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It Is Time to Grant the Right to Die

Posted: 03/22/10 02:03 PM ET

In our society there continues to be a controversy about the right of an individual to end their own life when living becomes emotionally and physically unbearable for them. This may be the case when a medical problem leads a person to lose everything they feel necessary to continue a dignified, meaningful life.

It is not uncommon for people in the end stages of catastrophically disabling neurological illnesses, such as Amyotrophic Lateral Sclerosis (ALS) or Huntington's Disease, to desire a controlled and painless end to their existence. In other cases, loss of function coupled with unbearable disfiguration due to cancer, trauma, neurofibromatosis, or other conditions leads a person to feel that no form of meaningful, acceptable existence is possible. For others, it is never ending, intractable, excruciating pain that makes existence unbearable. For too long we have forced human beings to suffer under the primitive religious notion that it is "God's" decision and not our own to end life.

The subtext of the notion that it is "God's" decision to end life tormented by suffering has always been that suffering is meaningful, and that God has a purpose for it. Few would argue against the common understanding that adversity ennobles the mind. Loss, disappointment, pain, defeat, and failure are the great teachers of humanity. They lead us to seek the comfort and guidance of others. We experience consolation, and we learn to give such consolation to others. We learn that to persevere through pain and defeat can bring rewards far sweeter than they might have been had they been more easily and less painfully achieved. Pain and adversity teaches us patience, humility, empathy , grace, courage, and hope. It teaches us what it means to be one among other human beings. Indeed, it may be the basis if not the prerequisite for love in its most mature form. However, on what basis do we force an individual to continue to suffer an excruciatingly painful existence in which there is no longer any hope, comfort, or meaning?

Some argue that to allow people the right to end their life when and as they choose is the first step down a road to nihilism and wholesale suicide. However, experience shows that this is not the case. Where physician assisted suicide is legal, such as in my own home state of Oregon, those who have successfully pursued access to medications to end their life most often choose to go on living. The sense of control and choice they experience gives them the courage and peace of mind to see it out a little longer. There is also an unfounded concern that allowing an individual to take their life under such circumstances is a slippery slope to encouraging or compelling people to take their own lives. However, aside from being unfounded, this concern easily resolved. We must simply prohibit encouragement and compulsion!

There are some who argue against assisted suicide because they are under the impression that modern medical science is capable of treating and relieving all forms of physical pain. This, unfortunately, is untrue. There are forms of physical pain that do not respond to medication. People who suffer pain resistant to medication are sometimes helped by pumping pain medication directly around their spinal cord. Others are helped by surgery that cuts pain pathways in their brain, or by implantation of electrodes that alter brain function. But for some people not even those extreme measures bring relief from pain. No matter what is done, some human beings continue to suffer unrelenting, unbearable pain. They should not be forced to endure it.

A final and perhaps more complex question is on what basis would we establish criteria to define the conditions and forms of suffering that might justify suicide. Clearly, there is a possibility that people might choose suicide due to frivolous, temporary, or easily resolved problems. Safeguards are written into the Oregon law to prevent an individual who is psychiatrically ill from making an ill-conceived and irrational decision to end their life. There is also a waiting period to prevent rash or precipitous actions. Common sense dictates that we rule out conditions that are likely to be reversed by treatment.

The current law in Oregon is based on the confirmation of a terminal illness, and not necessarily for intractable pain or loss of meaningful existence. I believe the law would be more humane by allowing for individual variation and personal choice. Whereas Stephen Hawking, through his magnificent life of the mind, has found a means to live a meaningful and productive life with ALS, not everyone with the illness can do so. Nonetheless, Oregon's law is a good one and, for most states, allowing an individual with unmitigated suffering in the context of an terminal illness to seek a physician's help to end their life would be a major step forward.

The argument against physician assisted suicide and the right to die is almost entirely a religious one. There are many reasonable religious individuals who see that a just and loving God would forgive any mere human being for finding a peaceful, painless way out of unmitigated misery. I applaud them. On the other hand, for those of us who do not believe in a sugar-coated God that makes all things right in the end, the notion that one should be forced to persist in a painful, unbearable existence, without respite or hope of remedy is cruel, barbaric, and pathological. It is time that our society grows up and grants the right to die.

 
In our society there continues to be a controversy about the right of an individual to end their own life when living becomes emotionally and physically unbearable for them. This may be the case wh...
In our society there continues to be a controversy about the right of an individual to end their own life when living becomes emotionally and physically unbearable for them. This may be the case wh...
 
 
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HUFFPOST SUPER USER
Valencie Bathe
02:49 PM on 03/31/2010
Doctor Mendolson: May we use some of your article in the Compassion & Choices Arizona newsletter? It's a breath of fresh air to hear a medical professional speak out on the dying patient's behalf. Our organization strives to change laws (and has done so in Oregon & Washington State) so that competent individuals with terminal diagnoses can choose to end their lives peacefully, legally and at the time of their own choosing. Having read the posts above, I know we've got a long way to go to help people understand why this should be a private decision, not one made by the courts or churches (or exclusively by physicians), but I've found that the majority of people that I talk to share the belief that we need to have the right to be in charge of our own deaths, whether or not we choose to apply it. Hope to hear from you soon! Thank you. Valencia Bathe
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HUFFPOST BLOGGER
Scott Mendelson, M.D.
09:08 AM on 04/05/2010
Dear Valencia, I am so sorry to have not gotten back to you sooner. Yes, you certainly may use this piece. Best to you. Scott
10:43 PM on 03/24/2010
Everybody wants to go to heaven but nobody wants to die. I speak only for myself. I've written a living will. In the case of having a deadly disease and you're waiting to die, or in a coma after a horrific accident and I'm hanging on a wing and a prayer I would rather NOT be kept alive any longer. Allow me to go in peace and no more pain. I don't believe in allowing a animal to suffer so why should I suffer without a morse of coming out of it and having a life. Their nothing creepy or scaring about death. And wishes should be respected.
02:00 PM on 03/24/2010
It is already happening today.

Countless families are pressured into "removing their loved ones from life support".

Of course what is really happening is that a simple feeding tube is pulled out of the nose or assisted breathing removed while lethal doses of morphine are injected killing the patient.

"Right to Die" is code for forcing and shaming the poor and the weak into committing suicide. It's done to save money and to preserve inheritance.
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HUFFPOST BLOGGER
Scott Mendelson, M.D.
03:09 PM on 03/24/2010
I am afraid you are mixing apples and oranges. Euthanasia is another topic. In any case, since I agree with you that there is no excuse for shaming the poor and weak into committing suicide, then we must do whatever needs to be done to prevent such an event from happening. Now, with that out of the way, do you still see a problem in the Right to Die philosophy? If you do, then perhaps you should become a champion of the Force to Suffer movement.
07:36 PM on 03/23/2010
Is it just me, or does anyone else find this a little creepy?

This article was posted a day after the healthcare bill passed. Americans apparently can't be trusted with choosing their own health insurance, or whether they want to forgo it altogether. But they can be trusted when they want to end their life. Is this the "cost-control" we've been promised?

I admit to engaging in some hyperbole, but this is still creepy...
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HUFFPOST BLOGGER
Scott Mendelson, M.D.
08:57 PM on 03/23/2010
My writing this article had absolutely nothing to do with the Health Care Bill. Quiet frankly, I don't see the connection you are trying to make. There is none. Period.
08:37 AM on 03/24/2010
Thanks for responding Dr. In hindsight I was out of line implying there was a connection with the health care bill. I was trying to be flip, but I do have a large concern:

Introducing a policy such as you recommend into a system which will almost certainly see price controls in the future will establish a perverse economic incentive. (Gov. Patrick is already starting down the price-control road in MA.) Yes we can "simply prohibit encouragement and compulsion" but there are many examples in other fields where prohibition is at best partially effective when the underlying incentives are strong enough. A hospital adminstrator is bound to think of all manner of cost-cutting if their reimbursement rates are capped and their profit & loss is in the red.

Most wouldn't succumb to the temptation, I'm sure, but your proposed policy would still set up a perverse, in my opinion creepy, incentive given the likely price controls that we'll see in a decade or two.

Thank you for the article though. You do make some very good points and you got me to thinking.
03:07 PM on 03/23/2010
I can empathize with the intent of your article. I can't empathize with
placing all the blame on "primitive religious" beliefs.
When informed about the prospects of how long my mother had to
live with treatment--approximately six months, and how long she had
without treatment of her cancer--approximately six months to a year,
it was the doctor I had to fight for her right to withhold treatment
should she so decide.
With treatment, she lived an additional six months. Incompetence
and indifference are the only attributes I can ascribe to her doctor.
I tried mightily to get her to change to the doctor who subbed when
her own doctor had a heart attack. She wouldn't. She knew where
it was all leading just as so many in her family knew when they
were visiting the doctor and being admitted into the hospital for the
last time, that it was for the last time. And in retrospect, I knew too.

"We are as dead now as we will ever be." When one does finally
cross over, they will understand that statement.
01:49 PM on 03/23/2010
Dr.Mendelson,what are your views on the disabled?
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HUFFPOST BLOGGER
Scott Mendelson, M.D.
08:57 PM on 03/23/2010
Dear Laura, Being disabled does not in any way make someone less of a person. As a psychiatrist working at a VA hospital, I see veterans with all types of injuries and disabilities, and other than the admiration and gratitude I feel towards them, I see them as no different from anyone else. Being disabled does not entail an inability to pursue meaningful, enjoyable things in life. My reference to Stephen Hawking is onyl one example of this. On the other hand, having a disability does not confer a superhuman ability to tolerate pain or loss of function. In the context of Right to Die legislation, people with disabilities are not different in any way than anyone else, and need not be viewed any differently.
09:51 AM on 03/23/2010
Two years ago, a cousin and a neighbor (both late 60s) lost their husbands two months apart. While sitting in the hospital with the cousin, she asked a question that shocked me, “Why did he have to die this way?†He was in his 4th day of slow starvation, died the next morning. I bit my tongue as my reply would have set her off as she is strongly religious.

Two months later, the neighbor informed me of that death and asked the exact same question. My jaw must have dropped on that one. I did not hold back with the answer, staying polite, but firm, “Blame it on your religion and its leaders.†Filled her in on the whole “have to suffer for Jesus†routine and how stupid the whole situation was. My initial statement shocked her, but as I continued she lowered her head and half nodded in agreement.

Months later, my cousin asked the question again. This time, I told her the truth. She did not like it, but seemed to accept it. I asked both these women that if given the option would their husbands have asked for a pill, shot, whatever, to end their suffering in a quick, dignified manner. Neither responded. Just looked confused. The thought of death with dignity had never occurred to them. That is not a topic spoken in these here parts.
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HUFFPOST SUPER USER
PurpleLove08
10:34 PM on 03/22/2010
I am all for people having the right to die. If they want drugs to help them end their lives, why not?
If I ever suffered from a painful medical condition or a debilitating disease, I would want the option of having a physician help me end my life.
I will be looking into Oregon and maybe when I reach my older years, I might move to Oregon.
I wish more states were as progressive as Oregon when it comes to this issue.
10:16 PM on 03/22/2010
Is there really people who think the disabled are better off dead?
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HUFFPOST BLOGGER
Scott Mendelson, M.D.
08:59 PM on 03/23/2010
I don't, if that is what you are suspecting.
09:52 PM on 03/22/2010
Recently I was diagnosed as having stage 4, or terminal lung cancer. The pain is real, and is not going away. It is actually getting stronger and spreading. Some friends, family and co-workers have encouraged me to fight until the end. I believe some of them are selfish and want me around for their own reasons. I'll have to admit it really is very flattering to know that I do have that value in this world. But for myself, I have plans to live as long as I am able to sustain a good quality of life. Medical science hasn't evolved to move my mind into a box to keep that part of me going - so the quality is in the state of my physical being.

As the current healthcare debate has illustrated, it is not a given that my insurance benefits will last throughout my illness. If my insurance ends, the pace of my illness will increase and present me with end of life decisions sooner if I am able to try various treatments. But, no matter what they try, eventually they all will fail.

Eventually, my choice of how long I will live will change - it will not be up to any official or law. People are out there to help me die with as much dignity as possible. It is kind of like back room abortions or the underground railroad, there are always good folks out there to help ease the pain.
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HUFFPOST SUPER USER
PurpleLove08
10:35 PM on 03/22/2010
I am sorry to hear about your illness. =[
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HUFFPOST BLOGGER
Scott Mendelson, M.D.
11:06 PM on 03/22/2010
You are brave and strong. I admire you and wish you the best. I am very glad that you found the kind and knowledgeable people you needed to find. I hope that your remaining days on Earth are filled with joy and peace. Scott Mendelson
09:48 PM on 03/22/2010
It is just ridiculous that we won't trust people to decide for themselves when their useful lives are over. It is especially troubling when you consider that Republicans are the ones who most adamantly oppose what should be a right of the individual, the same people who claim to champion individual liberties and eschew government control over our lives.

I firmly believe that the vast majority of people will come to the right conclusion, and that with advice and counsel, and a suitable waiting period, should have their wishes carried out.

Nobody would choose to remain hopelessly incapacitated forever. To refuse people the right to die is to condemn them interminably to a form of hell I wouldn't wish on any living creature. It is torture, barbaric, unconscionable. We should all have the right to end our lives with dignity, when we choose, not the government, not our doctors, not our family and not our friends. It should be our decision.
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farmilyman
everything is illusion
09:38 PM on 03/22/2010
Fear of the afterlife and religion won't allow it...........unfortunately.
09:31 PM on 03/22/2010
Responsible pet owners don't keep their pets alive prolonging agony for the animal. The loving thing is to put them to sleep, not selfishly keep them alive with painful and expensive treatment.

People deserve that same right.

The big issue I see is the freedom of choice. If a person has the option for Physician assisted death, that doesn't mean they will choose that option. It is about having another viable option on the table.
09:37 PM on 03/22/2010
Ditto.
08:20 PM on 03/22/2010
You favor the right to die for cases when a "medical problem leads a person to lose everything they feel necessary to continue a dignified, meaningful life?" I don't have a medical problem, but I'm not sure my life is meaningful. And one of the last adjectives I would use to describe my life is "dignified". I mean, I don't sit around in an evening gown, playing piano. People in favor of this right oversimplify issues and use phrases like "death with dignity" which are not so easy to understand. Are people less dignified because they need assistance with their daily activities? The dangers of encouraging the right to die are glossed over. Not everybody has a loving family that is looking out for the best interests of an ill family member. I remember reading a finding once that a major reason people would like to have the right to die was so as not to be a burden on their family. People who are seriously ill are a vulnerable population whose rights must be protected. I do not think there are easy answers to this question.
07:32 PM on 03/22/2010
Religion bashers: Must everything you perceive to be wrong with the world be caused by religion? If you say "yes", you'll be showing yourself to be poorly educated and bigoted. Give it a rest. That whole "I hate everything and everyone religious" is a non-thinker's lazy approach to discussion.

There are many reasons why religious and non-religious people alike would be uneasy about assisted suicide. Suicides tend to occur in clusters, i.e. people who might not otherwise have chosen suicide do so because someone else chose it. Also, people who may have been able to move past their grief or pain might take their life too early because when you're despondent, it can be virtually impossible to imagine a brighter day; yet, most of the time, a better day does arrive.

From a different angle, what should the parameters be, i.e. qualifications and limitations? On what basis? How can you justify excluding anyone?

Society's resistance to offering a program that helps you die provides a much-needed positive commentary on the value of the individual's life. Take away that societal commentary and the consequences could be devastating. Having a handful of states offer such a program is simply not the same as having our entire nation supporting it. To equate the two is naïve at best.

Bottom line, it is a complex issue with serious ramifications. It is best if we hear from every side of the argument, religious, non-religious, and everything in between.
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HUFFPOST BLOGGER
Scott Mendelson, M.D.
08:23 PM on 03/22/2010
We are all expected to show reverence and deference when the Holy Ones tell their God stories. If God says something is so or, more correctly, if one of God's self-appointed messengers says something is so, we are supposed to act as if extra truth and wisdom is now in the mix. I can not do this. There are many horrifying diseases that do not end well; that are exquisitely painful, nauseating and humiliating; do not reveal a loving God's mercy; and should not be made inescapable due to a religious position that it is somehow all part of God's glorious plan. I could not disagree more with your statement that "Society's resistance to offering a program that helps you die provides a much-needed positive commentary on the value of the individual's life." I have seen too many people die in misery to mistake that as a reflection of the value of anyone's life. I see choice and freedom as a far more accurate reflection of such value. It is not a coincidence that so many swallow the fatal medication in the company of loved ones, and as part of a celebration of their life, not their death.
10:22 PM on 03/22/2010
This is your opinion and you are entitled to it. However, you speak it with sarcasm and disdain and that immediately makes an already emotional topic even more emotional. My point is that this approach does not further the conversation, it only serves to ensure that people with opposing views do not communicate in any meaningful way. There are valid concerns and reasons for opposing assisted suicide. Those must be addressed or we'll end up with something we never intended.

If choice and freedom are the determining factors for valuing life, then why shouldn't everyone have access to assisted suicide? At a summer camp I attended, an eight-year-old boy tried to commit suicide. Why stop him? He was truly distraught. Who are we to say he didn't really understand what he was doing? Who determines who is miserable enough to qualify for assisted suicide?

What about the boy's choice and freedom? Does his lack of choice in this matter make him less or more valuable?

If eight is too young, what is the "right" cutoff age? Twenty-one? Thirty? Is it only the old with a debilitating disease that qualify? If so, why - and how do you define "old" and "debilitating? Why doesn't just hating life qualify?

Society's collective belief that an individual's life is worth continuing helps many people get through some truly painful and miserable times, so it does in fact play a critical role that should not be discarded prematurely or carelessly.
10:44 AM on 03/23/2010
BIG difference between “assisted suicide†for the terminally ill and “can not handle the stress of living suicideâ€. The latter being a growing situation among teens and adults with low self-esteem, emotional problems, and/or no life skills. Oregon and Washington seem to have a good method for the terminal. The solution for the other cases requires raising children to have the ability to think, not what to think. To allow open discussion early on dealing with life’s problems and the emotions we feel, not after it’s too late. That will never happen as long as Christian dogma controls our society.

This old Heretic stopped “giving it a rest†years ago. The only pleasure I get out of life these days is annoying the delusional and religious control freaks. They get scared and angry fast when they realize I know more about their Holy Book and history of the Middle East and the US than they do. Their nervousness sets in when they can not answer religious questions nor able to respond to historical facts I put to them. The conversation always ends within minutes with them physically running away, always very angry. The conversations they want is always “believe what I say, or elseâ€. I stay away from ad hominems except for the very worst cases. It is not totally their fault, they were raised to be that way.