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Chantal Sicile-Kira

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Dear Governor Brown: Is There a Future for the Disabled -- Including Adults With Autism -- In the Golden State?

Posted: 05/18/11 07:31 PM ET

Dear Governor Brown,

Recently, I read a an article in Disability Scoop discussing a 50-state analysis from United Cerebral Palsy that compared services to the disabled offered across the country, giving preference to states where more individuals are served in the community as opposed to institutions.

California ranked as one of the highest states, coming in at number five. This should have made me happy, considering I'm an autism advocate known for my expertise on transition to adulthood, and I have a son who is now at that magical age of 22 where he is now eligible for adult services.

However, the looming budget cuts remind me of the old Prop 13 days. You were opposed to the passage of Proposition 13, the People's Initiative to Limit Property Taxation, when you were governor back then. This amendment of the Constitution of California enacted during 1978 cut property taxes, and this decrease in property taxes had a negative effect on public education.

California public schools, which during the 1960s had been ranked nationally as among the best, have decreased to 48th in many surveys of student achievement. Until 1985, California's spending per pupil was the same as the national average, when it began decreasing.

Years ago, after the passage of the Lanterman Act, which gave civil rights to individuals with developmental disabilities in California, I helped prepare young men and women from de-institutionalization so they could live in their own community. Now, my son is 22 and I fear that with the looming budget cuts, the civil rights of many like him will be destroyed, and that institutionalization will once again be the norm for people like him.

Money may not buy happiness, but it does help in providing people the tools to have an education and become a productive member of society, as well as the right to live fully included in the community.

Can you imagine even trying to cut the hard earned civil rights of the African-Americans, or women -- two groups who had to fight to be given the same rights as any other (read white male) American? Yet, the state of California is getting ready to cut the civil rights of the disabled and no one seems to notice. The parents of the disabled are so tired caring for their dependent adults and trying to make money they don't have the time to march or protest in full force.

My son, Jeremy, would be glad to visit you in Sacramento if you need to put a face on the possibilities of the disabled when given a chance, and when families are given the supports needed. You can see how far he has come thanks to his hard work, IDEA, and the hard-working public educators. Now, we are struggling to plan his future as budget cuts loom. He wants to become a contributing member of society, but without some help, he won't be able to do so. What will happen to him, and those like him?

Governor Brown, please think carefully about the civil rights of those with disabilities when you reflect on the budget cuts. They need and deserve our support.

Respectfully,
Chantal Sicile-Kira

 
 
 

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Dear Governor Brown, Recently, I read a an article in Disability Scoop discussing a 50-state analysis from United Cerebral Palsy that compared services to the disabled offered across the country, ...
Dear Governor Brown, Recently, I read a an article in Disability Scoop discussing a 50-state analysis from United Cerebral Palsy that compared services to the disabled offered across the country, ...
 
 
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FTracy3
My micro-bio is as empty as the rest of my life.
11:38 PM on 05/23/2011
I sympathize, I really do, but cutting funding to a particular constituency does not necessarily equate to "cutting their civil rights".
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momstudent
02:19 PM on 05/22/2011
This nation needs to stop the Prison Industrial Complex and the Military Industrial Complex. Both are now for profit and we were warned about the Military by the individual which won WW2 former President Eienhower. Not until we as a nation are able to unite to change these two corrupt and immoral issues will we begin to address the Civil Rights of anyone.
02:19 AM on 05/20/2011
We must all be heard and make our point loud and clear to the Governor Brown as well to the legislators.
12:23 PM on 05/19/2011
I really appreciate you highlighting civil rights which seems to have gotten lost in all that is being said about budget cuts to services to children and adults with Developmental Disabilities. When we look at past years budget cuts the California Department of Developmental Services has consistently been cut at a greater percentage than other departments within Health and Human Services. There has been some much innovation in the last 5 years that really is making a positive difference for people with developmental disabilities yet instead of celebrating these and building on them we find ourselves having to fight for the existence of proven effective programs and services.
07:59 PM on 05/18/2011
Correction: That's AB 171.
07:30 PM on 05/18/2011
And, while he's at it, the Brown Administration should also support pending legislation (SB 166 (Steinberg) and SB 171 (Beall)) that would require insurance coverage for autism treatments, thereby saving the regional center system 10s of millions of dollars, if not more.
09:16 PM on 05/19/2011
It's unlikely to happen.AS you may be aware,the diagnosis has exploded over the last several years.mandating insurance coverage of a syndrome with no objective testing is a fools errand.And,My field of specialization is not nuro science ( I'm a 'pimple popper') ,but a brother and cousin are both Ph's in neuro anatomy at med schools.They know of no treatments for autism.
Sorry
11:54 AM on 05/20/2011
Your brother and cousin need to educate themselves. There's no cure for autism--but their are effective, evidence-based interventions and treatments. These are already mandated under state and federal law; but, insurance companies have been systematically discriminating against people with autism spectrum disorders by denying coverage. As a result, taxpayers are footing the bill. SB 166 and, particularly, AB 171 will remedy this.