There are thousands of truly sick people who are convinced that they have a chronic form of Lyme. But many of them receive a diagnosis based on unvalidated tests that have never fully been proven to show they correctly identify the disease.
What I do know with certainty is how little is known about Lyme. Tests are inadequate. Treatments are not well-defined. I've had four Lyme tests (so far). Two have come back positive and two have come back negative.