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Eteplirsen

President Obama Could Help Save Dying Children, But Apparently He Prefers Budweiser

Tracy Seckler | Posted 06.04.2014 | Impact
Tracy Seckler

On March 27, the very day we reached 100,000 signatures, another petition on the White House's We the People website also hit the mark. Sponsored by Budweiser and promoted through a professional ad campaign, "Declare Major League Baseball Opening Day a National Holiday" has already been graced with an official White House reply.

Needless Delay for a Medicine That Could Save Kids' Lives

Tracy Seckler | Posted 05.05.2014 | Healthy Living
Tracy Seckler

My advisors tell me to keep working the system, to keep the door cracked open by giving FDA officials opportunities to "save face" and encourage a new drug application for eteplirsen. But I cannot allow any more time to go by.

Two Brothers Have Same Debilitating Condition, But Only One Approved For Experimental Drug

Posted 08.20.2012 | Healthy Living

Two Vermont brothers have the same debilitating condition -- Duchenne muscular dystrophy. Max Leclaire, 10, is on an experimental drug called eteplirs...