iPhone app iPad app Android phone app Android tablet app More

Featuring fresh takes and real-time analysis from HuffPost's signature lineup of contributors
Shelley Hendrix Reynolds

Shelley Hendrix Reynolds

Posted: January 19, 2011 04:26 PM

And we're off!

It's easy to tell the first Monday back after the New Year in the Government Relations department at Autism Speaks. It's full of sparks as rockets start taking off in every possible angle in the race to introduce autism insurance reform legislation in the states. States spend all fall hammering out policy details, knitting coalitions and growing their grassroots advocates and then BANG! It's off to the races. This mad pace continues throughout the first half of the year in the scramble to see whose states will achieve the objective this spring legislative session.

This January, Oregon entered the fray as the first state of 2011 to introduce autism insurance reform legislation with both a House and Senate version of the bill. Oregon has a legislative session that only meets during odd years. The team of volunteers in 2009 worked very hard but we just didn't reach this objective. We know more now. We are armed with more data and more states have enacted legislation. Oregon's volunteer leaders have spent time cultivating that fresh ground and sowing the seeds necessary for success.

Their time is now.
When you look at our map of the United States you see a swath of green across the nation utilized to signify the 23 states that have passed this legislation in the heartland, along the Gulf Coast and up the Eastern Seabord. But the west coast has remained unphased. All children with autism need appropriate health care coverage.

How is it possible that our nation has an entire coast where no coverage exists for our children to access the treatment and therapy they need?

2011 is the year to resolve that injustice. And Oregon Autism Advocates, I hope you will get involved and change your children's destinies.

Martin Luther King, Jr. once said, "Change does not roll in on the wheels of inevitability, but comes through continuous struggle."

With Martin Luther King, Jr. day this past Monday, if you live in a state that has not yet turned green, listen to his words and let that motivate you. Do not give up. Do not sit quietly and depend on others to do this hard work for you. Roll up your sleeves, get busy and get it done. It is worth the struggle.

Yesterday, I spoke with a parent from a state whose law was recently implemented. Their child is severely affected by autism -- and is a teenager. Their family had lost hope. With the advent of the child's new ABA therapy program, because they have access to this treatment, he is now learning independent skills. He is making small meals for himself. He is doing his laundry. He can perform chores around the house. He is contributing to the family unit and because he is more engaged it has changed the dynamic of the family's life and his. These laws are changing lives. They can change yours.

If you live in one of the 27 states that have not passed autism insurance reform and want to get involved to change than visit www.autismvotes.org and sign up today.

Good luck, Oregon. We are rooting for you!

 
 
 
  • Comments
  • 10
  • Pending Comments
  • 0
  • View FAQ
Comments are closed for this entry
View All
Recency  | 
Popularity
photo
LMPE
I connect the most dissimilar things
06:30 PM on 01/20/2011
Ya ha! That's my Oregon!
photo
HUFFPOST SUPER USER
Eric Mann
Do you want to be on the opposite side of Progress
08:59 AM on 01/20/2011
I love to see this sort of focus for all the energy that surrounds Autism. While we still search for a cause (vaccines it ain't) we do know how to treat the symptoms-and given this is a medical condition, all health insurance programs ought to cover them. My wife and I are lucky to have a very comprehensive health insurance program-one of the few boons of being a public school teacher-and going into child-rearing years we investigated all the things like this in our policy. Its amazing that in this day and age Autism treatments are not covered in all health insurance plans.
09:29 AM on 01/20/2011
Hey Eric, I totally agree that all health insurance plans should cover treatments for children with autism. Hopefully, now that you all enjoy the insurance coverage that you have because people fought for it you will continue to work on these projects at the Federal level, etc. so that other families, and potentially your neighbors down the street who work at a job where the health insurance policy is not state regulated, can enjoy the same benefits for their children.
09:31 AM on 01/20/2011
And we aren't going to get drawn into the is it or is it not vaccines on this blog. Just not going to do that. I have opinions on that but regardless of what causes autism in children, they still deserve appropriate access to the treatments and therapies they need.
photo
HUFFPOST SUPER USER
usna73
We are all in this together
07:24 PM on 01/19/2011
Keep up the good work Shelley!

I know it will be a great day when I wake up and find that there is funding all across America to maximize the life potential of all of our citizens suffering from autism,...... and the military needs to hold a bake sale to raise the money for the joint strike fighter jets!!!
07:34 PM on 01/19/2011
That is an awesome dream coming from a Navy boy. :) Research is very important and finding the answers for effective treatments and therapies for our children and adults is critical...but what good does it do to have all that research without having the access to the treatments and therapies that will come from it?

I honestly am so proud of Oregon's volunteers. They are doing a fabulous job. Come on West Coast! (Psssst...another West Coast state has introduced legislation as well. Stay tuned!!!)
05:46 PM on 01/19/2011
The sad truth is all insurance is not created equal (even post ObamaCare). Here in Illinois, insurance plans are not required to cover Autism services if they are "self-funded." That includes a large number of private companies.
06:11 PM on 01/19/2011
Hi Gigi. You are right. It is a process. I have been working on this initiative for over three years now and insurance is one complicated topic. The laws we are working to pass only affect state based legislation at this point. At some point we may be able to reintroduce a federal initiative as we did two years ago as part of the Autism Treatment Acceleration Act. The good news is that we have been successful in getting some self-insured companies to adopt these same practices.

If you go to www.autismvotes.org and sign up there or send us an email at advocacy@autismvotes.org and remind me of this, we can work with you to help you learn how you can approach your self-insured company to change just that! You can help your family and any other family that works for that company that has a child with autism.