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Andrea Chalupa

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Caregiver Stress: The Other Side of the JetBlue Freak Out

Posted: 08/19/10 05:31 PM ET

JetBlue flight attendant Steven Slater gave us a meme we couldn't get enough of. Now that the jokes have been exhausted, it's time to focus on an issue in the shadows of his fabulous escape: caregiver stress.

Susan Balda in eCareDiary writes in response to the New York Times article that mentions Slater was taking care of his elderly parents and how caregiver stress likely contributed to his "freak out":


Our nation's elderly over 65+ is the fastest growing segment of the population replete with chronic and long term illnesses. Due to the oncoming "silver tsunami" along with rising costs of healthcare, the responsibilities of their care are falling on their families. Millions of people like Steven Slater are juggling stressful jobs along with the emotional and physical stress of caring for aging parents.

From a friend, I received a terrific essay written by Carol Levine, the director of the Families and Health Care Project at the United Hospital Fund in New York City, and a former family caregiver. It is published here with permission to remind us of the role we will inevitably play in the lives of the people who first took care of us and how this will impact our own well-being:


In the middle of the summer doldrums, Steven Slater's dramatic slide down an airplane evacuation chute has given the chatterati a new topic. Is he a folk hero, or a threat to public safety? Wouldn't we all like to leave our jobs in such a spectacular fashion? (Well, no, not really.) And fundamentally, what made him snap so spectacularly?


The obvious candidate, job stress, may have been only one factor. According to the New York Times account, Mr. Slater is a caregiver for his ill mother and had taken care of his late father, who died from ALS (Lou Gehrig's disease). A neighbor in Thousand Oaks, California, thought that Mr. Slater's uncharacteristic action "could be the pressure of his mother's illness."

Many studies have shown that family caregivers are at risk for high levels of anxiety, depression, stress, and other forms of mental distress. These problems, if unaddressed, grow worse over time. And male caregivers are less likely to seek help than their female counterparts.

Many family caregivers can understand how Mr. Slater reached a breaking point. Their ordinarily high level of stress can be exacerbated by a sibling who refuses to share the burden or a friend who cancels a promise to help at the last minute. Some triggers can come from the health care system itself: an ambulette driver who leaves an elderly passenger stranded, a receptionist who blames the caregiver for the outbursts of a patient with dementia, or a health insurance agent unable or unwilling to adjust a clearly erroneous bill. Small events can quietly build to an outpouring of rage. The final straw can come from anywhere, including the workplace.

Half of all family caregivers are employed and have to balance their work responsibilities with
caregiving. So they have dual sources of stress. Although some employers have flexible policies for family caregivers, most do not. And most employees do not want to bring their caregiving problems into the workplace.

Mr. Slater's actions were irresponsible, not a protest for working people everywhere, but his
uncharacteristic actions are telling. Like passengers on an airplane, people who require chronic
care depend on others for safety and service, but these "others" have limits, too. As our health care system evolves to one in which more care is provided by family members who often receive little or no training, working family caregivers need a range of employer, professional, and community support to address the growing pressures they endure. Family caregivers do not have evacuation slides.

 

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05:20 PM on 08/20/2010
Speaking from experience as the senior mother of a middle aged special needs adult, I completely understand the impulse to jump on any slide and with beer in hand whoo-hoo my way out of it all, but it's not the simple. The beer part stopped working years ago and I'm too old to manage a graceful slide so my other option was to find some like-minded mothers in the same situation. We meet weekly and whine whimper or wail whatever we need to do, then we tell silly stories, often things our adult kids have done or said, or share dark irreverent thoughts that others would cringe to hear. It's a lifesaver. The worst part of any burden is the false belief that you are alone and nobody cares. If you can't find a support group, create your own. The internet has many ways of connecting so there's no excuse. I have no idea how much longer my "burden" will be a part of my life and sooner or later my other adult child may have to change my diapers, lawd forbid. Do we sit around and stew in our pity pot or do we pass around the lemons and make lemonade? We used to have people "going postal", now when they blow up on the job will it be a case of "going granny?"
Some things are going to have to change. Silly or sad, this story is a symptom of another ailment in society.
06:11 PM on 08/20/2010
You're right. But do you understand how this case is different from yours?
12:46 AM on 08/21/2010
Sure, there are differences. As Carol Levine points out, men and women react differently to stress - perhaps more men just act it out while women are more apt to talk it out and form a group, as we did. Who knows what exactly makes Steven Slater tick? Whether or not he planned to get an agent and publicity deal out of it all is questionable and not really the point. Ms. Levine's piece points out that hidden stress caused by caregiving might have been a factor in his outburst. Not everybody's situation is equal. Fair comparisons are almost impossible because the variables and specifics of each family's case are unknown. Some of us have church, neighbors, family and friends who pitch in, others don't. Good for you for getting through your parents' caregiving successfully. I hope I do as well as I age along with my darling and difficult daughter. How will her brother handle it when he takes over from me, if it comes to that? I got fired from two jobs because of the extra time I had to take off for special needs of my daughter's, so eventually I started my own business so I could have the necessary flexibility of schedule. It was tough. I'm retired now and get tired easily so it's never really easy, whether working or not. The radar is always on 24/7 and it takes a toll.
03:04 AM on 08/20/2010
Enter, the excuse makers.

I spent a decade dealing with the serious illness and deaths of 2 parents. Yes, it was hell. I have many friends who went through the same thing their parents. Yes, for them, too, it was hell. There are millions of people going through the same thing right now. Yes, for them, too, it is hell.

Everyone who goes through this has bad days and acts out, but thankfully it is rare that people act out with total disregard for human life (he could have killed someone through his actions) the way Mr. Slater did. He has shown zero remorse for his actions and instead he is off hiring a Hollywood publicist, talks of a reality show, and getting the VIP treatment and photo ops at a Barry Manilow concert in Atlantic City.

I'm sure there must be some broader and deeper explanation (aka excuse) for why he would turn his selfish disregard for human life into a chance for self-promotion, celebrity and money.
10:03 PM on 08/19/2010
Stephen Slater is neither a hero nor villain. His actions are the results of the systemic failures of both the airline and healthcare industries. As a country we're total denial that the baby boomer age cohort is reaching retirement age and it may possibly bankrupt us. Soon many of us will be in the same boat as Mr. Slater and getting our parents into a good nursing home will be like getting into Harvard or Yale. Dealing with aged adults is a very hard job--especially when you have to go to work. However I don't Mr Slater would appreciate someone going "JetBlue" on his elderly mother while he flew the not-so-friendly skies. However like Mr. Slater that person would also be facing criminal charges.