iPhone app iPad app Android phone app Android tablet app More

Sjogren's Syndrome Causes Venus Williams' Withdrawal From US Open: What Is It?

Sjogrens Syndrome

The Huffington Post   First Posted: 09/01/11 01:50 PM ET Updated: 11/01/11 06:12 AM ET

Venus Williams announced her withdrawal from the U.S. Open yesterday, citing her recent diagnosis with Sjogren's syndrome, an autoimmune disease that occurs when the immune system attacks the body's own moisture-producing glands.

"I enjoyed playing my first match here, and wish I could continue but right now I am unable to," Williams said in a statement, reported by the Associated Press. "I am thankful I finally have a diagnosis and am now focused on getting better and returning to the court soon."

Williams, 31, a two-time champ of the tennis tournament who had been a headlining competitor there for almost 15 years, said the disease had caused her to lose a lot of energy over the summer, making it difficult to continue on in the competition, the AP reported.

Sjogren's syndrome is much more common in women than in men, with women being nine times more likely to be diagnosed with the condition than men. The disease, which affects 1 to 4 million people in the U.S., most often occurs in people older than age 40, according to government statistics.

The exact cause of the disease is not exactly known, though scientists think it has to do with a combination of genetics and infection with a virus or bacteria. The two hallmark symptoms of Sjogren's syndrome are dry eyes, where it feels like there's sand in them, and dry mouth, where it feels like there's cotton in it, according to the Mayo Clinic. That's because the glands in the eyes and mouth that secrete mucous and moisture are affected first by the disease, which means less production of saliva and tears.

Other common symptoms include dry skin or rashes, dry cough, fatigue, vaginal dryness, joint pain and swollen salivary glands, the Mayo Clinic reported. The disease also often accompanies autoimmune disorders like lupus and rheumatoid arthritis.

"When other organs are involved, the syndrome becomes extraordinarily complex," said Georgetown University Medical Center rheumatologist Dr. Victoria Shanmugam, M.D., who was not involved with Williams' care, in a statement. Sjogren's syndrome can spur a host of other problems, including inflammation of the kidneys, lungs, liver and the lining of the heart.

There's no cure for Sjogren's syndrome -- only ways to control symptoms. Some treatments include drugs that can increase saliva production and medications to relieve arthritis pain. The malaria drug hydroxychloroquine (brand name Plaquenil) could also help to treat the disease, according to the Mayo Clinic. Surgery is also an option to seal the tear ducts that drain the tears in order to relieve dry eye.

Williams joins a list of other notables who have recently revealed their diagnoses with autoimmune disorders. In an episode of "Keeping Up With the Kardashians" that aired earlier this summer, Kim Kardashian was diagnosed with psoriasis, a disorder that causes skin to become red and flaky.

And Grammy Award-winning artist Toni Braxton shared last year that she had lupus, which is the inflammation of the heart, lungs, blood cells and kidneys. Lady Gaga also told Larry King last year that she has tested "borderline positive" for lupus, which means that she doesn't harbor any outside symptoms or signs of the disease, but she has to take care to prevent flare-ups of the disease, ABC News reported.

WATCH:

FOLLOW HUFFPOST HEALTHY LIVING

Venus Williams announced her withdrawal from the U.S. Open yesterday, citing her recent diagnosis with Sjogren's syndrome, an autoimmune disease that occurs when the immune system attacks the body's o...
Venus Williams announced her withdrawal from the U.S. Open yesterday, citing her recent diagnosis with Sjogren's syndrome, an autoimmune disease that occurs when the immune system attacks the body's o...
 
 
  • Comments
  • 94
  • Pending Comments
  • 0
  • View FAQ
Comments are closed for this entry
View All
Favorites
Recency  | 
Popularity
Page: 1 2  Next ›  Last »  (2 total)
photo
HUFFPOST SUPER USER
ljkcan
I don't let geographical borders limit my thinking
09:33 PM on 09/04/2011
It is terrible to see someone at the top of their game get diagnosed with this disease. Yet for those of us that live with autoimmune illness's we can understand the frustration and finally an answer after so many years.

On average it takes a few years to finally get an answer the symptoms are transient or full blown flare. I wish her peace and rest and take it one day at a time. It took me over 7 years and severe inflamation of the brain to get diagnosed with lupus. I was 32 years old with two young kids.

I had to give up my career and for the first three years I kept asking the doctor if I could go back until one day I realized that was never going to happen. I try to make the best of each day what else can you do.

You just learn to live a new life one with restrictions I now have severe arthritis or as I say I am 53 my joints are 80. Yet I am still alive I take medications that make me vunerable to every infection and virus out there but I pray for the best what else can one do.

I have lived long enough to see my kids grow up and enjoyed every minute and often think they were the silver lining behind the bad news.
photo
HUFFPOST SUPER USER
Sharon Hanson
Skeptical of the *pseudo-skeptics*
09:55 PM on 09/04/2011
I'm sorry you are ill but don't give up on finding the cause of your disease. I didn't, it took ten years but I found out what made me sick. Main stream medicine will lie through their teeth and tell us, we don't know what causes MS, Lupus, CFIDS, FM, Autism and on and on. Don't let them get away with saying this. Fight for your health.
12:12 AM on 09/04/2011
On behalf of my Sister, I truly thank Venus for speaking up and talking about her personal health. This is a disease that is so well hidden from our education, that people actually minimize it when they hear the words 'dry eye syndrome'. It's so much more than that. I myself am guilty of the ignorance. But, I now look at my Sister and see first hand, the pain and misery this is causing her daily routines. Her entire identity is changed with this devestating disease. I'm sorry that Venus is also suffering with this, but I pray that her status and popularity will help to enlighten the many as I was. I also pray that the money starts rolling in for research and treatments. It's sad to say that it takes a stars crisis to bring the desparately needed attention. The world, and this great country NEEDS to learn more about it and come to agree on the warrant for research funding.
photo
HUFFPOST SUPER USER
Sharon Hanson
Skeptical of the *pseudo-skeptics*
09:38 PM on 09/04/2011
I too have this disease only mine is called dry eye syndrome. I know what caused it. I had 12 MRIs with gadolinium based contrasting agents. Eleven were with the worst one Omniscan (GE's product) and the other was with the second worst product Magnevist (Bayer's product). Please tell your sister if she has had MRIs that this disease gets worse, a lot worse. It causes a new man-made disease called Nephrogenic Systemic Fibrosis or Non-Nephrogenic Systemic Fibroisis and everything in your body becomes fibrotic. Visit GASF-NSF on yahoo groups to learn more.

http://health.groups.yahoo.com/group/GASF-NSF/
12:28 AM on 09/19/2011
Thank you so much for posting, Sharon. I've never heard of this group before but just asked to join. Best wishes to you, 4 Fans, and Activist Annie. I hope you continue to heal and thrive.

Folks, please, don't EVER consider having a contrast dye MRI without researching it thoroughly and demanding a preliminary skin test first. Don't ever let anyone you love or know have a gadolinium or other heavy metal contrast dye MRI without being completely informed and pre-tested, either. I've been seriously injured by one, my next-door neighbor's father was killed by one, and I know a woman who lost her arm from one. Iarogenic illness--illness caused by medical treatment--is one of the leading causes of death in the U.S.
photo
HUFFPOST SUPER USER
Sharon Hanson
Skeptical of the *pseudo-skeptics*
09:40 PM on 09/04/2011
I also want to say that if anyone is going to get better it is going to be me. I work very hard to get this toxic heavy metal out of my system. It has been found in my tissue.
photo
HUFFPOST SUPER USER
deans2cents
I speak my mind...
10:20 AM on 09/03/2011
So sad, Venus I hope you feel better real soon. you are an inspiration to many, and I shall miss your whippin butt on the courts......Bless you.
jpalmettoguy
I love HuffPost.
09:02 AM on 09/02/2011
I know this must be frustrating for this powerhouse athlete.
01:28 AM on 09/02/2011
When we hear news like this, it's hard not to think of the dollars that will never get funded for research because of the hard hearts of some politicians.
01:16 AM on 09/02/2011
Venus, trust and rely on the Lord Jesus Christ, who is the master healer.
HUFFPOST SUPER USER
Activist Annie
07:03 PM on 09/01/2011
I didn't know who she is, but I was sorry to read that Venus Williams has Sjogren’s Syndrome. My heart goes out to others with this and any autoimmune disorder. I, too, have Sjogren’s Syndrome having been diagnosed about ten years ago. Discoid Lupus followed six years ago. I have a wonderful Rheumatologist who takes time with me during my visits. I am doing quite well at this time, thank God, my doctor, prayers and a positive outlook.

Several years ago he prescribed CellCept an immune suppressant. This drug worked wonders for me. For a while I got the medication free from the manufacturer even though I was even willing to do my share with a co-pay.

I'm aware that the FDA approved this medication specifically for those who have had a kidney transplant. Well, guess what! On my insurance company web site, I found that this medication can also be used for other situations, to just “ask your doctor.”

A few weeks ago my application was denied. I submitted an appeal with a strong letter in which I also quoted the insurance company words with web address, etc. I firmly and emotionally stated “I want to live! I want to live a productive life.” My Rheumatologist and Case Manager both supported me. I am 75 years of age, had the Shingles two plus years ago and am doing well.

My prayers are with Venus Williams and all who suffer from this debilitating disorder.
photo
asiclilpup
Tax the rich Feed the Poor.
08:49 PM on 09/01/2011
May you recover and be well.
HUFFPOST SUPER USER
Activist Annie
02:50 AM on 09/02/2011
How sweet of you. I am deeply moved by your thoughtfulness beyond any expression. Thank you so much. God bless you and I bless you.
01:08 AM on 09/03/2011
I also have Sjogren's Syndrome and was very sympathetic for Venus Williams. I have mixed connective tissue disease along with it, which displays several other auto-immune type illnesses with Sjogren's. This disease can attack your central nervous system, as mine did, lungs,and other organs. It is very good to hear that Venus is taking time to get the rest she needs and education. Activist Annie- Cell Cept helped? I must ask about it, or read more on this.
HUFFPOST SUPER USER
Activist Annie
06:09 AM on 09/03/2011
I'm so sorry to hear that you, too, have Sjogren's Syndrome and mixed connective tissue disease with it. CellCept is an immune suppressant and it helped me a lot. I really felt good and the fatigue was gone. It was my caseworker who applied for this medication for me and the company gave it to me free for a while. Do you have a case manager? Mine is at our local Community Action Program who works with medications program. That would be a good start and ask your rheumatologist.

Keep a positive attitude. Read Dr. Wayne Dyer's book, "Excuses Begone!" I watched him on Public Television, then borrowed the book from my local library. I keep repeating, "I am being healed" and go to sleep with a smile on my face as he suggests. This is so my body (and I) don't get discouraged.

I'll keep you in my prayers. I wish we could communicate privately so I could give you specific information.

You are in my prayers.
HUFFPOST SUPER USER
Activist Annie
06:22 AM on 09/03/2011
I saw this video on a newsletter yesterday and thought you would receive some encouragement from it just as I did:
http://www.youtube.com/watch?v=uKPp4j-YQ00
06:22 PM on 09/01/2011
I have both RA and sjogren's... Let me tell you that this changes your life. Anyone who makes a rude or nasty comment should be ashamed!!!! Because of these auto-immune, I suffered a server infection of strep, staff, yeast and thrush. Almost died... Now slowly recovering. This is a great thing for people like me who suffer from these illnesses. I am very deeply sorry that Venus has to go through this, but she is not alone. Sjogren's world is a great on line community. I am glad that she came forward and now Sjogren's can get some long over due public attention.
07:08 PM on 09/01/2011
So sorry to hear of your suffering. And shame on those making rude comments. I agree that Venus will shed light on this and hopefully make a positive impact. Funny thing is another tennis player, Novak Jokovic, came out discussing his gluten intolerance. And that brought a buzz and focus on that condition. Maybe Venus can do the same.
02:06 AM on 09/03/2011
Hi Kallie1313, Thanks for sharing your condition with all and I'm happy to know that you're doing better. I saw you mentioned that you had a severe case of strep. I started getting regular cases of strep 2yrs ago. Now it comes on a monthly basis. I'm frequently on antibiotics and experienced the worse case of erythema nodosum my doc had ever seen. I now have severe joint and shooting pains in my shoulder. I have limited use of my right shoulder. Docs are currently checking to see if the infection is attacking my joints. I was wondering what was done to get rid of your strep infection? Even though my strep eventually goes away when I take the antibiotics it just doesn't want to stay away. It now returns on a monthly basis. So frustrating!!!
85Percent
Southern Liberal & Michigander
06:17 PM on 09/01/2011
How does one test borderline for lupus? It sure sounds like someone does not understand the several criteria involved in the standard for a lupus diagnosis. On the other hand, perhaps someone can tell me what these people mean when they say that. It sounds like an attention-seeking lupus-wanta-be self-diagnosis. There are lots of those around.
photo
HUFFPOST SUPER USER
Jond0
Show Me Your Money
09:50 PM on 09/01/2011
I think it's because they have symptoms but don't have it, and in our modern very complicated world we are discovering many things doctors have no clue about, but at the same time are very real for those who have them.
photo
HUFFPOST SUPER USER
RhiannonRings
Childfree and loving it!
11:39 PM on 09/01/2011
You can have the blood markers for lupus (I do) and not have the disease.
HUFFPOST SUPER USER
bjbold
Thank an Occupier
06:01 PM on 09/01/2011
Blessings to you, Venus and to all who suffer from auto-immune diseases.
There is help if you search out a functional medicine M.D. or holistic M.D. They can ease the symptoms and help get to the underlying cause and correct what is wrong.
It worked for me. I am now regaining my health. This is a rapidly growing field of medicine.
04:51 PM on 09/01/2011
Sjogren’s, lupus, and rheumatoid arthritis are complex conditions which are hard to diagnose. It is even harder for most people to imagine and truly understand what happens to the physical body. People who are well may benefit by trying harder to galvanize themselves. One Sjogren’s flare can mean months of forced inactivity, nursing skin, joints, muscles, and connective tissues back to health. Strong drugs are often needed to stop the relentless immune system from attacking healthy organs as well as unhealthy organs. People who love us sometimes get frustrated, and exhort us to “try harder”. Simply put, that’s the wrong response, its a medically dangerous one. Venus may need to take the prescribed medications and just simply rest her body and her spirit for a time. I understand her comments, that she is glad to finally have a diagnosis. No one wants the diagnosis, but once received, one can explore the options available to manage and control the flares. Honestly, her diagnosis means that there are others out there who understand, and who will reach out to help. I met Venus once, and her joyous spirit and grace dominated the room. Venus is a great person, and I wish her well.
photo
HUFFPOST SUPER USER
Cyrus Trance
America is not a theocracy.
05:08 PM on 09/01/2011
They are not hard to diagnose, specially RA.

There are numerous diagnostic tests for all the above conditions.
06:32 PM on 09/01/2011
The problem with diagnosing autoimmune diseases, is that the symptoms so often resemble other illnesses. There are many other autoimmune conditions (there are 100+ known autoimmunity related diseases). My own experience with overlapping Lupus, Sjogren’s, and Rheumatoid began over 15 years ago. What seemed to be a sports injury was masking the onset of lupus. A course of physical therapy was recommended. The physical therapy (over several months) did not improve the condition. I was then referred to a highly respected, well experienced rheumatoid specialist. A full battery of tests indicated that RA was the likely diagnosis. MRI’s and X Rays were done on several areas of the body which were swollen and painful. The results showed no damage to the joint and bones, and the diagnosis was revised to lupus. Today, I am considered to have overlapping RA, Lupus, and Sjogren’s. Not so easy. All too common.
10:38 AM on 09/02/2011
Um, actually, it is. Once a doctor thinks to orders tests for Sjs antibodies, lip biopsy, etc., it becomes easy, but the average SjS patients waits about 10 years from first consulting their doctor to actually getting the diagnosis.
photo
HUFFPOST SUPER USER
robjh1
We Have Met the Enemy and he is Us: Pogo
05:39 PM on 09/01/2011
Great insight! F&F
04:49 PM on 09/01/2011
maybe she can use her fame to help educate the public on this disease.
photo
HUFFPOST SUPER USER
Wintersoldier7020
The FanGirls Are Pissed
04:34 PM on 09/01/2011
It's amazing how medical science always evolves, there was a time when Sjogren's syndrome was considered something that only affects elderly Asians.
04:33 PM on 09/01/2011
It's the food. Your immune system is just defending your body from the many poisons that the government has allowed food manufacturers to put into processed food. These food additives and preservatives are not subject to long term testing. Your overactive immune system is attacking these poisons and your body at the same time.
photo
HUFFPOST SUPER USER
Cyrus Trance
America is not a theocracy.
05:23 PM on 09/01/2011
Then why do these autoimmune conditions attack connective tissue, bone, skin, muscle, organs, and other tissues and not sandwiches?

RA was first described in the 1800's where there were no preservatives in food. The ancient Egyptians also described RA.

No one knows why RA and other autoimmune diseases attack ones own body.
photo
HUFFPOST SUPER USER
Jond0
Show Me Your Money
09:54 PM on 09/01/2011
Maybe they ate items, used drugs, or distilled spirits in such a way that introduced poisons into their systems too? We had to learn about poisons the hard way at least some points in history, right?
photo
HUFFPOST SUPER USER
Jond0
Show Me Your Money
09:55 PM on 09/01/2011
"No one knows why RA and other autoimmune diseases attack ones own body."

And I think this is everyone's point you seem to be determined to shoot down, btw.
photo
HUFFPOST BLOGGER
Karim Orange
11:17 AM on 09/02/2011
I think you might be on to something with the food.
photo
HUFFPOST SUPER USER
GOATLEY3
Dream in lightyears, accomplish step by step.
04:27 PM on 09/01/2011
Vaginal dryness ......I got a cure for that...ba dum bum tis.
jeremyv1980
Tough times don't last. Tough people do!
06:31 PM on 09/01/2011
Maybe for her sister. Everyone knows who got the looks in the family.