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DJ Jaffe

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The California Mental Health System and the Death of Mentally Ill Kelly Thomas

Posted: 08/04/11 11:33 AM ET

In California, it is playing out with relentless familiarity: the death of Kelly Thomas at the hands of Fullerton police has led to the usual criticisms of the police and calls for better training and more compassion.

But Carla Jacobs, founder of the California Treatment Advocacy Coalition founder, and California's most astute mental illness advocate, notes in an interview that while police could always use better training in how to handle dangerous mentally ill individuals, the police are not always the villains: "When it comes to treating people with the most serious mental illnesses, the police will react where California's mental health system won't. Police are almost never out on a call regarding mental illness unless one condition is met: the mentally ill person has been abandoned by the mental health system. That's when they deteriorate, become psychotic, delusional and dangerous."

That happens too often. Ms. Jacobs remembers when mentally ill Edward Charles Allaway killed seven individuals on the Fullerton campus of California. "It was police who tracked him down." Ms. Jacobs' own sister-in-law was abandoned by the mental health system and shot her mother. Again: the police stepped in.

As Randall Hagar, Director of Government Affairs for the California Psychiatric Association who has been a relentless advocate for better care for the most seriously ill observed, "About 50% of people with schizophrenia suffer from anosognosia, the inability to recognize they are ill because the illness eliminates the capacity of the brain to exercise insight. Medications can provide the type of symptom reduction that can prevent violence."

California's mental health system needlessly and intentionally created their own horrific and violent catch-22: it refuses to provide any treatment unless the mentally ill person is well enough to recognize their need for it. All others are turned over to the police. And even their hands are tied until after the individual becomes danger to self or others. Mr. Thomas's family made multiple attempts to get California's mental health system to help Kelly. On the KFI John and Ken show, Kelly Thomas's sister said, "We tried everything... I feel it is the law that has kept us from keeping him in a place on his medication and healthy." The system refused to budge.

Law enforcement is desperate to return treatment of the seriously ill to the mental health system. Untreated seriously mentally ill not only put the public at risk, they put officers at risk. Michael Biassotti, Vice President of the NYS Chiefs of Police wrote movingly on police and mentally ill after an incident in NYS:

The last thing any police officer wants to do is pull out a gun. It's a sign that something has gone terribly wrong. But increasingly officers are being forced to pull out their guns, and often it's to protect the public from someone with untreated mental illness.

Chief Biasotti believes a big part of the solution is returning treatment of the mentally ill to the mental health system through greater use of Assisted Outpatient Treatment ("Laura's Law" in California). The National Sheriff's Association agrees.
Laura's Law allows courts to order certain individuals who are too ill to recognize their need for treatment to accept treatment as a condition of living in the community. It returns care of the mentally ill to the mental health system. Research in Nevada County, the one California County to implement this optional law shows it works and saves money.

Californians should stop blaming law enforcement for the failure of the mental health system. Put the blame where it really belongs: on a mental health system that refuses to focus its resources on treating the most seriously mentally ill.

The mechanism -- Laura's Law, and the funding, Prop 63 is available. What's lacking is leadership.

 
 
 

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In California, it is playing out with relentless familiarity: the death of Kelly Thomas at the hands of Fullerton police has led to the usual criticisms of the police and calls for better training and...
In California, it is playing out with relentless familiarity: the death of Kelly Thomas at the hands of Fullerton police has led to the usual criticisms of the police and calls for better training and...
 
 
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01:26 PM on 09/23/2011
makes sense. thomas was lashing out, so the cop had the quickly defend himself. so the cop went and got latex gloves, put one one, then the other one on, so he could defend himself from the immediate attack.
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urfree2speak
Justice though the heavens fall
12:04 AM on 09/22/2011
Ever heard of a net? or a device designed to tangle the victim up? why must the "police" always seek to beat, shot or kill?
The reason that many do not come forward to treatment is the stigma (instant and without remorse)
loss of civil rights, danger of being killed by police, forced to take powerful dangerous chemicals based on the "opinion" of another human being?
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DJ Jaffe
Founder, Mental Illness Policy Org.
08:49 PM on 09/22/2011
The research does not support stigma as being a major reason people with the most serious mental illnesses do not stay in treatment. Anosognosia (not being aware you are ill) is very common. See http://mentalillnesspolicy.org/medical/medication-compliance.pdf . AOT does not require anyone to take dangerous chemicals. The only required service is case management services. Others are optional and are negotiated by patient, his lawyer, and the court. Interestingly, consumers in AOT retroactively overwhelmingly support it: http://mentalillnesspolicy.org/aot/consumers-like-aot.html
04:36 PM on 08/29/2011
Sorry I had to answer this post in 4 parts...start with my number 1 post and go to the number 4...there wasn't enough space for me to respond...and truly this response was not to the article, sorry, I am just expressing my own agenda I guess...sorry
04:34 PM on 08/29/2011
Part 4Unfortunately too, I am taking a class with an area Psychologist who told me he works for a county provider that has to have a security guard in with him when he see's a certain client. This client he tells me (without breaking HIPA, he does not give name), constantly reports that he wants to kill his mother. He tells me that this person describes in great detail what he wants to do, how he will do it...and the Psychiatrist does not issue an AOT for this person. If this is true, and I have no reason to doubt him, then no wonder my son does not have an AOT....he knows not to say he is going to kill anyone, so he is in good shape comparably I guess...I feel sorry for all of our communities...we are at the mercy of these officials who are not willing for whatever reason to step up and do something
04:33 PM on 08/29/2011
Part 3: They have tried to use HIPA as the reason I cannot have access to the information or to know what they are doing (or not doing in this case) to help my son, but now they know that I will not be stopped by HIPA, they have to listen when I tell them that he was roaming the streets in our neighborhood, looking for cigarettes and was attacked on the highway having his head bashed, receiving 16 stitches and numerous cuts, bruises and the like. He is not only a danger to others, but is in danger to himself, with the decisions he makes. I have asked for help for the last 2 years and truly without a doctor willing to admit that my son has been and is a danger, he will continue to roam the streets a danger to himself and to everyone else. I do not know what they (Doctors and Mental Health Officials) consider 'a danger to the community' but apparently, my son who has a long long violent history with knives, and physicality (since the age of 12!!) and history of non compliance, and a long history of mental illness and hospitalizations apparently is not a part of their definition.
04:33 PM on 08/29/2011
Part 2: Unfortunately I disagree completely with them. He has in the past held knives to peoples throats, smashed people to the ground, hit staff and hospital personnel, hit family members, attacked people when he could not control his rage and anger while off medication. He has failed to comply with treatment and they call him 'hard to serve'. This 'hard to serve' designation is correct but they use it to also say in the same breath since he is hard to serve, they are not going to serve him. I have tried everything to get help. I am weary, tired, but I am still very concerned. I have no real advocate and this is just impossible for me to do by myself. I have contacted you, the treatment advocacy center, everyone, and still there is a wide divide that is separating me from getting my son the help he needs. I am a disabled mother of two other special needs children. I am a single mom. I have plenty of records, and the county and state knows that I know all about his case.
04:32 PM on 08/29/2011
Hi DJ and the rest of the readers...my name is Tami Bell and I have a 20 year old son, diagnosed from the age of 5 with various diagnosis's of Mental Illness. I took an active part in getting my son treatment and as a child prior to 18, we were able to manage my son's illness with a combination of therapy, case management, medications, and hospitalizations when necessary. Since turning 18, my son finds that he no longer is ill, he says, and he has now managed to encourage the doctors and therapists here in Poughkeepsie and the Officials in Albany that he really does not need medication, does not need intensive therapy. They say, that since he does not want it they cannot force it, and they say that they feel since no doctor has actually said he is a danger to the community, they have no reason to force him even 'if' they could.
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DJ Jaffe
Founder, Mental Illness Policy Org.
03:55 PM on 08/25/2011
I co-authored op-ed in today's Capital Weekly that further elucidates how California Mental Health System is misappropriating funds meant to help seriously mentally ill, thereby increasing chances of police having to intervene in cases of mental illness. http://www.capitolweekly.net/article.php?_c=zy41b74p0j1tbu&xid=zy1wphqxmp1c7z&done=.zy41t73eowy2ce
03:20 AM on 08/20/2011
I see Jaffe has not been able to deal with the substance of my posts below so he has just ignored them. Does He think that ignoring the evidence of successful intervention promots the wellbeing of those who experience psychosis? This is another study that the medication makes the condition worse over time http://www.jneurosci.org/content/27/11/2979.full While this is a report by the BPS on recent understanding of psychotic experience http://www.schizophrenia.com/research/Rep03.pdf which is interesting and profound.
07:48 PM on 08/27/2011
That report from the British Psychological Society makes some excellent points, many of which would seem to be common sense -- e.g. "If people who have had mental health problems live in a calm and relaxed home atmosphere, their problems are less likely to return" -- but aren't often accepted as such nowadays because they don't jive with the 'medical model'. Anyone who is sincerely interested in helping people with psychiatric labels would probably find some interesting reading in there. It's so long that I think it would be hard to read the entire thing online, but even in just skimming through it I could see that there is a lot there that would be useful to anyone who really wants to help and is honestly looking for answers.
05:16 PM on 08/17/2011
DJ, this is one of many examples of how you have shamelessly used a truly tragic situation to express your own agenda.

But beyond that, I am disturbed by your tendency to characterize yourself as an "advocate" for persons with mental illness/health conditions. I am proud to say I am one myself, and I fight a constant battle against stigma (discrimination is a much better word).

What other population, in today's society, lacks so many basic civil rights - who can be victims of violence, forced 'treatment' with powerful and dangerous medications and physical violence, poverty, homelessness...the list goes on and on, yet you're out there constantly harping on the few (no more than any other population) that commit acts of violence (in this case, was a victim, which is more common to us).
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DJ Jaffe
Founder, Mental Illness Policy Org.
07:57 PM on 08/17/2011
Thanks for your comments. What is your name and who do you advocate for? Do you advocate through an organization? Tell us more. Thanks.
12:34 PM on 08/18/2011
I am an established advocate. I don't wish to reveal my name in this forum, at this time. How about a substantive reply to my concerns?
05:25 PM on 08/16/2011
This article is one of the worst examples of "blame the victim" I have ever seen. There's no reason to believe this couldn't have happened to any homeless person living in Fullerton. At least one of the cops involved in beating Kelly Thomas to death has also been implicated in another recent incident of police brutality. It may have been just a matter of time before someone in Fullerton -- most likely someone living on the streets -- was murdered by one of these out of control police officers.

What was it that Kelly Thomas did to make him more likely to be beaten to death than anyone else who might have been in that place at that time? If the person beaten to death by these policemen had been someone who was homeless due solely to poverty, you wouldn't have written about it at all. The place where the blame "really belongs", Mr. Jaffe, is with the policemen who brutally beat this man to death, not with the mental health system or with anyone or anything else. Using this murder to argue for laws further restricting the right to refuse psychiatric treatment is like using a brutal rape to argue for laws restricting what kind of clothing people can wear in public.
05:19 PM on 08/17/2011
This is "Part Two" of my remarks, sorry if it interferes on is in the wrong order:

There are so many new ideas out there that are PROVEN to work, to save money, and reduce violence. But the drug companies, hospitals and their lobbyists, the media, won't give these ideas the time of day. It's all about medication, control, force, violence. If some of these new ideas were given more consideration (i.e., peer-run services, mobile respite, WRAP Planning, empowerment of peers, better employment prospects), the "need" for the badly broken system to become even more draconian will shrink, probably dramatically. I'm fighting for basic rights for people in hospitals in my State, despite the fact that it was mandated by a law passed 13 years ago. That's disrespect - no, it's a civil rights violation. But I don't suppose you're interested in that; AOT will send more people to hospitals to face further violence, coercion, and chemical cocktails.

And by the way, as someone who takes medication, I have nothing but praise for Robert Whitaker. Whether or not I agree with him, it is clear that he does top-notch research and raises questions that are profoundly important to society. That's why the medical establishment is working so hard to shut him up!
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DJ Jaffe
Founder, Mental Illness Policy Org.
08:04 PM on 08/17/2011
Your point of view is valid, but not supported by facts. Most of the 'alternative' programs you list are skills acquisition programs not symptom amelioration. Without symptom amelioration, skills acquisition is difficult at best. Do this experiment: Call some of the peer programs you propose as an alternative and pretend you are psychotic or imminently dangerous. They themselves will refer you to 911.
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DJ Jaffe
Founder, Mental Illness Policy Org.
08:02 PM on 08/17/2011
I think I have responded to this one before. There is enough blame to go around. It is kind of like a mom (the mental health system) allowing a child to cross a dangerous multilane highway. When he gets hit by a car that went through a red light, both the system and the driver are responsible.

I also note (with admiration) that Kelly's father Ron Thomas (who knows about both sides from being the father of someone with mental illness and a former Law Enforcement Officer) has endorsed implementation of Laura's Law
10:36 PM on 08/10/2011
DJ Jaffe: I agree that the mental health system should do more to treat the mentally ill. But you are way off base to imply that the Kelly Thomas situation was not the primary fault of the 6 officers involved in the brutal beating of this unarmed, slightly built, nonviolent man. Several witnesses have stated that he was not violet with the police at all. He was trying to pull away from them. That was the extent of his "resistance". Please keep your perspective on track and the facts correct.
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DJ Jaffe
Founder, Mental Illness Policy Org.
06:02 PM on 08/11/2011
If a mom lets her kid cross the street alone and a car that ran a red light hits the kid, I think they are both to blame. In this case, the mental health system was happy to let someone they knew needed treatment go untreated. The cops ran the light. There is enough blame to go around.
06:55 PM on 08/11/2011
I think a better description of the events is as follows: Kelly Thomas' parents were the loving caretakers who watched helplessly as mental illness challenged the daily life of their beautiful son, forced by the severity of his illness to entrust to the mental health system with his well-being, and that system neglected to respond appropriately and failed him...and one terrible night, six police officers encountered a confused, homeless, perhaps hungry man named Kelly Thomas and beat him mercilessly with tasers and the butts of their flashlights while a crowd looked on in horror, listening to him cry out for his father until he slipped into a coma. The mental health system is guilty of manslaughter. The police officers who beat him until his own father could not recognize his face are guilty of murder.
11:26 AM on 08/10/2011
If people where more aware of the alternatives they might choose them. One very successfull approach is that of Open Dialogue practised in a part of Finland. The results speak for themselves. Outcomes are such that over 80% of psychotic people are back working, in education or job seeking in a few years. 75% of people who have experienced a psychotic break are medication free and 60% never take any meds. And their approach is cheaper than the conventional medical model.

http://psychrights.org/research/Digest/Effective/OpenDialogue2yfollowupehss0204.pdf

Maybe with the right approach this person would have been at work rather than presumably in a constant fear of the world and maybe of his treating psyciatrist. And these sort of tradgedies would be much rarer than they already are. The 'mentally ill' do not pose a danger to society particularly and anyhow no one is in a postion to predict such occurences. Please promote more humane treament for persons with extreme states of mind, they will benefit by being included in society and society will be the better for it. Face your fears and you may find you have nothing to fear....
09:47 AM on 08/13/2011
Getting Kelly Thomas to Finland apparently wasn't an option. So the more humane way to treat him was to not treat him at all & leave him on the street until his fabulous unmedicated life was interrupted by his murder? The thing I don't understand about the no medicine approach is all these awful stories we hear are about people who weren't on medicine. My daughter is only psychotic when she's not on medication. But according to you, no medicine is the cure. Makes no sense.
02:19 PM on 08/13/2011
I am glad that medication works for your daughter. The evidence that is beginning to emerge from scientific studies is that these medications DO NOT WORK for many people and actually cause a worsening of symptoms and increase the severity of the course of illness. I went from having what was most likely Postpartum Thyroidititis to full-blown Bipolar I Disorder because of the incompetence of doctors (who WOULD NOT test my hormone levels) and the use of MULTIPLE psychotropic medications. I am now unable to work and was robbed of enjoying the first nine years of my son's life. I can only write these words after weaning myself off of Lithium, which made me unable to read a book for 10 months. I still can't spell and make many careless errors, which is humiliating to me as a person who has an undergraduate degree in English and completed an MA. I have no idea what will become of me. I don't think that anyone was flippantly suggesting Finland as a "cure-all"...but we do need other options in this country....humane options. The mental health system failed Kelly Thomas. In a less dramatic way, they are failing me. I may never be a head-line, but there are people who are dying slow deaths due to to the neglect of the system.
02:26 PM on 08/13/2011
The Death of Kelly Thomas is a sad indictment of a failure of society to care for its most vulnerable citizens. And these tragedies are unneccesary and would be a lot less common if society were to adopt a more humane approach to such persons. It makes no sense to attempt in a free society to force treat people on the basis that they pose a 'danger'. Who determines this? And how would it be policed? Maybe it would have some effect but at the cost of taking away a persons liberty.

The Open Dialogue approach is based on giving people the opportunity to retreive their liberty from the mental prison of 'mental illness'. It involves bringing all interested parties together to discover what the real problems are. This approach uses medication appropriately. It is not a no medicine approach. Mostly they don't have to use medicine and when they do its time limited mostly. The service works effectively unlike the standard medical model. The latest study, a meta-analysis on the effectiveness of anti-psychotics show modest gains. The authors said "Our findings show improvements of limited clinical relevance."
http://bjp.rcpsych.org/content/198/5/341.abstract?sid=1e1d2c4f-dd01-48df8525-c25bd0ad8b6f
02:36 PM on 08/09/2011
I just wish I could post the picture of Kelly Thomas here, because how on earth can anyone justify what was done to this man??? He weighed 140 lbs or less, according to his father, and he was beaten while crying out for his dad. Surely he could have been restrained, but no: they preferred to beat him into a coma, until he was unrecognizable. If these men are not tried for murder, I will stand outside of the police station myself.
02:29 PM on 08/09/2011
I also take issue with Mr. Jaffe's constant theme of the mentally ill as "dangerous"...Mr. Jaffe, why are you so afraid of us? I have been diagnosed with Bipolar Disorder and I have never harmed myself or anyone else. I am curious about why you are so afraid of people who have illnesses that they do not wish to have? You are probably more at risk from the many sociopaths who walk amongst us, who blend in and pretend that they are perfectly normal...and would just as soon stab someone as smile at them. I try to live a decent life even though I have been seriously harmed by psychiatric medications. I wish you would stop promoting them and read the research that Robert Whitaker and others have done, which shows that they are not only ineffective, but worsen the outcome of illnesses. We could use you as an ally.
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DJ Jaffe
Founder, Mental Illness Policy Org.
05:07 PM on 08/09/2011
I think you may have been misled by Mr. Whitakers' selective quoting of research. He attributed changes in brain structure to neuroleptics.Some of those changes may be why the medicine works. More egregiously, he did not give you the data on changes in brain structure of people with schizophrenia who were never treated with medications. These studies refute his exceedingly controversial and poorly researched conclusion that meds are the problem. You can see the research on people never medicated here http://mentalillnesspolicy.org/medical/brain-change-schizophrenia.html
02:29 AM on 08/10/2011
Surely you aren't suggesting that changes to the brain CAUSED by neuroleptic medication are HEALTHY, Mr. Jaffe! Such abnormalitilies include damage to the basal ganglia, tardivive dyskinesia, Parkinson's Disease, and akathisia. I take offense at YOUR attempts to mislead readers by stating that Mr. Whitaker's excellent books use "selective quoting of research" and reach a "poorly researched conclusion," when in fact his books have won numerous awards and are highly regarded. Yes, they threaten YOUR conclusions: that people with so-called "mental illnesses" should be medicated for life (and kept off the streets, it would seem)...and thank God for that! Mr. Whitaker may well save many lives by speaking out against these hideously disabling medications, which if you had only had the pleasure of taking one, you might draw quite different conclusions about, indeed!
01:42 PM on 08/10/2011
Dr. E. Fuller Torrey's "research" is hardly earth-shattering, as anyone who bothers to wade through it will note. Several studies date back to the 1800's and early 1900's. Others are based on patient groups of such small numbers and with such modest results as to be utterly laughable. For example, Dr. Fuller Torey notes a group of six studies of the basal ganglia in which two studies found no difference between the brains of patients and controls in two of the six studies. Evidence of abnormality in the thalmus was drawn from a single study. I urge readers to thoroughly study Robert Whitaker's books, Mad in America and Anatomy of An Epidemic, and not rely on Mr. Jaffe's lame attempt to discredit him by quoting ancient, inconclusive research that in fact does little to enlighten us to about the working of the brain.