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Jenni Schaefer

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The Eating Disorder Time Suck

Posted: 01/26/2012 12:06 pm

Thirteen years ago, when I was 22-years-old, if I wasn't sleeping, I was with Ed. I am not talking about a guy, but my eating disorder. In therapy, I was taught to treat anorexia/bulimia like a relationship -- naming it Ed, short for "eating disorder" -- rather than an illness or a condition.

Think of the most time consuming relationship you've ever had. Imagine it was with the most demanding person you'd ever met. That was life with Ed.

A typical day went like this: Ed talked, and I listened. Since I only slept for about three hours a night, I heard his self-destructive voice saying, "You aren't good enough," for at least 21 hours a day. When you hear something that often, you start to believe it, and pretty soon you start to live it.

My eating disorder was as much about limiting my life as limiting my intake. I starved off fun by overworking and people by isolating. Obviously, I limited sleep as well. As for many women with anorexia, a key issue underlying my eating disorder was perfectionism, which caused me to falsely believe, among other things, that sleeping is a waste of time and that I should always be working. If I wasn't at my real job, which varied from being a waitress to a security guard (not the best occupations for someone with anorexia), I manically found something to do to keep myself busy. I reorganized my apartment, mailed birthday cards to every person I'd ever met, and strategized new ways to decline dinner invitations. I did anything to stay out of the present moment -- a scary place to be back then. I worked like this about 20 hours a day, which meant my work week was 140 hours long.

During those few hours at night when I actually rested, I noticed that my heart would beat erratically. I knew that people with eating disorders could die from cardiac arrest, and I distinctly remember thinking that I might not wake up in the morning. The most terrifying thing for me was that I felt like I couldn't do anything about it. I was paralyzed, as if Ed was literally holding me down. It was one of those nights that finally pushed me to seek help.

Recovery, which took time and professional support, actually forced me to be a healthier person with food and weight than I ever would have been without it. I noticed that the less I obsessed about what I ate and how I looked, the more energy I had for pursuing dreams I'd put aside, discovering new passions, and even falling in love (not with a guy named Ed, I hoped). The part of my life that Ed consumed was slowly becoming mine again.

One of my dreams had been to become a professional writer and singer. I actually turned down an acceptance to medical school in Dallas, Texas and moved across the country to Nashville, Tennessee to pursue music. The problem was that Ed drove the U-Haul. I didn't have the strength to sing or play guitar in Music City, and I couldn't think straight enough to write a song. I did go to weekly vocal lessons but couldn't truly connect with the music. When I recovered from my eating disorder, I got my life back and then some. Today, I perform songs as part of my career, and I get to write books and speak professionally, too.

As I travel across the country sharing my recovery journey, I no longer spend my time in airports worrying about the food offered on every corner. When my body was malnourished, I literally could not walk past all of that food without bingeing on it. Not to mention, traveling is stressful, and bingeing relieved that stress. In an unfamiliar city in a hurried airport, no one ever noticed when I rushed from one fast food restaurant to the next eating uncontrollably. If you spot me in the airport today (I am traveling to Utah for a gig... as well as some snowboarding), you won't see me carrying lots of binge food. What you will see is someone who looks grateful that she is toting around a guitar -- an instrument I never believed I could play. Letting go of Ed meant I had the time and energy -- and belief in myself -- to pick up my guitar and actually make music.

In my work, I am surprised over and over again by how many people hear Ed's voice. Not everyone has a clinical eating disorder, but no one is immune to society's message that says, "to eat less and to be thinner is to be better." In my latest book, Goodbye Ed, Hello Me, I named this voice -- Societal Ed.

According to the National Eating Disorders Association, a staggering 80 percent of American women are dissatisfied with their appearance. Countless moments are wasted worrying about how small our waists are and making sure that our coffee drink begins with just the right prefix. That will be a nonfat, sugar-free, no whip latte, please.

What would happen if we stopped being so preoccupied with whether or not our thighs touched at the top and obsessed about life instead? We could spend more quality time with our families. Or we could change careers, go speed dating, and even take trapeze lessons. We could experience more joy.

Societal Ed says if we reach the lowest number on the scale and wear the smallest size jeans (if we become less), we will finally be happy. But that's a lie. At my lowest weight, I was unhappier than ever.

By the time I reached my healthy, ideal weight in recovery, I had not only added physical mass to my body but, more importantly, I was well on my way to gaining what I like to call "pounds" of joy and peace in my life. It's important to note that our ideal weight has nothing to do with the bathroom scale, but rather it is the size we are when we can think best, have the most energy, and feel whole. When you put on weight like that, you get things like being able to write a song, ride a motorcycle, and enjoy every savory moment of your favorite food.

The body truly is a vehicle for life rather than something to be controlled. I've heard it said that our bodies are our Earth suits -- simply what we wear on this planet in order to get around. We must nourish this gift in a balanced way.

As part of my continued effort to do that, I recently went zip-lining in Alaska. (I actually do things like zip-lining in Alaska now -- most days Ed wouldn't even let me leave my apartment). When I was flying through that rain forest strapped to a single cable, I wasn't concerned -- for even a single second -- about how my backside looked in the harness. Instead I was a little scared and focused on not falling. But even more than that, I was exhilarated, suspended in the moment. And that's time I wouldn't trade for anything.

Watch Jenni Schaefer on Dr. Phil here.

An Ambassador with the National Eating Disorders Association, Jenni Schaefer is a singer/songwriter, speaker, and author of "Life Without Ed" and "Goodbye Ed, Hello Me: Recover from Your Eating Disorder and Fall in Love with Life" (McGraw-Hill). She is a consultant with Center for Change. For more information, visit www.jennischaefer.com or www.facebook.com/lifewithouted.

 
 
 

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06:24 PM on 02/02/2012
Awesome article Jenni! You are such an inspiration! I think it is great that your work not only resonates with those who have struggled with an ED but also with those who feel the pressures of daily life. Far too often, people feel alone in their struggle, but by reaching out, they can see that life doesn't have to be that way.

I love that you included, "My eating disorder was as much about limiting my life as limiting my intake. I starved off fun by overworking and people by isolating." It is an important reminder that recovery from an eating disorder is more than changing your relationship with food; it is also about changing your relationship with yourself. I am so glad that you are able to take in these new experiences and live life to the fullest. You deserve it!
02:04 PM on 02/01/2012
It is possible to get better!!! I remember when I would read books on recovery that would inspire me but at the same time, I would sit in my bedroom and cry because I thought I would never get to that spot of full recovery and have that sense of peace in my life that I desperately yearned more.

My life used to be run by my eating disorder, but now I'm filling up the holes my eating disorder left me with with things I'm passionate about. I have to continue to remind myself of everything I would lose if I went back to my eating disorder and realize it's just not worth it anymore. I'm getting closer to that spot of fully recovered and surprise myself when I hear Ed's voice and simply laugh at it, thinking well that's a dumb thing to do right now. Those are the moments that make all the pain of recovery worth it. I know how hard it is to think that these moments are possible but when you keep pushing, it get's a tiny bit easier every time and soon recovery moments keep happening.

What Jenni wrote is SO true, gaining weight isn't a negative thing, you really are "gaining pounds of joy and peace"
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Becky Henry
Bringing joy, peace and skills to caregivers of th
01:06 AM on 02/01/2012
Great article Jenni! I shared it in my January newsletter that just went out - with that photo of you at the top of the mountain on your snowboard! I am so grateful not only for all you do to educate about eating disorders but also that you recovered. To me, as a mom, you are the embodiment of the hope I am always talking about. Skiing with you (while you boarded) was a joyful and emotional experience. I got to see what is possible (sheer joy and fun and freedom from ed) when full recovery is relentlessly pursued and achieved. It was emotional because I have yet to see this with my daughter and I know thousands of parents who are waiting to see their children reclaim their lives from ed as well.

Mostly it was great fun and I look forward to your blog post about all the metaphors we observed between recovery and learning to snowboard.

Becky Henry
Hope Network, LLC
03:41 AM on 01/30/2012
I have to admit that whenever I read about those who have successfully recovered their lives and selves after an eating disorder, I am achingly envious: I have been in a "relationship" with bulimia/anorexia since the age of 15; I am now 48. Within the past five years or so, I have become acutely aware that it is not typical that I am alive, nor is it typical that I am as physically and mentally functioning as I am. That said, I also am cognizant of what I have lost as a result of my choices: financial health (food costs a lot--probably more than a drug habit, given that I feed my habit daily); social health (bingeing requires solitude, and secrecy requires isolation); and vitality (throwing up depletes all reserves, and rids one of necessary micronutrients). So why do I not ask for help? I have lied for too long that all is well, and that I am in control; I have no money to seek help without the aid of my family; I will not tell my family, because I have already experienced their reactions in my past attempts at recovery, and the sense of shame and "being watched" that I experience is too great a cost for me. So now I pray, and I tell myself every night that "tomorrow" or "soon" I will just stop: The truth is that my heart will probably beat me to it.
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Jenni Schaefer
11:50 PM on 01/30/2012
I am so sorry to hear about your struggle. I'm glad that you are reaching out here though. I wanted to pass along some resources I know about that provide financial assistance for eating disorder treatment: http://www.kirstenhaglund.org/, http://www.freedfoundation.org/, and http://www.mannafund.org/. Also, http://www.mentorconnect-ed.org/ provides free mentors for people who struggle. This is a great program! And http://www.eatingdisordersanonymous.org/ lists where free, support groups are located throughout the country. You might want to check out http://www.anad.org/ for free, support meetings as well. Sorry for all of the links. I just hope that you will consider reaching out to some of these great organizations. They can help you. Even though you feel like there is no hope, I know that there is. I have met people who struggled with their eating disorders for thirty, forty, and even fifty years--- they got help and got better. It was a hard road, but they did it. You can, too!
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Jackie1992
'some' are one clown short of a circus
02:35 AM on 01/30/2012
I HAD a sister-in-law who ate everything she was supposed to eat according too all the published data...she died well before her time....but, her siblings who ate what they wanted...had to listen to her constant complaints on how unhealthy their diets were...she walked and exercise and did it all...yet, she died healthy TOO EARLY...and her siblings who were preached to are still here in their 80's and 90's respectively....so, you die healthy or you die unhealthy...but, you still die...who wants to be a good looking buff corpse anyway....? this is only one of many I know who died before their time while doing what they were told was the right things...she isn't just an anomaly.
02:34 AM on 01/30/2012
I'm glad she fought ED & got on very well with her life. God bless this fighting girl & keep her strong. Stay well !!!
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Jackie1992
'some' are one clown short of a circus
02:30 AM on 01/30/2012
I had a sister-in-law who watched every single thing she ate...did all the right things...walking and keeping physically fit....she still went to the cemetery regardless EARLY....but, her evil family who ate all their wonderful food are now approaching their 80's and 90's....so, who knows...you can die healthy or you can die unhealthy....you still die never one to worry about being a good looking corpse. Didn't the avid runner who wrote many books on healthy lifestyles die very early....you can't cheat death..you might think you are, but, how will you ever know...YOU WON'T.
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Bill Hummel
01:51 AM on 01/30/2012
I am told a man does not taste food only eats much and fast.?
01:35 AM on 01/30/2012
"We are not human beings on a spiritual journey, we are spiritual beings on a human journey."
Stephan Covey
This user has chosen to opt out of the Badges program
01:20 AM on 01/30/2012
Hello Ed or Goodbye money. I pay $420.00 yearly for not having a PERFECT BMI.
The Wellness Program demands: no smoking, no high cholesterol, no high blood pressure,
and no diabetes! It ALSO demands a perfect BMI. We pay dearly for each imperfection.
I see this coming soon for everyone in the year 2014. I've lost 50 pounds and have 30 to go.
It's not easy at 60 years old.
This user has chosen to opt out of the Badges program
12:30 AM on 01/30/2012
My company charges $420.00 extra a year if we do not have a PERFECT BMI.
I have lost 50 pounds and have 30 more to go. It doesn't matter to the insurance company how healthy I really am. They just want my money. They KNOW many in the US are now fat; so they can fine us and get lots of extra money for covering all that must be covered by Obama's new Health Care Plan. All this extra money comes in handy when the Obama Health Care offers so many great "COVERED" benefits!
Yes, we get a free yearly Exam. We HAVE to take it. They take blood to find out how MANY things they can charge us for. If we smoke/ have high blood pressure/ high cholesterol­l/ or a high BMI / or are diabetic, we pay a penalty for EACH imperfection. Sincerely, I THOUGHT I had until the year 2014, when the Obama Health Care Plan really goes into effect. But I was charged NOW for the "WELLNESS PROGRAM". I will be forced to KEEP a perfect BMI or I will continue to pay extra high premiums. My question is: what all they will be testing with my blood samples??? I was given 2 pages filled with what they found. DNA tells so much today...What will it tell them TOMORROW?
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yukidongo1
02:51 AM on 01/30/2012
How insane! I had an eating disorder. It was anorexia to begin with then blossomed into Bullemarexia. It was back in the 70's before they even had a name for it. Stars and Stripes newspaper was the first I saw of it in print...because my father sent it to me. My family was worried. My heart rate was about 35. My weight at 5'6" was 96. I never had professional help. I did dig my way out, though. ED's will kill you. Not many years later, Karen Carpenter died of anorexia. I am healthy, now. Part of the cure is acceptance of yourself. The other, is finding a special someone to accept you for who you are. I would probably be dead if I had not met my husband. It is a liar disease. Your eyes lie to you. Your mind lies to you. And you lie to yourself and everyone around you. And, it is hard to defeat, but it can be done.
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GOODDOC1
"civil war" is an oxymoron
03:30 AM on 01/30/2012
I think corgi is just looking for a place to complain, and since there was a way (sort of) to connect her political problems to this article, she ranted here. I'm really glad you came through it. It must have been so much harder to do it on your own. And I'm especially glad you found the right loving man! Congrats!
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Virginia Shifflet
Proofread to make sure you don't any words out
12:18 AM on 01/30/2012
Why are most of the commentors on here fresh accounts? (0 fans is a big tip). It's like you are all ashamed. Don't be. Be well.
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Jackie1992
'some' are one clown short of a circus
02:38 AM on 01/30/2012
and some have a few hundred fans....maybe the lowere number are just not that interesting to anyone else but themselves....and a few other uninteresting people? possible? I couldn't care less how many fans are with me....fun, but, that is not why I write..I write to amuze myself.
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GOODDOC1
"civil war" is an oxymoron
03:34 AM on 01/30/2012
I like to comment on things that interest me, but especially on things where I think I can help or educate people. It gives me a feeling of being needed again. I also like to call out people on their prejudice or bigotry, which doesn't make me popular with them, I'm sure. My favorite is to see someone who has taken the time to read an article (I guess, unless they skipped right to the comments section) and then said how boring or worthless it was. I point out the irony of their actions -- and have a lot of fun doing it! Have a great day!
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Jackie1992
'some' are one clown short of a circus
02:40 AM on 01/30/2012
and yes, oh boy, I see all my 'warts' and English mistakes but, what the heck...never seem to catch the grammar or the typos before they go....will you still love me tomorrow?
12:07 AM on 01/30/2012
Great article. So happy to hear a positive end to your story. I currently have a loved one in a treatment facility with Ed. She's been in since before Christmas and she is beginning to isolate herself from family/friends. No calls, no messages, nothing. She did this at home too. Anyone have any adivise on how we should handle this now and when she comes home. We want to be supportive but unsure how to do that when she shuts us out. I feel like this is her last shot at recovery and I'm scared she to death. Your story gives me hope that her story will have a happy ending too.
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yukidongo1
02:57 AM on 01/30/2012
I can only say that my family tried. I didn't listen to my mother. They are embarrassed that you know what they are doing. They are ashamed of the purging--if they happen to be doing that. Isolation is not good. It is hard to hide the activity, and MAYBE, if you let her know you understand and that you know what she is doing, it may help...? I only know, from experience, that it is hard. She has to break the CYCLE.
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GOODDOC1
"civil war" is an oxymoron
03:36 AM on 01/30/2012
Have you spoken to someone at the facility where she is? Maybe they have a family program you could attend, or could give you a referral? But if you're concerned, I think you should let them know what's happening, and why you're worried. Good luck!
11:33 PM on 01/29/2012
Extremely well written article. There are too few of those now a days. Thank you. And I'm very glad you're overcome the obstacles in your life. Well done.
01:32 AM on 01/30/2012
I agree with you angeleyes36190. Life can be wonderful. This is inspiring. I will buy the book and share it with others. I believe whether you have an eating disorder or are without self confidence, this is an example of overcoming. CONGRADULATIONS are in order.
Eat Healthy, sleep well, and keep your earth suit clean.
11:30 PM on 01/29/2012
The comment about her heart in the banner of this story is mileading in that she actually says very little about it.
Many people, me included, have a condition known as PVC, or preventricular contraction. That will give you the sensation that your heart is flip flopping or skipping beats. It can be a very scary feeling and is very unnerving to say the least. However, in most cases it is benign and doesn't present any more danger than scaring the person with it.
I don't have ED or any other food related disorder but some with the PVC condition say it is more prominent with them after they have had a big meal. There are also certain food groups that can trigger the PVC's. Look up PVC's in your browser if you need more information
I hope this helps some people potentially recognize an issue they may be experiencing.
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GOODDOC1
"civil war" is an oxymoron
03:41 AM on 01/30/2012
It can also be more noticeable to someone who is extremely thin, especially when lying on their left side. Potassium imbalances can aggravate it as well. You're correct that most cases of unifocal PVCs are benign (and very scary), but a person having an irregular heartbeat needs to get it checked out ASAP, to make sure it isn't something serious. Sometimes knowing what is going on can make it a little less scary, but not always! Good luck!