In the end, we are all human beings, and we owe it to these children to share this potentially lifesaving drug. No matter the obstacles in the way, when a child's life is on the line, you do what you have to.
As time went by during my daughter Alexis' long thirty-three month battle, we found out that her tumor was growing. We found ourselves in Manhattan seeking to gain enrollment in what looked to be a potentially promising trial. But after preliminary tests we were told that Alexis was ineligible.
It starts with us as advocates educating our physicians on these pathways and expanding the overall knowledge base of these channels. This is often difficult for a parent who is trying to balance saving their child with making every moment count.