iPhone app iPad app Android phone app Android tablet app More

Featuring fresh takes and real-time analysis from HuffPost's signature lineup of contributors
Barbara Fischkin

GET UPDATES FROM Barbara Fischkin
 

A Miracle Group Home For My Adult Son With Autism

Posted: 04/29/10 02:15 PM ET

In a ballroom in a Beaux Arts landmark building at the Bronx Zoo this week, housing rights for the disabled was on the agenda. The place was packed with the kind of federal, state and non-profit officials and administrators -- and just plain, old working heroes -- who are willing to wade through a dense bureaucracy because in the end it leads to justice.

I know they all have their stories to tell. This one, though, is dedicated to Bryan Greene, General Deputy Assistant Secretary of the U.S. Department of Housing and Urban Development better known as HUD, who sat upfront. For our family HUD made a miracle possible. It approved funding and in turn, permission, for a terrific group home for our young adult son with autism to be opened by the Nassau County AHRC.

And so here's to Secretary Greene. With people like him at the helm we could someday live in a world where disabled individuals get the housing they need every day.

In our family we believe in miracles -- and in thanking people. And so on Tuesday in that exquisite room, at a table located in a distant comfort zone, our son Dan, 22, sat with two of the three developmentally disabled guys who are now his housemates and buddies. In January they all moved into a newly renovated house on Long Island -- a place I call the frat house. Actually it is a beautiful and smartly designed home that could be a model for such endeavors nationwide. And the guys, who are in their 20s and 30s, are all at the age when leaving home and family and striking out on your own -- even if you need lots of staff to help -- is something one yearns to do.

I sat with them and their staff and hoped the plan -- the plan to thank -- would go okay.

The guys -- Dan, Mario and Kirk -- were supposed to listen to Greene's speech and then walk up to the podium. Dan was going to present Greene with one of his works of art, an abstract rendition of an apartment building made with wood, wire, rope and netting. A bit outré, I agree, particularly for a federal agency. But pure Dan.

I worried, which is what mothers of disabled children do.

Would the guys be able to sit through the earlier speeches? Sitting is not their forte. And what would be it like when they got up there? Dan, Mario and Kirk may be some of the most ingenious people I know. But speech is not their forte, either. If any of them said "Thank you General Deputy Assistant Secretary of the U.S. Department of Housing and Urban Development," that might constitute another miracle.

Although, maybe they are on to something. Maybe it doesn't all need to be said.

On Tuesday it didn't. Instead of speaking a lot these young men showed their gratitude with hard-wrought "Hi's," "thank you's," and handshakes. Dan presented Greene with his art work. Kirk emoted with delight as only Kirk can. And Mario, showing great initiative, took the microphone to add the finishing touches of thanks.

I guess I knew the guys could do it.

In honor of Dan, Mario and Kirk -- and their spare language which says so much and the fact that they did sit through 50 minutes of speeches -- I am leaving all official long quotes out of this story. I am doing this even though I tell my journalism students that it is quotes that make journalism come alive. In this case, though, it is not necessary.

What is necessary though are more thanks galore. Not merely for the house but for the conference which happened due to a heartfelt collaboration between federal and state agencies to commemorate April as Fair Housing Month. The conference was run by the New York State Division of Human Rights and its Commissioner Galen D. Kirkland in collaboration with HUD.http://dhr.state.ny.us

And so, Commissioner Kirkland is also to be thanked for all he does in general -- and specifically in this case. He did not flinch when one of his Deputy Commissioners -- my husband Jim Mulvaney who is Dan's father -- suggested presenting HUD with a piece of art that might, indeed, have driven Alexander Calder back to the Renaissance.

The staff of the Nassau County Chapter of the AHRC is also to be thanked. All of them. They know how to run group homes where the residents' competence is presumed -- and where the need for young men, included disabled young men, to work and to have fun and to live well is recognized. I haven't been to any of the adult women's homes yet. But I bet they are just as good. Dan, Kirk and Mario were accompanied by Brett Hudson, a great group home manager, who lives in an apartment in the house making it seem ever- so-much more like a family. Helping Hudson was Stephanie Burrus, an AHRC program coordinator - which means she supervises several group homes which is no mean feat. Burrus is actually Hudson's "boss," but on Tuesday she also did the hard work of helping with Dan and his buddies. Why? The answer is simple. She knows how -- and she likes to do it.

The three-day conference, which ends Wednesday, was called:
"To Use and Enjoy: Housing Rights for Persons with Disabilities 2010." Secretary Greene began his speech by explaining how HUD had recovered $25,000 for a family who was denied housing because their developmentally disabled daughter had a seizure while they were looking at an apartment. Seizures are, unfortunately, common for individuals with developmental disabilities and Autism. I think this means that we need more medical research and funding for that research -- not more housing discrimination.

You'd be surprised how hard that concept is for many to understand. But Secretary Greene gets it. The New York State Division of Human Rights gets it. The AHRC gets it. As does everyone who attended the conference, which ends Thursday.

As for Dan, Kirk and Mario -- it's 5PM on Tuesday as I write this -- soon they will be eating dinner with their fourth housemate John and a bevy of staffers, all of whom tell me how much they love their work. Later, I imagine, they will go out for a while, maybe for Baskin-Robbins and then shoot a few hoops in the backyard. Later they will watch television in the living room -- ESPN or perhaps the BET Channel, if Kirk's powers of persuasion are with him.

The "frat house," will be in motion. Young men will be living the lives young men should live despite their disabilities. And HUD funding made it happen.


Disclosure: As mentioned above the author's husband is New York State Deputy Commissioner of Human Rights, the agency that held this conference with HUD.

 

Follow Barbara Fischkin on Twitter: www.twitter.com/barbarafischkin

In a ballroom in a Beaux Arts landmark building at the Bronx Zoo this week, housing rights for the disabled was on the agenda. The place was packed with the kind of federal, state and non-profit offic...
In a ballroom in a Beaux Arts landmark building at the Bronx Zoo this week, housing rights for the disabled was on the agenda. The place was packed with the kind of federal, state and non-profit offic...
 
 
  • Comments
  • 19
  • Pending Comments
  • 0
  • View FAQ
Comments are closed for this entry
View All
Bloggers
Recency  | 
Popularity
12:22 AM on 06/24/2010
This is truly an inspiring article. As a parent of an autistic young adult who is transitioning this article brings me hope. Thank you!
photo
HUFFPOST SUPER USER
Rileysmom1204
10:55 PM on 04/30/2010
I'm so happy for you and the guys Barbara!!!
09:00 AM on 04/30/2010
While we're giving thanks... I often think about how grateful the parents of younger children with autism can be for the way you have fought hard battles (wars?) to pave the way for their children. The house is amazing and Dan has made incredible improvement in communication as a result of living in such an appropriate environment!
photo
HUFFPOST BLOGGER
Barbara Fischkin
Author of Muddy Cup, Confidential Sources and Exc
12:27 PM on 04/30/2010
And Tammy as a speech therapist who has been on the front line - been there - you would know. Thanks for all you do and for being an honorary member of the "frat house."
06:37 AM on 04/30/2010
Congrats to all involved in this, making it possible, as Barbara says, for these young men to live "on their own." Loved this piece, Barbara, which filled me with optimism!
05:15 AM on 04/30/2010
Barbara, Its a wonderful feeling to read about this victory, in which the system ended up getting it right, thanks to the persistence and love of all of you. Congrats. Peter
01:27 AM on 04/30/2010
Congratulations, Barbara! How wonderful, and thanks for sharing this joyous story! Many people working hard to make such good things happen...
10:40 PM on 04/29/2010
Great job Barbara! keeping up with Dan gives me hope for the future. and I especially needed a dose of that today.
09:43 PM on 04/29/2010
What a wonderful story to read tonight. Barbara. Thanks so much for writing it. I am so happy for all of you and proud of Dan. Today I took Joshua to his first visit of his new school(middle school) this coming year. I am a neervous wreck(as much as he is) with this new step. And the years will go fast--and I worry(as you point out that's what we do) what's next to come. ?
Hugs, and see you in the windy city, Maurine
photo
HUFFPOST BLOGGER
Barbara Fischkin
Author of Muddy Cup, Confidential Sources and Exc
10:42 PM on 04/29/2010
Yes Maurine. This is great. You will be at the Autism One Conference in Chicago. Terrific. I will be on the Adult Autism Think Tank and presenting with Dr. Michael Elice. But even better, I will see you there! We will need a great poet to get us through... and we will have one with you. (oops sorry didn't mean to make a terrible rhyme!)
04:28 PM on 04/29/2010
The first of thousands of children affected by the Autism epidemic are becoming adults and many will need care for the rest of their lives. You and your son are at the head of the class. Please keep writing about your son's experience, we need to hear that he is happy, that he is having fun, that he is loved, that he is safe.
photo
HUFFPOST BLOGGER
Chantal Sicile-Kira
Author, Advocate, Founder of AutismCollege.com
03:21 PM on 04/29/2010
Great article, Barbara. I'm so happy for Dan and all of you and the other frats in the frat house and their families! Nice to hear some good news of people and agencies working together!
photo
HUFFPOST SUPER USER
kwombles
www.countering.us
03:11 PM on 04/29/2010
:-) Very nice! I'm so glad it went well and even more pleased that your son's found a great group home to live in. We need many, many more positive stories like this.
photo
HUFFPOST BLOGGER
Kim Stagliano
Author All I Can Handle I'm No Mother Teresa A Lif
02:52 PM on 04/29/2010
Barbara, I know how hard you and your family have worked to make this happen. You give those of us whose kids aren't getting any younger (like their mother) hope.

Congratulations! Kim
photo
HUFFPOST SUPER USER
CelesteFrancoise
02:34 PM on 04/29/2010
My 20 year old autistic son is on a waiting list for a group home in Mobile, Alabama. He graduates high school May 17, 2010. They need to have more of these group homes. I believe it will help with his self esteem, have some independence, and camaraderie with others in this home.
photo
HUFFPOST SUPER USER
thinkingwomanmillstone
great, green, globs of greasy grimey GOPerspeak.
04:37 PM on 04/29/2010
NJ, the undisputed Autism capital of the country, is doing nothing to prepare for this wave of young adults. They just keep renaming their current inadequate services and calling them new programs.
photo
HUFFPOST BLOGGER
Barbara Fischkin
Author of Muddy Cup, Confidential Sources and Exc
08:16 PM on 04/29/2010
Thank you so much everyone and thank you thinkingwomanmillstone for making an important point. We are so ill-prepared and no one gets it. Certainly not the publishing industry. I have been trying to sell a proposal for a "big Picture" book on adult autism for a few years. No takers. Maybe tomorrow....
photo
HUFFPOST SUPER USER
thinkingwomanmillstone
great, green, globs of greasy grimey GOPerspeak.
02:31 PM on 04/29/2010
This would be my dream come true. A happy home for my son, where he can mature and develop as an adult should. Good luck Frat Housemates.
photo
HUFFPOST SUPER USER
ousa
02:28 PM on 04/29/2010
What an uplifting story! Yay for the Frat House!!!