“Well, I am sort of counting on it as my kidneys are on their way out due to a genetic defect (ADPKD). The medicare expansion will go into effect in January, where I live. If I cannot get that coverage, I should have a bit of time.”
Marc Shakter on Dec 9, 2013 at 17:29:40
“My father from diagnosis to death from renal failure was less then 3 months, with treatment on medicaid. I often wonder if he went to the doctor when he first had the metal taste in his mouth, instead of waiting 2 or 3 days, if he could have survived. I also wonder why someone with a heart attack, congestive heart failure, and diabetes wasn't being more closely monitored for other health problems that could come from the medications and treatments he was already having.”
“If you have PKD, a genetic disorder, it can manifest at that age and earlier, especially if you have the recessive type. The dominant kind (of which I hear there are two subtypes) takes longer to manifest. I did not see exactly why her kidneys failed. Lots of things can do it, such as exposure to some chemicals and as a consequence of untreated diabetes.”
Syllogizer on Dec 9, 2013 at 18:47:56
“The article really does not say how she came down with it.So we just don't know if she was exposed to toxins or has PKD or what. But untreated diabetes is the least likely of the options you listed, since diabetes usually presents with symptoms that would have sent her scurrying to a doctor long before kidney failure -- especially since the "socialized medicine" would not scare her away from getting treated due to the cost as it might over here in the States. Besides: she is too young to suddenly come down with Type II diabetes, and old to only just recently come down with Type I. Unless (again) it was triggered by rare genetic defect or toxins.”
“In some states, Medicaid has been expanded to cover people with low income. So, that might work out if they live in the right state.”
Marc Shakter on Dec 9, 2013 at 17:06:14
“That doesn't go into effect until the Affordable Care Act goes into effect. And it doesn't guarantee anything. They just shuffle the forms from the website to the state. That doesn't mean the state will actually do anything, and for some people that is too late.”
“So far, the only things I have heard that one can do is drink water and avoid caffeine, but they cannot tell me how much time that will buy me, so I think they are just giving me "paper cranes" to fold.
“That PD sounds better than the machine dialysis. I am glad it is working for him.
I have ADPKD (genetic not chemical), but I also have cysts in my liver and spleen, so they told me that I would not be a candidate for PD when the time comes, I guess because my liver will be too swollen to allow enough volume for the dialysys fluid... not that I can get a straight answer on when that might be.
I wish they would just speak honestly to me, but they are such optimists. They always talk about "you might not need it." However, I have one kidney the size of a football, and the other is still growing, although my blood chemistry is still good. So I sort want to slap the next smiling doctor and tell him (all "hims" so far) that Elvis also might return from live on Mars among the extra-solar aliens.
Of course, no slapping. No excuse for that past the age of 8. Still, I need realistic information if I am to make the best use of my remaining healthy time. It is very frustrating.”
“Baked in the skin, like a plain potato, makes them sweeter... caramelizing the sugars a bit... add a bit of butter and salt. Also, sweet potato pancakes, like latkes but made from raw shredded sweet potatoes is also quite fine. Use chickpea flour if you are gluten intolerant. Hot chiles in the mix is also very fine for those of us who like that sort of thing.”
“Increased humidity is a good thing, although there might be safety issues around this particular method.
As an aside, I have found that eating 1/3 of a cup of ground flax seed has fixed this problem for me. I put it in baked goods. Otherwise, it tastes quite terrible. Fish oil might help too, but it is expensive, tastes even worse than flax, and I am worried about mercury.”
“Ah, a rather terrible thought. She is pathetic and pitiable. True, she is also cruel, greedy, and spoiled, but these are the faults of a child. What one does about a person who has come to adulthood but is still a very ill-behaved almost deranged child, I do not know. Still, the thought of violence done to her is terrible.”
“It sounds like a very socially responsible place. I live about 10 miles away from a paved road, so I think it unlikely that I will see this improved infrastructure here in my lifetime. I am not sure why the big cities here (the US) do not do this. We are not a practical people, and we all know the history here of destroying infrastructure that competed with car culture.”
“Yes, they are deadly... to pedestrians too. I remember one such person almost ran me over when I was crossing and intersection (with the light). The driver was turning left (what is it about left turns that shuts down the brain?). Fortunately, oncoming traffic struck her before she could run me down. She then demanded that I witness that she was not at fault. My sympathies were not with her.”
“This device does not address the seven fundamental problems of riding a bicycle in town: lethal motorists, lethal motorists, lethal motorists, lethal motorists, lethal motorists, lethal motorists, lethal weather/road-conditions.”
CapSen on Nov 11, 2013 at 10:07:58
“What you need is bicycle infrastructure, like here in the Netherlands. A lot of traffic is separated and very safe, within and without built-up areas. But that requires new thinking and investment.
“I would agree. Also, I think it is not consistent with their beliefs. I think that a similar photo set that differed only in being heterosexually oriented would be seen as inappropriate and in poor taste. Although I am not Christian, I was raised as such, so I think I can see how they (even the gay-friendly ones) would see this as a bit off-putting. I think also that it would be possible to integrate being gay with being Christian, and I think the usual customs of modesty would apply. I think that even gay people, such as myself, would find them helpful in establishing a balance in life. They could help one enjoy one's sexuality without being consumed by it.”
“I agree. I saw a somewhat distressed animal engaged in some dominance play with an equally young member of its herd. On the up side, I think the competition with a peer was what occupied its attention most, but it was not having fun.”
“So far, I have seen lot so talk about his hatred of women, and the article mentions his sense of entitlement. There has been no mention of his corruption. I do not know how hating women and his feeling entitled would sit with wealthy Republican contributors. However, would imagine that, if they care a lot about money, his accepting inappropriate "gifts" would bother them.
“Do you know whether it is true that two-spirit people were holy to many native Americans? I have heard this, and it sounds welcome, given that I am two-spirit, but so much is attributed to native Americans, and I have no way of following up on it. Locally, there are Navajo and Zuni, but I do not know any well enough to ask them such questions, and I do not want to annoy them. I get the impression that many strangers just walk up and get pretty nosy about cultural and spiritual issues. I would not like that done to me, so I don't do it to others... but if you know, I would listen.”
afonso santos on Oct 22, 2013 at 22:22:52
“It's absolutely true. This is a quote from Pretty Shield (1856–1944), a medicine woman from the Crow Nation.
Thanks for the information. I thought the quote was interesting and wanted to follow up on who they were and what else they might have to say. I am particularly astounded that somebody of that time would say such a thing.”