iPhone app iPad app Android phone app Android tablet app More

Featuring fresh takes and real-time analysis from HuffPost's signature lineup of contributors
Hollye Harrington Jacobs

GET UPDATES FROM Hollye Harrington Jacobs
 

What To Say (Or Not To Say) To Someone With Breast Cancer

Posted: 10/11/2012 9:11 am

Because I'm seeing so much pink this month, I find myself thinking about all things related to FBC (f-bomb breast cancer), both from a personal and a global perspective. It's amazing how a few (million) pink ribbons reactivate the memory of experiences (and f-bombs!).

One of the things that comes to mind is:

What to say or (WTF) not to say to someone with FBC.

Here's the thing: It's hard to be a friend to someone who has FBC. It just is. I know. I really do. I can't tell you the number of times people have asked me: What can I do? How should I be? What should I say?

Breast cancer is a pickle (understatement of the year!) all the way around. People mean well, but when some things are said, they aren't received quite as well as intended. So, I thought I'd share some things that were said to me when I was sick that felt a little, well, cloudy... and offer a more Silver Lined way to respond.

My intention with these suggestions is to acknowledge how breast cancer patients feel when (well-intended) things are said and to offer positive Silver Lined ways to interact with people who are coping with the dreaded disease.

Loading Slideshow...

To read more about Hollye's holistic and humorous journey over, around, above and below breast cancer, please visit her blog, The Silver Pen (http://www.thesilverpen.com/). You may email her at hollye@TheSilverPen or follow her on Twitter @hollyejacobs.

For more by Hollye Harrington Jacobs, click here.

For more on breast cancer, click here.

 

Follow Hollye Harrington Jacobs on Twitter: www.twitter.com/hollyejacobs

FOLLOW HEALTHY LIVING
Because I'm seeing so much pink this month, I find myself thinking about all things related to FBC (f-bomb breast cancer), both from a personal and a global perspective. It's amazing how a few (millio...
Because I'm seeing so much pink this month, I find myself thinking about all things related to FBC (f-bomb breast cancer), both from a personal and a global perspective. It's amazing how a few (millio...
 
 
  • Comments
  • 346
  • Pending Comments
  • 0
  • View FAQ
Comments are closed for this entry
View All
Favorites
Bloggers
Recency  | 
Popularity
Page: 1 2 3 4 5  Next ›  Last »  (5 total)
photo
HUFFPOST BLOGGER
Laura Price
Yorkshire lass kicking cancer in the ass
06:24 AM on 10/18/2012
Great post, Hollye! So true, all of it! One of the very first things someone said to me after I was diagnosed was "at least now you can get a bigger rack!" But I actually quite liked that. Humour is the best way to deal with it, sometimes. Anything is better than silence! I must admit, I got so bored of all the tales... "My mum had breast cancer and now she's fine, my sister had breast cancer and she's just had a baby..." etc etc. I know they all mean well, but when you're exhausted at the very beginning, you don't want to hear any more survival/death tales. I also laughed when I saw your bit about how people comment "I'm jealous you get to have all that time off work and watch daytime TV etc" - I've heard this plenty of times!!
I do find that writing about my breast cancer has been the best way to get people involved and make sure nobody is scared to say anything, so congrats on your fantastic blog too!
Best of wishes to you and sending you all the positive strength in the world. Laura xx
photo
HUFFPOST SUPER USER
SpeakupNation
Pray for the dead and fight like hell for the livi
04:44 PM on 10/16/2012
When my wife was diagnosed we quickly found out who our real friends were. Some people, even family, dropped off the face of the earth. It was like we were lepers.
But some people hung in there and offered support, which is all you can do.
03:13 PM on 10/15/2012
I think that this is a very graceful post, I like it. My aunt has breast cancer and when I saw her for the first time after chemo, I didn't know what to say, I felt horrible. She was so much thinner than I remembered her, and she no longer had her signature waist-length hair. I just embraced her. I wish I knew what to say.
photo
zmfts
Whatever doesn't kill you makes you walk funny.
02:48 AM on 10/14/2012
Are people really so fundamentally inconsiderate that we need a guide to tell us what is and is not acceptable to say to someone?
photo
HUFFPOST BLOGGER
Hollye Harrington Jacobs
www.TheSilverPen.com
05:59 PM on 10/14/2012
I don't believe that people are inconsiderate; rather, they are fearful. My intent in sharing these “clouds” and “Silver Linings”is to build compassion (both for the patient AND the friend) and to illustrate behaviors and words that many cancer patients appreciate. Thank you for your comment.
09:13 AM on 10/13/2012
Sometimes what people say just makes me laugh :) I've just finished chemo for leukemia and as a little "milestone" gift, my sister bought me a beautiful angel pin (orange for leukemia). A woman stopped me and asked "Why isn't that pink?"

I explained that it was orange for leukemia and she said I should be wearing pink because I'm a woman. I really had no words to say!
photo
HUFFPOST BLOGGER
Hollye Harrington Jacobs
www.TheSilverPen.com
04:23 PM on 10/13/2012
That's quite a story. Oh my. Thanks for sharing!
07:01 AM on 10/13/2012
It seems that the culture built around breast cancer diaganosis and survival trumps, in terms of coverage, money, support and recognition, other types of suffering and diseases. An entire industry of its own has developed. And, now apparently it is served with a complete textbook of rules of engagement for friends and relatives! Thank goodness breast cancer has gotten the atteintion it diserves, now, lets move on to spot light and develop support for other conditions. Let's be thankful that we have friends that care and try not to be critical of how they offer support.
photo
HUFFPOST BLOGGER
Hollye Harrington Jacobs
www.TheSilverPen.com
04:24 PM on 10/13/2012
This is such a great point. Many thanks for sharing! My intent in sharing these “clouds” and “Silver Linings”is to build compassion (both for the patient AND the friend) and to illustrate behaviors and words that many cancer patients appreciate.
photo
HUFFPOST SUPER USER
Georgiana Shaylor
Sometimes you have to be your own hero.
06:41 PM on 10/13/2012
"Rules of engagement" is a military term suggesting enmity or competition. Perhaps "etiquette" or "manners" or "being considerate"--all the same thing--would be better. Fourteen examples of inconsiderate and considerate remarks are hardly a complete textbook. Many of them are not disease specific and can be used or adapted for "other conditions." Let's be thankful we have friends to care for and try not to say things that will make them feel worse.
photo
HUFFPOST SUPER USER
MikeIng
living La Dolce Vita
06:04 AM on 10/13/2012
They Say actions speak louder than words,maybe the best thing to do is not say anything at all,When a friend of mine was & still going through cancer treatment,I took her food shopping,or several rides to treatment,never really taking notice she lost her hair,I'd say things like,were going to have dinner at my house,or were going to do something please join us! I don't know what to say or do,I figure they are going through enough they don't need to be reminded,If they have something to say i figure I'd be there to support them anyway I can,God bless them no matter what the outcome is,I hope & pray they stay with me even out live me.
photo
HUFFPOST BLOGGER
Hollye Harrington Jacobs
www.TheSilverPen.com
04:25 PM on 10/13/2012
I couldn't agree more that actions speak so much louder than words. Indeed. Thank you for your comment!
HUFFPOST SUPER USER
usacookie
04:04 AM on 10/13/2012
Nice things people said and did for me:

the guy who I bought my eyeglasses from: I can take you to chemo this whole week. Is that good for you? We will cut the price. You are a good customer. They took off a lot. How much I will never know.

parking lot attendant at Sloan-Kettering who asked me each week how I was doing. He told me I looked more lovely than ever.

the owner of the place where I buy my cat food: I will bring the cat food to you. She drove 20 minutes to my house from their shop.

my hairdresser: You just come here and we will take care of you. Trimmed my hair and later shaved it. She nursed it back. We laughed at my attempt at making it "match" as it grew in from absolute zero..

a guy from a Breast Cancer Coalition who cleaned my house for free for six months, once a month, and was sad for me that I missed out on a chance to get the dog of my dreams, but who told me my rescue cat was a "home run kitty."

my sister who offered me marijuana at risk of getting arrested - YIKES! LOL. She was trying to be nice.

And so it went. And for all that and more I am grateful. They say that if you are a survivor it is the treatment you have survived, not only the cancer.
egs1217
D for Progressive, R for Regressive. I'm D.
11:22 AM on 10/13/2012
@usacookie--loved these and your sense of humour. You go girl! Can I ask what kind of dog? (we went to Carlisle, Pa for ours so it seems we think similarly. I have 7 kitties too. Your new kitty sure did hit a home-run.) :)

I'm not directly affected (yet) by bc except peripherally but figure it's only a matter of time living on LI, since we seem to have concentrated 'pockets' of this dastardly disease. I deal w/thyroid issues which I know is from the water here, yet it's NOTHING compared to what those afflicted by breast cancer go through. Your points are very well taken-get through the treatments which are basically poison and you are indeed a Survivor who should be celebrated. I couldn't see the 'do's and dont's' yesterday--was responding only basically, but wow. There truly are some oblivious folks out there. And 'why breast cancer' (as some complain)? Because for so many years it was shoved under the carpet and ignored as a mere 'female' problem--with no funding or direct support. NOW they want the funds raised for BC to be spread around? While I sympathize/empathize--I'm one who says no way. People worked their butts off to turn BC into a real movement. The same can be done for all cancers--as it was before, while breast cancer research languished. Logically, any cure for breast cancer will benefit all..and the walks are so personal for so many.
photo
HUFFPOST BLOGGER
Hollye Harrington Jacobs
www.TheSilverPen.com
04:26 PM on 10/13/2012
Thank you for your comment. I agree that the same can be done for other types of cancer...and hope that it will be so. Best wishes.
HUFFPOST SUPER USER
usacookie
05:50 PM on 10/13/2012
I live on LI too and, that I know of, three people on my street who died of cancer. They did that big study which Adelphi was responsible for starting, I think. They say it is not the water. I filter mine, but is that enough? IMO I think they'll find it is from the asphalt and tire rubber particles. The intense concentration with all the traffic here, but who knows. They also say women here delay child birth, have few kids, and don't breast feed.
The dog was a Coton de Tulear. The breeder, from Utah, stopped the sale when, two days before his delivery I was diagnosed. She said she would not sell to me.
photo
HUFFPOST BLOGGER
Hollye Harrington Jacobs
www.TheSilverPen.com
04:25 PM on 10/13/2012
What an inspiring comment. Many, many thanks! Best wishes to you!
01:20 AM on 10/13/2012
I am a 20-year survivor, and yet all of this still resonates with me. But you missed, "Oh, well, call me if you live." I didn't.
photo
HUFFPOST BLOGGER
Hollye Harrington Jacobs
www.TheSilverPen.com
04:27 PM on 10/13/2012
Congratulations on 20 years! That is wonderful! Thank you for sharing your comment. I really appreciate it!
11:54 PM on 10/12/2012
I'm a 15 yr breast cancer survivor and when I went back to work some fool ask me what happen to my hair. really I just look at them and laughed
HUFFPOST SUPER USER
usacookie
03:22 AM on 10/13/2012
I would have laid them out with a really full detailed explanation.
photo
HUFFPOST BLOGGER
Hollye Harrington Jacobs
www.TheSilverPen.com
04:27 PM on 10/13/2012
So glad you could laugh! Congratulations on 15 years! Best wishes.
11:53 PM on 10/12/2012
Why all this publicity about breast cancer ONLY? Because it's about women, and we are so politically correct nowadays. I have lung cancer. Millions of people have different kinds of cancer. We all deserve the same kind of respect.
HUFFPOST SUPER USER
bsaleh2362
Baby we were born to run.
02:52 AM on 10/13/2012
I am sorry you have lung cancer. I wish you the best. That is heartfelt, not sarcasm.
HUFFPOST SUPER USER
usacookie
03:40 AM on 10/13/2012
Yes, we do all deserve respect. I am sorry you have lung cancer. That is a serious disease and I wish you a full remission.

Several pages earlier people were also saying that October should be cancer awareness month. Perhaps you can find those posts. My best to you.
11:09 PM on 10/12/2012
That is great.. i sm a breast cancer survivor.... I get.. well, you do live in cancer alley, or must have been those power lines you live by..( by a stupid ex- boyfriend no less) people don't realize it is like blaming yhe victim.... or stay positive .. that one always got on my nervez Oh yea... The one i ALWAYS hated was..... You'll be fine..... I know they said that because they were scared but sometimes i just wanted to scream....HOW DO YOU KNOW???????? WHAT IF I AM NOT FINE??????but thankfully i am, six years later.! To all my sisters out there who are going through this, stay strong, you are entitled to your feelings and F CANCER
photo
HUFFPOST BLOGGER
Hollye Harrington Jacobs
www.TheSilverPen.com
04:29 PM on 10/13/2012
Congratulations on your 6 years. That is wonderful news! Thank you for your great comment. Best wishes to you.
10:30 PM on 10/12/2012
I have been cancer free for about 5 years. I've heard it all, but what angered me most was (and is) when people refused to use the word "cancer." It is not contagious. It is only a word. Yes, what it describes is serious. My own mother continues to call it "the C word." An aunt calls it "CA." NO NO NO - it's c-a-n-c-e-r. Cancer. I had the opportunity to educate a class of students and I suggested that if they didn't know what to say, to not say anything. Instead, if it was in them, to offer a pat on the hand, a smile, a hug. I can accept almost anything but I agree with the author that saying stupid things like "I know how you feel" is pure poppycock. Unless you have or had cancer, you can't know how it feels. The suggestion to put words into action is wonderful and I hope it encourages all of us to do that for anyone in a crisis situation. Thank you.
photo
HUFFPOST BLOGGER
Hollye Harrington Jacobs
www.TheSilverPen.com
04:30 PM on 10/13/2012
That one sure bothered me as well. Do you know that there are people who believe that cancer is contagious? Thank you very much for sharing your feelings. Congratulations on 5 years. Best wishes to you!
HUFFPOST SUPER USER
coppersmom
10:18 PM on 10/12/2012
tell them mammograms cause cancer..mammograms emit ionizing radiation. exposure to radiation is cumulative over a lifetime...keeping the mammography biz rich....kills women.
photo
HUFFPOST SUPER USER
Prinann
What a long strange journey
12:16 PM on 10/13/2012
coppersmom.............You are entitled to your opinion. I am angred by your putting on this site. If one woman or man refuses to have a mamogram because of you..................The mamogram has SAVED many lives. So does radiation therapy. Ignorance and fear has killed more people. Please please get some education on these subjects. Visit a cancer center, if you dare. Lemon juice, sharks cartilage, vinigar & olive oil will not help. And YES I have had the mamograms & the radiation therapy. 8 months Cancer free, thanks to my Doctors and Hospital.
photo
HUFFPOST BLOGGER
Hollye Harrington Jacobs
www.TheSilverPen.com
04:31 PM on 10/13/2012
Thank you for your comment! Congratulations on being 8 months cancer free. All my best wishes for continued health.
photo
HUFFPOST SUPER USER
scook112793
09:18 PM on 10/12/2012
Wow, what kinds of insulated world are we trying to create? I would like to think that most of us think before we speak and try, when our friends are facing issues of any kind, to be as supportive and empathetic as we can possibly be under the circumstances. Now, it seems that we are expected to study how to respond to a friend's crisis and follow a script? Is there are new book called How to express oneself without stepping on anybody's toes for Dummies that I can read? I am raising a special needs' child and have received some really dumb comments-I just try to think about the person's motives and only assume they are thoughtless or ignorant when that is really what they are-the rest of the dumb comments I assume are made with good intentions and I have learned to not get caught up in dissecting the motives and trying to explain why the remarks were dumb.
photo
HUFFPOST BLOGGER
Hollye Harrington Jacobs
www.TheSilverPen.com
04:32 PM on 10/13/2012
That was not my intention in highlighting these comments. My intent in sharing these “clouds” and “Silver Linings”is to build awareness and compassion (both for the patient AND the friend) and to illustrate behaviors and words that many cancer patients appreciate.
Best wishes to you!