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A New Tool for Treating Transgender People

Posted: 04/17/11 12:27 PM ET

Last week saw the release of a very important new resource for medical providers serving transsexual and gender-variant patients. The Primary Care Protocol for Transgender Patient Care is a web-based resource that goes beyond hormone treatment and surgery options to cover important topics such as sexual health and fertility, cancer and cardiovascular disease, patient intake and insurance issues, and harm reduction.

The Protocol is the creation of The Center of Excellence for Transgender Health at the University of California, San Francisco. The Center's aim is to increase access to comprehensive, effective and affirming health care services for trans and gender-variant communities.

Since 1979 we have had guidelines to qualify transsexual people for treatment, but little to help medical providers care for those who qualify. The Standards of Care document (SoC), published by the World Professional Association for Transgender Health, articulates the qualifications for hormone treatment and surgery and the steps along the way of a gender transition, but is not a clinical practice guide.

This has left medical providers somewhat on their own to learn how to treat those who qualify. And, because of this, transsexual people have come to expect that their medical provider will know less about transsexualism than the patient.

This situation began to change in 2009 with the issuance by The Endocrine Treatment of Transsexual Persons: An Endocrine Society Clinical Practice Guideline. For the first time, medical professionals had professional guidance for the endocrine treatment of transsexual persons.

The issuance of the new Primary Care Protocol is another big step forward. It gives medical professionals easy access to the consensus of eight physicians with extensive experience treating transsexual patients. The Protocol also gives doctors a credible source which can be helpful in responding to inaccurate information patients may receive through community grapevines or other non-medical sources.

The Protocol comes online at a time of increased focus on lesbian, gay, bisexual, and transgender (LGBT) health. As researcher Dr. Judy Bradford noted on April 11 in The Huffington Post:

Last Friday, the Department of Health and Human Services issued a set of recommendations calling for a major, well-funded effort to include LGBT people in its research, and address the health care disparities that exist throughout our population. The day before, the Institute of Medicine (IOM) released a report, The Health of Lesbian, Gay, Bisexual, and Transgender People, that finally provides a comprehensive picture of the state of our community's health, and of the challenges we face in pursuing comprehensive treatment and medical care of every portion of the LGBT population. It is about time -- because on multiple levels, those disparities are too significant to ignore.

What's significant is that both reports don't include transgender people as an afterthought, something other LGBT reports had been gulty of in the past. With this increased national focus on LGBT health, one can be hopeful that additional tools for medical providers serving transgender patients will soon be available.

 
 
 

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Last week saw the release of a very important new resource for medical providers serving transsexual and gender-variant patients. The Primary Care Protocol for Transgender Patient Care is a web-based ...
Last week saw the release of a very important new resource for medical providers serving transsexual and gender-variant patients. The Primary Care Protocol for Transgender Patient Care is a web-based ...
 
 
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HUFFPOST SUPER USER
libwingoflibwing
Leftist Christian, Non-Violent Revolutionary
05:28 PM on 04/24/2011
Just saw this article and I read the comments and the actual protocols....

....AND NOBODY, neither in the article or the comments, mentioned the biggest news of this.

It says that surgery, including breast augmentation in some cases and facial feminization surgery (FFS) are MEDICALLY NECESSARY. This is HUGE news. This is the biggest step forward towards full coverage by insurance, including Medicaid and Medicare.

Get this? It's not cosmetic. Even FFS. It's Medically Necessary.

By the way, "Medically Necessary," for those of you who don't know, is an insurance and Medicaid term and it means it is not elective but required and the payor must cover it.

Like I said, this is HUGE.
10:05 PM on 04/18/2011
It's so frustrating to think basic health care--health care that has to demonstrate an understanding for the unique issues transgender people face--is this hard to get in place. But so hopeful that finally maybe it is.
03:10 PM on 04/18/2011
This is very uplifting news. Now if only they'd fix the mischaracterization in the DSV and stop making trans folk jump through hoops for two years so they can confirm what we already know when at MOST 6 months of evaluation without the poking and prodding would be more than sufficient to confirm the diagnosis.
01:55 AM on 04/18/2011
Is there a difference between care and "treatment"? Gender expression varies according to cultural context. Ironically, I watched a Japanese film last night called the Burmese Harp. I was taken by the attire of the Buddhist monks and their shoulder bags. In this culture a male dressed similarly carrying a shoulder bag would be considered cross dressed. Why would a person be considered disordered because of this? Why would they need "treatment"? More importantly, however, why does someone who rejects a sex assignment have to be diagnosed with a mental disorder before getting medical care? Why are you calling it treatment? I think it is very unfortunate that the Gender Identity Disorder dx is a necessary part of the WPATH SOC and was used by GLAD to win the U S Tax Court decision. Just today I watched a video where Gender Identity Disorder was used as a reason not to pass civil rights legislation in Maryland. This has been a line of reasoning used often. . Transsexualism is a medical issue but repeatedly it is presented as a disordered psychological behavior by people who control the discourse. Such misunderstanding is further perpetuated by constant reference to vague dichotomous terms such as gender, the very hazily defined term "transgender" and the essentially meaningless "gender variance". Those who control the discourse on these subjects mislead the public when there is a fair amount of dissent regarding the way transsexualism and intersex is presented to the public or, rather, not presented.
12:07 PM on 04/19/2011
Actually, terms like "transgender" and "gender variant" are part of a drive within the psychological and trans communities to de-stigmatize and de-pathologize behavior and identities that do not fall within typical gender boundaries.

I'm not sure why you think that the people who are so determined to prevent expansion of trans rights and protections would be stymied by a change in nomenclature. It's a bad idea, in general, to appeal to the misuse of nomenclature by bigoted and ignorant people in trying to re-form a medical consensus. The DSM-V will, hopefully, further clarify GID to refer explicitly to the distress and conflict caused by gender incongruence, and not to the state of someone who has completed transition and is happier and healthier than before.
01:22 AM on 04/18/2011
I think it is wonderful that there are some guidelines being put out there. But are these 8 doctors really that experienced with transsexuals when they label all of them transgender an umbrella term attached to the lgb. I'm not gay I'm transsexual a totally different thing and I don't appreciate them placing me under another unwanted label and associating me by default with a group I have nothing in common with.Didn't anyone take the time to explain to them the history of the word and how derogatory it is to transsexuals to place them under it? Please find a new word not associated with the gay community or just go back to using Transsexual only.
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hackerblaster
I did not mean that to be a factual statement.
04:43 AM on 04/18/2011
co-sign!
12:01 PM on 04/19/2011
"But are these 8 doctors really that experience d with transsexua ls when they label all of them transgende r an umbrella term attached to the lgb."

Yes, they are. I don't think any of us have any doubt that the association is political. With that said, it's also a very useful alliance and we do have a lot in common with LGB people. To claim otherwise is ludicrous.

Frankly, you come off as ashamed to be connected to gay people in any way, and I don't think you mean that.
02:31 PM on 04/19/2011
I think you feel to realize what your saying is in conflict with itself. First if it is a political only association why are they pushing for a medical association IE the word transgender which from its very beginning was meant to be a put down to transsexuals? Secondly the vast majority of T people whether they be Cd's or TS's are heterosexual not LGB who gave them the right to claim a political affiliation with us? Can you prove the vast majority of TS's, Cd's, Gender Queers are happy with this claimed political alliance? If the word transgender is an umbrella term it is ludicrous to believe all of those under the umbrella term have the same medical needs or political needs.As for who is phobic about who can you name one heterosexual identified TS woman or heterosexual woman of TS history that works for any national transgender group or LGBT organization? Let's go even further how many transpeople do you see working for LGB orgs?
05:20 PM on 04/19/2011
You mean to say that you don't know the history of the word transgender or its original intent. The word was invented by a crossdresser that thought transsexuals should be institutionalized his name was Charles Prince and this is easily verified. Second those who originally pushed to change the meaning from his towards an umbrella term were those who originally failed to meet the original guidelines for transition and that felt hostility towards the word transsexual for it (The Transexual Menace).Here are words from Michelle Einfeld made during in NPR piece promoting the NCTE NGLTF survey you reference." I just want people to understand that as transgendered individuals, as a transgender community, we are not trying to put out there that we are going to change medically to fit into this." Then why medical guidelies?
Now as far as you using the survey to claim that I am incorrect lets look at what one of the lead authors had to say about it in the same NPR piece:We spent a year calling transgender-led and transgender-serving organizations all over the country and asking them to provide a contact person who would disseminate this survey in the communities they were working in.
So our sample is a bunch of folks who are connected in some way to transgender LGBT communities through organizations, some of them social, culturalily oriented, anything that you can imagine.
To be continued
HUFFPOST SUPER USER
caland
SOCIALISM IS AWESOME
10:05 PM on 04/17/2011
this is great news for me and and the whole community. but..doctors can be bigoted wich can also be bad.
03:55 PM on 04/17/2011
I think what is desperately needed is a way for a trans person to find a doctor or health care provider that is safe to go to. Right now, one has to try only to risk abuse or worse. Could there be some sort of list of non bigoted providers or perhaps a certification system that the facility is safe for trans people?
04:41 PM on 04/17/2011
The best thing you can possibly do is find a local support group and get feedback about the endocrinologists, therapists, and other professional service providers (i.e.: laser hair removal, voice coaches, pharmacists) who are trans-friendly from those with direct experience.

Even though the support groups have people from all walks of life - some of whom may be a little rough around the edges - you can never have too many friends when going through this process.
02:07 PM on 05/13/2011
Try a gay doctor... In my experience they're very nice.
HUFFPOST SUPER USER
Jamie Dufour
another day in paradise
02:04 PM on 04/17/2011
The right tools are needed and this is a step in the right direction. No one asks to go through this, and so many are born with one thing or another...and more and more we are all learning. Surely many will benefit from this and in time many more future individuals will be able to find the help they need before it is too late.....
01:18 PM on 04/17/2011
I have a question about the effect of estrogen on men and women. These days doctors seem reluctant to prescribe much-needed estrogen for women in their 50s and beyond. And yet doctors will inject loads of estrogen into a male who wants a sex change operation.

I find it hard to believe that it is safer for a male to be given estrogen than it is for a woman. What is western medicines rationale for these choices?
02:25 PM on 04/17/2011
It's not "safer", per se, and transgender women are required to complete regular blood work in order to make sure that the dosage of estrogen being taken won't cause adverse side effects. Believe me, the doctors are not just willing to "inject loads" of estrogen into you, ever. It has been a lengthy process going from a very small dose I was started on to the three-prescription treatment I take today.

That being said, a biological woman in her 50's is probably more susceptible to the blood clots and cancers that can be caused by increased estrogen levels than a transgender patient in their teens or 20's, when most go through transition. The bottom line is, though, that it doesn't matter if you're biologically female or male; playing with any hormone (estrogen, testosterone, whatever) can kill you.

It's about time that guidelines like these are being laid out. So few transgender people have access to endocrinologists who specialize in transgender treatment; hope this helps increase the quality of their experiences.
04:02 PM on 04/17/2011
Thanks for a thoughtful reply. I must say as a cancer survivor (estrogen-driven), I have worried about this too -- suspect that no one really knows the answers in terms of long-term effects, and I'm afraid trans people are the guinea pigs. (We all are, of course, given the number of hormone mimics and carcinogenic toxins in our environment.)
04:05 PM on 04/17/2011
Let us hope that the medics finally get it right. Biological estogenation involves two internal organs which operate through the blood stream. By necessity every organ is affected because the blood nourishes and cleanses all cells of the body, carrying it's payload everywhere.

TGs do not benefit from total estrogenation. Nobody has ever complimented another "My, you have a very feminine gall bladder, dear".

The nature of law and Home-Schooled Tea Party nits on juries, says never apply estrogens to the breasts or face, because this brings lawsuits and medical bankruptcy if something goes wrong. Well, things go wrong with regularity, so the places which need the most feminization get the same amount as the pancrease and therefore the hormone levels need to be higher causing more things to go wrong more often.

Crazy isn't it, when home-schooled Tea Party nits make the medical laws for college graduates?

Of course the proper approach is to recognize that, if you were prone to breast cancer you would get it from estrogen applied to the bloodstream just as likely as applied transdermally to the breast only. Neither route is safer, but one route reduces the risks of rectal-colon cancers and ancers of the stomach, and the other does not. Can you guess which is safer than the other: whole body estrogenation, or targeted estrogen application? Can you guess which method applies more total estrogen than is actually required to achieve a particular effect?
01:10 PM on 04/25/2011
Why the emphasis on "home-schooled" Tea Party nits? Where is this new trend coming from now? I was home-schooled and happen to be a well rounded lesbian in a committed relationship who has never considered taking a Republican stance on any issue.

It hasn't just been your comment, I'm starting to see this term crop up in other places as well. Homeschooling hasn't seen a significant partisan shift to my knowledge, there are always different people doing it differently (some place more emphasis on religion than others), but I guess it's just dandy now to attach a stigma to it.

Most tea party crazy folk I've had the displeasure of debating are just as public-schooled as many of you. The one or two who are home-schooled are not representative of the whole and I will be pissed if this becomes a new stereotype. I was fine with socially inept spelling bee champion.
01:15 PM on 04/17/2011
I hope that their is a -Liberal- god and he blesses all human beings???
Genders
Love, Tolerance, Enlightenment
05:16 PM on 04/17/2011
Jesus did. Who where you thinking of?
05:34 PM on 04/17/2011
-Liberalism- has only been around in its present form for the last fifty years, does that mean that a liberal god has only been in existence for such a short period of time? Then you have to question the existence of a -Liberal god-???
Genders
Love, Tolerance, Enlightenment
06:08 PM on 04/17/2011
The founders were Locke, Kant, free education for all, social justice, anti banstker and concentrated wealth, FDR Kucinich flaming liberals fighting against the Burke, corporatist, Tory conservative British Empire. You didn't know? Or do you have your private definition of liberal?

Btw Jesus was a liberal. Jesus gave out free food, wind, education and health care and told his followers to do the same.

Jesus told the money lovers they had very little chance at heaven.
05:22 AM on 04/18/2011
WOW! -You- gave a very good answer???