All of us have cancer narratives that shape our lives, and we have little choice about how those narratives begin. But we do have a choice about how we respond. We can control our own information, and we can make it public and accessible to everyone who is working towards a better future for us and our children.
Like Henrietta Lacks' family, millions of us will soon confront questions about our genomes. We should learn as much as we can, and plan more carefully now, before it is too late. Our genomic data may reveal aspects of our fate, but we can still potentially control how and when the information is used.