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Beth Arnold

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Thanksgiving Days

Posted: 11/21/07 10:08 AM ET

"He was the talent of his generation," author David Halberstam said to my older brother Blair on the telephone. Mr. Halberstam was speaking of our younger brother, Brent, about whose death he had called to express sympathy.

Brent died of AIDS two days before Thanksgiving 17 years ago--November 20, 1990--when he was 34 years old. Actually, Burkitts Lymphoma is what killed him, but he'd been infected with HIV for 4 ½ years, at least as far as we knew. Before this lethal cancer, he had been zapped by energy-draining and stress-inducing illnesses of this and that--conditions or problems that meant he never felt completely well. The various maladies sent him to doctors who scheduled tests, gave him sacks of medicines, and wore him out--but provided no answers or solace. There were none to give, though Brent's medical bills were ever soaring. The physicians wanted to help but knew little to nothing about AIDS.

After Brent received what turned out to be his death sentence, there was only one time I'm aware of that he possibly felt completely healed and whole. This stunning moment of relief was in a dream he had about swimming with whales. I don't mean to imply that Brent had a bad attitude, or was resentful or bitter. He was the exact opposite. His openness to life, his charm and intelligence never failed him. His smile dazzled the world, and his courage was humbling to me, stricken as I was with fear the day he called to give me the horrific news of his HIV diagnosis. I was petrified every day after, from then to the end. But Brent was gracious and thankful for each moment of each day he was given--and also for his friends and those of his family who rallied around him with a giant umbrella of support.

What had sent Brent to the doctor when he received this most unwelcome diagnosis was that his blood wouldn't clot. Since then, it had taken four years for this aggressive and life-threatening lymphoma to catch Brent unaware and move into his weakened body. Eight months later--two days before Thanksgiving--he was dead.

We had spent the previous three days planning his annual Thanksgiving dinner. Thanksgiving was Brent's favorite holiday, and he was to host the 1990 dinner as he always had--but this year I would be the cook as well as his hostess. I would roast the enormous turkey and bake the cornbread and chop the onions and celery for the Southern dressing. I would stir the Big Cherry Jello salad and bake the pumpkin cheesecake, which I'd spent all afternoon making before his breath left his lungs and he grew cold.

His guests would be a glittering group of New Yorkers and international jet setters for whom Brent and I had spent hours and hours planning everything to the minutest of details. But this dinner wasn't just a feast for his friends--it was also to be the debut of his newly decorated loft, a showcase of his work. Brent was a decorator, and this was the talent to which Mr. Halberstam was referring. Brent's loft was also to be photographed for an architectural magazine. He never stopped planning. He never stopped imagining or creating. He never stopped living life to the fullest that he was able.

I held his hand all night long his final night, as he lay in a hospital bed in his New York loft. He was still conscious when the doctor told me on the telephone that he was going, and I repeated over and over again how much I and his friends and family loved him. When he drifted into unconsciousness, I selfishly begged him not to die. No matter what I cooed or pleaded it wasn't enough. I wanted to save him, and it was my great failure that I couldn't.

Brent had been living for this holiday, but he just didn't quite make it. His body wore out, and his soul was ready to go while mine tried to prevent his leaving. If he had lived long enough for the cocktail--for the drugs to improve--he might be at table with me tomorrow.

Others have benefited from these drugs, and yet so many are still ill and dying. I am grateful this year to have had my brother for 34 incredible years. But my hope for the future is that other sisters will not have to lose their brothers. Mothers and fathers will not have to lose their sons and daughters. Children will not have to lose their parents.

AIDS is still here--still killing. Please don't forget.

 

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rhdsma
11:03 PM on 11/25/2007
Thank you, Ms. Arnold for your wonderful tribute and rememberance of your brother. It brought me to tears and caused me to remember all my dear friends who've passed away from this horrible disease. My solace lies in knowing they are in their heavenly reward, and their spirits will guide us in finding a cure.
Happy Thanksgiving and God Bless you and yours.
12:26 PM on 11/25/2007
We cannot forget that AIDS still exists and we cannot afford to be lulled into a sense that all is well. There are still many people, not just in other parts of the world, but in our own cities and towns, who do not have access to anti-retroviral therapy (AIDS treatments). For some, it is a financial issue. They may not have healthcare insurance nor a prescription plan and depend on the public healthcare system to assist them. Others, may fall through the proverbial cracks in the system for one reason or another. In the end, we all suffer as young men and women die from this disease. For those of us old enough to remember the AIDS quilt, we cannot forget why the quilt was made and the significance of each and every panel. We must also teach our children and our children's children how we must do better.
10:49 PM on 11/21/2007
I wish that I could type through my tears...
This is so beautiful! Thank you Beth! Thank you for loving your brother so much that you refuse to let his memory die!
I only hope as a gay man, that my own family does/will/would love me half as much!
Happy Thanksgiving!
05:43 PM on 11/21/2007
Absolutely terrific. Let's hear more from this woman.
04:10 PM on 11/21/2007
Bless your heart Beth and to all those super supportive sisters out there. Your post resonated with me as November 1990 was when I was diagnosed with AIDS. I lost my partner of ten years to the disease in '95. I was lucky enough to live until '96, when my t-cells were about gone, and have the "cocktail" give me a second chance. I have since developed resistance to all those meds and am on "salvage" therapy with the new classes of meds that are giving me a third chance. I've always seen it as "living on borrowed time." I'll spare you the icky details of what I've been through, other than to say I don't know how I would have faced it without my own sister's love and support. I do have something to be truly thankful for this Thanksgiving. Thanks for the reminder. I salute you. We'll all raise a glass to those who've gone before.
Peace.
03:47 PM on 11/21/2007
Sad story, but well written. A nice, and sweet, take on a sad event. HIV is out there, as is Cancer, Heart Disease, Alzheimer's, and so many others that kill and debilitate. Sometimes I think we shut ourselves up and wish they will just go away. Some could be stopped easier than others, and some are easier to prevent than others. But when you look at a loved one suffering, it brings everything home. So prayers for all who have these, and the many other diseases that cast a shadow on life, this Thanksgiving season.
02:51 PM on 11/21/2007
What a beautiful tribute to your brother, who obviously had a talent for giving and receiving love. I lost my sister to murder 19 years ago. The pain of such losses never goes away. I always try to do something life-affirming on the anniversary of her death. While in some ways it must add to the pain of losing him that he did not get to celebrate his last Thanksgiving, there is also something beautiful in the anniversary of his death being tied to a day he loved and a day of thanks which can include gratitude that though his life was short it was clearly also rich in the things that count.
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AllanF
12:50 PM on 11/21/2007
Thanks Beth for this rememberance. My sister died of CNS lymphoma in 2001 at the age of 30, having first gotten sick at 26.

We need to remember those that we have lost, especially those that died at such a young age.


Every day we have here is a blessing and a chance to make a difference in someone else's life.
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kd1s
I.T. Geek!
12:49 PM on 11/21/2007
I started working with an HIV/AIDS support group back in the early 90's. I met a guy who despite his diagnosis did everything he could to help others diagnosed cope with their disease.

The biggest loss was Ron. He was my confidant and friend. He knew me better than I knew myself at that time.

I met a few dozen people and to my knowledge only one is alive today. When Ron died I was devastated. It still saddens me immensely.

He too was 34 years old when he died.
12:36 PM on 11/21/2007
i lost a loved one about a year before the protease inhibitors were released. i had heard about the trials and wanted to get him on them but he didn't qualify. he was too far gone. even if the drugs had squashed the HIV they couldn't have reversed his dementia.

that was August, 1995. David probably wasn't as notable as your Brent, but I loved him and so did his family. he was a sweet, charming guy.

interestingly, David told me that I should wait a year after his death before dating anyone, because he felt that was proper. i suppose he had heard someone say that widows wear black for a year. i met Peter, my current partner, one year to the day after David's death at an AIDS support facilitator training session.
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drgrph
12:27 PM on 11/21/2007
Let me first express my sympathy over the loss of your brother. It is my hope that as time pass, so may the pain. At least until the point where the good memories clearly outweigh the pain from their rememberance.

As a pharmacist I have had the opportunity to serve several HIV/AIDS patients. To be brief, it is not a death that I would wish on anybody.

I write primarily to point out that there are a lot of diseases out there that still kill and need to not be forgotten. Please don't misunderstand my next comment but HIV/AIDS does not register in the top 10 causes of mortality in this country. That does not mean that it is of little concern or import.

My father died of a heart attack 40 years ago. Yet today, 2 generations later, diseases of the heart remain the number 1 cause of death - male AND female. Like HIV/AIDS, there has been significant gains achieved. But clearly they have not been enough.

So I would encourage everyone to consider sending donations for many of the chronic and longstanding disease research foundations. Certainly HIV/AIDS should be considered. But don't forget about other less "hip", and at least as important diseases, too!
12:21 PM on 11/21/2007
I completely understand Beth's experience. I lost my partner of six years in 1995, only about two months before "the cocktail" appeared. Like Beth, I was there holding his hand when he gasped his final breath.

It was not unlike watching a fish laying on the shore. Only the "boat" was the hospital bed in our home in the redwoods. And the "fish" was the man I'd loved and been faithful to for all those years.

But unlike Beth, I'd learned from friends who'd had their partners succumb to AIDS. They had told me to let him know it was okay to go. "How will I know when the time is," I asked. "You'll know." And they were right. As much as I wanted to keep John from dying, to keep this wonderful, witty, and handsome man from going, I knew he was in far greater pain than I was experiencing. I had to tell him, "It's okay. I'll be alright. Tom [his partner before me] will be there on the other side to greet you, and I'll be along soon enough." With that, he took one more gasp, and then no more.

I still get teary thinking about it. It's about the only thing that can do that. When you've truly loved someone, it doesn't get easier. It only gets less often.

I hope Beth and her "family" have a joyful Thanksgiving, and a nice cry thinking about Brent. I know I have about John. And let everyone know that love is still love, whether it's for someone of a different gender or of the same as oneself. Thanks.
11:55 AM on 11/21/2007
Lovely column, Beth. And a necessary reminder. This disease is still neither cured nor affordably controlled.

I will be forwarding this to two women who also lost their brothers to AIDS: my mother and my sister-in-law (yes, because I lost an uncle and an beloved ex-boyfriend).

We have lost tremendous numbers of incredibly talented young men due to the imbicilic prejudice and fear that marked the Reagan and Bush administrations when the spread could have been vastly curtailed, and pharmaceutical research could've been expedited by years, no doubt prolonging the lives of all these lost loved ones.
10:52 AM on 11/21/2007
Thanks for this wonderful essay. It has made me all the more aware of my own family and personnal relationships, and how important they are to me. Your memories and those of others have kept your brother's ideas alive. Thanks for sharing, and I encourage you to write more about him.
10:48 AM on 11/21/2007
What a beautiful and heartbreaking essay. While the stress and anxiety of being around family for the holidays has almost made me leave my body, this zapped me right back into the "moment". What a luxury it is to be stressed about hosting dinner and sitting across the table from your brothers and sisters for the holidays. Thank you for making me realize the bigger picture.