THE BLOG
09/16/2013 08:12 pm ET Updated Feb 02, 2016

Eli's Story: Losing His HIV-Positive Brother

Eli Jameson was always close to his brother Estis. When you're growing up as a gay African American in Midland, Texas, it can be a little difficult to find someone to relate to, but when your older brother happens to be of the same persuasion, you tend to stick together. Eli never kept a secret from Estis. So when Eli first learned of Estis' HIV-positive status only after the latter had died of complications from the virus, he was left to search for an answer that his brother could no longer give.

Estis had 10 years on Eli and was the epitome of the protective older brother, even when Eli didn't always appreciate the favor. Eli laughs heartily as he recalls one of those instances.

"He actually outed me," Eli says. "I was in college and was dating a boy that my brother knew. I was madly in love with a guy, but my brother said he was bad news. He said if I didn't dump the guy that he would tell my mom that I was gay. So ... he did."

Later that semester, Eli's mother attended Parent Appreciation Day. She said nothing, but she handed Eli a card with an elaborate picture of a parrot in bright rainbow colors. Inside, the card simply read, "I'll accept you no matter what." Apparently Estis knew what he was doing.

The two brothers eventually found themselves living in the same city. Estis lived with his partner of 10 years in a house they bought together, while Eli bounced around the city living the young, single life. To Eli, his brother was his blueprint, living the kind of life he was searching for. So when Estis' health started to decline, the model his brother had so carefully drawn out slowly started fading out of focus.

Estis had endured a series of tough blows to his health. He experienced a series of strokes, struggled with high blood pressure, and had a bout with testicular cancer. Still, Eli thought his brother would always come out on top of things. The more Eli described his brother, the more it became apparent to him that "being OK" was exactly what Estis wanted him to think.

But Estis was indeed sick. He had been on antretroviral treatment for a year, but his doctor estimated that he had been HIV-positive for nearly five years. His other conditions proved too much for his immune system, and he succumbed. Eli, his mother, and his sister struggled with this new information as they grieved the loss of Estis.

Eli's mother Marva experienced the most hardship over the news of her late son's HIV-positive status. She became angry at Randy, Estis' partner, who was also HIV-positive. She resented him for the death of her son. She became possessive of the remnants of Estis and asked Randy to sell the house and return all her son's belongings to the family. Quietly, Randy attempted to grieve alongside Eli's family and participate in the funeral arrangements. But Eli's mother would have none of that.

"She said that he was her baby," says Eli. "She said, 'You did your part, and now I will take care of him.' She wouldn't even let him come to the funeral."

Because Estis' death was so sudden, his doctor recommended that Marva, Eli, and his sister Sharon go through a series of family therapy sessions. It was this process that allowed Eli and Sharon a chance to speak candidly with Marva. They told her that the way she was treating Randy was wrong, that the house and Estis' possessions were also a part of Randy's memories. He was grieving too.

Marva resisted at first. Grief can be difficult to release when it's shrouded in anger. Eventually her children's words began to penetrate, and she began to see Randy as she once did: as the love of her son's life.

Eli's struggle was a bit different. To him Randy wasn't to blame, but every positive person was. He began to resent the gay life and started to see the various shades of the rainbow as culprits in his brother's death. His mother only compounded his fear and anger regarding HIV. She would tell him to "be careful" and remind him that she didn't "need to lose another son."

Now Eli realizes that Estis was still trying to protect him from his own experiences and maintain that blueprint he had so carefully crafted. He has come a long way and now only wishes to do what Estis couldn't: speak about HIV.

"My brother was always trying to help people," Eli says. "If my story can help others to speak about their own story, then this is something I have to do. If I could identify myself as an HIV-negative man who was single, dating, and wanting to come to terms with dating someone who is positive, I needed to tell my story. I had a sense of anger at the positive status."

Eli has found solace in his relationship with Randy. They see each other often and reminisce about the times they spent with Estis.

Marva has come quite far herself. For the past three years she has organized a family trip so that they can continue to mend their relationships and move forward in their journey. For the past two years Randy has joined them.

As Eli recounts his story three years to the day since his brother's passing, he can't help but smile.

"My brother was always so protective when he was alive. As weird as it sounds, now I feel like I gained a guardian angel. In any situation I go in, whether it's dating or my career, I feel like my brother is always there."

Estis will always protect Eli. Now Eli wants to help protect others, no matter what their status may be.

Just like any shot, we fear the prick of the needle. But a conversation about what it means to be HIV-positive today is just the medicine we need.

Get pricked. Eli Jameson did.

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