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Childhood Cancer Awareness

Mom On A Mission To End Childhood Cancer Gets GLAM4GOOD!

Mary Alice Stephenson | Posted 03.24.2014 | Style
Mary Alice Stephenson

One of the bravest women I know is a 31-year-old single mom named Elissa Gaus. Elissa's world shattered on May 7, 2010. It was the day her 4-year-old son Micah was diagnosed with a baseball-sized brain tumor.

How a Treadmill Helped me Cope With my Daughter's Diagnosis

Suzanne Leigh | Posted 01.23.2014 | Parents
Suzanne Leigh

My subconscious dictated that if I ran fast enough and far enough, maybe I would be strong enough to save her.

7 Ways To Help A Family Facing Cancer -- And 3 Things NOT To Do

Claire McCarthy, M.D. | Posted 11.11.2013 | Parents
Claire McCarthy, M.D.

We worry about scaring our children, and cancer can be scary. But by involving your children in helping, not only do you teach them compassion, you give them an important perspective.

Awareness... What A Bullsh*t Word

Erin Santos | Posted 11.10.2013 | Parents
Erin Santos

Times are changing. These kids are fighting harder and longer. Their stories are getting out there because the chemo drugs are not curing kids, but they are extending their lives. People ARE aware of them. Awareness of pediatric cancer is out there. But now we are getting stalled because the movement is not moving.

Childhood Cancer Advocacy and Direction: The Tail Wagging the Dog

Jonathan Agin | Posted 10.01.2013 | Impact
Jonathan Agin

I believe that insistence must be placed upon investing in research that has multiple controls in the form of collaborative checks and balances.

The Equitable Inequities of Childhood Cancer

Jonathan Agin | Posted 09.17.2013 | Impact
Jonathan Agin

Childhood cancer does not discriminate. Childhood cancer simply is. It exists as a killer that cares not for arbitrary divisions. We can and should learn from this example of unfortunate unity.

Bringing Us All Together - Part IV

Jonathan Agin | Posted 06.10.2013 | Impact
Jonathan Agin

From my earliest entree into blogging in my daughter Alexis' journal, I learned quickly that the childhood cancer community was a very disorganized and dis-unified group of entities and individuals who all had the same ultimate goal: a cure.

The Words I Don't Like Hearing After My Daughter's Death

Sheila Quirke | Posted 06.08.2013 | Parents
Sheila Quirke

The words we use to talk about cancer, in children and adults, influence how we think about cancer and those unlucky enough to be touched by it. Survivors are called "victorious" and "winners." Those who have not survived their cancer are called "angels" and "in a better place.

Alexis Agin, You Are an Ironman

Jonathan Agin | Posted 04.07.2013 | Impact
Jonathan Agin

There are times in long endurance events when the destructive thoughts begin to filter through your brain, suggesting how truly pleasurable it would feel to simply take a seat and stop. As those thoughts taunted me, my mind turned to one thought: my daughter never quit, neither will I.

Open Letter to President Obama

Jonathan Agin | Posted 03.24.2013 | Impact
Jonathan Agin

I wanted to take this opportunity to bring to light an issue that I think deserves much more awareness and attention on the federal level. Childhood cancer. Childhood cancer is the number one disease killer of our children in this country. Were you aware of this fact?

Hope and Inspiration From Loss

Jonathan Agin | Posted 03.06.2013 | Impact
Jonathan Agin

There is a message of hope in each and every child and family who hears some of the worst words in the English language, "your child has cancer." There is honor in making everyone aware of these heroes.

Choosing What to See

Judith Hannan | Posted 11.24.2012 | Parents
Judith Hannan

My challenge, to anyone who cares to tackle it, is to keep your eyes open a bit longer than you think you can stand. If for only one day this month, enter the world of childhood cancer. Become aware.

Donna's Cancer Story: Proton, Here We Come

Sheila Quirke | Posted 11.24.2012 | Parents
Sheila Quirke

Most of the other guests at Jill's House were older men receiving proton for their prostate cancer. These folks quickly became like extra grandparents to Donna and Mary Tyler Son. There was always a set of arms wanting to hold and moon over the baby. It was a Brigadoon in Cancerville.

Donna's Cancer Story: It's a Boy!

Sheila Quirke | Posted 11.22.2012 | Parents
Sheila Quirke

Donna developed a fever and we were told to bring her in to the ER. It was 3 a.m. on Christmas Eve and there was a blizzard happening. Poor Mary Tyler Dad was out in the alley trying to push the car and I was inches from delivery and trying to steer the car with my big belly in the way.

Donna's Cancer Story: The North Pole

Sheila Quirke | Posted 11.21.2012 | Parents
Sheila Quirke

As we exited the plane, rows of Chicago firefighters and police officers gave the kids standing ovations. I lost it -- tears, sniffles, undisguised emotion. Something about these men and women who put their lives on the line daily saluting these sick kids really moved me.

Tell Harry Reid: Let's Pass the Safe Chemicals Act Now!

Margie Kelly | Posted 11.20.2012 | Parents
Margie Kelly

Now is the time for action if you agree there should be a stronger law to protect your kids from toxic chemicals found in your couches, carpets, household cleaners, canned foods and more.

Donna's Cancer Story: Chemo 2.0

Sheila Quirke | Posted 11.20.2012 | Parents
Sheila Quirke

After a checkup to ensure Donna's brain wasn't swelling from the drugs, our oncologist asked her, "How is it that you are as sweet as you are?" Donna considered that question a moment, turned to look at me, and responded: "Because I love my Mommy and Daddy so much."

Donna's Cancer Story: Relapse 3.0

Sheila Quirke | Posted 11.19.2012 | Parents
Sheila Quirke

How to reconcile the girl in our photos, our beautiful Donna, with the photos the doctors order, those inside her body? How, as a parent, do you make sense of what you see in front of you and what the doctors tell you is happening?

Donna's Cancer Story: Dance Class

Sheila Quirke | Posted 11.18.2012 | Parents
Sheila Quirke

Getting Donna into dance was one of the ways we chose hope, the mantra that had guided our Cancer Parenting since diagnosis. Choosing hope meant believing that Donna would enjoy her classes, make it to the recital, shine on a stage like the star she was, and live.

Childhood Cancer Awareness

Sherri Bushong Maxey | Posted 11.12.2012 | Impact
Sherri Bushong Maxey

Children should never have to learn about blood counts, steroids, chemotherapies, radiation but the cold hard facts are that they do.

Donna's Cancer Story: Family Portrait

Sheila Quirke | Posted 11.12.2012 | Parents
Sheila Quirke

My heart breaks a little whenever I see these photos. I ache for the family that was. I want to protect our naivete. While I can't do that, I can remember the family we were. I can see our joy and our love and marvel at Donna's beauty and light. All of those things are intact. Still, today, intact.

Donna's Cancer Story: Transplant, Part II

Sheila Quirke | Posted 11.10.2012 | Parents
Sheila Quirke

I cannot describe what it is like to see your child suffer and know that you are incapable of making it better.

Donna's Cancer Story: Harvest

Sheila Quirke | Posted 11.08.2012 | Parents
Sheila Quirke

You know your kid is sick when you're jealous of another kid's cancer.

Donna's Cancer Story: Questions

Sheila Quirke | Posted 11.07.2012 | Parents
Sheila Quirke

If you see a bald child, smile. Look their parent in the eye. Let them know you understand. Be aware that you are looking at greatness. Know that kid is amazing and brave and so very, heartbreakingly vulnerable. Just like Donna.

Donna's Cancer Story: Vacation

Sheila Quirke | Posted 11.06.2012 | Parents
Sheila Quirke

There my husband was, tossing his burger, repeatedly, and I was incensed. 'How could he?' I remember thinking. My picture-perfect family getaway where we were going to ignore cancer for five whole days was being usurped not by chemo or neutropenia or cancer but by blue cheese!