I was talking by the time they arrived, but because of my speech which has been directly affected by ALS, they thought I may have had a stroke because I was slurring my words. Nope, no stroke, just ALS.
Almost everybody has heard of Alzheimer's, but few are aware of LBD, an equally devastating dementia that is progressive and fatal. Perhaps Kasem's diagnosis may finally bring LBD the attention it deserves.
Augie Nieto didn't just come to grips with his ALS, he began to persevere and overcome. He summoned those same rare qualities that made him an effective and respected leader, and applied them to his new reality.
As this tenacious disease continues to attack my body, I am forced to rely on others for so much of my day-to-day life. Accepting this was extremely difficult in the beginning but I have learned to not only accept it, but embrace it.
My spouse Mark and I begin a new journey this month. The second half of last year kicked my ass and left me in a severely weakened state. I lost 30 pounds in six months. It was weight that I could not afford to lose.
The following is an open letter to the two most powerful people in football to explain why and to provide policy suggestions they should consider when drafting the new NFL Policy and Program for Substance Abuse.
Complex medical cases demand human reasoning and judgment to achieve true accuracy. Strict adherence to rules-based algorithms and checklists has already left too many veterans shortchanged in their benefits.
How we each can lift ourselves above the fray -- life's circumstances, negativity and excuses -- is the true message of Thanksgiving that I see. Because, if we're truly thankful, then we will know that our lives have a higher purpose, and our expression of gratitude is to live out that purpose.
In January, I had to get a tracheotomy so I now breathe through a tube. This means I can no longer speak, but it does not mean I am giving up. My friends give me strength and I will keep fighting. For myself. For others. For a cure. My voice is louder now that ALS took it away.
As Mark and I have gone through this journey and experienced a literal parade of personalities walk into our lives, we have come to realize that no one will ever be perfect. We also know our lives are changed forever and this is the new normal. Plain and simple, caregivers are part of our life now.
When you're on the side of a mountain in the middle of a range chock full of them, dusk turns to darkness in an instant. We were on hour six of our four hour hike, our large group of 25 people, all walking the same treacherous trail.
Ever since I was diagnosed with ALS (Amyotrophic Lateral Sclerosis), I have noticed that people are 100 percent confused about the deadly disease. I need to set the record straight: people with ALS (PALS) can see, hear and perfectly understand what you're saying.
For anyone out there who donates to find a cure, thank you! This is about living, taking the next step, beating the odds. Fifteen people are diagnosed with ALS every day. Don't let this disease happen to you or your spouse. Or your neighbor. Or your child. The cure is closer than ever.
On the most difficult stretches, I could feel the breath from every one of the men carrying me. Which made me wonder: if my body was tired, what did their bodies feel like? How did they have the capacity, the energy, the drive to continue to lift my chair over and over again?