Angelman Syndrome: Darien Mother Hopes To Give Voice To Silent Victims

05/26/2011 04:31 pm ET | Updated Jul 26, 2011
  • Lauren Williamson Darien, IL Patch

Ainsley's got a lot of love to share with the world, but she also has a powerful story that her mother, Paula Evans, hopes will soon reach a wider audience.

Ainsley was born with Angelman syndrome, a rare genetic disorder characterized by cognitive delays that impact both movement and speech.

It's a little known and often misunderstood disorder, which doctors frequently misdiagnose as autism or cerebral palsy.

But unlike those disabilities, researchers believe a cure for Angelman is near. They know what needs to be done. They just need the money to be able to do it.

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