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Preventing Another Generation of Children With Autism

Posted: 04/ 2/2012 11:38 am

The recent announcement regarding the new CDC study does not tell those of us in the autism community anything we do not already know. As of today, we can now affirmatively say autism affects 1 in 88 children born 12 years ago, a 23 percent increase since the CDC last released numbers in 2009.

We have been sounding the alarm bells for years to this glaring epidemic.

All that these new numbers indicate is the fact that we are continuing to lose children at an alarmingly rapid pace. The current emphasis on awareness and genetic research has not brought us any closer to a cause. We need to focus our efforts as a global community on prevention and providing treatment and life care services for those currently affected.

The dialogue today, in the aftermath of the CDC's release with regard to what these new numbers indicate, completely misses the point. The new numbers have been equally attributed to better diagnosis, higher incidence and unknown factors. What is missing from today's dialogue is the effect autism is having on families, our society and what the unknown factors are.

The 300lb. gorilla in the room is that our children with autism today will soon become adults with autism.

We can either continue to collectively stand on the sidelines and debate what is causing autism and if it is an epidemic or we can get on the field and start addressing the real problem -- a generation of children with autism. We are not focusing enough on prevention, treatments and support services.

As long as the powers that be continue to keep their head in the sand with regard to treatment and services, there is little in the way of progress that can be made. Families need resources for early intervention, treatment opportunities, support, safety measures, educational tools and housing and employment opportunities. Only through direct support and intervention will we be able to ease the burden.

If we fail to take action, in four more years we can look forward to the CDC revising the numbers down again and we will witness a further increase in the need for prevention, treatment and support.

As we continue to lose yet another generation of our children, families will continue to struggle and power on. Thankfully there are organizations helping autism families.

Those outside of autism need to understand this is an epidemic and we need more government funding, insurance coverage and education reform. Without intervention today, the cost of care for adults with autism will be significantly greater and the burden will no longer lie with the parents, but on our entire society.

In the words of Margaret Meade "Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has. "

Please take action today by supporting a family in your community and urge others to learn more about autism at www.generationrescue.org.

 
The recent announcement regarding the new CDC study does not tell those of us in the autism community anything we do not already know. As of today, we can now affirmatively say autism affects 1 in 88...
The recent announcement regarding the new CDC study does not tell those of us in the autism community anything we do not already know. As of today, we can now affirmatively say autism affects 1 in 88...
 
 
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John Richard Smith
Social Justice Advocacy
08:57 PM on 04/09/2012
Researchers at University of California have released another interesting study on Autism and maternal risk factors that focus on diabetes hypertension, and obesity. Finding an increased higher likelihood of ASD and DD relative to controls (odds ratio: 1.61 [95% confidence interval: 1.10–2.37; odds ratio: 2.35 [95% confidence interval: 1.43–3.88], respectively).

http://pediatrics.aappublications.org/content/early/2012/04/04/peds.2011-2583.abstract?sid=29b39ccf-afce-4b8f-bac6-d261190ef194

Again one of the interesting findings is the probable link to the immune system indicated by the relationship to those three factors. Diabetes and obesity research linking the immune system to both conditions can be found here ...

Type 2 Diabetes: Inflammation, Not Obesity, Cause Of Insulin Resistance

http://www.sciencedaily.com/releases/2007/11/071106133106.htm

Properties of Insulin Reduce Inflammation Caused by Obesity, Lower Risk of Type 2 Diabetes, Research Finds

http://www.sciencedaily.com/releases/2010/05/100509202647.htm

Obesity and Diabetes: Immune Cells in Fat Tissue Explain the Link

http://www.sciencedaily.com/releases/2010/08/100816095800.htm

Inflammation in Body Fat Is Not Only Pernicious

http://www.sciencedaily.com/releases/2010/03/100325092251.htm

Some more work on hypertension and inflammation can be found here published in Nature

http://www.nature.com/ajh/journal/v24/n10/full/ajh2011113a.html

Brief Review - Inflammation, Immunity, and Hypertension

http://hyper.ahajournals.org/content/57/2/132.full
11:33 PM on 04/20/2012
Hate to break it to you I know a lot of people who were healthy when they their child with Autism was born.
12:44 PM on 04/06/2012
hard to focus on prevention when you don't know what causes it.
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rjhuntington
left is right and right is wrong
11:19 AM on 04/06/2012
Posters who have any connection with or vested interest in the vaccine industry should reveal that when they post. Anyone defending a particular vaccine should state plainly if they have a connection to the medical or pharmaceutical industry and exactly what the connection is.
Josephius
No, not microbio, molecular bio and biochemistry!
03:00 PM on 04/06/2012
Let's start with you. Do you have a 401K or IRA? How about mutual funds? If the answer is yes, you better believe some of your money is invested in these companies.
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rjhuntington
left is right and right is wrong
05:24 PM on 04/06/2012
Actually, no, I don't have any of those investment vehicles, nor any stocks. I wonder what % that puts me in.
Josephius
No, not microbio, molecular bio and biochemistry!
03:04 PM on 04/06/2012
"...state plainly if they have a connection to the medical industry...."

Yeah, that narrows it down.
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ZoeyMO
09:54 PM on 05/13/2012
It seems pretty obvious to me that those with a 401k and/or an IRA are not going to sacrifice kids for the small percentage of pharmaceutical stocks in their 401k. People who are being paid directly by pharmaceutical companies, in any way whatsoever (speaking fees, advertising revenue, own significant stock, etc) are in an entirely different category and I'm pretty certain you understand that. You're just trying to muddy the waters. The reason for that is usually something to hide, like a pretty strong pharmaceutical tie in this instance. A little intellectual honesty would go a long way.
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rjhuntington
left is right and right is wrong
11:17 AM on 04/06/2012
Awful lot of mis- and dis-information being bandied about.
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John Richard Smith
Social Justice Advocacy
12:25 PM on 04/06/2012
Yes
Josephius
No, not microbio, molecular bio and biochemistry!
11:11 AM on 04/06/2012
Let's see.....generation X is getting married later. Check. They have kids later. Check. Hmmmm. What possible effects might that have on our population?

http://www.nytimes.com/2012/04/05/health/research/scientists-link-rare-gene-mutations-to-heightened-risk-of-autism.html
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John Richard Smith
Social Justice Advocacy
12:25 PM on 04/06/2012
You know when you have one of those birthday cakes expecting a beautiful girl to pop out ? Well it seems someone short changed this particular celebration ...

From the quoted article ...

"The gene mutations are extremely rare and together account for a tiny fraction of autism cases — in these studies, only a handful of children."
Josephius
No, not microbio, molecular bio and biochemistry!
03:01 PM on 04/06/2012
Yes. Those examined in this specific study (do you know how gene chips work?). Now, we can look at the others.
Josephius
No, not microbio, molecular bio and biochemistry!
03:13 PM on 04/06/2012
I'm going to go out on a limb here....you don't really understand what's being presented in these studies, do you? That's not being judgmental. I'm just guessing you have little understanding about how a any number of thousands of different types of copy number variants can influence the expression of genes that lead to developmental issues, particularly in the brain.

You're still on the 1900's Mendelian genetics thing. Just an FYI, we've come a long way since then. It might be worth learning about it if you really are concerned about this topic.

.....or you can be like the others and live in your alternate-reality bubble.
09:33 PM on 04/05/2012
"Lose" our children to autism? That sounds pretty.. bleak. Especially coming from a mother of an autistic child.
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sabelmouse
i love to tumble , ask me why .
08:21 AM on 04/07/2012
i bet it is bleak.
11:40 PM on 04/20/2012
when you have an outlook like that it does. i have two Autistic children so I win the internets today. it's not bleak..it's full of joy. hard days like any parent has raising a child. they may have special needs but they also have special abilities. children with Autism aren't a problem.it's the adult who considers it a problem.
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ZoeyMO
10:00 PM on 05/13/2012
It may sound bleak because for the average human being it is a HUGE challenge that those who do not face it cannot understand. I'm delighted it poses no problems for Christine Mack (and allows her to judge the outlook of others), but that hardly does justice to the tremendous amount of families for whom it can be devastating. Many people with be able to get their children "back" to some extent, but it will cost them a great deal in terms of time, energy and money that many people just don't have. So, those children could be non-verbal, feces-smearing, diaper-wearing, and completely zoned out to adulthood and beyond. Bleak? Yeah, it sure can be.
Josephius
No, not microbio, molecular bio and biochemistry!
03:51 PM on 04/05/2012
"The current emphasis on awareness and genetic research has not brought us any closer to a cause."

Funny. You write this on the same day ground-breaking studies are released on this very issue. So, I'm sure you'll read those studies any day now and recognize that there are people working toward finding the root causes.
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John Richard Smith
Social Justice Advocacy
12:19 PM on 04/06/2012
Doesn't appear very ground breaking seems to be a a little more evidence of what most researchers in genetics had already surmised.

Perhaps there's a funding round coming up and everyone's jockeying for position.
Josephius
No, not microbio, molecular bio and biochemistry!
03:02 PM on 04/06/2012
Must be. I'm sure that's why they got into science, for the funding. Living the high-life on research grants.
05:13 PM on 04/04/2012
It is beyond me why anyone still publishing posts about autism written by Jenny McCarthy. She has done so much more harm than good for all children.
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Taximom5
11:25 PM on 04/04/2012
Funny, because thousands of parents of autistic children who observed the exact same vaccine reactions that Jenny McCarthy observed, and whose observations were dismissed by medical personnel don't agree with you.

Neither do the parents of the 2000 victims of vaccine-induced brain damage, who were compensated in US vaccine court, where it was ADMITTED that vaccines caused that brain damage.
10:52 AM on 04/22/2012
It has been proven time and time again that vaccines don't cause autism. The one study that said it did was later pulled because it was incorrect and the doctor had his license taken away.
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Geneil
The Christian Right is neither.
11:15 AM on 04/05/2012
WOW, how do you know that?
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ZoeyMO
10:08 PM on 05/13/2012
He doesn't. He just makes unfounded remarks like that all over the internet.
Josephius
No, not microbio, molecular bio and biochemistry!
02:56 PM on 04/04/2012
To some of the regulars.....

I told you so!!!!! And yet you wouldn't accept the mounting evidence. Now, the inevitable reality has come to bite you in the behind.

http://www.reuters.com/article/2012/04/04/us-autism-usa-genes-idUSBRE83312820120404
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Taximom5
11:17 PM on 04/04/2012
"Mounting evidence?" That's so pathetic, it's actually laughable.

"For this study, researchers sequenced data from 549 families that included both parents and a single child with autism. ...the combined results from the three studies suggest some 600 to 1,200 genes may contribute to the risk of developing autism."

600-1200 genes? Yeah, that really narrows it down.

"MAY contribute to the RISK of developing autism?" And you think that is somehow proof that there is an "autism gene?" Ask any epidemiologist--this isn't proof of anything. They didn't even look at the genetics of non-autistic children for a comparison.

This is just a desperate attempt to deflect attention away from the fact that the latest autism rates STILL reflect the fact that thimerosal-laden vaccines, WHICH WERE STILL GIVEN IN 2000--the year of birth for the children in the new CDC study--can account for the continued rise in autism rates.

The lies don't work any more; too many of us know the truth. No amount of whitewashing ("autism is just quirky nerdiness, nothing to worry about!!"), distractions ("ooh, look, 600-1200 genes that MAY contribute to risk!!!"), or blue-sugar-coating ("let's CELEBRATE world autism!!") can cover it up.
Josephius
No, not microbio, molecular bio and biochemistry!
01:09 PM on 04/05/2012
Your posts (like this one) speak volumes about you and the other people like you that dismiss evidence in favor of your "truths".
09:44 PM on 04/05/2012
The way that scientific literature is written, "may contribute to the risk of developing autism" is actually the most accurate way to be phrasing that. You can't just establish causality, you can only suggest that certain factors MAY be contributing to the likelihood of an even, even in a situation where the evidence seems clear cut. It's very difficult to actually prove anything. In reality, our scientific knowledge is not based on irrefutable evidence, only the best theories and evidence that we have available.
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ttsgw
Atheist and secular humanist
01:48 AM on 04/04/2012
What a terrible thing to say, one don't loose childrrn to Autism. They are still ones children. Or do you think it's a God's punishment and that they should be rejected to institutional care?
07:26 PM on 04/03/2012
How can we focus on prevention if we haven't established a cause?
11:55 PM on 04/03/2012
excellent point. scientific america even declares autism as "not a disability" but just being different in terms of mental processing... we don't know what to make of it
Josephius
No, not microbio, molecular bio and biochemistry!
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Taximom5
11:22 PM on 04/04/2012
Correlation does not equal causation--and this study doesn't even begin to prove correlation.

600-1200 genes that MAY contribute to risk of developing autism? And non-autistic children were not looked at to see if they happened to have these same 600-1200 genes? Any epidemiologist will tell you that that proves nothing.

On the other hand, we do know that infant boys who are given a hep B shot are 3 times as likely to develop autism than infant boys NOT given a hep B shot:
http://www.huffingtonpost.com/david-kirby/new-study-hepatitis-b-vac_b_289288.html
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John Richard Smith
Social Justice Advocacy
12:06 PM on 04/06/2012
It's an interesting article that doesn't really have much 'content' ... age of the father has been known as an apparent risk factor for a number of years.

Will this shuffle the percentages from the exisiting 10 - 15 % (the article quotes 10% I believe) linked to genetics ?

Will it link directly to the 'aberrant behaviours' autism ?

...and finally how does it preclude environmental risk factors themselves.

Nice but inadequate.
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hawaiianstile
all hail the balance of nature.
05:08 PM on 04/03/2012
letting them eat food and breath air instead of replacing both with poison might be a pretty good start.
01:57 PM on 04/03/2012
"The recent announcement regarding the new CDC study does not tell those of us in the autism community anything we do not already know."

Really? Because you seem to disagree with a lot of what they said...
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John Richard Smith
Social Justice Advocacy
11:56 AM on 04/06/2012
Who are you talking to ?
12:59 PM on 04/06/2012
Trouble following the conversation? Then maybe you should stay away.
01:41 PM on 04/03/2012
Go Jenny! Tell it like it is! "We can either continue to collectively stand on the sidelines and debate what is causing autism and if it is an epidemic or we can get on the field and start addressing the real problem."

I agree, we need to take immediate action to help children and families now. Every parent of a child with special needs should consider what they can do to help their child, not "wait and debate" - because they can get better. There are many things that can be done from diet and nutrition, to biomedical treatment and special therapies. Here's more from a Pediatric Neurologist from Harvard talking about how ”food is big" in autism - http://nourishinghope.com/2012/04/a-great-day-for-autism/ I'm a Certified Nutrition Consultant specializing in autism for ten years and I can tell you I know hundreds of stories of children who have gotten better when attention was put on their food and nutrition. Diet improvements are one area that anyone can get started with right away, and it helps everyone.

Support organizations like Generation Rescue because they can help families get the treatment they need (not just talk about it), and if you are a family in need they have Rescue Angel moms to help you.
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amdachel
12:56 PM on 04/03/2012
It's hard to understand the inaction on the part of health officials and mainstream medicine. The national rate is now officially one in every 88 children, one in every 54 boys. Some states have truly horrific rates. In NJ, it’s one in every 49 kids and in UT, it’s one in every 47. (Keep in mind that the rate for boys alone is much higher.)

Many experts are claiming this is just better diagnosing and no real increase at all. The truth is, the definition of autism was broadened in the DSM IV (manual for diagnosing mental disorders) in 1994. Are we to believe that doctors are STILL learning to recognize the symptoms 18 years later?

Autism has steadily risen over the last 20 years when it affected one in 10,000 children. In 2004 it was one in 166, in 2007, it became one in 150, in 2009, it soared to one in 110, and now it's one in every 88 children. The criteria for diagnosing it hasn't changed since 1994.

How long are parents expected to just sit back and accept it when their child is lost to autism?

Autism officially has no known cause or cure. There's nothing a mainstream doctor can tell a new mom to ensure that her baby won't also end up on the autism spectrum. The autism numbers have been soaring for over 20 years and nothing has been done to stop it.

Anne Dachel, Media editor: Age of Autism