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Genetic Disorders

'This Was Not The Parenthood I'd Bargained For'

Posted 08.01.2014 | OWN

As a young man, writer Hamilton Cain loved his freewheeling, fun-filled life. But when the birth of his first son brought unimagined challenges, h...

Just One of the Girls

Wendy Ferguson | Posted 06.26.2014 | Parents
Wendy Ferguson

For all of Abby's 9 years, I admit that I have been a very protective parent. Even before we knew she had special needs, let alone a terminal illness, I found myself trying to protect her from actual and perceived dangers.

My Greatest Sorrow Is My Greatest Joy

Wendy Ferguson | Posted 06.05.2014 | Parents
Wendy Ferguson

She's dying. My 9-year-old daughter is dying. Today I can say it without crying, but not necessarily tomorrow.

I Made This Baby

Suzanne Perryman | Posted 04.30.2014 | Parents
Suzanne Perryman

We never planned to have more kids, but we were so happy as a family, we never really planned not to.

First-Of-A-Kind Intellectual Disability Blood Test For Infants Approved

AP | Posted 01.25.2014 | Parents

WASHINGTON (AP) — The Food and Drug Administration has cleared a first-of-a-kind blood test that can help predict intellectual disabilities in infan...

My Experience With Rett Syndrome

Gaby Valner | Posted 02.05.2014 | Healthy Living
Gaby Valner

Although intellectually and conversationally the doors have been unlocked, there are still so many things I struggle with. Even typing this speech has taken days to get this far and will take several days more to complete, typing literally one letter at a time with my right pointer finger.

How Much Do You Want to Know About Your Unborn Child's DNA?

Kyle Koeppel | Posted 10.08.2013 | Healthy Living
Kyle Koeppel

I personally would not select out or abort a fetus because it tested positive for Lynch Syndrome. I find it ironic that a living person has to wait until the age of 18 to have genetic testing, but an unborn child's parents can determine whether or not the child has Lynch Syndrome before birth.

Prenatal Testing: It's Just Information, Not Answers -- or a Guarantee

Claire McCarthy, M.D. | Posted 07.16.2013 | Parents
Claire McCarthy, M.D.

The pace of genetic research is stunning and exciting. But there is more to life and health than genetics.

Maximize Your Disabled Child's Government Aid

Jason Alderman | Posted 05.27.2013 | Business
Jason Alderman

Parents of special needs children have enough on their plates just tending to the needs of their kids. So it's not surprising that many of these parents haven't had time to hatch a long-term financial plan in case their kids need care after they're not around.

Amazing Little Girl Helps Homeless On Way To Chemo Every Week

Posted 03.05.2013 | Impact

Ella Wilson makes a special stop on her way to chemotherapy every Thursday. The 6-year-old who has neurofibromatosis, a genetic disorder in which n...

A Mother's Journey From 'What Ifs' to 'What Is'

Jennifer Peruso | Posted 07.10.2012 | Parents
Jennifer Peruso

It was agonizing to see his tiny body fighting so hard for survival. He could have fit in the palm of my hand, yet I wasn't allowed to hold him. I instantly knew his fight would become mine.

Scientists Find Gene For Common Skin Disorder

Posted 04.23.2012 | Science

By: MyHealthNewsDaily Staff Published: 04/23/2012 01:37 PM EDT on MyHealthNewsDaily Researchers say they have identified a gene linked to the mo...

UConn's Role in Shaping the Future of Medicine

Susan Herbst | Posted 05.23.2012 | College
Susan Herbst

"Personalized medicine" is opening the door to a whole new world of medical care -- one that would offer a tailor-made approach to treating and preventing health problems in individual patients.

Watch: AMAZING 'Cyclops' Shark Discovered

The Huffington Post | Mark Hanrahan | Posted 12.18.2011 | Green

A one-eyed 'cyclops' shark fetus discovered in July is the real thing, according to scientists. The animal was discovered inside its mother, a dusk...

Finding Financial Aid for Special Needs Children

Jason Alderman | Posted 11.17.2011 | Healthy Living
Jason Alderman

Fortunately, many government programs and community resources are available to help relieve the financial burden of parenting special needs children.