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09:01 AM on 08/20/2013
I live In Pennsylvania, one of the "Lyme"states and one of the states that won't accept Obamacare. Our governor should get a whopping case of Lyme Disease.
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Patriot86
Compassion is the basis of all morality.
09:00 AM on 08/20/2013
No kidding ...Insurance companies have refused to admit long term Lyme exists but it does...my 30 year old niece is an invalid because of it...almost blind now, diabetes , arthritis...it can attack any organ in the body...
likes2kayak
Freedom to the USA!
09:07 AM on 08/20/2013
OMG!! Research.... then get your niece onto some Bentonite Clay and Spirulina powder! Go to the health food store.. buy it in lose form from their bulk bins, the empty gel caps from their shelf, and fill them yourself with a spoon. Research all you can first!!!!! Start today!!!
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Patriot86
Compassion is the basis of all morality.
10:42 AM on 08/20/2013
I am texting my sis right now.
likes2kayak
Freedom to the USA!
09:11 AM on 08/20/2013
Do the clay baths, and clay packs (make a paste and apply topically to joint areas, cover with saran wrap to hold in place), works great for external toxin release, and take it internally by capsules as well. I don't have lyme but it has helped with all my other issues!!!
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Patriot86
Compassion is the basis of all morality.
10:36 AM on 08/20/2013
Good idea...I will tell my sister.
08:38 AM on 08/20/2013
Getting more precise information on the actual number of cases of Lyme disease is really no different than it is for other reportable diseases that are similarly under-reported for various and much the same reasons. Such reports are generated and submitted by local physicians to State Boards of Health; however, local physicians do not always report each and every case and if the reports are not complete, they are not counted. This does not mean that unreported cases go untreated. Most of them are treated, especially if they occur in areas where Lyme disease is endemic. When in doubt, most physicians in Lyme endemic areas will treat with oral antibiotics to be on the safe side.

It may be possible to get better data on actual number of cases of Lyme disease. However, to do so would require States to spend more money. Most public health officials realize that Lyme disease is a serious problem; however, they also believe that the meager funds available to them might be better spent educating the public in how to avoid risks of infection than in acquiring more precise data -- which still doesn't solve the problem. Better yet, the money could be put to better use in educating physicians on how to diagnose and treat Lyme disease properly; in this context, the CDC has a course for CME credit that provides such instructions to physicians.

Several years ago, the CDC reported that the number of cases of Lyme disease may be underestimated by
10:01 PM on 08/21/2013
Lyme endemic areas exist all over the world, except in purely arctic or marine enviroments. Birds have successfully carried the ticks all over. Every state has cases. (State parks in California have had posted warnings with pictures of ticks for at least 17years that I can verify.) The CDC treatment recommendations are not sufficient in most cases, and are certainly not sufficient in cases of chronic Lyme disease. Insurance company lobbies are too vocal in protecting the profits of these companies, whose goals are not the health of subscribers, but rather the health of their bottom lines. There are no accurate tests yet. We need vaccines, but until and unless the severity of the problem is fully recognized it seems we won't get them. The people who are trying to sound the alarm and alert the medical community are not fringe lunatics, but are, in many cases, intelligent researchers and physicians who are trying to control a growing problem of epidemic proportion, and to spread knowledge. Lyme disease is too often dismissed as easy to control, and people are suffering unnecessarily as a result. It's time to acknowledge that this is a real and serious issue and treat it as such.
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SCboy
Dogs are people too.
08:36 AM on 08/20/2013
People with textbook symptoms who can't get a Dr. to test for lyme have known this for years. It is not news that the medical establishment is always at least a decade behind what people know in their guts.
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Patriot86
Compassion is the basis of all morality.
09:01 AM on 08/20/2013
It is the insurance companies who went after doctors who said Lyme was widespread.
09:12 AM on 08/20/2013
There have been public announcements in NY for Lyme testing several times per year FREE.. Get off the thinking the Government will do all for you...The Government was the cause of Lyme Disease in the first place..
HSC55
We will be known forever by the tracks we leave
04:30 PM on 08/20/2013
And vaccines cause autism.....riiiiiight..
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kim moxie
people carry just 2 emotions. Love & Fear.
08:23 AM on 08/20/2013
Peace out. If you get a tick on you, get it off as soon as you notice. Run peroxide over the bite area. The peroxide flushes under the bite wound. And watch for the bullseye. If it comes, go see a doctor. I've had a couple of bulls eyes on bite area and it appears soon after tic removal and skin washing. I probably have Lyme but I also have a bodacious immune system so I'm not bothered by symptoms. I don't think.... lolol.
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Patriot86
Compassion is the basis of all morality.
09:02 AM on 08/20/2013
You don't see Lyme ticks very tiny...look for a red rash ...bulls eye...but if you feel achy and have flu like symptoms get the test...I always have as I lived in Connecticut for many years.
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hoover52
I love all of nature's furchildren
10:02 AM on 08/20/2013
Me too. I still live in CT and my doctor has tested me more than once. The black legged tick population is ever growing. It's funny. There is a Lyme Disease vaccination for dogs . .. but not for humans!
10:17 PM on 08/21/2013
The rash appears only in about half of the cases. And yes, the ticks are extremely tiny. The one I removed from my leg a couple of weeks ago was no bigger than a poppy seed. Peroxide flushes are useless. The bacteria get into your blood. The peroxide doesn't, so it can't kill them there. If you are bitten, call your dr right away. Don't wait for a rash, which may never form. Also bear in mind that the ticks are so small that many people don't even realize they've been bitten until they become symptomatic. Ticks have been known to winter over in white-footed mouse burrows, so they come out during warm spells in the winter. There is no longer a safe season. Be alert. Be careful. Be informed.
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kostya
Ineluctable modality of the visual
08:07 AM on 08/20/2013
There are several forms of borreliosis, not just Lyme disease. The testing and even medical concerns about the issue have been lagging for years. Letting a child go undiagnosed or misdiagnosed can be particularly tragic.
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Patriot86
Compassion is the basis of all morality.
09:03 AM on 08/20/2013
My 30 year old niece got it a ten and they refused to admit she had this...my sister fought for every bit of treatment ...now at 30, her health is destroyed.
07:43 AM on 08/20/2013
If you had a scabies infection, Lice, a spider bite or even other insects carry these infections. It's not just ticks so it's become harder to protect yourself from infection.

A lot of people are working outside the meddical system because the antibiotics that doctors use don't cure and cause a lot of suffering in the process.
Borrelia becomes much more virulent in the presence of Bartonella which is more common than Borrelia. The most aware doctors think Borrelia should be considered a coinfetion to Bart.

Agrobacterium is used extensively to modify our food supply. The closest relative to Agrobacterium Is Bartonella bacteria. They share genes and abilities. Bartonella is intracellular so evades the immune system that way as well as releasing chemicals to shut down immunity. Agrobacterium is so like Bartonella it should be considered a Bartonella like organism.

Agrobacterium has the ability to readily change your DNA and is an opportunistic infection. The mutant DNA from agrobacterium is most likely responsible for Lyme disease developing into morgellons disease. Morgellons is linked to Lyme.

Since there is not much real research going on and after reading huge amounts of material Morgellons is likely to be a "Chronic lyme" infection with agrobacterium as a "co-infection". This wasn't caused by the government being evil it was cause by the government being incompetent.
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PTerrys
08:57 AM on 08/20/2013
It seems doctors should be speaking out about this publicly--about the need for government intervention in medicine and research. "The government" is made up of people and is not exactly full of doctors, nor particularly insightful individuals. How would they know? Perhaps, the medical professionals and researchers need to speak out more as a unit.
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Patriot86
Compassion is the basis of all morality.
09:04 AM on 08/20/2013
There is a huge body of knowledge overseas about Lyme.
07:28 AM on 08/20/2013
In western MA, once you get up around 1800 feet elevation, there are few ticks.

The dogs rarely come in with any ticks. Same with the people.
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08:57 AM on 08/20/2013
WELL LA DEE DA, GOOD FOR YOU
09:09 AM on 08/20/2013
Does anyone else notice a relationship to elevation?
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07:28 AM on 08/20/2013
not everyone gets sick from lyme disease, in fact most people don't. i get an average of 4 or5 ticks a year imbedded in me and this has been going on for more than 30 years. i live in vermont and some of my neighbors have it. i haven't been sick since my kids got out of school.
07:48 AM on 08/20/2013
I don't believe all ticks carry lyme disease.
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08:25 AM on 08/20/2013
most don't, just like most don't get lyme disease.
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08:27 AM on 08/20/2013
ps the ticks i've had in me are the ones that do.
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08:57 AM on 08/20/2013
You sound like you have dementia
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09:20 AM on 08/20/2013
why, because you don't agree?  i suggest you do some research.
07:25 AM on 08/20/2013
It has been clear to me for years that Lyme is under reported - I personally know 50 people who have/had Lyme. I had it two years ago, my wife is being treated now. I cannot believe this is not being taken more seriously as a public health issue. Lyme can present as arthritis, depression, compromised immune system diseases, MS - generally feeling of non-well being - My own observation is that women tend to have problems associated with "longer term" Lyme than men, but there is a male UMass professor who is incapacitated due to Lyme.
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RagMag
still living a Ragtime Life
06:51 AM on 08/20/2013
I don't think the rash around the bite is a "telltale" for the disease.
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09:22 AM on 08/20/2013
Not everyone gets the rash, which is part of the problem in people not going to the doctor early.

Erythema migrans (see picture), the skin rash associated with Lyme disease, occurs as a circular rash that continues to grow. It may appear anywhere from 1 day to 1 month after the infected tick's bite, but it usually appears in about 7 days. The center of the rash may clear as it grows, giving it the appearance of a bull's-eye. The rash may be warm, but it is usually not painful. Sometimes, the rash includes many red patches that appear in different shapes and sizes around the body. The erythema migrans type of skin rash is different from a rash that appears as an allergic reaction to a tick or insect bite. Such reactions to a bite usually appear as a redness within hours to 1 day after a bite, do not grow, and disappear within a day or two. Erythema migrans does not occur in some patients with Lyme disease. In patients who do not get the rash, the first sign of bacterial infection can be symptoms of second- or third-stage Lyme disease.

http://www.acponline.org/clinical_information/resources/lyme_disease/patient/diagnosis.htm
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RagMag
still living a Ragtime Life
12:19 PM on 08/20/2013
Thanks.
10:26 PM on 08/21/2013
Excellent, well-presented, well-reasoned response. Thanks. Hope people pay attention. There's a reason Lyme is nicknamed "The Great Imitator."
05:56 AM on 08/20/2013
Another tick borne disease Rocky Mountain Spotted Fever is also more common than is thought.
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Cowoak
Fishing 3812 miles southeast of Dutch Harbor.
07:23 AM on 08/20/2013
Being treated for RMSF right now.
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SCboy
Dogs are people too.
08:39 AM on 08/20/2013
The possibility of RMSF should not be dismissed when one has a tick bite. If not treated early and aggressively, it is fatal in a high %age of cases.
09:55 AM on 08/20/2013
My daughter in Kentucky had RMSF this summer and it was very scary for 8 days. The staff at St Marys hospital saved her life by being very careful and thorough. She is super fine now.
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IrisTheMessenger
Be careful what you wish for.....
05:47 AM on 08/20/2013
I contacted Lyme disease early in June. I became very ill with flu like symptoms and would have dismissed it had I not developed the bulls eye rash around the area on my waist where I scratched off the tick in the shower a couple weeks before. The doctor did blood work and put me on 3 weeks of doxycycline 100 mgs. two times a day. As a woman, I don't have to tell other women what a devastating effect all the antibiotic does to another part of the body. Bottom line, I still have fatigue, the arthritis I already had is more painful and I get headaches, something I had rarely in my lifetime. Sad news is the pain can linger for days to years. Left untreated it can lead to brain and spinal diseases.
07:34 AM on 08/20/2013
When I was on doxycycline for 3 weeks two years ago, it took about 4 months before I was back to "normal" - the fatigue was especially evident, but I did exercise as much as possible. I recently heard from a medical source - that warm baths and/or time in a hot tub when on antibiotics can greatly increase the efficacy of the therapy.
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Patriot86
Compassion is the basis of all morality.
09:05 AM on 08/20/2013
Thank God you had the rash....not everyone does.
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ncyim
05:00 AM on 08/20/2013
I recently heard that if the site of the bite is immediately heated for an hour or more, (as hot as can be tolerated) the microbes will be killed and the infection will be prevented. This may be good advice for any bite that draws blood.
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09:26 AM on 08/20/2013
That does not sound at all scientifically likely. Most microbes can't be killed by heat that you can tolerate. Think about the degree of heat (boiling it takes to kill the bacteria that causes food poisoning or the parasites in pork.

Meat has to be cooked at 160°F for E. coli O157 and other pathogens to be killed. The human body cannot withstand those temperatures.
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ncyim
10:42 PM on 08/20/2013
That's a good point, but these bugs need lower temps to survive than the hog parasite. My body temp before treatment was a consistent 95.8f. When I started using infrared TDP lamps i herxed terribly and swear i felt them popping inside of me.  Just read that 105f kills Lyme - so that's why hot tubs have always made me sick.
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ncyim
04:55 AM on 08/20/2013
The tick is just one vector of transmission for Lyme. I contracted it from fleas on Cape Cod & recently met someone who contracted it from hotel bedbugs in Aruba. Most people I've met, including myself have never had a bulls eye rash either. An old study showed that 12% of mosquitos carry Lyme. Many in the Lyme community believe that this is also an STD, although more likely transmitted from men to women than from women to men. I've also heard that some forms of Autism are congenital Lyme. I had it for 30+ before finding that i had 64 of the 70+ symptoms as listed on the Canadian Lyme Assoc symptom page. Even with that overwhelming evidence, my condition was never recognized by the scores of MDs i'd consulted in those many years. Its important to take anti bios for 2 weeks before the Lyme blood test because the microbes live in the tissues and usually only make it to the blood stream when they die. I'm in remission now because of colloidal sliver and the Paleo diet. Heavy metals are also an issue for those of us with chronic Lyme. See Dr Dietrich Klinghard's site and you tube videos for great cure and prevention info.
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Imago
I thought so.
07:23 AM on 08/20/2013
Research suggests fleas don't carry Lyme. The Cape has a huge tick population, so it's not surprising that you got it there. When I lived there15 years ago, over half of the people I knew had gotten it. ( and most importantly, I'm sorry you're having to deal with this!)
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ncyim
11:34 PM on 08/23/2013
Thank you for your kind words. This thing has helped ruin my life.  I've seen on the CDC site that there is no credible evidence that Lyme is transmitted by fleas, but my experience says differently and like many of the chronically ill, i don't trust the CDC as they are an arm of the Rockefeller/Carnegie Big Pharma scam. http://curezone.com/forums/am.asp?i=1609668
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Force1373
10:35 AM on 08/20/2013
May I also recommend this, from a shop in Brewster, MA no less:

http://greatcape.com/products/lyme-2-tincture

I don't mean to keep pimping this stuff, but it worked for me, and given how much misinformation and misdiagnosis is out there, I figure the more options people have to cure themselves, the better!