Darla Burns wrote an entire book without ever physically typing a word. Burns suffers from amyotrophic lateral sclerosis (ALS) and is completely paral...
During May, ALS Awareness Month, let's pay special tribute to my sister Nell, all the others living with this disease, and those who have gone before them. Think of them the next time you take a step. Embrace your child. Speak softly to your loved one.
It's odd to think of my autopilot life, the one before. Working at a job I loved and navigating the daily dance of sibling warfare, homework and appointments. Then one night I looked down at my left hand. "Holy shit," I yelped. "You need to go to the doctor," John said.
Since the recent release of my wife Susan Spencer-Wendel's memoir, Until I Say Good-Bye, people often say to me, "Your wife is such an inspiration." Or: "This woman changed my outlook on life."
While my skiing days might be few and far between until we find a treatment for this disease, that's okay if, and only if, I realize the importance of harnessing that frustration and anger and channeling it into more valuable assets.
I was diagnosed with ALS, which affects voluntary muscles from head to toe, in February of last year. I could choose to feel ashamed or disabled when sitting at a dinner table and needing to be fed, or, as I now see it, I get to choose who feeds me!
Muscles weaken. Walking becomes impossible. Then swallowing becomes a challenge. Then breathing. In the end, the patient finds herself trapped in a non-functioning body, waiting to die.
It had only been a couple of months since I had been diagnosed with ALS, but I was constantly reminded of how few people have actually ever heard of the disease. To say this was frustrating is the PG version of my feelings toward the issue. This sparked the creation of A Life Story Foundation.
Dan Toler, who played guitar in the Allman Brothers Band, has passed away from amyotrophic lateral sclerosis, according to news reports. He was 65. ...
Every day is a challenge, even in a battle between my body and me. Don't get me wrong, I do have a choice in what I put in my body, but how my body functions or even appears is outside of my control because of ALS.
As if being diagnosed with a terminal disease (for the record, I have no intention of letting this beat me) isn't bad enough, it is a disease that the general public has never heard of or knows very little about.
No press is bad press when it comes to creating awareness and action around a disease as devastating as ALS. After the conclusion of the AFC champions...
It had taken nearly 18 months from the day I noticed my first symptom to get to that exam room. I suppose in the back of my mind, I always suspected or maybe even knew it was ALS.
FOXBOROUGH, Mass. (AP) — O.J. Brigance is going back to the Super Bowl with the Baltimore Ravens, a model of toughness and perseverance. ...
"I discussed your desire to swim the Channel with the doctors on the tumor review board, and I'm sorry, but no one believes that you will be able to do it. The fatigue from the chemo will be too great." I looked at my husband and thought they don't know me.
AMSTERDAM -- The Netherlands' Princess Maxima has joined a thousand other swimmers braving a two-kilometer tour of Amsterdam's ancient canals to raise...
ALS is a harsh reality for everyone it touches. But the battle against ALS is one worth fighting and my hope is that through Prize4Life, I can make an impact and enable others to make one too.
Rather than wait to break the news on his show "Cake Boss" (Mon., 9:30 p.m. ET on TLC), Buddy Valastro opened up to People. There, he revealed that hi...
Writer Dudley Clendinen, whose struggles with amyotrophic lateral sclerosis (ALS), commonly known as Lou Gehrig's Disease were self-chronicled on publ...
Stephen rarely does public talks anymore. When he does, he draws an impressive crowd. And most of the people sitting in those seats are unaware of the effort that goes into composing the script he will follow over the course of the evening.
May is ALS Awareness Month and while most of us have heard of ALS Disease, often referred to as Lou Gehrig's disease, there is little we actually know.
If we all put aside the ten minutes it takes to take action, we can collectively implement change.
When it comes to health, your baseline is a whole atlas of personal health information. Knowing how to read that atlas can help you to set goals on your wellness journey -- and to achieve them.
One thing all researchers agree on is that the types of head injuries sustained during football games can cause depression, changes in mood and behavior, memory loss, and even early dementia.
