It's easy to make fun of the A for effort, the trophy for participation, but the fact is, for Schuyler and countless kids just like her, those trophies are the ones that sit on their shelves. And they're not cheap tokens of faint praise, either.
When I try to imagine Schuyler at 18 or 20 or 30, it's a future that is very hard to see. Her disability, her monster, hangs over all our heads like the Sword of Damocles. Will it squeeze her harder? Will it take her from us?