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Trisha Lynn Sprayberry
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Trisha Lynn Sprayberry is a 35-year-old mother from Portland Oregon, where she currently lives. Both she and her daughter share the diagnosis of FSHD, one of the many types of Muscular Dystrophy. An advocate for people like herself with Muscular Dystrophy and those that utilize a wheelchair, Trisha is passionate about providing a voice to break stereotypes and expose the hardships that are faced for those with disabilities and to promote a positive, no limits lifestyle.

Entries by Trisha Lynn Sprayberry

The Impact of I.D.E.A. for Students With Disabilities and Education Equality: 40 Years Later

(2) Comments | Posted December 30, 2014 | 10:15 AM

"Allan"

In "Achieved: 25 year History of the IDEA," Allan's story is described. In the late 1940s, an infant named Allan was found on the steps of an institution for persons with mental retardation. By the time he was 35, Allan was totally blind, and his face was...

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The Show Won't Go on: Kanye West Halts Concert Because Fans with Disabilities Wouldn't Stand

(1) Comments | Posted September 16, 2014 | 1:11 AM

Is celebrities bullying people with disabilities on the up-rise?

During his Yeesuz tour, Kanye West refused to perform his music until each and every person in attendance was on their feet. It doesn't seem that Kayne considered those among his fans may have been differently-abled, creating an awkward moment lasting...

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My Personal Introspection into FSHD Muscular Dystrophy

(0) Comments | Posted August 4, 2014 | 5:07 PM

Having a physically impairing disability such as FSHD can be really tough to deal with. Between the progression of a disease like FSHD, loss of abilities alone is enough to bring even the strongest of spirits into a crumpled heap of grief and sadness.

When you just can't get your...

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The 'Can I Pray For You' Encounter

(1) Comments | Posted June 27, 2014 | 9:51 AM

I'm in the store minding my own business. I might be thinking over a potential purchase, or maybe I'm just moving my way through the aisles. I'm there doing my own thing.

There's a timid tap on my shoulder.

"Excuse me ma'am."

This person bends down toward me trying to...

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Applying Current Technology to Positively Change Disability for Tomorrow

(4) Comments | Posted June 3, 2014 | 7:23 PM

We need to be doing more for those with disabilities to accommodate them and their NEEDS now.

To accommodate those with disabilities should be a priority WHILE we are waiting for the "cure" or other medical treatments for research to find. Don't get me wrong, I am all for...

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How to Make Disability Mainstream, Today

(0) Comments | Posted May 22, 2014 | 6:02 PM

This is my theory, and why I advocate for those with disabilities. I completely believe we have the ability to wipe out disability -- today.

How you ask?

By accommodating the demands of a disability, the physical challenge to overcome them becomes minimal to none.

Because a disability...

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A Lay (Wo)mans Description; FSHD Muscular Dystrophy 101

(0) Comments | Posted May 10, 2014 | 10:19 PM

A lay (wo)mans FSHD 101

Disclaimer: I am in no way a doctor or medical professional. This is a general FSHD description written by a diagnosed patient. It is meant for a general informative purposes written from a patient's point of view.

At some point in time when we are...

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Disability Doesn't Need Your Pity

(0) Comments | Posted April 17, 2014 | 3:07 PM

As a writer and advocate for people with disabilities and mobile challenges, I have gotten a lot of feedback about my pieces. The positive comments, the relative individual sentiments and the critical reviews -- every word a fellow in disability awareness.

I personally would rather just tell you the problems...

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Uniting Disability. Let's Create Change

(1) Comments | Posted April 4, 2014 | 8:37 PM

I have been having mounting difficulties with trying to handle the transportation issues that come with being in an electric wheelchair and being of low-income.

Apparently the options out there to remedy this problem just simply are not options for me. Being disabled and on disability, it seems if you...

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Disabled Is the New Black

(0) Comments | Posted March 19, 2014 | 8:14 AM

That scar in your eyebrow, your crooked, enchanting smile, and all those charming little freckles.

It's our imperfections that make us unique, special. Those "flaws" are what make you, you.

It's those flaws and the acceptance of how we were created that empower us to be beautiful, individual, one-of-a-kind.

...
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Unnecessarily Dependent: Consequences of Denying the Mobility Challenged

(0) Comments | Posted March 17, 2014 | 1:26 PM

Next time you leave your home, think about how easy it was for you to do that. You just got up, grabbed your keys or your bus pass and left. Nothing to it right? Things you take for granted...

Now imagine how it might be if you weren't able to...

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Accommodating People With Disabilities

(0) Comments | Posted March 10, 2014 | 4:24 PM

Mobility is one of the most important, most overlooked, and most frustrating issue to overcome for someone in a wheelchair to face on a daily basis. When you have wheelchair, like an electric power chair, they tend to be big and bulky. They can weigh 300 pounds and up, making...

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The Gift My Disability Gave Me

(0) Comments | Posted March 6, 2014 | 1:46 PM

There are a lot of challenges that come with being disabled. We all have our ups and downs. And it may seem like because I have the extra burden of experiencing a disability like FSHD Muscular Dystrophy, it would be a challenge too daunting to fathom, let alone one that...

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The Cloak of Visible Disability

(0) Comments | Posted February 21, 2014 | 8:16 AM

Now this is a concept I just cannot wrap my mind around. If you have a visible disability, especially if you happen to use any sort of adaptive equipment like a wheelchair, walker and/or braces, chances are you also have experienced this cloak.

For me, with FSH Muscular Dystrophy,...

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My Daughter Who Almost Wasn't

(0) Comments | Posted February 13, 2014 | 6:15 PM

I was five months pregnant as I sat in the darkened ultrasound room sobbing from the news I had just received.

With concerns already of my child acquiring muscular dystrophy, I was completely shocked when the doctor informed me that the child I was carrying was found to have hydrocephalus,...

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The Mobile Issues of the Disabled

(0) Comments | Posted February 11, 2014 | 6:09 PM

I have FSHD Musclar Dystrophy. I use a wheelchair. I have issues with arthritis, chronic pain, muscle weakness, dexterity, and grip. I can't raise my arms above my chest, I tend to use the "hunt and peck" method when I type, I'll have problems with my hands grasping, grabbing, and...

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Disability and the Starfish

(0) Comments | Posted February 7, 2014 | 3:58 PM

Did you know that roughly 20% of the U.S. population is disabled and on Disability? That's nearly 11 million people. If a population that size formed a state, it would be 8th largest in the U.S..

And, did you know that we in the disability community struggle day-to-day not only...

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'If You Were to Give Me a Million Dollars, Would It Do Any Good?'

(0) Comments | Posted February 7, 2014 | 3:56 PM

I have a question for everyone to ponder. It's not one that hasn't been purposed before. But the answer thus far seems to be a little ambiguous.

The scenario here is: If you were to give me a million dollars, would it do any good?

There seems to be...

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Beauty and the Self-Concept: Perceptions of Beauty for the Disabled

(0) Comments | Posted February 3, 2014 | 10:21 AM

How we figure out who we are is based on the feedback we get from other significant people in our lives, or reflective appraisal.It is something we all do especially when it comes to our personal beauty.

For me, being disabled, with and without the wheelchair, I often have eyes...

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The Struggle to Move Forward With Disability

(0) Comments | Posted January 29, 2014 | 6:53 PM

Life is change. Something we must learn to adapt to. This is true whether you are the picture of perfect health or living with a disability.

I know my life is certainly no exception to this. Most people know that life isn't a predictable experience. In a blink of an...

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