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Glenn Close

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How You Can Help Fight the Stigma of 'Mentally Ill'

Posted: 11/14/10 10:31 AM ET

In August of 2009, I co-founded a national organization created to combat the stigma of mental illness. We called it BringChange2Mind. I was compelled to do it because my sister, Jessie, lives with bipolar disorder and my nephew, Calen, lives with schizoaffective disorder and I realized that they were in a life-and-death battle, fighting to survive not only the symptoms and treatment of their illnesses, but the terrible stigma that surrounded them. I learned that, globally, one in four families is touched by mental illness. Mine happens to be one of them. I decided to do something and BringChange2Mind was born.

Change never happens without action. In the past, companies have made commitments to change their policies and behavior affecting the environment by signing the CERES Principles; people in the LGBTQ community by becoming signatories to the Equality Principles and others have altered discriminatory practices like apartheid in South Africa by signing the Sullivan Principles. These Principles are working.

This weekend, in San Diego, in front of an audience of 9000 at the Society for Neuroscience's big convention, Jessie, Calen and I launched the BringChange2Mind Princiiples. Inspired by one of our amazing volunteers, who lives with bipolar disorder and PTSD, our Principles were a group effort. They are concrete and actionable.

Over 57.7 million Americans -- 26 percent of the country -- live with a diagnosable mental illness in any given year. Yet two-thirds of those affected never seek treatment in large part due to the stigma of being labeled "mentally ill," and the resulting discrimination in social relationships, housing and employment. Tragically, every 17 minutes someone in American commits suicide, 90 percent of whom are living with some form of mental illness. Mental illnesses remain the leading cause of disability in the U.S., costing society over $190 billion annually. With one in four families having a family member living with a mental illness, there is also a hidden cost -- the drain on productive work by family members caring for loved ones.

So we present the BringChange2Mind Principles to you today. Your signing on to them will make a difference. You will be helping to create a future in which shame is replaced with dignity, misinformation with truth, discrimination with understanding and isolation with community.

The principles for people living with a mental illness:



I am living with a mental illness that is treatable and manageable.



I am a valuable and valued person and I deserve to be treated with respect. 



I am responsible for the decisions and choices I make in my life.



Educating myself about the symptoms of my illness, and any side effects I may have from treatment, will help me find and use the resources I need to work toward stability.



Communicating about my experiences with others will help them support me in difficult times and keep me "on track."



If I am feeling suicidal, it is critical that I reach out for help, for in the face of real pain and suffering, it is others who can help me with a commitment to live.

 I can reduce stigma in myself and in others by being open about living with mental illness, naming it out loud, and raising people's awareness.

The principles for everyone:



It is likely that someone I know is living with a mental illness and that fear of stigma may be preventing them from accepting their illness and seeking help.



I can make a difference by learning about mental health issues and the devastating effects of stigma.



If someone I know exhibits sudden changes in behavior, I will pay attention and reach out to them.



If someone I know is experiencing suicidal thoughts, I will take it seriously and make every effort to ensure they get help.



I will not perpetuate or tolerate stigma of any kind and will commit myself to changing the way society views people living with mental illness.

 
In August of 2009, I co-founded a national organization created to combat the stigma of mental illness. We called it BringChange2Mind. I was compelled to do it because my sister, Jessie, lives with bi...
In August of 2009, I co-founded a national organization created to combat the stigma of mental illness. We called it BringChange2Mind. I was compelled to do it because my sister, Jessie, lives with bi...
 
 
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03:49 PM on 11/22/2010
Heart Glenn Close
03:47 PM on 11/22/2010
Please check out "Being Bipolar: Stories from Those Living with the Disorder and Those Who Love Them" when it comes out in the summer of 2011!

Also, for a semi-autobiographical account of a young man's descent into madness, please check out the following link:

http://newmanx.blogspot.com/
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RBet
What was the question again?
07:22 PM on 11/21/2010
It really could be any of us. In the past I have tried to use my time to assist people in distress when possible, but there is only so much that can be done in any given circumstance. That isn't any reason to give up entirely, however.

I make every attempt to be upfront about the fact that I have issues with depression and take medication that keeps it in check, making it possible for others to see that getting help and sticking with what works can lead to a satisfying and very productive life (although there are aspects that I wish were better, up to a certain point each person has to decide what they can tolerate in their life and their treatment).

I wish some of my family members would take note, in particular my mother and brother don't appear to see what their conditions do to make their lives much more difficult than they could be. I feel for people who's loved ones are much worse off. I have a distant cousin who turned to drugs, hears voices, jumped off a building and almost died, thinks he is Jesus (he went to Jewish school all his life), became violent, has refused medications and treatment and is now in an institution despite all the efforts of his family.
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HUFFPOST COMMUNITY MODERATOR
ncmom54
05:36 PM on 11/21/2010
one of my sons suffers with Bipolar & PTSD. He has been hospitalized, in rehab (alcohol), halfway houses. It's exhausting. He's an adult... and refuses to take anymore Bipolar meds. The last time we took him to the hospital they wouldn't keep him because when they asked if he wanted to harm himself or others he said no. (on the way home he said he just couldn't go through that same medication/routine again)
We've spent thousands seeking every avenue of help we can find. he refuses to accept his diagnosis because of the stigma
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simplygeorge
A society of sheep must beget a govt of wolves
09:51 PM on 11/21/2010
I am so sorry for all that you are going through. 4 years ago I suffered from the first of 3 major depressive episodes (more commonly referred to as breakdowns). Prior to that I didn't even belief that breakdowns really occured. Mind you I have suffered from depression my entire life and first contemplated suicide when I was 9.

The last 4 years have been an eye-opening experience. There is so much stigma that even following my first breakdown I didn't want to admit to others I had a problem.

Even now, 4 years and much treatment later, it is still difficult to talk with others about my illness. I have tried to be very upfront with everyone as to what happened (we all must be in order to break the stigma) but many have no idea what to say and view mental illness as just being weak and not a "real" illness or problem.

I met many people with Bipolar disorder and I know it is a very difficult path.

I wish him and you all of the best and hope that better treatments are discovered.
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ncmom54
10:11 PM on 11/21/2010
thank you... may peace, comfort and joy be yours ;)
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SameBoat
Retired cop, educator
12:49 PM on 11/21/2010
Good luck getting insurance coverage.
12:15 PM on 11/21/2010
I belong to the Big Sisters Program and my 15 year old Little Sister was diagnosed with bi-polar disorder earlier this year....I totally agree with the principles outlined by Ms. Close but I wonder if the constant focus on the stigma of mental illness actually helps to create stigma...something I have been thinking about a lot since my Little Sister was diagnosed....her friends have not stigmatized her, nor has her school or her family...the primary goal has been to get her the medical help and support systems that she needs to continue with her life. Her biggest issue has been feeling that she is no longer in control of her life and so I really appreciate the principle that you are in control of your life and make your own decisions and this needs to be stressed. I will definitely be sharing these principles with her.

Thank you for this post
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simplygeorge
A society of sheep must beget a govt of wolves
09:55 PM on 11/21/2010
I understand your concern but believe that we do need more discussion of mental illness so that people understand it better. There is a tremendous amount of stigma attached and I have encountered many people who don't know how to respond to issues regarding mental illness or believe that it is not a "real" illness or that everyone who has mental illness is a potential deranged person.

I hope that your sister gets wonderful support and treatment. I wish you and her all the best.
04:26 AM on 11/21/2010
I think that this is an incredibly important point for any kind of 'invisible illness'. There are many people who suffer from chronic fatigue, depression, PTSD, fibromyalgia, among many other conditions...
Judging someone on their outward appearance is our first instinct, but we need to be compassionate enough to realize that the outside doesn't always match what's going on inside.
12:15 PM on 11/21/2010
That applies to all of us, whether we have illnesses or not
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04:08 AM on 11/21/2010
Yeah Thanks Glenn. But the reality is that no one really gives a crap. You end up losing family, friends and jobs because of mental illness, even simple depression or anxiety. And God forbid that you should TRY to check into a mental health facility because you do not feel safe, because they lock you up in a room alone for hours while they "elavaluate" you and take away all your civil rights while doing it. It's better never to tell anyone how you feel, because it will ruin your life, especially if you are some kind of professional. I am not being bitter, I am telling you what happened to me.
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MerrieWay
10:52 AM on 11/21/2010
Thank you for sharing. Once you enter the system...the stigma is recorded for life. But, your courage and consciousness is your treasure. Blessings.
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simplygeorge
A society of sheep must beget a govt of wolves
09:57 PM on 11/21/2010
I am sorry you had such a poor experience.

I was hospitalized twice and the people with whom I delt were very caring. I was never left alone and am very sorry to hear you had to go through that.
12:50 PM on 11/19/2010
Thank you to Glenn Close for her meaningful & notable advocacy. I am writing with a distinction that I have found valuable in my personal advocacy for those with the stigma of mental illness...when a person is referred to by the verb HAS schizophrenia or HAS manic depression rather than 'is' or 'be,' it may help people to see there is a person who has a bio-chemical brain disorder that isn't seen; like with physical illnesses, one doesn't say, for example, my mother IS breast cancer, rather HAS, which shows it is a person with a soul who has a disease. If more media considers and uses the verb 'has' rather than 'is' - what a difference in the public's perceptions and fears.
06:49 PM on 11/18/2010
Don't know if it has been mentioned yet in this comments section, but this can go hand in hand with Joe Pantoliano's foundation No Kidding Me Too, or NKM2. NKM2 is all about busting the stigma and I appreciate Ms. Close's postive action to do it as well. Brava!
01:45 PM on 11/18/2010
This is such an inspiration. The "face" of mental illness has been a particularly difficult one for our celebrity culture to embrace....because it is all of us. Seeking treatment for mental illness should never be something that can prevent a person from gaining/continuing their purposeful work. And yet, it does. Students, too, who seek private mental health treatment are then stigmatized by public school systems that do not respect a person's privacy. It is not helpful when Public Systems do not work together for the health care, especially the mental health, of all it's citizens. Bravo Glenn Close for bringing this CRITICAL issue of human rights to the public.
10:00 AM on 11/18/2010
Bi-polar was fun during the manic episodes. So full of energy and creativity. A euphoric feeling. Easily agitated though. I made some bad decisions during those episodes. I didn't get the bi-polar diagnosis until 5 years after I was diagnosed with major depression with psychotic features. The psychotic features were my experiences with the paranormal. I'm medicated now and relatively stable, but those paranormal experiences were for real.
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ColoradoCool
Proud Liberal, Graduate Degree, Mother, Grandmothe
02:19 AM on 11/21/2010
My ex-husband who is sixty-five this year is currently having a manic episode after two years of calm. He called my daughter today from New Mexico where he lives and said he thought he fell down last night because he woke up with all kinds of bruises and injuries but he couldn't remember what happened. It became clear eventually that he had gone to a bar and had probably gotten beaten up. (He can be very obnoxious when he's manic.)

It's heartbreaking to love someone who looks forward to manic episodes and welcomes them because of the euphoria and energy boost. He too believes he has paranormal experiences at those times. He's not young any more and not as tough as he used to be. We're afraid he won't make it through one of his episodes and are really worried. My heart especially goes out to my daughter. I couldn't live with this man and had to leave but I still care about him and wish there was something we could do but everyone who has ever loved him has tried to no avail.
CorpTreason
Fascism... it's what's for breakfast
11:52 PM on 11/17/2010
This is a point I found myself making not too long ago, and glad to see this article. There is definitely a double standard in this country regarding mental vs. physical illnesses. The latter arouses compassion and the former often arouses a dismissive devaluation or even hostility and suspicion, as if every person with a mental illness was a criminal. Even think of the connotations of the term, mentally ill. Doesn't that evoke an image of a deranged person sleeping on the streets and pushing people in front of subway trains? When someone's body won't do what they want it to do, that is fine. But when one's mind won't that's not okay. Get away. People have to perfectly fit the mold to be included in the community, and that is impossible for most, which is why so many people live lives of quiet desperation, always putting on a front. We will be free ourselves when we free our neighbors, and not a minute before.
01:13 PM on 11/21/2010
I was surprised to see how attitudes of people were so backward towards mental illness too.
Someone dear to me experienced years of severe ongoing depression. We need to educate, educate, educate. Thank you all for the help in getting the word out.
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Genita Love
snarky and cranky
07:07 PM on 11/17/2010
I,too have a mental illness. (I am diagnosed with Bipolar 2 and PTSD.) I was diagnosed two and a half years ago, just months after my dad passed away, and my stepmother had been in a nursing home. (She died the summer after dad passed away.) Years of abuse and what amounted to indentured servitude, I couldn't function, was homeless. (With no family support or support from people I THOUGHT were friends.- I was alone...It was me against the world. Sink or swim.. I went into the mental health system, and began treatment. Ultimately, they helped me get an apartment, I also participated in a training program that trains adult mental health consumers to become service providers As Certified Peer Support Specialists. ( I finished with a score of 91%...the top of my class!)...I also participate in a Consumer Advisory Council, on their board of directors. At present, we are working on planning our state's mental health consumer conference to take place next June, and we are also working to bring new tools to the Kansas Mental Health System...Intentional Peer Support and, Trauma Informed Care. I have made a lot of progress in my recovery, but, I have a long way to go...But, slowly and surely, I'm building a new meaningful new life for myself...full of new experiences and things to learn. I can't wait to see what the good Lord blesses me with next!
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eilish
Life ain't like a box of chocolates
02:00 AM on 11/21/2010
It's a wonderful story to have been able to survive under your circumstances, but you've shown the whole world by thriving and doing something beyond meaningful. You're a real inspiration; spending your life working with others who are suffering in similar ways is a beautiful way to give back.
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ColoradoCool
Proud Liberal, Graduate Degree, Mother, Grandmothe
02:06 AM on 11/21/2010
Thank you so much for sharing your inspiring story. I too have a mental illness, major depression, and can relate to what you've been through. I think things are improving for people like us but it's been a long time coming. Bless you!
02:22 AM on 11/17/2010
I wonder why psychiatrists and mental health professionals have a much lower rate of mental illness than the rest of the population.
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onionboy
Blessed are the Cheese Makers
11:24 PM on 11/17/2010
For one thing, they get therapy all the time, whether they're having issues or not. Maybe there's a prophylactic effect...assuming that what you're saying is true. I read a study that said the exact opposite about ten years ago.
03:51 AM on 11/18/2010
There is a prophylactic effect because psychiatrists create and define the "illnesses" other people have and use legal power to enforce it.
"Mental illness" is about behavior and not an actual physical disease. So the people who control behavior have the power.