We all celebrate our 2e heroes once they accomplish something great.They all needed accommodation, though many did not receive them. We do not need our 2e children to be famous, but we do need them to get the assistance they need to do well in school, and further to bring their talents to bare.
It's easy to make fun of the A for effort, the trophy for participation, but the fact is, for Schuyler and countless kids just like her, those trophies are the ones that sit on their shelves. And they're not cheap tokens of faint praise, either.
When I try to imagine Schuyler at 18 or 20 or 30, it's a future that is very hard to see. Her disability, her monster, hangs over all our heads like the Sword of Damocles. Will it squeeze her harder? Will it take her from us?