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Susan G. Komen Foundation Elbows Out Charities Over Use Of The Word 'Cure'

First Posted: 12/07/10 12:41 PM ET Updated: 05/25/11 07:15 PM ET

Obama Breast Cancer

In addition to raising millions of dollars a year for breast cancer research, fundraising giant Susan G. Komen for the Cure has a lesser-known mission that eats up donor funds: patrolling the waters for other charities and events around the country that use any variation of "for the cure" in their names.

So far, Komen has identified and filed legal trademark oppositions against more than a hundred of these Mom and Pop charities, including Kites for a Cure, Par for The Cure, Surfing for a Cure and Cupcakes for a Cure--and many of the organizations are too small and underfunded to hold their ground.

"It happened to my family," said Roxanne Donovan, whose sister runs Kites for a Cure, a family kite-flying event that raises money for lung cancer research. "They came after us ferociously with a big law firm. They said they own 'cure' in a name and we had to stop using it, even though we were raising money for an entirely different cause."

Donovan's sister, Mary Ann Tighe, said the Komen foundation sent her a letter asking her to stop using the phrase "for a cure" in their title and to never use the color pink in conjunction with their fundraising. What bothered her most about the whole ordeal, she said, was that Komen forced her to spend money and time on legal fees and proceedings instead of raising funds for cancer.

"We were certainly taken aback by it," she told HuffPost. "We have partners running these kite events around the country. What if one of them uses, say, magenta? Is that pink? I mean, where are we going with this? We just want to raise money for cancer. What we don't want is to have our energy misplaced by having our charity partners trying to police the good work that we're doing."

Sue Prom, who started a small dog sledding fundraiser for breast cancer called "Mush for the Cure" in Grand Marais, Minn., said she was shocked to hear from Komen's lawyers this summer asking that she change the name of her event or face legal proceedings.

"I had to call the trademark helpline, because I had no idea what I was doing," said Prom, who runs the annual sled race with her husband and friend. "We pay for the expenses out of our pockets, and we've never personally made a dime from it. We have t-shirts, sweatshirts, domain names, posters, stationery, all with 'Mush for the Cure' on it. What do we do with all the materials now? How are we gonna defend ourselves? We're not like Komen."

Prom said she's been running the event for six years, and the most she has raised for the National Breast Cancer Foundation is $25,000. Before the NBCF could accept the money, they warned her to file for a trademark to protect her event legally against the Komen Foundation. But now that Komen has opposed Mush's trademark application with the U.S. Patent and Trademark Office, Prom is looking for a pro bono lawyer to help her figure out what to do next.

"I think it's a shame," she said. "It's not okay. People don't give their money to the Komen Foundation and they don't do their races and events so that Komen can squash any other fundraising efforts by individuals. That's not what it's about."

Komen's general counsel, Jonathan Blum, told HuffPost that the fundraising powerhouse tries to be reasonable when dealing with small charities and nonprofits, but that it has a legal duty to protect its more than 200 registered trademarks.

"It's never our goal to shut down a nonprofit," he said, "and we try very hard to be reasonable, but it's still our obligation to make sure that our trademarks are used appropriately so there's no confusion in the marketplace over where people's money is going."

Blum told HuffPost that legal fees comprise a "very small part" of Komen's budget, but according to Komen's financial statements, such costs add up to almost a million dollars a year in donor funds.

"I think it's important that charities protect their brand, but on the other hand, I don't think the donors' intent in giving their money was to fund a turf war," said Sandra Minuitti, a spokesperson for Charity Navigator. "It's very important that Komen treads carefully and is very transparent about how they're spending money on these legal battles."

Michael Mercanti, an intellectual property lawyer, said he is surprised by the large number of oppositions Komen has filed against other charities--a number he would expect from a company like Toys"R"Us or McDonalds, but not a charitable fundraising organization.

"They seem to be very aggressive in policing their mark, or what they're claiming to be their mark," he told HuffPost. "I guess there are a lot of ways to captain a ship, but it seems like there are ways they could protect and police their trademarks and also allow other charities to coexist."

Mercanti said filing hundreds of oppositions is not only damaging to other charities, but could also be counterproductive for Komen's brand.

"They could actually be seen as being a bully," he said. "They're going to alienate some donors who don't appreciate them stepping on smaller, worthwhile charities."

With the help of a team of pro bono lawyers, Kites for a Cure was able to reach a settlement with Komen: They agreed to only use the phrase "for a Cure" in conjunction with the words "lung cancer" to make the distinction clear. But Tighe said they reached a settlement only after many, many months of a free legal team working long hours each day.

"We were very fortunate because we had strong support from knowledgeable pro bono counsel, but it did seem like a misdirection of a lot of people's energy," she told HuffPost. "I don't know what smaller organizations do without free representation."

Sue Prom said Tighe has already put her in touch with her pro bono legal team, and she is prepared to fight for the name of her sledding event in court. The ordeal has changed her opinion of Komen.

"I used to give money to Komen all the time, but now I'm just kind of wary of them," she said. "I'm not buying Yoplait yogurt or anything that has the word 'Komen' on it. They seem to have forgotten what charity is about."

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In addition to raising millions of dollars a year for breast cancer research, fundraising giant Susan G. Komen for the Cure has a lesser-known mission that eats up donor funds: patrolling the waters f...
In addition to raising millions of dollars a year for breast cancer research, fundraising giant Susan G. Komen for the Cure has a lesser-known mission that eats up donor funds: patrolling the waters f...
 
 
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01:21 PM on 02/03/2011
Having had several close friends and relatives die of cancer, I've learned a few things over the years. Attorneys are the bane of humanity, and it is quite obvious that this organization is more concerned about their preconceived notion of a brand than they are a cure.
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NHGranite
Killer Koala escapes diner, eats shoots & leaves
11:05 AM on 02/03/2011
My #1 organization, PKDCURE.com has been having walks for a cure for polycystic kidney disease for at least a few year before Komen did anything like that. That's how it is when it's in the name of your charity~!
01:31 PM on 02/02/2011
As a board member for the Volunteer Center of Sacramento we experienced a similar heavy-handed-ness when the Susan B. Komen folks organized in Sacramento and without discussion took over the date of our long-established annual Mother's Day event 'The Human Race'. They would not even discuss the possibility that their event might adversely affect ours as it did within a couple years. To me as a volunteer, their self-righteous ferociously was unbelievable.
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SLS11
Its all there, if we just open our eyes...
02:18 PM on 01/26/2011
For several reasons I no longer donate money for cancer research, as some of these "charities" have become wealthy "businesses" On one hand large portions of the donations go to expensive overhead and expenses, accumulation of "assets" and contributions to political parties, with only a small portion of money actually going towards "research". Another reason is that there is too much focus on "damage control", i.e. treatments and drugs, and downright disdain and disregard for cancer prevention, i.e. lifestyle and environmental adjustments.

This article only reinforces my decision to direct my charitable contributions elsewhere.
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12:50 PM on 01/26/2011
there's got to be a better way. A coalition of people who gather free meds and treatments so to reduce the out of pocket costs and then another network that literally pays all the bills of the sick person while the person is unable to work. So if you get breast cancer or aids or retardation then we'll pay your light bill , rent, medication and walk your dog while you're sick. If you die we'll miss you. If you get better then you pay it forward.
09:09 AM on 01/25/2011
I think Robert Smith and The Cure should sue Susan G. Komen.
02:51 PM on 01/24/2011
I would be curious to hear from actual grant recipients (rather than readers who take blogs at face value) about how "awful" Komen is -- In my community (Triangle area of North Carolina), revenue from our local Race has funded mobile mammography units in one of the poorest areas of the state, provides funding for uninsured women to receive screening and follow-up, targets bilingual outreach/support for uninsured Latina/Hispanic women, and offers child care/transportation/education for women in the poorest communities. Grants to UNC Hospitals have funded genetic research and testing. Most if not all of these initiatives are in collaboration with smaller, local nonprofits or agencies who could not reach the population they can with a Komen grant. I don't understand the hatred directed at an organization that has done far more good than harm.
06:15 AM on 01/26/2011
It would be FAR better if "Komen" would just vanish, and people gave their money to the hospitals and labs directly.
07:24 AM on 02/04/2011
For me, I will not be contributing any money to anything associated with Koman unless I hear that they have stopped persecuting the small organizations.
10:07 PM on 01/23/2011
I have had other issues with the Komen foundation, but this one makes me feel ill! How about funneling the litigation fees into metastatic bc research which receives only 2% of all bc research funds! If SGK were really "for the cure" they would not have turned down Dr. Tuohy of the Cleveland Clinic's Lerner Research Institute Department of Immunology breast cancer vaccine grant request!
As a stage IV warrior, I am not only "for the cure"; I NEED A CURE!
12:01 AM on 01/23/2011
I call all the people to stop giving money to the big charities. They're just wasteful bureaucratic machines that have no clue. Instead donate directly to the hospitals and research labs. This way the money will be used more efficiently.
11:59 PM on 01/22/2011
My wife has a Stage IV Breast Cancer and I say - go to hell, greedy Komen foundation. We're sick of Pinktober, Yada-yada-pinko-happy survival stories.
12:00 PM on 01/19/2011
I'm 21 year survivor of childhood leukemia. I never see gold (childhood cancers) or orange (leukemia) ribbons plastered all over the place for sobbing out loud. Give you money to Relay For Life! The American Cancer Society promotes awareness for ALL CANCERS! Komen, you are so greedy its not even funny! Support the color purple, all cancers. the only breast cancer charity I will give to is Making Strides Against Breast Cancer, which is an American Cancer Society program.
10:17 AM on 01/26/2011
Actually less that 1/3 of 1 percent of each the dollar taken in by The American Cancer Society goes to support Pediatric Cancer Research. My son Declan died 5 months and 8 days ago after a 5 month battle with cancer. He died 8 days shy of his 1st birthday. I agree with you about never seeing the "gold", "orange", etc. Komen has done great things for "pink" but trying to trademark the word "cure" when there are so many afflictions that need one is ludicrous!
01:35 PM on 01/18/2011
Pretty soon Komen will be claiming that the color pink is all theirs and no one else can wear or use it. If you want to give to an organization that really cares about finding a cure, you're better off donating to The American Cancer Society.
11:48 AM on 01/25/2011
They tried. They also tried to trademark the pink ribbon but I believe ACS blocked that. Which is why they have that new, two-toned ribbon logo with the "head."
09:38 PM on 01/09/2011
When we formed a non-profit to fund a nationwide bikeride across Canada to raise funds for prostate cancer research, there were many who suggested we call it "ride for the cure" or something similar. Because of this sort of squabbling over who owns what words we instead chose to call it "Strong And Free", from the line in the Canadian national anthem, as it can't be trademarked.

It's about funding research and minimizing cancer, not who owns what.

http://www.strongandfree.org
09:57 PM on 01/08/2011
This is unreal!! I am shocked with Susan G. Komen foundation. During this time of tough economy any charitable contributions for any cause should be accepted with open arms! Women with breast cancer need this charity, but people with other illnesses or diseases need other charities. One is not better than another! Unless Susan G. Komen makes some drastic changes, I will not donate to them as I have so willingly in the past! What a shame for all affected! People have to speak out and let this organization know they are wrong and cannot get away with these actions.
02:26 AM on 01/08/2011
The Susan G. Komen Breast Cancer has exclusive rights (trademark) on literally hundreds of common phrases in the format of "_____ for the Cure". This is a classic example of trademark abuse. Anyone who wishes to bake, make art, give a gift, if you do it "for the Cure" you are running afoul of "their" trademarks. You can search for yourself at http://tess2.uspto.gov/

Knit for the Cure
Gardens for the Cure
Nurses for the Cure
Gift for the Cure
Art for the Cure
Bake for the Cure
Pie for the Cure
Bicycle for the Cure
Commute for the Cure
Inspiration for the Cure
Conversations for the Cure
Concert for The Cure
(Sorry, Robert Smith has prior art on that one!!)

So tell me again how this is NOT setting the stage for SGK to abuse other charities? Are you OK with this mega-corporation owning these common terms? I'm not.