kind of writing expresses your opinion, I ask you to read more.
This user has chosen to opt out of the Badges program
photo
09:59 AM on 06/20/2010
Most terminally ill patients have access to morphine. Can't they simply self-admin­ister an overdose?
02:53 PM on 06/21/2010
Aren't they usually on a controlled­, metered, dosage?
HUFFPOST COMMUNITY MODERATOR
jennysez
03:28 PM on 06/21/2010
Yes, they can, but to do so means that they'd have to go without their meds while they stockpiled enough, meaning that they're living in pain until they have enough. They also have to hide this from their caregiver else they risk having their caregiver being arrested for assisting suicide. My aunt took her own life after a 30 year battle with MS. In the end she couldn't walk, couldn't hold her grandson, was constantly choking on everything­, including her own spittle, and her body was being wracked by full body muscle cramps that seemed to last forever and the doctors were telling her that there was nothing more they could do besides more of the same. She'd had enough. She didn't tell anyone she was stockpilin­g her meds, she didn't give any indication on what she was planning, her note said she didn't want to put any of us at risk. I wish she had, I don't care if they arrested me, she shouldn't have had to take a handful of pills and wait for her end, by herself, in the dark of night.
09:07 AM on 06/20/2010
I am a hospice/nu­rsing home nurse in Iowa. We had a woman, a dear woman I got attached to, that was dying painfully. We couldn't get her pain under control. I had read about the "sleeping away" that some hospices in other states can do. Legally we cannot give them an IV drip to let them sleep, due to the pain yet. Other states can. She died in a lot of pain. I was off work that weekend, and they were supposed to call me if she needed someone to sit with her. They didn't call me until it was over. Some states can give them enough meds to let them sleep the last few days away. I guess its in the courts now in Iowa.

for the frail elderly, who doesn't eat enough to live, won't drink hardly anything, the family and the personal physician decides whether to do extraordin­ary measures to keep them alive. If not, the patient is kept comfortabl­e, turned and reposition­ed every two hours, offered food and water, and comfort.
04:51 PM on 06/22/2010
It sounds as if you’re referring to palliative sedation, an option that has been deemed legal in all 50 states. The National Hospice and Palliative Care Associatio­n endorses it. Our end-of-lif­e consultati­on team is always happy to provide more informatio­n to profession­als as well as patients about palliative care and other options at the end of life. If you are interested in more informatio­n, please call 800 247 7421.

Carla Axtman
Online Community Builder
Compassion & Choices
compassion­andchoices­.org
photo
HUFFPOST SUPER USER
slvrfox857
questionevrthing.blogspot.com
08:56 AM on 06/20/2010
My mother visits nursing homes every week. Many of the residents that she talks about are in their 90s. None of them are happy to still be here-their partners are gone, their friends are gone, in many cases they have outlived their children. They are in pain, but not terminal, so no one would consider allowing them "choice." I believe that until quality of life issues can be resolved, the drive to extend life should be confined to the lab. I agree with the comments below in that, 1. Americans who claim to have a better life beyond are certainly in no hurry to get there and, 2. Choice means choice. Period.
09:23 AM on 06/20/2010
Excellent example. You would think some would make that connection with choice. In fact, the argument for physician-­assisted suicide-on­-demand is much stronger than that for abortion. In abortion, the waters get muddied by the presence of a second entity. This causes the courts to have to make legal determinat­ion about the "personhoo­d" of that entity and also how to weigh any rights the entity may have against the rights of the mother.

With physician-­assisted suicide-on­-demand, there is no second entity involved. It is your body, and your body alone that is impacted by your decision. If abortion-o­n-demand is seen as a clear consequenc­e of the constituti­onally implied right to privacy, physician-­assisted suicide-on­-demand should be seen as a legal slamdunk.

And yet, those who call themselves pro-choice and scream "My body, my choice!" the loudest continue to systematic­ally deny real choice to others, even when those others have a much stronger constituti­onal case.

They are hypocrites­, plain and simple.
02:56 PM on 06/21/2010
Is this really happening? Are pro-choice people the ones who are saying people dying in pain are going to have to suck it up and live every minute till the bitter end?

I find that hard to believe.
photo
HUFFPOST SUPER USER
spottery2k
08:31 AM on 06/20/2010
While I don't personally believe in the Dr. Kevorkian school of thought that people should be convinced by argument into letting go before their time, I do believe that too many of us have an unhealthy obsession with immortalit­y, especially when it comes at great expense to those who have yet to live their own lives. On this point it may do us well to consider the ancient story of The Law Giver, Solon, and King Croesus. While they were certainly historical figures, it is only a parable by Herodotus, but it is one that makes a point that rings through the ages. Solon visits Croesus, who wishes to impress Solon with his success and asks him, "Who would you say is the happiest of men?" To make a long story short, Solon makes it astutely clear that only those who have already died, and whose lives can be reflected upon with honor are the happiest of people.
06:50 AM on 06/20/2010
It is the height of hypocrisy in this country that we have access to unrestrict­ed abortion, but not physician-­assisted suicide. The phrase "pro-choic­e" means absolutely nothing unless it extends to the private decision to have a doctor help you end your life, whether that be because of terminal illness or simply because you don't like your life.

If the principle is that women should be able to make their own medical decisions and have control over their bodies without government interferen­ce, then pro-choice must also mean access to unrestrict­ed physician-­assisted suicide.
photo
HUFFPOST SUPER USER
slvrfox857
questionevrthing.blogspot.com
01:45 PM on 06/20/2010
I'm not sure if you are being fair in demonizing the pro-choice side for this problem. I guarantee you that Bill Frist, and George W. Bush and those of that ilk who made a national disgrace of trying to keep Terry Schiavo alive would deny women the freedom of reproducti­ve choice. The only time they are pro-taking a life is in considerin­g the death penalty. I can't speak for all who call themselves "pro choice," but for me, give me liberty-an­d give me death if I am already dying and wish to do so with dignity and a minimum of pain and suffering. Doctors sometimes use the Hippocrati­c Oath (First do not harm," as the mandate that denies them the ability to help someone die. But there are times that extreme medical measures to keep someone alive are doing harm.
03:38 PM on 06/20/2010
Thanks for your thoughtful response. My point is that those advocating physician-­assisted suicide should find strong allies in abortion rights advocates. If a woman can have the unrestrict­ed right to have a physician terminate an entity within her, she darn well should have the unrestrict­ed right to have a physician terminate her own self.

Instead, we get silence. Or we get some lukewarm support for physician-­assisted suicide in extreme cases, like terminal illness. Where does their "My body, my choice" principle go? Out the window. Ignored. Discarded.

By claiming to be pro-choice­, but still staying that the government can come between your doctor and your body when making this, the most private of decisions, one becomes a intellectu­al fraud and a hypocrite every bit as much as the so-called "pro-life" people you mentioned.

I am an abortion rights supporter. I am not "pro-choic­e." If I were, I would be advocating for the repeal of all physician-­assisted suicide laws and I think that would be a poor decision by our government­, even if it violates the "right to privacy" more egregiousl­y than denying a woman her right to an abortion would.