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Amyotrophic Lateral Sclerosis

75 Years Later, Lou Gehrig's "Luckiest Man on the Face of Earth" Speech, Remains the Greatest Speech in Sports History

Dave Kreissman | Posted 07.08.2014 | Sports
Dave Kreissman

On July 4, 1939 a frail Henry Louis Gehrig stepped in front of a packed crowd at Yankee Stadium. The Manhattan-native knew he was sick, but he was unaware that his illness (Amyotrophic lateral sclerosis or ALS) would soon claim his life.

Thinking About Theater and Ode to Joy

Cara Joy David | Posted 06.21.2014 | Arts
Cara Joy David

For a change of pace, today I'm offering you a series of random theater-related thoughts. None of which could take up a post on its own, but together they seem worthy.

75 Years Later, Gehrig's Still the Man

Ken Reed | Posted 06.09.2014 | Sports
Ken Reed

Gehrig was not only a great baseball player, he was a great man. Not only did he set a standard that all baseball players can aspire to, as Landis pointed out, he also set a standard that all human beings can aim for, whatever role they play in life.

What Happens When the Love of Your Life Dies?

Mark Malinowski | Posted 05.27.2014 | Healthy Living
Mark Malinowski

After a nine-year battle, my husband Randy Pipkin died of ALS in late March. Aside from the horrors of ALS, we had a great life together. We lived in the moment and truly were partners in life. Before Randy got sick, we traveled the world, lived in New York City and enjoyed the best life had to offer. We had big jobs, a big life and, most importantly, we were truly in love.

They May Call It Lou Gehrig's Disease, but They'll Call It Augie Nieto's Cure

Rich Polt | Posted 07.15.2014 | Impact
Rich Polt

Augie Nieto didn't just come to grips with his ALS, he began to persevere and overcome. He summoned those same rare qualities that made him an effective and respected leader, and applied them to his new reality.

The Last Blog Post

Mark Malinowski | Posted 06.24.2014 | Impact
Mark Malinowski

We watched movies. We drove around our town, Hingham, and took in the beautiful sites on the South Shore of Boston. We tried, until the very end, to keep our life together going.

Post-Surgery Hell and the Important Lessons Learned

Randy Pipkin | Posted 05.27.2014 | Healthy Living
Randy Pipkin

I have been fighting a PEG tube for long time. But never in my wildest imagination would I think the experience would turn into a gore fest. So, what did I learn from all of this?

Changing My Body to Stay Alive

Randy Pipkin | Posted 04.02.2014 | Healthy Living
Randy Pipkin

My spouse Mark and I begin a new journey this month. The second half of last year kicked my ass and left me in a severely weakened state. I lost 30 pounds in six months. It was weight that I could not afford to lose.

Why the NFL Should Embrace Medical Marijuana

Steph Sherer | Posted 02.19.2014 | Sports
Steph Sherer

The following is an open letter to the two most powerful people in football to explain why and to provide policy suggestions they should consider when drafting the new NFL Policy and Program for Substance Abuse.

How Facebook Gives Me A Voice After ALS Took It Away

Hiro Fujita | Posted 01.25.2014 | Good News
Hiro Fujita

In January, I had to get a tracheotomy so I now breathe through a tube. This means I can no longer speak, but it does not mean I am giving up. My friends give me strength and I will keep fighting. For myself. For others. For a cure. My voice is louder now that ALS took it away.

The 'Dis-Ease' of Disease: Who's Living Well?

Craig Bowron | Posted 01.23.2014 | Healthy Living
Craig Bowron

We've all heard stories from cancer survivors or cancer non-survivors about how the cancer made them more alive than ever, about how it brought their world out of black and white and into Technicolor, like Dorothy landing in Oz.

Why the NFL Needs to Have Its Head Examined

Aysha Akhtar, M.D., M.P.H. | Posted 01.23.2014 | Science
Aysha Akhtar, M.D., M.P.H.

The NFL continues to fund misleading head injury studies on animals that will not get the league closer to identifying the precise causes of brain trauma in football players and how to prevent and treat it.

Who Cares About ALS?

Randy Pipkin | Posted 01.23.2014 | Impact
Randy Pipkin

As Mark and I have gone through this journey and experienced a literal parade of personalities walk into our lives, we have come to realize that no one will ever be perfect. We also know our lives are changed forever and this is the new normal. Plain and simple, caregivers are part of our life now.

Destined to Die for Not Fitting In?

Randy Pipkin | Posted 11.04.2013 | Impact
Randy Pipkin

What's so painful for me and people like me? It's simple. We do not qualify for the few meaningful clinical trials tied to treatments that could potentially save our lives.

Make My Day, Machu Picchu, The Finale

Kevin Swan | Posted 10.20.2013 | Impact
Kevin Swan

When you're on the side of a mountain in the middle of a range chock full of them, dusk turns to darkness in an instant. We were on hour six of our four hour hike, our large group of 25 people, all walking the same treacherous trail.

I Have ALS, No Need to Shout!

Randy Pipkin | Posted 09.22.2013 | Impact
Randy Pipkin

Ever since I was diagnosed with ALS (Amyotrophic Lateral Sclerosis), I have noticed that people are 100 percent confused about the deadly disease. I need to set the record straight: people with ALS (PALS) can see, hear and perfectly understand what you're saying.

WATCH: Their Touching Love Story Will Bring You To Tears

Posted 07.17.2013 | Weddings

After the Supreme Court struck down the Defense of Marriage Act last month, John Arthur and his partner of 20 years, Jim Obergefell, decided it was fi...

Imagine a World Without ALS

Nell Tredway Hardy | Posted 08.20.2013 | Impact
Nell Tredway Hardy

For anyone out there who donates to find a cure, thank you! This is about living, taking the next step, beating the odds. Fifteen people are diagnosed with ALS every day. Don't let this disease happen to you or your spouse. Or your neighbor. Or your child. The cure is closer than ever.

Waiting for a Breakthrough -- One Person's ALS Story

Randy Pipkin | Posted 08.12.2013 | Impact
Randy Pipkin

I was enjoying a great life in Manhattan as a marketing executive until one sentence forever changed my life: "You have Amyotrophic Lateral Sclerosis....

Not to Worry, My Sister, Not to Worry

Caroline Tredway | Posted 07.08.2013 | Healthy Living
Caroline Tredway

During May, ALS Awareness Month, let's pay special tribute to my sister Nell, all the others living with this disease, and those who have gone before them. Think of them the next time you take a step. Embrace your child. Speak softly to your loved one.

My Body Is a Wonderland

Kevin Swan | Posted 04.16.2013 | Healthy Living
Kevin Swan

Every day is a challenge, even in a battle between my body and me. Don't get me wrong, I do have a choice in what I put in my body, but how my body functions or even appears is outside of my control because of ALS.

A Dying Man's Last Wish: Change Our Laws

Pat LaMarche | Posted 06.16.2012 | Politics
Pat LaMarche

Curtis Johnson, a 55-year-old business man and educator who suffers from Amyotrophic Lateral Sclerosis otherwise known as ALS, finds that even though he lives in Washington he cannot get the assistance he needs to end his suffering when the time comes.

Scientists Pinpoint The Cause Of Lou Gehrig's Disease

The Huffington Post | Amanda Chan | Posted 10.22.2011 | Healthy Living

Researchers have pinpointed the cause of amyotrophic lateral sclerosis -- most commonly known as ALS, or Lou Gehrig's disease -- a deadly, paralyzing ...

Art and Movement: An Artist's Connection to Lou Gherig's Disease

Miriam Cabessa | Posted 05.25.2011 | Impact
Miriam Cabessa

I was delighted to donate my painting to the Prize4Life auction benefiting Lou Gehrig's disease. Researching the disease made me realize that my muscle coordination is a faculty that I too easily take for granted.

The Friend I Never Met

Dr. Irene S. Levine | Posted 11.17.2011 | Healthy Living
Dr. Irene S. Levine

I feel very proud to be part of a writing community that has circled around a woman that many have only met once or twice, or like myself, only know virtually.