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Barbara Hannah Grufferman

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Life After 50: I'm Running to Raise Awareness of Pancreatic Cancer... Because I Can

Posted: 10/06/11 01:55 PM ET

Steve Jobs succumbed, at the age of 56, to a rare form of pancreatic cancer.

A few days earlier Dr. Ralph Steinman -- a brilliant pioneer in the study of the immune system and who was using his research to fight his own battle with pancreatic cancer -- also passed away, having lived 4 /12 years after he was diagnosed. Three days later, he was awarded the Nobel Prize for medicine.

We can only imagine, with heavy hearts, what else these two men would have accomplished had they not be struck down by this deadly disease.

Closer to home, a much-loved mother at my daughters' school, and a breast cancer survivor, died from pancreatic cancer last fall, leaving a devastated husband and 13-year-old daughter. A very close friend's mother also succumbed to pancreatic cancer last year, a few short months after having been diagnosed.

All of them over -- or close to -- 50. This is clearly a cancer that targets my age group, and I'm nervous.

In early January, not knowing how else to express my grief, frustration, and fear, I decided to run in the ING NYC Marathon -- which is November 6th -- to raise much-needed money for research, treatment and support of those who contract pancreatic cancer, with the hope that with more money will bring more knowledge.

According to the Pancreatic Cancer Action Network, a leading nationwide group of people working together to advance research, support patients and create hope for those affected by pancreatic cancer, there are two main reasons why pancreatic cancer continues to have the highest mortality rate of all major cancers:

  • There are no detection tools or screening tests to diagnose the disease in its early stages when surgical removal of the tumor is possible.
  • There are not enough funds behind pancreatic cancer research to discover the right screening tests: The National Cancer Institute (NCI) spent an estimated 89.4 million on pancreatic cancer research in 2009. This represented a mere 2% of the NCI's approximate5 billion cancer research budget for that year.

Following are just a few of the sobering statistics on pancreatic cancer, also from the Pancreatic Cancer Action Network:

  • Pancreatic cancer is the fourth leading cause of cancer death in the United States.
  • In 2011, 43,140 people will be diagnosed with pancreatic cancer in the United States, and 36,800 will die from the disease.
  • Pancreatic cancer is one of the few cancers for which the survival rate has not improved substantially over nearly 40 years.
  • Pancreatic cancer has the highest mortality rate of all major cancers. 94% of pancreatic cancer patients will die within five years of diagnosis -- only 6% will survive more than five years. 75% of patients die within the first year of diagnosis.
  • The average life expectancy after diagnosis with metastatic disease is just three to six months.
  • Few risk factors for developing pancreatic cancer are defined. Family history of the disease, smoking, age, and diabetes are risk factors.
  • Pancreatic cancer may cause only vague symptoms that could indicate many different conditions within the abdomen or gastrointestinal tract. Symptoms include pain (usually abdominal or back pain), weight loss, jaundice (yellowing of the skin and eyes), loss of appetite, nausea, changes in stool, and diabetes.
  • Treatment options for pancreatic cancer are limited. Surgical removal of the tumor is possible in only approximately 15% of patients diagnosed with pancreatic cancer. Chemotherapy or chemotherapy together with radiation is typically offered to patients whose tumors cannot be removed surgically. Only three drugs are FDA‐approved for the treatment of pancreatic cancer: fluorouracil (5‐FU), gemcitabine (Gemzar®), and erlotinib (Tarceva®).

Source for statistics: American Cancer Society. Cancer Facts & Figures 2010. Atlanta: American Cancer Society; 2010 and NCI Funded Research Portfolio, http://fundedresearch.cancer.gov (Accessed May 2010).

When I run in the ING NYC Marathon on November 6th to raise awareness of, and money for, pancreatic cancer research, I will be holding the memories of my two friends who succumbed to this disease close to my heart, and knowing that I'm helping the effort in my own small way will push me over the finish line. But, Steve Jobs, Dr. Ralph Steinman, and the 43,000 men and women who will be diagnosed with pancreatic cancer this year will be in my heart and mind, as well.

Someone asked me recently why I was spending months to train for, and run in, the grueling NYC Marathon to raise awareness and money for pancreatic cancer research. My answer?

Because I can.

* * *

For more information about living your best life after 50, visit www.bestofeverythingafter50.com. Staying connected is a powerful tool. "Friend" me on Facebook and "Tweet" me on Twitter (BGrufferman). 50: It's More Than An Age . . . It's a Movement.
2011 New York City Marathon Weekly Training Countdown (5 weeks to go!)

I'm running in the NYC Marathon in November to celebrate my 55th birthday and raise money for the Pancreatic Cancer Action Network. Here's an update on my training schedule for this week:

Monday: 8 miles using a run/walk ratio of 3 minutes/30 seconds
Wednesday: 6 miles using a run/walk ratio of 3 minutes/30 seconds
Friday: 12 miles with using a run/walk ratio of 60 seconds/30 seconds
Every other week, I'll be adding another mile or so to the long run (keeping the two short runs the same distance), and I will be adding "speed work" to my training. Stay tuned!

 
 
 

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Steve Jobs succumbed, at the age of 56, to a rare form of pancreatic cancer. A few days earlier Dr. Ralph Steinman -- a brilliant pioneer in the study of the immune system and who was using his rese...
Steve Jobs succumbed, at the age of 56, to a rare form of pancreatic cancer. A few days earlier Dr. Ralph Steinman -- a brilliant pioneer in the study of the immune system and who was using his rese...
 
 
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HUFFPOST SUPER USER
LynneSpreen
Midlife Magic
09:54 AM on 10/11/2011
Thank you for what you are doing, Barbara. I am also concerned about the #1 killer of women, heart disease; and about ovarian cancer, which is nearly as deadly as pancreatic and also has NO symptoms.
http://anyshinything.com/2011/10/07/this-boomer-will-never-die/
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HUFFPOST BLOGGER
Barbara Hannah Grufferma
author, The Best of Everything After 50
11:36 AM on 10/13/2011
Thank you, Lynne . . . I wrote an article about the "silent killer" -- ovarian cancer -- a few weeks ago, which was also posted on vibrant nation.
Thanks for reading, as always!
Barbara
11:55 PM on 10/08/2011
Pancreatic cancer is the fourth leading cause of cancer deaths in the United States. http://bit.ly/reaflS
12:28 PM on 10/08/2011
Your article definitely presents the case for more research about this deadly disease. It is so tragic that it hits people who may be in their prime of life. And, who can forget about how we saw the suffering of Patrick Swayze from the same cancer?
Pancreatic cancer has been a mystery cancer for many years and yet it seems to be affecting people more...
I think it's great that you have such awareness to train for the marathon, you are helping others and in return feeling good about yourself!
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HUFFPOST BLOGGER
Barbara Hannah Grufferma
author, The Best of Everything After 50
11:37 AM on 10/13/2011
Thank you so much for reading and leaving this supportive comment! Sometimes we just have to do what we can do, and this is something I can do. I hope it helps.
all best,
Barbara
12:37 AM on 10/08/2011
I lost my father in 1974 to pancreatic cancer. He was 51. I was only 6 and don't really remember him, I think, because he'd been sick most of my life. I'd always hoped that by now some sort of medicine would be developed to help or cure this nasty disease. Guess not...
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HUFFPOST SUPER USER
Sharon Hanson
Skeptical of the *pseudo-skeptics*
11:38 PM on 10/07/2011
To the author -

If you really want to do something for the treatment of cancer and cancer research watch the movie Cut Poison Burn. You will know what you need to do and it doesn't mean throwing money at a trillion dollar industry that will never find a cure because it means they will become extinct. People that promote these efforts are only hurting the cause and those of us that are high risk of cancer. I pray that you will investigate where the money goes and become involved in exposing the mission of the FDA which has basically become the marketing department of big pharma. and toxic to the patient population.
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LifeChangeStartsNow
I am love, discernment, confident, resourceful, as
02:20 PM on 10/07/2011
Barbara honey, we can't all do what you're doing so good on ya girl. You have my support!

Catherine
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ignacio sanabria
Mirror synapses at work
06:53 PM on 10/06/2011
With the advances in cancer research going on, it is still mesmerizing to realize that these types of cancer are death sentences.
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LivelyLexie
Don't panic.
03:14 PM on 10/06/2011
Thank you, thank you, THANK you. In my opinion, pancreatic cancer is far more terrifying than any other cancer. They don't know how to stop it, whereas most other cancers are treatable (when caught early, at least). I definitely think there needs to be more time and energy put towards fund raising for pancreatic cancer research.
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RhiannonRings
Childfree and loving it!
01:48 PM on 10/06/2011
I lost my 62 y.o. sister to it in Dec. Her only symptoms were pain under her sternum, fatigue, and a small weight loss. By time she was diagnosed, it was at stage 4 and she only lived another month. Very frightening, this disease.
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LivelyLexie
Don't panic.
03:14 PM on 10/06/2011
I'm so sorry for your loss. It's terrible, my grandfather died from it, too.