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Neurofibromatosis

Amazing Little Girl Helps Homeless On Way To Chemo Every Week

Posted 03.05.2013 | Impact
Read More: Genetic Disorders, Children?S Hospital of Philadelphia, Ella Wilson, Sick Child Helps Others, Sick Child Raises Money, Greatest Person of the Day, Girl With Genetic Disorder, Jeneece Edroff, British Columbia, Neurofibromatosis, Mayo Clinic, Child Chemotherapy, Impact News

Ella Wilson makes a special stop on her way to chemotherapy every Thursday. The 6-year-old who has neurofibromatosis, a genetic disorder in which n...

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LOOK: The World's Largest Underwear Race!

The Huffington Post | Brandon Wetherbee | Posted 02.05.2013 | DC
Read More: Underwear Run, Charity Run, Video, Undie Run Dc, Dc Impact, Children's Tumor Foundation, Dc Around Town, Cupids Undie Run Dc, Cupid's Undie Run Dc, Neurofibromatosis, Cupid's Undie Run, Underwear Charity, Cupid's Undie Run Nyc, DC News

This Saturday, 8,000 runners around the world will raise money for The Children's Tumor Foundation. And they'll be in their underwear. Chad Leather...

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'My Giant Face Tumor': Ed Port Says Children See Him As A Monster

Posted 10.18.2012 | TV
Read More: TV Canada, Video, Reality TV, My Giant Face Tumor, Type 2 Neurofibromatosis, Tv Replay, Ed Port, Neurofibromatosis, TV News

Ed Port was 39 at the time of filming for "My Giant Face Tumor" on TLC. Now 42, he still suffers from Type 2 Neurofibromatosis, a disease which can le...

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'Bubble Skin Man' Diagnosed At Last; Weighing Options

Huffington Post | David Moye | Posted 06.19.2012 | Weird News
Read More: Weird UK, Video, Tlc, Elephant Man, Weird Science, Anthony Gaspari, Bubble Skin Man, Weird Indonesia, Martin Wisnu, Chandra Wisnu, Anatomical Wonders, Liz Wisnu, Slideexpand, Weird Photos & Videos, Neurofibromatosis, The Bubble Skin Man, Bubble Man, Bubble Skin Man After Surgery, Weird News News

Chandra Wisnu, the Indonesian man known as the "Bubble Skin Man," has spent the last 25 years trying to find a cure for the bizarre condition that cau...

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'Man With The 200lb Tumor' Undergoes Risky Surgery

Posted 06.07.2012 | TV
Read More: TV Canada, Video, Reality TV, Tlc, Hai, Vietnam, Man With the 200lb Tumor, Tv Replay, Neurofibromatosis, TV News

Nguyen Duy Hai suffers from a rare form of neurofibromatosis, and coming from a remote region of Vietnam, he has struggled to manage his illness, whic...

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Tebow Takes Girl, 10, With Tumor Condition On Date Fit For Princess

Posted 06.14.2012 | Impact
Read More: Video, Presli Collins, Tim Tebow Charity, Tim Tebow, Cartoon Network's Hall of Game Awards, Tebow, Impact Sports, Wish 15 Program, Nf1, Neurofibromatosis, Tim Tebow Broncos, Impact News

When 10-year-old Presli Collins got the call that she would go on the first date of her life with Tim Tebow, she was able to put her medical nightmare...

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Hockey Team Buys Superfan, 11, A New House

Posted 06.14.2011 | Impact
Read More: Charlotte, Philanthropy, Charlotte Checkers, Zach Bennett, Albany River Rates, Ahl, Neurofibromatosis, Hockey, North Carolina, Impact News

When the Albany River Rats packed up their pucks and sticks to move to Charlotte, N.C., dedicated 11-year-old fan Zach Bennett told his parents he wan...

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