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Profound Conversations With My 5-Year-Old Baby Girl

Suman Ganesh | Posted 04.16.2014 | Parents
Suman Ganesh

New memories will take the place of old ones and the old ones will tend to fade. So writing has become very important for me. If it's all written down somewhere with all the nitty-gritty details, I know I can read it for years to come and know that her memories are intact.

Child Soldiers -- The Forgotten Victims

Jonathan Agin | Posted 07.28.2013 | Impact
Jonathan Agin

This Memorial Day, we paused to offer thanks to all those men and women who have bravely and selflessly donned the uniform of our country to ensure ou...

Adrift in the Waters of Childhood Cancer -- Arguing to Change the Standard of Care

Jonathan Agin | Posted 07.16.2013 | Impact
Jonathan Agin

April 11, 2008 will always remain etched in my memory for one simple reason. It is the day that we heard the words "your daughter has cancer." They are four of the worst words that a parent could ever imagine hearing.

The Patient Choice Act - Providing Choice Instead of Death

Jonathan Agin | Posted 07.02.2013 | Impact
Jonathan Agin

As time went by during my daughter Alexis' long thirty-three month battle, we found out that her tumor was growing. We found ourselves in Manhattan seeking to gain enrollment in what looked to be a potentially promising trial. But after preliminary tests we were told that Alexis was ineligible.

The Lessons We Learned From My Daughter's Unbearably Short Life

Parenting.com | Posted 06.29.2013 | Parents
Parenting.com

In the days left, we would live life in the way that Maddie loved. We would enjoy our time, and use our "forever" to miss her. She was here now and needed her little sisters, Amelia and Lucy, her family, her friends and lots of fun.

Bringing Us All Together - Part IV

Jonathan Agin | Posted 06.10.2013 | Impact
Jonathan Agin

From my earliest entree into blogging in my daughter Alexis' journal, I learned quickly that the childhood cancer community was a very disorganized and dis-unified group of entities and individuals who all had the same ultimate goal: a cure.

Italian Wedding Soup

Jonathan Agin | Posted 04.23.2013 | Impact
Jonathan Agin

Every parent who has lost a child to disease or some other mechanism knows this pang. In most instances, as time marches beyond the day your child passed away, these moments of blunt force trauma to the soul are brought about without any warning or advanced notice.

Are We Not Recalcitrant Enough?

Jonathan Agin | Posted 03.16.2013 | Impact
Jonathan Agin

For those of us who fight for greater federal funding, it is simply not acceptable to allow childhood cancer to be so poorly treated and under-recognized.