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Laura Rossi Totten

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Special Needs Motherhood: Are You Mom Enough?

Posted: 05/15/2012 4:27 pm

Last week I decided not to write about the Time magazine cover after I saw the controversial images online. Why? I didn't want to publicize a piece perpetuating The Mommy Wars (or help TIMEsell more issues). But as the days passed and the posts (and parodies) piled up, I couldn't ignore one question that consumed me -- where does the special needs parenting community fit into The Mommy Wars?

The answer: We don't.

Regardless of a child's diagnosis, special needs mothers aren't in a civil war with other special needs mothers.

As any parent of a special needs child will confirm, we desperately need one another: We cling to the fact that we are part of the same team, we want to support each other and we couldn't survive without our like-minded community. Sure, we may practice attachment parenting (or not), we may chose the bottle over the breast and we may stay-at-home instead of work, but regardless of perceived (or very real) differences, we are all bound by the universal fact that we never, ever feel like we can do enough for our special needs child(ren). Speaking from experience, it is humanly impossible for one person to meet all the needs of a child with a disability, but that doesn't stop us from trying every single day or from cheering loudly for one another all the time.

The judgment-free acceptance that defines the special needs motherhood community has strengthened my confidence, my resolve and most of all my commitment to stand alongside my sister-moms as they battle the real Mommy Wars -- fighting for the best interests, the rights and the best practices for their children.

Since I've learned almost as much from other special needs mothers as I have from actually parenting my son (and his twin sister), I humbly submit my special needs mommy manifesto in hopes that it stops even one battle.

The Special Needs Mommy Manifesto

We really are all In this together.

Yes, I've been there, too.

A smile is worth a thousand words -- a supportive grin, a meaningful gesture or a quick wink can change an entire day.

Things can always be worse.

Our mothers were right: Don't ever judge a book by it's cover, even if my child is having a meltdown at your feet or isn't using his fork.

If you haven't walked in my shoes/sneakers/flip-flops/Uggs, please don't offer unsolicited advice.

Deal with real issues -- don't waste precious time on the meaningless.

If you don't have something nice to say, please choose silence -- we'll both feel better.

Collective finger crossing, hugs and hand-holding are some of our most powerful weapons as moms.

Every day I am doing my very best, just like you.

Say thank you often -- and loudly -- to other mothers.

Almost everything I ever really needed to know about motherhood I learned from other moms.

Mom-ness can't be measured -- 50 Shades of Motherhood is a fantasy.

Mother On.

 
 
 

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03:16 PM on 05/16/2012
Great article ... and as a special needs FATHER ... I would concur that this manifesto can certainly apply to dads as well.

Matt
www.emersonshope.org
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BookPRGirl
Laura Rossi Totten
09:12 AM on 05/17/2012
Matt - you are right! 100% right. Moving forward, I will stress this too when talking about this issue. Glad to have a FATHER here -- it's so important that you added your important voice and opinion on HuffPost. Thank you very much.
11:06 PM on 05/15/2012
Wonderful article.

I've been in a few special needs mommy war groups...and I left fairly quickly. For the most part, though, it hasn't been difficult to find groups of moms (and dads) with special needs kids who are not judgmental - no religious, cultural, socio-economic or parenting style wars. We're just trying to make it through the day and do the best we can for our kids, and are tickled to have others listen and share.
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BookPRGirl
Laura Rossi Totten
04:08 PM on 05/16/2012
"We're just trying to make it through the day and do the best we can for our kids, and are tickled to have others listen and share." You nailed it! Thanks Maine2E.
09:16 PM on 05/15/2012
I loved this post. The past 6 years of my life were aimed directly at advocating for my child, but it was such a steep learning curve. I would have been completely crushed were it not for all of the support I got from other SN moms who understood what I was going through, not just with my kid, but with family, friends... and the playground... god, the playground was such a nightmare until I began to connect with other moms who understood sensory issues. Thank you, Laura!
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BookPRGirl
Laura Rossi Totten
09:31 PM on 05/15/2012
Rachel, our first experiences were with Sensory Processing issues, too, and you are so, so right about the playground. Ugh. Shuddering at the memories (along with tough memories about play-groups, play-dates, pre-school, birthday parties, music classes, etc...) Happily, everything changes when you connect with other SN Moms (and Dads) doesn't it?
09:06 PM on 05/15/2012
Love this piece Laura!
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BookPRGirl
Laura Rossi Totten
09:27 PM on 05/15/2012
Thank MLW. xoxo
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HUFFPOST SUPER USER
hharrison22
05:38 PM on 05/15/2012
Thank you so much for this article. You are absolutely correct. Mothers with special needs aren't engaging in these ridiculous wars because frankly, they realize how insignificant they really are. It's too bad it couldn't be the manifesto for all of us.

"The child psychologist who thought she had all the answers to parenting until she became one herself." www.themommypsychologist.com
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BookPRGirl
Laura Rossi Totten
09:27 PM on 05/15/2012
Thank you very much. We all need to support one another -- special needs or not!