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Amalia Negreponti

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Surviving Anorexia

Posted: 03/20/2012 12:06 pm

I looked in the bathroom mirror and a skull stared back. A skull with a thin, very thin lining of pallid skin. Blanched lips, cheekbones so sharp they looked hurtful. Inanimate eyes. It seemed as if someone barely alive was looking through someone already dead. Both seemed like strangers to me. People I had known long ago but no longer did. I felt a shudder run through my bruised, emaciated body. Then a tingle of satisfaction. I was well on my way to succeeding! All I needed was to lose a few more pounds. Maybe 10, maybe 14 -- to be on the really safe side... I had to start by figuring out how nobody would notice I would not be eating anything that night. It was my birthday. I had just turned 13. I stood 5'6" and weighed 79 pounds.

Two years later, I was dying. Whilst continuing my life, as "normal."

As the portions of food that actually entered my body had decreased rapidly, my determination, single-minded sense of purpose, motivation, discipline and tolerance of pain had grown. Monstrously. I started track and cross-country running, I walked like crazy, I skipped rope obsessively. Every day I got up earlier and earlier, repeating to myself, "I'll sleep when I'm dead." I got to bed later and later at night because I'd read that when you're awake you burn more calories. I couldn't sleep almost at all because the mattress felt hard and I could feel my bones piercing through skin, right into it. I became bruised by even the slightest touch. I shivered even in balmy weather. I dressed in loose, flowing shirts and sweaters and jeans. My grades skyrocketed; I even won a math award. The teachers at school worried I worked too hard. At a school dance when I wore tight jeans, hid the black circles under my eyes with concealer and accentuated my cheekbones, all the other kids thought I was awesome. "You look just like a model," they said admiringly. Not long after, I stopped eating entirely.

Although by then, fully in my teens, I never "acted out" and certainly never lost control. I had friends but no boyfriend (I had broken up with him on our second date when he had tried to get to me to eat roast chicken), no interest in sex, smoking, drinking. I didn't stay out late -- I wouldn't have gone out at all, if it weren't for school or sports! Yet my relationships with my mother and my yaya, like we call grandmothers in Greek, were in shreds. The rows were constant and gut-wrenching. When they peaked, I felt such passionate animosity toward them, it bordered on hatred. Later, I hated myself for treating them in this manner, for subjecting them to the onslaught of my decision to surrender myself to anorexia.

Yet I still rebelled against what I saw as my mother's and my yaya's lack of respect of my decision not to eat, maybe even not to go on living -- both intellectually and emotionally, I calmly accepted that outcome as highly possible. I even quoted Sartre and Primo Levi to dissuade them from constantly trying to change my mind and GET ME TO EAT!!!

Yet they did not stop: In unison and separately, both my mother and my yaya used every weapon they knew to make me eat something. My yaya cooked me light editions of all my favorite foods, my mother tried to reason me through, then she just yelled. They both ended up crying. Yet they never stopped urging, begging, coaxing me to eat -- and of course, I wouldn't. Our family, our lives were being torn apart as the illness reached its climax -- and approached its inevitably fatal conclusion.

One night, after one such traumatic experience (which is what all dinners had turned into), I ran to the apartment's front balcony to work off my fury. The pacing up and down in the cold wintry air would also burn up more calories, right? It would invigorate the metabolism. Even if it were only the mid '90s (And those years, life in Athens, Greece, was like the early '80s in New York), I knew all about that stuff.

Pulling the balcony door open -- everything seemed to require so much more effort nowadays, even simple movements, even breathing and swallowing my own saliva -- I overheard a snatch of conversation from the kitchen where my mother and my yaya were talking about -- what else? -- me.

"She's going to die, can't you see it?" My usually sweet and gentle yaya was fiercely telling my mother, in a reprimanding tone, "We need to get her to a hospital to be force-fed." "It'll be no use," my mother said, "She'll just stop eating as soon as she comes out of hospital and she won't trust us too. There is no chance she'll survive then. Now maybe we still have a chance to persuade her to eat. If we fail, we'll all die of course." She spoke in a matter-of-fact manner.

A lightning bolt of recognition shot through my head: These two people inside the kitchen loved me so much that losing me would not only devastate them but spell the end of their lives. I walked into the kitchen and asked them what they would do, most literally do, if I did die then. My mother said she'd jump off the balcony. My yaya nodded in agreement. I was appalled. My dynamic mother who never gave up, and my yaya, an epitome of rationality and understated chic-ness, would act like figures out of an ancient Greek tragedy all because I wouldn't eat!

Although I still thought my mother and yaya were over reacting to something not that important, I respected their desperation and felt a responsibility toward them because I now knew how much I was loved by them. I made a decision: I asked my mother to take me to my favorite pastry shop in Athens so I could eat one of its "signature" chocolate buns filled with cream. They were huge and I had once adored them.

We almost flew to the pastry shop. By midnight we were still there: myself laboriously still eating the bun and my mother applauding every bite I took, with tears of joy in her eyes. Eventually, I managed to finish it. Every bite was torture.

Every bite I took from then on was torture too. As I slowly, very slowly, grew healthier, I gained some weight. Although I was still too thin and I knew it, I could not sleep, in mortal fear that in gaining this weight and thus regaining my life, I would lose control of it. I would become "normal," therefore mortal, a woman.

In the meantime, I diligently trudged through what would amount to volumes, were it not on the internet, about my illness. I devoured myriad psychiatric papers and observations of actual "cases" which had been hospitalized. It was shocking how nearly all ended in death. Thanks to the web, I was able to heal mentally as well as emotionally. I entered many forums where both survivors, as well as people still battling the disease, were speaking candidly to one another about the disease. I read and I read and I read, until I read myself out of ever feeling so alone and vulnerable, that I would fall prey to this enemy, again.

I used the iron will and discipline anorexia had given me, to master myself. To become one of those who survived the illness. Who beat it. Every moment of my struggle was imbued with the knowledge that I was loved beyond reason by those I loved: my mother and grandmother -- my yaya, whose name lives on through me. Amalia.

Speaking on the phone with the famed psychiatrist Irving Yalom, years later, as a journalist, I realized how lucky I had been to have survived and overcome this illness. "Most patients don't," he told me, "And we psychiatrists really don't know what to do, that's the sad truth. Anorexics are too intelligent and too determined to be saved. Whether they cross over into bulimia nervosa, or stay anorexic their entire lives, most of them eventually die from complications that arise."

Nowadays, I am very health conscious, yet without rigidity. Having overcome anorexia has also made me much more reasonable in other aspects too. Like relationships. I now know you should never date a man who doesn't concern himself with whether you've eaten well. If he doesn't care about that, he will not care about you in any other sense too.

Of course, I do have some "reminders" of what I have gone through. My hands go white and numb in chilly weather -- but that happens with many other women, too. A big dinner still makes my heart beat really fast -- but then, so does succeeding at my goals or falling in love! I am slender -- but not skinny. No one would know I ever had anorexia.

Yet I never forget. I am always alert and vigilant because I know I can never be entirely safe from myself. Sometimes -- and this can happen; beware all of you out there who have gone through similar situations, or who have loved ones who have done so -- you slip. A treacherous crack opens inside you, inside your soul. The void gapes through. When this moment may arrive, is unknown. If you are going through a rough period you may be tempted to fall back into old habits. So you have to deal with it, decisively.

But I have done so -- and I have won! My mother, my yaya and I won that night when I ate the bun: the three of us. In Greek, the word for winning is "Nike." In our mythology, she is a woman -- and boy, is she gorgeous! Radiant, full of curves, and "normal." (Cindy Sherman even made her pregnant in a statue now showing at MoMa.) Yet there is nothing "normal" about her: Nike is a goddess. Like every woman: endowed with the power to overcome anything.

For more by Amalia Negreponti, click here.

For more on eating disorders, click here.

If you're struggling with an eating disorder, call the National Eating Disorders helpline at 1-800-931-2237.

 

Follow Amalia Negreponti on Twitter: www.twitter.com/@aliama

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08:02 PM on 03/26/2012
Thanks for sharing your courageous battle with this awful disease. My step-daughter continues her own battle and seems far from victory. I wanted to emphasize to anyone reading this article for a "solution" that the treatment of various eating disorders is extremely complicated. I wish wholeheartedly that it was just a mater of getting that wake-up call that brings the victim back to reality and empowers him or her to fight on. In so many more cases, there is a complex mix of other mental illnesses, personality disorders, coping skills, and medical devices required to get on the right path. So, if you or a loved one suffers in this manner -- seek medical help and don't just try to fight it alone.
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OregonCoaster
It can be hard to distinguish crazy from stupid.
02:39 PM on 03/25/2012
It is easy to see a distorted body image and a drive to be thin as the cause of anorexia, but it is more complicated than that. There are many potential triggers that have been identified for the initial weight loss of an anorexia sufferer and a drive for thinness is a common one but only one of the many.

A key to know is that the calorie restricted (starved) state induces psychological changes that reinforce the calorie restriction. This starvation psychology is irrational about eating. For that reason, all the discussion about body image and weight may have little effect.

There may yet be pharmacological interventions that will help to reverse the calorie restriction psychology, but operationally the one that works is caloric intake to reverse the starved state. It is also unfortunately the hardest one to get the patient to comply with. Until enough weight gain is achieved it is almost impossible to affect the condition with discussion or reason.

There are science-based treatments:
http://www.nationaleatingdisorders.org/research-efforts/
09:59 AM on 03/24/2012
While this condition has myriad complexities and individual twists, there is something wonderfully simple about the "cure" - the decision to let love draw you into relationship and out of isolation. Your valiant perseverance toward connection and life is remarkable, and no one can fail to recognize the incredible devotion and grit of your loved ones who never gave up trying to pull you to themselves.
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creddell6
02:37 PM on 03/23/2012
I knew a gal who was seriously anorexic and I tried very hard to understand why she truely thought she was fat. She was a co-worker and I had already figured her to be excessively vain....she was a walking skeleton and she wore more make-up than a cover girl. She touched up her face about three times an hour, but the lipstick! Oh the lipstick was applied at every chance and she had it right there on her tray with all her other make-up and hair spray. Back to the anorexia.....I tried to get her to even just taste some sweet-n-sour pork ribs....and she refused, said she was too fat and then demonstrated by pinching the skin at her [22 inch?] waist and saying, "See? Look at all that fat!" There was no fat there. There was nothing. Skin and bone. I've always wondered what ever happened to her......she was a nice person.
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larissa68
02:17 PM on 03/25/2012
Did it occur to you that she might be OCD and not vain? And that the makeup might have to do with self image problems and not vanity. I mean, wow. Talk about being WAY off base.
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creddell6
06:20 PM on 03/25/2012
Nope I'm not anywhere near off base. What do you think vanity is? It is certainly an obsession with self image. She put the make up on so often because she actually believed it needed touching up....plus it could never be perfect enough. And had you ever seen her, you would see why I chose the word 'vain'. She was a very pretty girl (too skinny!), beautiful face and long wavy hair, always prancing around, but in her mind she was fat, and that lipstick had to be fresh at all times and she almost hairsprayed me in the eye a couple times too...just kidding!........by the way, she was perfectly normal in every other way, I never observed one odd behavior besides the anorexia and I only brought up the excessive make-up because I think it relates to the fact that she absolutely saw something completely different in the mirror than what was really there. Very sad!
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HBobedajr
Plus que change,plus c'est la meme chose!
01:28 PM on 03/23/2012
A very inspirational and well written story...Kudos to you, Amalia!
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gfgarv
but you are Blanche! You are...
01:27 PM on 03/23/2012
As a parent, I would think twice about even putting a full length mirror into my daughter's room and if I saw a stack of girls/fashion magazines, I would have a nice talk with her over lunch.
01:25 PM on 03/23/2012
Congratulations on crossing over to the winning side of this disease. As a medical provider, I'd like to hear from those of you what we medical people could do to help you overcome this illness. None of the current treatments really work. I have science guiding my thinking but I don't have the subjective information, the human part of this disease to help me help you. What can us medical providers do to help? Please share your thoughts, positive or negative.
01:39 PM on 03/23/2012
As you have stated, NONE of the current treatments work. You medical providers can help greatly by stopping the delusion of this being a disease that is beyond the control of those CHOOSING to do this to themselves. Yes, the blunt fact that no one wants to hear is that it is entirely a choice based on the learned social cues and skewed perceptions and motivations learned by the subject.
01:43 PM on 03/23/2012
I really believe that the focus on B.M.I. is hurting people more than helping them. It seems to be a one size fits all type of deal. A muscular body builder could easily be put into the morbidly obese category simply because muscle is far heavier than fat. When I was in high school in the 90's, anorexia was a problem. As a result our doctors and health teachers started talking in terms of healthy eating, rather than weight. And it worked until the B.M.I. came into play. It's just plain common sense. It's time to stop focusing on weight, and put the focus back onto healthy eating.
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01:07 PM on 03/23/2012
This story was heartbreaking and inspirational all at the same time. Girls' and young womens' body image is so fragile. Every girl needs to be told how beautiful she is. For some, it could be a matter of life and death. Thank you for sharing your story.
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realwoman8
Curioser and curioser
01:02 PM on 03/23/2012
That was a great article. I had a brief bout with anorexia, and my daughter's friend also went through it. It is so heartbreaking. It's not about looking like a model - it's about control and OCD behavior. For girls (or boys) with low self-esteem and perfectionist tendencies, it makes them feel like there is something they can control and "do right." So sad. I remember being so hungry and weak, obsessively tracking calories, excercising manically... Ultimately, it is a disease of self-absorption, both literally and figuratively. A nightmare for both the anorexic and the family. I hope those who are suffering, and making those around them suffer, will accept the help they need. It does get better!
12:59 PM on 03/23/2012
Wow what a shock, not! It used to be only some woman were anorexic. Now 90 percent of woman and MEN are anorexic. Especially in the northern states this is accurate. But its become a norm that’s why we don’t even see these kind of articles that much anymore.
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ljoyhunter
12:57 PM on 03/23/2012
To Others Who Struggle with this disorder:

Hope and strategies to win are here. Many don't have a mom and yaya but do have a Great Father who loves you offering an array of beautiful colored and sweet flavored things that grow for you, to enjoy and renew your strength, like the eagle to soar, to do great things, to help others,enjoy experiences & communion with His great love demonstrated by sending his Son to suffer and die for you so that you can be healed. Unconditional love was the thing that made the difference and discovery that one could be so dearly loved by people even living in the same house. I am trying to reach out to those here who don't have that to let them know that just as Amalia's mom & yaya were willing to die rather than lose her, so was Jesus, and did, and this was the greatest message of love for all with any type of disorder that can end precious life in an untimely manner before you get to experience your divine purpose. You are so very much loved, and you who read this and don't think so, I am telling you from the depth of my heart and soul, as I know it first hand to be true. Your life is very important.. You have divine purpose. If not one other person told you, I am now. I love you dearly with Godly love. Sisters and Brothers, Please eat & live!
12:45 PM on 03/23/2012
Thank you so much for sharing this heart-wrenching story. Like most addictions, one has to stay vigilant when they believe they've overcome theirs. I'm so glad you are!
12:35 PM on 03/23/2012
This is such an important article. Anorexia is like alcoholism. While neither is a disease, per se, it does control people's lives until it kills them - unless they get help.

My daughter was anorexic. 15 years old, 5 feet tall, and only 78 pounds. She would run to burn calories, refuse to eat, and take laxatives, saying she was "constipated." She was in complete denial. She was always cold, even in summer in South carolina.

Today (age 19) she is a healthy 94 pounds, and eats well. Now she tells us about how it was the only thing she felt she could control in her life (we had moved from Brooklyn to SC when she was 13). As she learned she could get by without food, she ate less and less. She tried to vomit, but wasn't able to do it.

What helped her?
1. prayer
2. The bible
3. a good psychologist, trained in eating disorders
4. a loving family
5. support from a group of friends at church.

By her 17th birthday, she was eating normally and healthy again, thank God.

Please, if a loved one is anorexic, don't listen to their excuses. Do what the family of the author of this artice did - never give up.
12:25 PM on 03/23/2012
Great story. Congratulations on your success and thank you for sharing with others. I have the opposite problem where I eat too much due to stress. The universe speaks in strange ways. I am particularly warmed by the fact that you cared about others more than yourself. That speaks volumes.