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Victoria Jackson
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Entries by Victoria Jackson

How We See in the Dark: A Blind Chef & the Recipe for a Miracle

(2) Comments | Posted May 17, 2013 | 4:09 PM

If you've been hungry lately for some soul-charging inspiration -- or for a cookbook by a true Master Chef -- I highly recommend Christine Ha's Recipes from My Home Kitchen (just published by Rodale Press).

Christine Ha, in case you missed watching her extraordinary journey on Fox's Master Chef...

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What We All Need to Learn From Rare 'Orphan' Diseases: The Path to Progress

(0) Comments | Posted February 26, 2013 | 3:54 PM

The month of February has come to mean much more than romantic Valentine's Day celebrations or the short rainy season we can usually expect in otherwise sunny Southern California. At least for my family and families like ours, it has.

February, officially designated five years ago as Rare Disease...

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Excerpt: Saving Each Other: A Mother-Daughter Love Story

(0) Comments | Posted November 21, 2012 | 3:55 PM

Excerpted from Saving Each Other: A Mother-Daughter Love Story by Victoria Jackson and Ali Guthy. Available from Vanguard Press, a member of the Perseus Books Group. Copyright © 2012 by Victoria Jackson and Ali Guthy

Where It Begins

"I have been through some terrible things in my life,...

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Excerpt: Saving Each Other: A Mother-Daughter Love Story

(0) Comments | Posted October 29, 2012 | 6:56 PM

Excerpted from "Saving Each Other: A Mother-Daughter Love Story" by Victoria Jackson and Ali Guthy. Available from Vanguard Press, a member of the Perseus Books Group. Copyright © 2012 by Victoria Jackson and Ali Guthy

Even though I may be best known as a makeup artist turned entrepreneur...

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Every Day Is a Miracle

(0) Comments | Posted October 2, 2012 | 6:00 PM

Every day is a miracle. That I do know, even though I forget it sometimes.

Isn't that kind of the point of 2%? It's like by throwing a rare light show or random nightmare storm in our direction, the universe is just trying to get our attention so...

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A Thriver's Guide to NMO and Other Challenges

(0) Comments | Posted September 21, 2012 | 3:50 PM

Yes, it's true. The 2% deal of the cards is not always fair, especially when it comes to being given a rare orphan disease. But as I learned, those same low odds can be overturned. How? Well, the following five steps have certainly worked for me and for others who've...

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Why Should We Care

(1) Comments | Posted December 14, 2009 | 8:21 AM

A year ago, my 16-year-old daughter was diagnosed with a rare disease called Neuromyelitis Optica (NMO). NMO is what they call an "orphan disease" -- meaning, not enough people have it to justify the time, money and energy required to effect a cure. Last year, my husband Bill and I...

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(17) Comments | Posted April 22, 2009 | 9:09 PM

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