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Jess Wilson

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The Unthinkable

Posted: 04/ 4/2012 10:14 pm

2012-04-05-images-mg_9878_1504.jpg

A completely random and gratuitous photo of my sweet girl. Because when people click on this post to read about mothers killing their children with autism, this is the face that I want them to see.

Photo by Connerton Photography

.-

On Saturday, March 31st, Patricia Corby flagged down a police officer to tell him that she'd just killed her autistic son, Danny. She drowned him in the bathtub, she said. He was four years old.

-

On Tuesday, March 6, 2012, Lester Hodgins came home to find his wife and son dead. According to police, Elizabeth Hodgins had shot their 22 year-old autistic son, then turned the gun on herself.

-

On May 31st of 2010, Stephanie Rochester -- according to her own report to police -- placed a plastic bag over her 6 month-old son, Rylan's head.

She told police that when the infant was still breathing some time later, she placed blankets over his face. The child was dead by morning.

According to the Colorado Daily, "During the initial investigation last summer, Rochester told detectives that she believed her baby, Rylan, was autistic, and that having an autistic child would emotionally and financially "ruin" her life."


*

I cannot stop thinking about these precious, innocent souls -- brutally murdered at the hands of their own mothers. I simply cannot wrap my brain around the horror of their stories.

**

In July of 2010, Saiqa Akhter called 911 to tell police that she had killed her two year-old daughter, Faryaal and her five year-old son, Zainmay. CNN described the recording of the 911 call. (Warning -- the story contains a video and recording of the 911 call. Please do NOT click on the link around children -- it may begin to play automatically.)

On the tape, the woman tells the operator, "I killed them. I killed both of them. I killed my both kids... They are not doing anything. They are just blue. They are not taking any breaths. Their heart is not beating."
The operator asks her what happened.

"First, I tried to give them bathroom cleaner. I put in their mouth, but they don't drink it. I want them to drink it. They don't drink it... I grabbed their neck... and they are no more," she says on the tape.

The operator continues to talk to the woman to keep her on the phone until officers arrive. She asks why she killed her children, and the woman says she wanted normal children.

"They are autistic. I don't want my kids to be autistic," she is heard saying in an even tone.

The operator then asks her what she is feeling, and she says "nothing."


***

The morning after that nightmare, I wrote the following.

**

There are no words to describe the horror of what this woman did to her precious babies.

There are no words to adequately condemn the murder of two innocent souls.

There are no words to contain the grief that we feel for those beautiful children.

There are words, however for what we can do for one another as a community of those who care for children, particularly those who do not fall into the category of the "normal children" that this woman thought she wanted.

We can support one another. We can show those who don't see the beauty that accompanies the challenges that there is joy in this life. That there is sweetness and faith and celebration and grace in raising a child -- or children -- with autism.

We can rise above our divisions and come together as a community -- a welcoming, respectful, compassionate community that promises to hold each other up through the darkest days.

We can continue to tell our stories.

... to demystify autism.

... to reclaim the word and to reveal the incredible PEOPLE who live their lives through its filter.

... to open the curtains and illuminate the full spectrum of people who stand behind them.

... to personalize our stories -- our children's stories.

... to make people understand that difference is not just OK, but necessary to our survival.

... to get immediate help for those who live far beyond the realm of simple 'difference'.

... to address our greatest fears -- by creating a system that will not just house our children, but will CARE for them when we are gone.

There are no words for what this woman did. In no sphere through which my mind can travel is there any possible explanation for this monstrosity. Those children deserved a life. They deserved comfort and safety and protection and joy. They didn't get it.

There are no words.

***

If you need support, please, please click on the links below to find local autism resource networks.

There is no more noble act than reaching out for help.

ASA Chapters by state

Autism Speaks Resources by state

Welcome to the Club

*

Today I add this ...

Every one of us who is or who loves a person with autism has a responsibility.

Autism has its challenges -- by God it does. And they need not be sugar-coated nor hidden from view.

But when we speak in hyperbole -- when we choose words meant to shock and scare and draw attention at all costs -- well, there IS a cost. When we say that autism ruins, bankrupts, destroys -- those words do irreparable harm -- to autistics in the world today and to those who will come after them.

People are listening.

So please -- take care when you speak about autism -- about our children.

For my child.

For yours.

For all of us.

And above all for Rylan, Faryaal, Zainmay, George and Danny -- may their souls be at peace.

Amen.

Jess can be found at Diary of a Mom

 
 
 

Follow Jess Wilson on Twitter: www.twitter.com/diaryofamom

 
 
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09:56 PM on 04/07/2012
Thank you for saying this so eloquently.
11:12 AM on 04/07/2012
I just cannot imagine ever being in a place where hurting my child seems like the right thing to do.

Raising a child on the spectrum is not easy, in fact it's been quite the rollercoaster ride since the day he was born, but the very fact that so many goals have been hard won make those victories infinitely sweeter! In the past 6.5 years I have discovered reserves of patience that I never knew existed and that my capacity for being flexible and creative, to make life just a little less frightening and frustrating for my little guy, is nearly limitless. I have learned the healing power of quietly playing with Thomas trains, and have experienced the joy of taking the path less traveled. In return I get the unconditional love of a little boy who trusts me to keep him safe and to help him work through the hard bits that life throws at us. It seems like a fair deal to me...in fact, I feel like I've gotten the better end of it, as I am a far better person now than I was before my little guy arrived.
05:54 AM on 04/09/2012
kathy, thank you so much for sharing. that is absolutely beautiful. it is hard. it's damn hard, but so too it is immensely rewarding. yes. xo
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sasophie
There is no such thing as false hope
05:43 PM on 04/06/2012
I cannot fathom how a parent could take their own child's life. You are right that there is so much fear in our culture associated with having a child with a disability. I felt that fear when my daughter was first diagnosed with Infantile Spasms (a severe seizure disorder) as a baby, and heard all the disastrous things that would likely be in her future. I wondered if I could ever handle it, and cried - a lot. If only I could have known then the joy my girl would give me, and the amazing ways she would show her love every single day, those early days of "what ifs" would have been so much easier. I wouldn't trade my daughter for a "normal" child for anything in the world.
06:28 AM on 04/07/2012
"If only I could have known then the joy my girl would give me, and the amazing ways she would show her love every single day, those early days of "what ifs" would have been so much easier."

Yes, yes, yes.

Thank you for sharing.
03:51 PM on 04/06/2012
There are no words to express what I am feeling after reading this... other then my daughter is WONDERFUL and I love EVERY part of her! The challenges of autism are difficult... but I love Skylynn exactly how she is. I am blessed to be her mom!

In it's own unique way Autism Island is absolutely beautiful!
www.autism-island.com
06:33 AM on 04/07/2012
It's tough stuff to process.

For the record, I absolutely LOVE your header:

"As an Autism Islander I want to extend a hand of friendship. As you explore this island I'll warn you, there are devastating pitfalls here. But the breath taking mountain tops are unbelievable! Remember to watch your step because the landscape is always changing and everyone's path is different. Most of all, make sure to take a minute and really look around. In its own unique way, Autism Island is absolutely beautiful."

Amen.
01:36 PM on 04/06/2012
Jess,
I am a teacher of children on the spectrum and I love and appreciate each of them. I may not be an Autism parent...but as a teacher, I can't wrap my head around these stories either. I often get calls on evenings, weekends, and holidays from parents or students themselves. We ALL need to pull together and make this world as safe and accepting as possible for each of these sweet, smart, funny, precious souls.
Thank you for your words.
01:58 PM on 04/06/2012
"We ALL need to pull together and make this world as safe and accepting as possible for each of these sweet, smart, funny, precious souls."

A hearty amen.

(And a thank you for taking those calls on the weekends.)
03:07 PM on 04/06/2012
You are more than welcome...I am honored and touched that I am able (and trusted) to help whenever I possibly can.
12:28 PM on 04/06/2012
Thank you, thank you, thank you! I read your blog and am so thankful for you and your posts. I am sitting here crying reading your post today in the paper. My heart breaks. My heart hurts for these children. My heart hurts for moms who feel so lost about isolated. My son is 4 and non verbal autistic. I have had a rough week with him, although rough, I cannot imagine harming him. He has taught me about life in more ways than I can explain. He is my "little buddha" who teaches me to live in the present and not sweat the small stuff. My saying is Breathe & Believe. It's what I do everyday. We must support eachother and create a network that reaches out to moms and pull them into life and help them cope. Autism isn't a reason to end life. Thank you again for this incredible post.
01:51 PM on 04/06/2012
Breathe and believe.

Love that.

Yes.
02:16 PM on 04/06/2012
thank you for replying to me. i love reading your posts. you are writing what i feel and that is so important for us moms to feel connected in anyway we can. I painted this saying on two canvases that are in my house. I walk by and take a deep breath and give my brain a big boost of "believe" thoughts. I am also making bracelets for an autism fundraiser i'm putting together this month with a cute smiling buddha bead on them. i call it my "max" bracelet. he is my smiley buddha teaching me life lessons. thank you again for your brilliant writing.
11:31 AM on 04/06/2012
I look at my own journey with Autism....13 years of joy, learning, loving, crying, wondering, fighting, laughing, worrying, anger, gratefullness... the list goes on and on . I love my child with my whole heart and would do anything to give him the love and support he needs.
However, it can not be ignored that in doing so, his Autism has effected the lives of everyone around him. The strain on a marriage. The financial ruin. Giving up a career to care for him. The emotional well being of his siblings, who have given up so much because of him. Losing relatives, including Grandparents, who just don't understand and therefore don't want to be around. The Grandparents who do understand, but are spending their retirement providing after school care. The neighbors. The teachers. The therapists. The other customers at a restaurant or grocery store. The parents. Grieving. Worrying. Feeling inadequate to climb this mountain. The future. WIthout me. Who will be there.
Awareness is not really enough. It is a start, but not nearly enough.
01:43 PM on 04/06/2012
Christine,

Thank you for sharing all of this.

''Awarness is not really enough'

I couldn't agree more. Awareness is never enough. What it is is the first step on a very long road - the road to acceptance, understanding, accomodation, compassion and SUPPORT - for those with disabilities and those who care for them.

Eustacia Cutler recently said, 'Autism is a buzz word but no one really knows what the buzz is about.' Knowing the word is not enough. Believe it's up to us - all of us who live this life - to change that.

- Jess
11:16 AM on 04/06/2012
Thank you Jess. This is an important message that needs to be spread...before it is too late for another child.
10:39 AM on 04/06/2012
As the mother of an adopted child b/c my husband and I couldn't have a biological child, stories like these make me want to scream! To think that we still have a stigma attached to anything that is not "normal" (and just what is that anyway?) infuriates me. So many people desperately want to have children and can't. Every one of these precious lives, snuffed out, when there is so much love waiting for them elsewhere.

There is no reason, ever, to hurt a child! We MUST help the world understand this! Autism, Down Syndrome, CF, MD, the list of childhood "issues" goes on and on! Please, help educate the ignorant. Show them that all lives are meaningful, productive, lovable and worthwhile despite any challenges they may face.

My heart aches for the children who must live in similar conditions, unloved & unwanted by undeserving parents.
01:52 PM on 04/06/2012
"all lives are meaningful, productive, lovable and worthwhile despite any challenges they may face"

Amen.
09:40 AM on 04/06/2012
I hated to read this post. I needed to read it. I need to remember to season my words, to try to share all the good and beautiful; I am so thankful for your blog, and those of others who have made my introduction to this journey something manageable, something not to be feared or hated or anything these mothers were feeling.
01:45 PM on 04/06/2012
"I hated to read this post. I needed to read it."

I can relate. I hated to write this post. I needed to write it.
09:36 AM on 04/06/2012
I take these horrifying stories as a warning. I understand being overwhelmed. I understand the exhaustion. I understand the isolation. And, frankly, I understand the grief. And some days are so hard that I wish I could have a "do-over." I beat myself up for not being more patient, more understanding, more supportive. Then someone else, maybe a teacher or aquaintance or neighbor or even a family member, says or does something so cruel, so intolerant, so judgmental...that I feel my inner warrior explode to life. I want to protect my children, not harm them. Usually, the comments originate from ignorance, not from malice. But what they don't understand is that they have just further isolated me and my family. We don't know exactly what happenend inside the minds of these troubled parents. Clearly and gratefully, they are the exception to the vast majority of parents raising autistic children (or any other child with special needs or a chronic illness). However, we can clearly see that, for some, there was an end to their ability to cope. We need to heed that inherent warning and do all that we can to prevent reaching the end of our own.
01:47 PM on 04/06/2012
We need to heed that inherent warning and do all that we can to prevent reaching the end of our own.

Amen.

There is no more noble act than seeking help.
08:48 AM on 04/06/2012
My heart breaks for those children...I cannot imagine ever harming my daughter, who brings so much joy to my life...even though some times are so difficult....but my heart also aches for those moms, who felt that was their best option...I have learned it is SO important to have a support group of others who get what you are going through...someone mentioned something about schools offering the resources, and yes I do think anyone/anyplace that can offer resources to help our families would be wonderful... It is all heartbreaking....
06:51 PM on 04/06/2012
kathy, it's heartbreaking on every level. truly. and yes, resources need not be limited to doctors and mental health professionals. support can come from a neighbor who reaches out a hand and takes the time to learn about our kids.
08:43 AM on 04/06/2012
It's hard to fathom. The challenges of having a child with special needs are great. When you do it with a community that loves and supports your child, even better. You can't do it alone. Last night I took my daughter to see a Disney show at Madison Square Garden. She introduced herself to every usher, every person selling popcorn, to pretty much everyone in the audience. She was so excited to be at the show that she couldn't stop rocking. Every chair in our aisle rocked along with her. Yet, no one complained, everyone got the situation right away and everyone was kind and welcoming. I can't imagine a world where people can't reach out to a parent who is alone or in distress, and there are many times when the job at hand is hard. All it takes is a little kindness. Seek out teachers who are compassionate. Fight the board of ed if they don't give your child what they need, and find neighbors who will take the time to say hello and feel comfortable talking to your child as opposed to the ones who ignore them or keep their head down. The world is full of good, but you as the parent must seek it out.
01:53 PM on 04/06/2012
The world is full of good, but you as the parent must seek it out.

Yes. It's there. It truly is. Even when it feels impossible. It's there.
08:34 AM on 04/06/2012
this post hurts to read. My heart breaks for parents who feel no way out. I understand those moments of sheer desperation. But the hope tht glimmers through our kids , our amazing sweet children needs to shine so people can see it isnt just doom and gloom. there is hope and love on this side of it
01:54 PM on 04/06/2012
"the hope that glimmers through our kids , our amazing sweet children needs to shine so people can see it isnt just doom and gloom"

Amen.
08:31 AM on 04/06/2012
This is a very important message. Thank you for writing it!!
06:54 PM on 04/06/2012
thank you for reading it :)