THE BLOG
07/07/2014 12:13 pm ET Updated Dec 06, 2017

How I Came to Embrace My Mental Illness

I used to visualize my brain as this cold, enemy planet that the rest of my body orbited and, sometimes, crashed into. I imagined my brain as separate from myself, in a dark corner of my skull, plotting. Devising its next wicked plan to dismantle my life. It was easy for me to detach myself from the reality of bipolar disorder because it is a mental illness, so only my head had the problem. It was close to invisible. The rare times I did speak of my depression, it was cushioned with self-deprecating humor, presented as more hyperbolic than authentic. With language I planted distractions, thwarting every opportunity for the planet to be named.

When I'd retreat, ignoring phone calls and emails, vanishing for weeks at a time, I was allotted this radio silence without much concern; poets, after all, are notorious for falling into A Mood. My friends didn't know I contemplated committing suicide at least twice a week, would go up to six days without sleeping, obsessing over the idea that I might one day become my mother: a paranoid woman who heard voices, receiving direct orders from God through the radio. A lost astronaut, spinning further and further away.

In 2010, a year after moving to upstate New York, hundreds of miles from my friends, I spiraled into the most severe depression of my life. There was no longer an audience, no need to fake it. Sadly, my children had grown accustomed to my bad days. They knew when to avoid me and when to give me a hug or rub my head. They were the last of what was anchoring me to this world, and it pained me to know they knew it.

2014-07-03-momflying.jpg

Personal photo: my 4-year-old daughter's drawing of me "flying away."


I fought hard to be present for my children, but often I'd find myself in the middle of a conversation, then see my daughter shaking her head, asking, "Are you even listening to me, mom?" Other times I'd be standing in a part of the house without any idea why I was there, or how I got there. Too many times I had to ask myself, "Why am I here?" There were tasks I completed, things I smashed, poems I wrote, rants I hurled, that I was not present for. This terrified me. I had five children, a beautiful home and I was checking out.

The dissociative behavior grabbed hold of me hardest at night. Once the kids were put to bed, I drifted. My eyes blackened and I would fall catatonic. If I stayed too long in this state, the edges of my body would start to tingle and I'd feel myself, the energy that was my actual self, begin to thin, absorbed by the static. Eventually, this started seeping into my days. The unpacked traumas and lack of sleep, the growing shame and denial took a heavy toll on not only my brain but my entire body. My joints ached at the slightest touch. My body swelled around each inflamed muscle. My temper became unyielding.

Then my language began to deteriorate. I lost the name for things. Basic things. I was a poet and I lost the name for things. Frustrated and panicked, I chose words woven with cruelty. There were moments when I heard myself speaking and knew it was not me. I often pleaded, while outside of my body, to my body, "Ooooh no no no no, please, do not say that." But I couldn't stop myself.

Poetry had been my outlet for over a decade. Normally, when I was struggling with something, I wrote myself through it. In poems, I admitted my ugly. Resurrected departed friends and relatives, constructed beauty from the demolished, gave every trauma I'd outlived its deserved name. I realize now, I never wrote about living with mental illness because I wasn't living with mental illness. I was running from and fighting with and stumbling through and barely surviving the shame of it.

By denying the existence of a flaw, I denied myself the opportunity to ground myself, to learn to navigate and build and establish a home within myself. On this planet that was never separate from me at all. This planet where I come from, that also comes from me. This planet that has guided me through every loss and revelation: my complicated and botched and beautiful brain. My brain my brain my brain. My brain that sometimes fails me. My brain that designs mercy. My brain that seethes. My brain that yearns for my estranged mother. My brain that steals. My brain that glistens. My brain that comes up with The Best Halloween Costumes Ever. My brain that swaggers. My brain that fights, daily, against its inherited mechanics. My brain that blooms. My brain that wanders and imagines and freaks the fuck out. My brain that unravels and lacerates. My brain that conjures. My brain that craves death metal and Neil Diamond. My brain that appreciates sick jokes. My brain that is the teeth in the mouth of my heart. My brain that vibrates with memory and trauma and overload and retreat. My brain that waited for me to acknowledge it for what it unapologetically is. My brain that gave itself a voice. My brain that gives and asks for nothing in return. My brain that engines me through hell. My brain that drags me back to bed. My brain that wants only to be my brain. My brain that has shed its shame. My brain that said and fights to keep saying YES.

This essay was originally posted as part of The Body is Not An Apology's #WhenWeSayYES Campaign. Raising money to build the world's most powerful radical self love website. Give Here:www.igg.me/at/whenwesayyes

You can read more of Rachel's writing regarding mental illness on HER KIND, or watch the TEDx talk she gave on teaching poetry to kids with mental illness here. Her website is here and you can also follow her on Twitter.

Need help with substance abuse or mental health issues? In the U.S., call 800-662-HELP (4357) for the SAMHSA National Helpline.