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Als

Changing My Body to Stay Alive

Randy Pipkin | Posted 04.02.2014 | Healthy Living
Randy Pipkin

My spouse Mark and I begin a new journey this month. The second half of last year kicked my ass and left me in a severely weakened state. I lost 30 pounds in six months. It was weight that I could not afford to lose.

Time Out

Francis Levy | Posted 03.03.2014 | Science
Francis Levy

No one wears watches anymore. They've become as much of an anachronism as cursive handwriting whose death occurred in less than a generation. The nex...

Why the NFL Should Embrace Medical Marijuana

Steph Sherer | Posted 02.19.2014 | Sports
Steph Sherer

The following is an open letter to the two most powerful people in football to explain why and to provide policy suggestions they should consider when drafting the new NFL Policy and Program for Substance Abuse.

Complex Veterans Benefits Cases Require Common Sense Approach

Bill Lawson | Posted 02.18.2014 | Impact
Bill Lawson

Complex medical cases demand human reasoning and judgment to achieve true accuracy. Strict adherence to rules-based algorithms and checklists has already left too many veterans shortchanged in their benefits.

Grateful for the Lemons Life Gives Us

Stuart Muszynski | Posted 01.25.2014 | Impact
Stuart Muszynski

How we each can lift ourselves above the fray -- life's circumstances, negativity and excuses -- is the true message of Thanksgiving that I see. Because, if we're truly thankful, then we will know that our lives have a higher purpose, and our expression of gratitude is to live out that purpose.

How Facebook Gives Me A Voice After ALS Took It Away

Hiro Fujita | Posted 01.25.2014 | Good News
Hiro Fujita

In January, I had to get a tracheotomy so I now breathe through a tube. This means I can no longer speak, but it does not mean I am giving up. My friends give me strength and I will keep fighting. For myself. For others. For a cure. My voice is louder now that ALS took it away.

Who Cares About ALS?

Randy Pipkin | Posted 01.23.2014 | Impact
Randy Pipkin

As Mark and I have gone through this journey and experienced a literal parade of personalities walk into our lives, we have come to realize that no one will ever be perfect. We also know our lives are changed forever and this is the new normal. Plain and simple, caregivers are part of our life now.

WATCH: Father's Final Months Documented For Son In 'I Am Breathing'

HuffPost Live | Posted 09.09.2013 | Parents

In the span of just one year, Neil Platt, a healthy 30-something, became paralyzed from the neck down, due to ALS, or as it's commonly known, Lou Gehr...

Make My Day, Machu Picchu, The Finale

Kevin Swan | Posted 10.20.2013 | Impact
Kevin Swan

When you're on the side of a mountain in the middle of a range chock full of them, dusk turns to darkness in an instant. We were on hour six of our four hour hike, our large group of 25 people, all walking the same treacherous trail.

'A-Rod,' What Would Lou Gehrig Say?

Randy Pipkin | Posted 10.06.2013 | Sports
Randy Pipkin

Dear Mr. Rodriquez, I would be remiss if I did not acknowledge your recent comments about "fighting for your life." I would like you to understand what that profound, emotional claim truly means.

I Have ALS, No Need to Shout!

Randy Pipkin | Posted 09.22.2013 | Impact
Randy Pipkin

Ever since I was diagnosed with ALS (Amyotrophic Lateral Sclerosis), I have noticed that people are 100 percent confused about the deadly disease. I need to set the record straight: people with ALS (PALS) can see, hear and perfectly understand what you're saying.

LOOK: Paralyzed Artist Creates Beautiful Paintings -- With Her Brain

The Huffington Post | Meredith Bennett-Smith | Posted 07.19.2013 | Arts

In 2007, German teacher Heide Pfüetzner's life changed forever when she was diagnosed with the devastating disease Amyotrophic Lateral Sclerosis (ALS...

Imagine a World Without ALS

Nell Tredway Hardy | Posted 08.20.2013 | Impact
Nell Tredway Hardy

For anyone out there who donates to find a cure, thank you! This is about living, taking the next step, beating the odds. Fifteen people are diagnosed with ALS every day. Don't let this disease happen to you or your spouse. Or your neighbor. Or your child. The cure is closer than ever.

Make My Day, Machu Picchu Part 2

Kevin Swan | Posted 08.17.2013 | Impact
Kevin Swan

On the most difficult stretches, I could feel the breath from every one of the men carrying me. Which made me wonder: if my body was tired, what did their bodies feel like? How did they have the capacity, the energy, the drive to continue to lift my chair over and over again?

Former Massachusetts Governor Dies

AP | Posted 06.11.2013 | Politics

BOSTON -- Former Massachusetts Gov. Argeo Paul Cellucci (sel-LOO'-chee) has died of complications from ALS, also known as Lou Gehrig's disease. He was...

Make My Day, Machu Picchu

Kevin Swan | Posted 08.04.2013 | Impact
Kevin Swan

What started as a very simple, almost cordial inquiry via Twitter in mid-February landed me strapped to an all-terrain wheelchair, clinging to the sid...

This Woman Wrote A Book With Only Her Eyes

The Huffington Post | Posted 05.10.2013 | Technology

Darla Burns wrote an entire book without ever physically typing a word. Burns suffers from amyotrophic lateral sclerosis (ALS) and is completely paral...

Not to Worry, My Sister, Not to Worry

Caroline Tredway | Posted 07.08.2013 | Healthy Living
Caroline Tredway

During May, ALS Awareness Month, let's pay special tribute to my sister Nell, all the others living with this disease, and those who have gone before them. Think of them the next time you take a step. Embrace your child. Speak softly to your loved one.

WATCH: The Incredible Power Of A Single Pair Of Glasses

Mick Ebeling | Posted 06.26.2013 | TED Weekends
Mick Ebeling

2013-04-25-ebelingpullThe EyeWriter has been a journey, and due to the nature of ALS it's a never-ending one. It started in 2008, and it continues on today. I am often asked, "Why did you do it?"

Still Lucky

Susan Spencer-Wendel | Posted 04.18.2013 | Healthy Living
Susan Spencer-Wendel

It's odd to think of my autopilot life, the one before. Working at a job I loved and navigating the daily dance of sibling warfare, homework and appointments. Then one night I looked down at my left hand. "Holy shit," I yelped. "You need to go to the doctor," John said.

My Comfortable Chair

John Wendel | Posted 06.05.2013 | Books
John Wendel

Since the recent release of my wife Susan Spencer-Wendel's memoir, Until I Say Good-Bye, people often say to me, "Your wife is such an inspiration." Or: "This woman changed my outlook on life."

Spring Break Meets Oregon Trail

Kevin Swan | Posted 05.29.2013 | Impact
Kevin Swan

While my skiing days might be few and far between until we find a treatment for this disease, that's okay if, and only if, I realize the importance of harnessing that frustration and anger and channeling it into more valuable assets.

A Foodie Finds Helping Hands

Kevin Swan | Posted 05.27.2013 | Impact
Kevin Swan

I was diagnosed with ALS, which affects voluntary muscles from head to toe, in February of last year. I could choose to feel ashamed or disabled when sitting at a dinner table and needing to be fed, or, as I now see it, I get to choose who feeds me!

Susan Spencer-Wendel Has ALS: Lou Gehrig's Disease. But She's Dying on Her Own Terms: Joyously

Jesse Kornbluth | Posted 05.14.2013 | Books
Jesse Kornbluth

Muscles weaken. Walking becomes impossible. Then swallowing becomes a challenge. Then breathing. In the end, the patient finds herself trapped in a non-functioning body, waiting to die.

A Cure With Some Magic and Jordan

Kevin Swan | Posted 05.01.2013 | Impact
Kevin Swan

It had only been a couple of months since I had been diagnosed with ALS, but I was constantly reminded of how few people have actually ever heard of the disease. To say this was frustrating is the PG version of my feelings toward the issue. This sparked the creation of A Life Story Foundation.