There is no one fiercer or scarier or more real in this world than a dragon mother. Dragon mothers are mothers who grieve for children who have died or are terminally ill.
“He was totally helpless. That makes me want to live a big life because he never got to make any decisions on his own.”
On January 10, 2011, my husband, Rick, and I received the worst possible news: that our son, Ronan, then nine months old, had Tay-Sachs disease, a rare, progressive and always fatal condition with no treatment and no cure.