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The Medicare Crisis and End of Life Care

Posted: 06/ 7/11 02:17 PM ET

Medicare is on the minds of many baby boomers. It has been on my mind for a while, even before the current political wrangling about its fate. Let's face it; we have been here before, though the stakes seemed much lower.

I am not writing to make a political statement about Medicare. To be clear, I am biased in the direction of supporting all kinds of entitlement programs for seniors, as well as non-seniors. But I had a very interesting discussion recently with a patient about the impact of what Medicare actually pays for. He was talking with me about his advance directives. Though many of us don't like to think about it, advance directives are the decisions we make about end-of-life care or the kind of care that occurs when we are seriously ill. For example, if your heart stops while you are in the hospital, would you like to be resuscitated? If you can't breathe on your own, would you like to be intubated (receive a breathing tube)? And so on.

It turns out that modern medicine can do a lot to preserve us and we have a lot of choices in terms of how we want to live. My patient was talking about a recent New York Times Op-Ed article by Paul Krugman. He got worried that Krugman was suggesting that Medicare seriously look at the costs of end-of life care, as well as other expenses. I am not sure what Krugman was thinking -- and since the infamous Death Panel, um, "situation," in 2009, it seems quite scary for any person to talk openly about this aspect of end-of-life care for fear of saying something that can make us all very anxious and some incredibly angry.

Political dramas aside, what seems of paramount importance is that we not worry so much about what the government will do to us when we get to a point of being really ill, but what we, or our loved ones will do. The reality is, we all have a lot of choices these days, but it is a bit like gambling. Advanced life-saving procedures are a risk; they work, and many people recover. But depending on a myriad of factors, including illness severity, predisposing factors and quality of medical care, modern medicine may keep people alive, but not really living. Ever been to an intensive care unit? It is not a fun place. This is a risk that we all take in this unprecedented time of aging alongside incredible technological advances.

We should all take control where we can. Think about what you might want if you or your loved one were in a life and death situation; you can change your mind later if you want to. There is a lot we can blame the government for, but end-of-life choices are ours and if we don't take control over that, the villain du jour in government is not to blame. Take a positive step: complete your advance directives. Think about what you want and how you might want to live.

 
 
 
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09:38 PM on 06/07/2011
End of life care is a topic that is not adequately addressed by both physicians and patients. Primary care physicians barely have enough time to spend with patients as it is; taking the time to address code status (should CPR be performed, or intubation) with complex medical patients just does not happen. As a critical care physician, I see many patients who inappropriately have an aggressive level of care at the terminal stages of their illnesses. Nursing home patients who are debilitated, demented, and non-ambulatory have very protracted ICU courses, with poor outcomes. We offer ever advancing medical technology to our patients, with the promise of prolonging life; this is accomplished, although the quality of life for our patients is often not significantly improved. I don't think there is a clear understanding in the public about what can realistically be achieved at the end of one's life (and at the terminal stages of a medical illness). The only way that we can improve the quality of end of life care is to have the difficult discussions with our patients before they are acutely ill, and to not offer prolonged ICU care when it is inappropriate.
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Damiano Iocovozzi MSN NP
05:02 PM on 06/07/2011
Dear Ms. Greenberg, Thanks for publishing your timely article. So little is known nor discussed about real life scenarios in decline, death & dying because of irrational reactions to the idea that we all must die one day. The stigma & denial cause many to pursue paths of medical futility or therapeutic obstinacy which have no honest medical goal to achieve for those past all cures, all remissions, all reprieves from advanced age or dementia. The fear & ignorance are exploited by many who sell services to those vulnerable patients & their families. Billions are spent yearly on useless diagnostics, ICU stays, consultations, futile drugs & treatments, surgeries, disposibles, respiratory support and expensive ambulance rides to the emergency department. Denial & stigma cost the US plenty. The human toll is also breath-taking: scary intubation, broken ribs, good time wasted pursuing fool's errands & a nasty, uncomfortable death with a large tube from mouth to lungs. Please visit me at http://www.soonerorlaterbook.com for blogs & podcasts on sanity at end of life. Damiano de Sano Iocovozzi MSN FNP CNS