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Maria Shriver Takes on Alzheimer's Advocacy

Posted: 08/16/10 07:32 PM ET

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Maria Shriver: a march and candlelight vigil to raise awareness about Alzheimer's will begin her 2010 Women's Conference.

For Maria Shriver, a passion for public service and activism comes naturally. She is the daughter of Sargent Shriver, a Democratic presidential candidate in 1972 and the first director of the Peace Corps, and Eunice Kennedy Shriver, the founder of the Special Olympics and sister of President John F. Kennedy and Senators Robert and Ted Kennedy.

She follows in esteemed footsteps, but Maria Shriver has become a trailblazer in her own right. She is an award-winning journalist and bestselling author. Assuming the mantle of California First Lady in 2003, when her husband Arnold Schwarzenegger became the state's 38th governor, she took a leave from her job as a journalist for NBC News. Yet in her time away from a successful broadcasting career, Shriver has managed to transform the office of First Lady by approaching it not simply as a title, but as a powerful platform to make a difference, particularly in the lives of women.

Shriver has created several programs to empower and assist women throughout California under a banner called WE. Launched in 2003, the California Governor & First Lady's Conference on Women has grown into one of the most influential women's meetings in the world, attracting more than 30,000 attendees and more than 100 world opinion leaders. This year's conference, from October 24 to 26 in Long Beach, will feature an eclectic lineup of journalists, entertainers and leaders that includes Mary J. Blige, Campbell Brown, Deepak Chopra, Linda Ellerbee, Sally Field, Jane Fonda, Supreme Court Justice Ruth Bader Ginsburg, Arianna Huffington, Donna Karan, Billie Jean King, Matt Lauer, Robert Redford and Diane Sawyer.

For this year's conference, Shriver will incorporate another cause she cares deeply about, Alzheimer's advocacy. Leading a March on Alzheimer's and Candlelight Vigil on October 24, she hopes to raise funding and awareness about the debilitating disease, which currently affects over five million Americans.

Shriver explains that she wanted to begin the conference with a focus on service "because I was raised by two incredible servants of the public good, and I'm passionate about women and families. I'm passionate about Alzheimer's." The disease strikes an especially personal cord, as her father was diagnosed with Alzheimer's seven years ago. She says, "Back then I didn't know really anything about the disease -- I knew that President Reagan had been diagnosed, but that was really about all ... My brothers and I and my mother had no idea what our father would go through." When she tried to gather information, she found "a very bleak and dark landscape out there -- people didn't talk about it."

So Shriver returned to her own journalistic instincts to create and share information and resources about the disease, beginning with writing the children's book, "What's Happening to Grandpa?" Says Shriver, "I had written two previous children's books about issues that people found difficult to talk about [on dealing with death and mental disabilities]. And it was a way to really process for myself the diagnosis of Alzheimer's."

Her children's book led to "The Alzheimer's Project," a four-part documentary she produced on HBO in 2009 accompanied by a website, DVDs and printed materials. Shriver says that the documentary has become HBO's "most successful and biggest television event ever with over nine million media impressions." She adds, "I think that was a big turning point for Alzheimer's. It coincided with the increase in numbers and brought an issue out of what I would call the 'dark room' and into the living room." In 2009, Shriver testified before the U.S. Senate Special Committee on Aging, offering advice to families and caregivers who are affected by Alzheimer's.

Shriver calls Alzheimer's a "mind blowing disease," in every sense of the word. "To see somebody who might have been the smartest person you know, who might have been the best speaker you have ever laid eyes on, who might have had an illustrious career, and they look like that person -- they're walking around as that person -- but they're not that person, it really does blow your mind."

The March on Alzheimer's (at which Leeza Gibbons and Peter Gallagher will emcee and Jane Fonda will warm up marchers with stretching exercises) also allows Shriver to spotlight the connection between women and the disease. "Seventy percent of the people who develop Alzheimer's are women, and the vast majority of the people caring for people with Alzheimer's -- and mind you Parkinson's, Huntington's, stroke victims -- are also women." Coinciding with this year's conference she will also be releasing "The Shriver Report: A Woman's Nation Takes On Alzheimer's," which is a new installment following up last years groundbreaking study on women as half of U.S. workers.

Focusing this year's report on Alzheimer's reflects her belief that "this disease needs more money, more conversation, more adjustments by all of our leading institutions than perhaps any other in American life." The disease disproportionately affects women "not just as the person living with the disease, but women are the primary caretakers of the elder generation." As both caregivers and patients, she says, "we need help! We need help from our businesses where we work, with flex hours. We need help from our government, which is the largest employer in the nation. We need to have a conversation and ask 'where are our priorities?'"

For Shriver, it's part of another important dialogue: a "national conversation about aging," observing that "we don't know, and particularly women don't know the right way to age." She says, "We're told what maybe we should wear in our fifties or sixties or seventies, but not how we should act, how our brains will work." Shriver also believes that further studies of the brain are necessary, calling the mind "the new moon." She adds, "If President Kennedy could launch a space program to explore space and land a man on the moon, we should be launching a program, to launch the clues, the answers, to the human brain." The next frontier involves "how we think, how we remember, how we love, how we process information." The answers to these questions, and to Alzheimer's and many other diseases, "are inside the brain and the mind. I am interested in all of those subjects and how they interconnect."

Shriver, who says she is also a big believer in "allowing people to change," will be facing a major life transition herself when her husband leaves office at the end of the year and she ends her First Lady stint, though she will certainly continue to use her powerful voice to mobilize and inspire women. "The goal of the Women's Conference, under my direction, has really been to empower women to be architects of change. If you want to be an architect of change by raising great kids, God bless. If you want to do it by raising money for your kid's school, great. If you want to build a garden -- whatever it is."

Shriver says, "Women like myself -- they're complicated, and they have a lot of different interests and qualities within them." She adds, "Women somehow get portrayed as one type. You're either a feminist or you're not. You're a working woman or you're not. I'm raising two girls, and I say to them, 'I need you to be strong and soft. You can be smart and beautiful ... You can be all of these things.' The more we give each other examples of that, the more honest we are with each other, the little bit easier it is to use your voice and step out."

For more information on the March on Alzheimer's and to register online, click here. To read Marianne Schnall's extended interview with Maria Shriver, click here.

This article originally appeared at The Women's Media Center.

 
 
 

Follow Marianne Schnall on Twitter: www.twitter.com/marianneschnall

Maria Shriver: a march and candlelight vigil to raise awareness about Alzheimer's will begin her 2010 Women's Conference. For Maria Shriver, a passion for public service and activism comes naturally...
Maria Shriver: a march and candlelight vigil to raise awareness about Alzheimer's will begin her 2010 Women's Conference. For Maria Shriver, a passion for public service and activism comes naturally...
 
 
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HUFFPOST BLOGGER
Marguerite Manteau-Rao
01:52 PM on 08/21/2010
Alzheimer's is a tragedy yes, and it is more than that also. Alzheimer's can be a profound source of healing for both patients and the ones who care for them. The big difference is in how we experience the illness, moment to moment. It has certainly been for me, as I learned to relate differently to my mother, and also the people I serve at Zen Hospice.

Today, I just wrote a post from the heart, here at HuffPo: 'The Good News About Alzheimer's: How Mindfulness Can Heal Patients and the Ones Who Care for Them
http://www.huffingtonpost.com/marguerite-manteaurao/the-good-news-about-alzhe_b_689844.html

I encourage you to read it, and start planting the seeds of mindfulness in your mind and heart. May they grow and blossom into deeply loving exchanges with your loved ones.
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HUFFPOST SUPER USER
Barbara Hannah Grufferma
author, The Best of Everything After 50
03:16 PM on 08/18/2010
This is such an important health issue, and one which is very near to my heart. My grandmother, who raised my sister and me, died of this dreadful disease. Thank you, Marianne, for posting this, and thank you, Maria for making this your mission.
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farmilyman
everything is illusion
12:07 AM on 08/18/2010
Vitamin D reduces brain inflammation and prevents Alzheimers. High dose niacinamide could possibly reverse it.
01:48 AM on 08/18/2010
Where did you get that idea, farmilyman? Nothing prevents or reverses Alzheimers. Medicine's current great hope and current best medications, supplements, and diets only hope to slow the progress of the disease. Most don't. And none of them help everybody.

Alzheimer's is not an inflammation of the brain. It's far more complex than that and the scientists don't have the answers yet as to what causes it, not for sure, let alone what will cure it.

If you are trying to help people, thanks. But false hope takes attention away from the need for far more intense research and the funding and priorities for it.
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farmilyman
everything is illusion
11:10 AM on 08/18/2010
Here you go:

http://articles.mercola.com/sites/articles/archive/2010/07/20/does-depression-cause-alzheimers-disease-vitamin-d-helps-both.aspx

http://www.npr.org/templates/story/story.php?storyId=96747179

Although the niacinamide needs more study, the results are promising. It's worth trying.

Remember the primary mission of drug companies is to make money.
HUFFPOST SUPER USER
dojone
nada
04:39 PM on 08/18/2010
A friend of mine who had a life-threatening illness reminded me once that there is no such thing as false hope.There are those who survive on hope, while they wait for effective treatment, so it really is inaccurate to say that it is false. From my own experience with family member, Cannabis and caffeine work much better than the latest Alzheimer's medicine.
10:14 PM on 08/17/2010
Ouch!

http://www.biospace.com/news_story.aspx?NewsEntityId=191211&Source=TopBreaking

Amyloid beta theory.is looking weaker and weaker...
09:18 PM on 08/17/2010
I apologize in advance for the shallow comment, but are Maria Shriver and William Devane related? I'm just now realizing how much alike they actually look.
07:01 PM on 08/17/2010
"The Alzheimer's Reading Room has clear, concise, usable news, research, insight and advice for the entire Alzheimer's community."

Does this reading room include all the science that the pharmaceutical industry and lobbyist don't want us see? I have to ask...people need to consider that what they are reading is often only what these companies want us to read. Get the truth - research everything and always consider the sources.
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HUFFPOST SUPER USER
arneader
04:12 PM on 08/17/2010
We thought my father had alheizmer only to find out he'd a small stroke that was "old". It was a relief because I was distraughted over the fact he had this brain disease.
02:54 PM on 08/17/2010
This is so necessary for us to really address and I applaud Maria Shriver. My mother died
recently from Alzheimer...Hear her story in SONG of what she went thru.....
http://www.cynthiascott.com/Cynthia_Scott/Alzheimer_Song_Did_I_Know_You.html
if you are afraid to click on a link, as I am a lot of times...go to www.cynthiascott.com
Let's spread the word....no more shame
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HUFFPOST SUPER USER
time4truthnow
Truth about vaccinations activist
02:47 PM on 08/17/2010
When do we reveal what causes Alzheimer's?

"10 Million Baby Boomers Face Alzheimer's Epidemic"

"Approximately 10 million American baby boomers will develop Alzheimer‘s disease in their lifetime. This will place enormous strains on the U.S. health-care system.

At least 5.2 million Americans currently suffer from Alzheimer‘s. By 2010, there will be 500,000 new cases each year, and nearly one million new cases annually by 2050.

The disease is now the seventh deadliest illness in the nation."

http://articles.mercola.com/sites/articles/archive/2008/04/01/10-million-baby-boomers-face-alzheimer-s-epidemic.aspx

"New Warning About Everyday Poison Linked to Alzheimer's, ADHD, and Autism"

http://articles.mercola.com/sites/articles/archive/2010/03/20/david-ayoub-interview-february-2010.aspx

"America's Frightening Alzheimer's Epidemic"

"By 2030, one in four adults over 65 will have Alzheimer's. This unforgiving brain damage can cripple patients, families and the economy."

http://www.alternet.org/health/85532

"Are We Experiencing an Alzheimer's Epidemic?"
Incidence Has Soared Enormously

"The world may be experiencing an epidemic of Alzheimer's disease (AD) that is not entirely attributable to an aging population, new research suggests."

http://www.medscape.com/viewarticle/590106
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HUFFPOST SUPER USER
time4truthnow
Truth about vaccinations activist
02:54 PM on 08/17/2010
"Vaccines Cause Alzheimer's Disease"

http://www.whale.to/vaccines/flu11.html

There are those trying to cover up the facts to protect profits of who they represent who won't want this truth known. We need error admitted now. Big Pharma has to clean their house & get back to the original purpose that actually had our well being in mind.

Vaccines cause Autism, ADD/ADHD, Asthma, Allergies, Alzheimer's, Arthritis, Auto-immune & this is just the A's.
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krrush
a.k.a. surgeon
01:48 PM on 08/17/2010
Senile Dementia - Quite a sad ailment. Imagine not being able to remember if you loved this or that person, or hated this thing or that.
HUFFPOST SUPER USER
dojone
nada
01:10 PM on 08/17/2010
Maria has the perfect opportunity to support people with Alzheimer's and their families by supporting research into the use of Cannabis and other nonpharmaceutical treatments for this devastating disease, which is sometimes made worse by the pharmaceutical industry pushing medications that not only cause harm, but are extraordinarily expensive and do not help. I speak from the experience of a family member of someone with the disease and as a nurse.
This user has chosen to opt out of the Badges program
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BobDeMarco
Founder, Alzheimer's Reading Room
09:35 AM on 08/17/2010
The Alzheimer's Reading Room has clear, concise, usable news, research, insight and advice for the entire Alzheimer's community.

100 Million Americans have been touched by Alzheimer's Disease, 35 million are worried about Alzheimer's Disease.

http://www.alzheimersreadingroom.com/2010/02/about-alzheimers-reading-room.html